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Articles

Self-Advocacy for Independent Life: A Program for Personal Self Advocacy after Brain Injury

References

  • Advocacy. (n.d.). West Virginia University, Center for Excellence in Disabilities. Retrieved from http://cedwvu.org/advocacy/types-of-advocacy.php
  • Alberti, R., & Emmons, M. (1990). Your perfect right: A guide to assertive living. San Luis Obispo, CA: Impact.
  • Backhaus, S., Ibarra, S., Parrott, D., & Malec, J. (2016). Comparison of a cognitive-behavioral coping skills group to a peer support group in a brain injury population. Archives in Physical Medicine and Rehabilitation, 97, 281–291. doi:10.1016/j.apmr.2015.10.097
  • Bandura, A. (1971). Social learning theory. New York, NY: General Learning Press.
  • Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychological Review, 84, 191–215. doi:10.1037/0033-295x.84.2.191
  • Brands, I., Kohler, S., Stapert, S., Wade, D., & van Heugten, C. (2014). Influence of self-efficacy and coping on quality of life and social participation after acquired brain injury: A 1-year follow-up study. Archives of Physical Medicine and Rehabilitation, 95, 2327–2334. doi:10.1016/j.apmr.2014.06.006
  • Brown, A. W., Moessner, A. M., Bergquist, T. F., Kendall, K. S., Diehl, N. N., & Mandrekar, J. (2015). A randomized practical behavioural trial of curriculum-based advocacy training for individuals with traumatic brain injury and their families. Brain Injury, 29, 1530–1538. doi:10.3109/02699052.2015.1075173
  • Cicerone, K., & Azulay, J. (2007). Perceived self-efficacy and life satisfaction after traumatic brain injury. Journal of Head Trauma Rehabilitation, 22, 257–266. doi:10.1097/01.htr.0000290970.56130.81
  • Corrigan, J., Whiteneck, G., & Mellick, D. (2004). Perceived needs following traumatic brain injury. Journal of Head Trauma Rehabilitation, 19, 205–216.
  • Curtin, R. B., Walters, B. A., Schatell, D., Pennell, P., Wise, M., & Klicko, K. (2008). Self-efficacy and self-management behaviors in patients with chronic kidney disease. Advances in Chronic Kidney Disease, 15, 191–205. doi:10.1053/j.ackd.2008.01.006
  • Dahlberg, C. A., Cusick, C. P., Hawley, L. A., Newman, J. K., Morey, C. E., Harrison-Felix, C. L., & Whiteneck, G. G. (2007). Treatment efficacy of social communication skills training after traumatic brain injury: A randomized treatment and deferred treatment controlled trial. Archives in Physical Medicine and Rehabilitation, 88, 1561–1573. doi:10.1016/j.apmr.2007.07.033
  • Dawson, J. (n.d.). Self advocacy: A valuable skill for your teenager with LD. LD Online. Retrieved from http://www.ldonline.org/article/Self-Advocacy
  • Degeneffe, C. E. (2001). Family caregiving and traumatic brain injury. Health Social Work, 26, 257–268. doi:10.1093/hsw/26.4.257
  • Degeneffe, C. E., Chang, F., Dunlap, L., Man, D., & Sung, C. (2011). Development and validation of the caregiver empowerment scale: A resource for working with family caregivers of persons with traumatic brain injury. Rehabilitation Psychology, 56, 243–250. doi:10.1037/a0024465
  • Faul, M. X. L., Wald, M. M., & Coronado, V. G. (2010). Traumatic brain injury in the United States: Emergency department visits, hospitalizations, and deaths. Retrieved from www.cdc.gov/traumaticbraininjury
  • Glang, A., McLaughlin, K., & Schroeder, S. (2007). Using interactive multimedia to teach parent advocacy skills: An exploratory study. Journal of Head Trauma Rehabilitation, 22, 198–205. doi:10.1097/01.HTR.0000271121.42523.3a00001199-200705000-00007[pii]
  • Hagan, T. L., & Donovan, H. S. (2013). Self-advocacy and cancer: A concept analysis. Journal of Advanced Nursing, 69, 2348–2359. doi:10.1111/jan.12084
  • Hagan, T. L., & Medberry, E. (2015). Patient education vs. patient experiences of self-advocacy: Changing the discourse to support cancer survivors. Journal of Cancer Education, 31, 375–381. doi:10.1007/s13187-015-0828-x
  • Hall, K. M., Karzmark, P., Stevens, M., Englander, J., O’Hare, P., & Wright, J. (1994). Family stressors in traumatic brain injury: A two-year follow-up. Archives in Physical Medicine and Rehabilitation, 75, 876–884. doi:10.1016/0003-9993(94)90112-0
  • Hawley, L. (1992, 2008, 2014). Self advocacy after brain injury. In L. Hawley (Ed.), SAIL: Self advocacy for independent life, (pp. 11–27). Denver, CO: Brain Injury Association of Colorado.
  • Heinemann, A. W., Sokol, K., Garvin, L., & Bode, R. K. (2002). Measuring unmet needs and services among persons with traumatic brain injury. Archives in Physical Medicine and Rehabilitation, 83, 1052–1059.
  • Hibbard, M. R., Cantor, J., Charatz, H., Rosenthal, R., Ashman, T., Gundersen, N., … Gartner, A. (2002). Peer support in the community: Initial findings of a mentoring program for individuals with traumatic brain injury and their families. Journal of Head Trauma Rehabilitation, 17, 112–131. doi:10.1097/00001199-200204000-00004
