792
Views
4
CrossRef citations to date
0
Altmetric
Original Articles

The Experiences of Research Participants Living With Schizophrenia

, PhD, LCSW

REFERENCES

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: Author.
  • Argyris, C. (1968). Some unintended consequences of rigorous research. Psychological Bulletin, 70(3), 185–197.
  • Bleuler, E. (1911). Dementia praecox or the group of schizophrenia. New York, NY: International Universities Press.
  • Boothroyd, R. (2000). The impact of research participation on adults with severe mental illness. Mental Health Services Research, 2(4), 213–221.
  • Boothroyd, R., & Best, K. (2003). Emotional reactions to research participation and the relationship to understanding of informed consent disclosure. Social Work Research, 27(4), 242–251.
  • Brody, J., Gluck, J., & Aragon, A. (1997). Participants’ understanding of the process of psychological research: Informed consent. Ethics & Behavior, 7(4), 285–298.
  • Bunin, A., Einzig, J., Judd, D., & Staver, N. (1983). Inside the interview: Clinical considerations in the research interview. Clinical Social Work Journal, 11(1), 22–32.
  • Butler, I. (2002). A code of ethics for social work and social care research. British Journal of Social Work, 32(3), 239–248.
  • Carey, M., Morrison-Beedy, D., Carey, K., Maisto, S., Gordon, C., & Pedlow, C. (2001). Psychiatric outpatients report their experiences as participants in a randomized clinical trial. Journal of Nervous & Mental Disease, 189(5), 299–306.
  • Council on Social Work Education. (2007). National statement on research integrity in social work. Alexandria, VA: Author.
  • Danziger, K. (1990). Constructing the subject: Historical origins of psychological research. New York, NY: Cambridge University Press.
  • Dunn, L., Candilis, P., & Weiss-Roberts, L. (2006). Emerging empirical evidence on the ethics of schizophrenia research. Schizophrenia Bulletin, 32(1), 47–68.
  • Dworkin, R. (1992). Researching persons with mental illness. Newbury Park, CA: Sage.
  • Fleming, P. (2012). Social desirability, not what it seems: A review of the implications for self reports. The International Journal of Educational and Psychological Assessment, 11(1), 3–22.
  • Fromm-Reichmann, F. (1954). Psychotherapy of schizophrenia. American Journal of Psychiatry, 111, 410–419.
  • Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Chicago, IL: Aldine.
  • Holland, T. & Kilpatrick, A. (1991). Ethical issues in social work: Toward a grounded theory of professional ethics. Social Work, 36(2), 138–144.
  • Jeste, D., Depp, C., & Palmer, B. (2006). Magnitude of impairment in decisional capacity in people with schizophrenia compared to normal subjects: An overview. Schizophrenia Bulletin, 32, 121–128.
  • Jorm, A., Kelly, C., & Morgan, A. (2007). Participant distress in psychiatric research: A systematic review. Psychological Medicine, 37, 917–926.
  • Kaminsky, A., Roberts, L., & Brody, J. (2003). Influences upon willingness to participate in schizophrenia research: An analysis of narrative data from 63 people with schizophrenia. Ethics and Behavior, 13(3), 279–302.
  • Kaplan, H., & Sadock, B. (1998). Synopsis of psychiatry (8th ed.). Philadelphia, PA: Lippincott Williams & Wilkins.
  • Labott, S., & Johnson, T. (2004). Psychological and social risks of behavioral research. IRB Ethics & Human Research, 26(3), 11–15.
  • Landau, R. (2008). Social work research ethics: Dual roles and boundary issues. Families in Society, 89(4), 571–577.
  • Lincoln, Y., & Guba, E. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.
  • Marshall, R., Spitzer, R., Vaughan, S., Vaughan, R., Mellman, L., MacKinnon, R., & Roose, S. (2001). Assessing the subjective experience of being a participant in psychiatric research. American Journal of Psychiatry, 158, 319–321.
  • McLellan, E., MacQueen, K., & Niedig, J. (2003). Beyond the qualitative interview: Data preparation and transcription. Field Methods, 15(1), 63–84.
  • Mishler, E. (1986). Research interviewing: Context and narrative. Cambridge, MA: Harvard University Press.
  • Monette, D., Sullivan, T., & DeJong, C. (1998). Applied social research: Tools for the human services (4th ed.). Toronto, Canada: Harcourt Brace College Publishers.
  • National Association of Social Workers. (1996). Code of ethics in social work. Washington, DC: Author.
  • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1979). The Belmont report. Retrieved from http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html
  • National Institutes of Health. (2013). Estimates of funding for various research, condition, and disease categories. Retrieved from http://report.nih.gov/categorical_spending.aspx
  • Orne, M. (1962). On the social psychology of the psychological experiment: With particular reference to demand characteristics and their implications. American Psychologist, 17(11), 776–783.
  • Padgett, D. (1998). Qualitative methods in social work research: Challenges and rewards Thousand Oaks, CA: Sage.
  • Poindexter, C. (2003). The ubiquity of ambiguity in research interviewing: An exemplar. Qualitative Social Work, 2(4), 383–409.
  • Rapp, C., Wes, S., & Kirsthardt, W. (1993). Research strategies for consumer empowerment. Social Work, 38(6), 727–735.
  • Regier, D., Narrow, W., Rae, D., Manderscheid, R., Locke, B., & Goodwin, F. (1993). The de facto mental and addictive disorders service system: Epidemiologic Catchment Area prospective 1-year prevalence rates of disorders and services. Archives of General Psychiatry, 50(2), 85–94.
  • Roberts, L., Warner, T., Hammond, K., & Hoop, J. (2006). Views of people with schizophrenia regarding aspects of research: Study size and funding sources. Schizophrenia Bulletin, 32(1), 107–115.
  • Rogers, C., Gendlin, E., Kiesler, D., & Traux, C. (1967). The therapeutic relationship and its impact: A study of psychotherapy with schizophrenics. Madison, WI: University of Wisconsin Press.
  • Rosenthal, R. (1966). Experimenter effects in behavioral research. New York, NY: Appleton- Century-Crofts.
  • Saks, E., Dunn, L., & Palmer, B. (2006). Meta-consent in research on decisional capacity: A “Catch-22”? Schizophrenia Bulletin, 32(1), 42–46.
  • Shore, D. (2006). Ethical issues in schizophrenia research: A commentary on some current concerns. Schizophrenia Bulletin, 32(1), 26–29.
  • Silverman, H. (2011). Protecting vulnerable research subjects in critical care trials: Enhancing the informed consent process and recommendations for safeguards. Annals of Intensive Care, 1(8), 1–7. doi:10.1186/2110-5820-1-8
  • SPSS. (2008). SPSS statistics for Windows (Version 17.0) [Computer software]. Chicago, IL: SPSS.
  • Sullivan, H. (1953). The interpersonal theory of psychiatry. New York, NY: Norton & Co.
  • Trierweiler, S.J., Neighbors, H.W., Munday, C., Thompson, S.E., Binion, V.J., & Gomez, J.P. (2000). Clinician attributions associated with diagnosis of schizophrenia in African American and non-African American patients. Journal of Consulting and Clinical Psychology, 68, 171–175.
  • Weingarten, K. (1992). A consideration of intimate and non-intimate interactions in therapy. Family Process, 31(1), 45–59.
  • Wuebben, P., Straits, B., & Schulman, G. (1974). The experiment as a social occasion. Berkeley, CA: Gledessary Press.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.