  • Johnstone, B., Mount, D., & Schopp, L. H. (2003). Financial and vocational outcomes 1 year after traumatic brain injury. Archives in Physical Medicine and Rehabilitation, 84, 238–241. doi:10.1053/apmr.2003.50097
  • Kiresuk, T. J., Smith, A., & Cardillo, J. E. (Eds.). (1994). Goal attainment scaling: Applications, theory, and measurement. Hillsdale, NJ: Erlbaum.
  • Kissel, H. (2006, April). Self-advocacy programs for college students with disabilities: A framework for assessment. Paper presented at the American Educational Research Association Annual Conference, San Francisco, CA.
  • Klonoff, P. (2010). Psychotherpay after brain injury: Principles and techniques. New York, NY: Guilford.
  • Levin, H. S., Grossman, R. G., Rose, J. E., & Teasdale, G. (1979). Long-term neuropsychological outcome of closed head injury. Journal of Neurosurgery, 50, 412–422. doi:10.3171/jns.1979.50.4.0412
  • Man, D. (1998). The empowering of Hong Kong Chinese families with a brain damaged member: Its investigation and measurement. Brain Injury, 12, 245–254. doi:10.1080/026990598122728
  • Man, D. (1999). Community-based empowerment programme for families with a brain injured survivor: An outcome study. Brain Injury, 13, 433–445. doi:10.1080/026990599121485
  • Man, D., Soong, W., Tam, S., & Hui-Chan, C. (2006). Self-efficacy outcomes of people with brain injury in cognitive skill training using different types of trainer-trainee interaction. Brain Injury, 20, 959–970. doi:10.1080/02699050600909789
  • Masel, B. (2009). Conceptualizing brain injury as a chronic disease. Vienna, VA: The Brain Injury Association of America.
  • McDonald, S., Tate, R., Togher, L., Bornhofen, C., Long, E., Gertler, P., & Bowen, R. (2008). Social skills treatment for people with severe, chronic acquired brain injuries: A multicenter trial. Archives in Physical Medicine and Rehabilitation, 89, 1648–1659. doi:10.1016/j.apmr.2008.02.029
  • Merchant, D., & Gajar, A. (1997). A review of the literature on self advocacy components in transition programs for students with learning disabilities. Journal of Vocational Rehabilitation, 8, 223–231.
  • Morton, M. V., & Wehman, P. (1995). Psychosocial and emotional sequelae of individuals with traumatic brain injury: A literature review and recommendations. Brain Injury, 9, 81–92. doi:10.3109/02699059509004574
  • Oxford Dictionary Online. (n.d.). Retrieved from http://www.oxforddictionaries.com/us/definition/american_english/advocacy
  • Pickelsimer, E. E., Selassie, A. W., Sample, P. L., Heinemann, A. W., Gu, J. K., & Veldheer, L. C. (2007). Unmet service needs of persons with traumatic brain injury. Journal of Head Trauma Rehabilitation, 22(1), 1–13. doi:10.1097/00001199-200701000-00001
  • Rao, V., & Lyketsos, C. (2000). Neuropsychiatric sequelae of traumatic brain injury. Psychosomatics, 41(2), 95–103. doi:10.1176/appi.psy.41.2.95
  • Roberts, E., Ju, S., & Zhang, D. (2016). Review of practices that promote self-advocacy for students with disabilities. Journal of Disability Policy Studies, 26, 209–220. doi:10.1177/1044207314540213
  • Selassie, A. W., Zaloshnja, E., Langlois, J. A., Miller, T., Jones, P., & Steiner, C. (2008). Incidence of long-term disability following traumatic brain injury hospitalization, United States, 2003. Journal of Head Trauma Rehabilitation, 23, 123–131. doi:10.1097/01.HTR.0000314531.30401.39
  • Straits-Troster, K., Gierisch, J. M., Strauss, J. L., Dyck, D. G., Dixon, L. B., Norell, D., & Perlick, D. A. (2013). Multifamily group treatment for veterans with traumatic brain injury: What is the value to participants? Psychiatric Services, 64, 541–546. doi:10.1176/appi.ps.001632012
  • Test, D., Fowler, C., Wood, W., Brewer, D., & Eddy, S. (2005). A conceptual framework of self-advocacy for students with disabilities. Remedial and Special Education, 26(1), 41–54. doi:10.1177/07419325050260010601
  • Thyer, B., & Myers, L. (2011). Behavioral and cognitive theories. In J. Brandell (Ed.), Theory and practice in clinical social work, (pp. 21–40). Los Angeles, CA: Sage.
  • Tverdov, A. H., McClure, K. S., Brownsberger, M. G., & Armstrong, S. L. (2016). Family needs at a post-acute rehabilitation setting and suggestions for supports. Brain Injury, 30, 324–333. doi:10.3109/02699052.2015.1113566
  • Verhaeghe, S., Defloor, T., & Grypdonck, M. (2005). Stress and coping among families of patients with traumatic brain injury: A review of the literature. Journal of Clinical Nursing, 14, 1004–1012. doi:10.1111/j.1365-2702.2005.01126.x
  • Yalom, I., & Leszcz, M. (2005). The theory and practice of group psychotherapy (5th ed.) New York, NY: Basic Books.
  • Ylvisaker, M., & Feeney, T. J. (1996). Executive functions after traumatic brain injury: Supported cognition and self-advocacy. Seminars in Speech and Language, 17, 217–232. doi:10.1055/s-2008-1064100

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