Infertility Consumer Health Information and Resources

References

• Agarwal, P. 2019. “The Very White Face of Infertility Suggests Women of Colour Don’t Need Support.” Independent. https://www.independent.co.uk/voices/infertility-ivf-nhs-race-lgbt-asian-black-women-a9216921.html (accessed October 31, 2023).
   Google Scholar
• Assaysh-Öberg, S., C. Borneskog, and E. Ternström. 2023. Women’s experience of infertility & treatment – a silent grief and failed care and support. Sexual & Reproductive Healthcare: Official Journal of the Swedish Association of Midwives 37: 100879. doi:10.1016/j.srhc.2023.100879.
   PubMed Web of Science ®Google Scholar
• Chandra, A., C. E. Copen, and E. H. Stephen. 2013. Infertility and Impaired Fecundity in the United States, 1982-2010: Data From the National Survey of Family Growth. National Health Statistics Reports, no. 67: 1–18, 1 p following 19.
   Google Scholar
• Fine, E., A. Peyser, B. Abittan, C. Mullin, and R. H. Goldman. 2023. The voice of infertility: A review of fertility podcasts. Human Fertility (Cambridge, England) 26, no. 2: 284–288. doi:10.1080/14647273.2022.2082328.
   PubMed Web of Science ®Google Scholar
• Hinton, L., J. J. Kurinczuk, and S. Ziebland. 2010. Infertility; Isolation and the Internet: A Qualitative Interview Study. Patient Education and Counseling 81, no. 3: 436–441. doi:10.1016/j.pec.2010.09.023.
   PubMed Web of Science ®Google Scholar
• Hollos, M. 2003. Profiles of infertility in Southern Nigeria: Women’s voices from Amakiri. African Journal of Reproductive Health 7, no. 2: 46–56. doi:10.2307/3583213.
   PubMedGoogle Scholar
• Insogna, I. G., and E. S. Ginsburg. 2018. Infertility, inequality, and how lack of insurance coverage compromises reproductive autonomy. AMA Journal of Ethics 20, no. 12: e1152–e1159. doi:10.1001/amajethics.2018.1152.
   PubMedGoogle Scholar
• Kahlor, L., and M. Mackert. 2009. Perceptions of infertility information and support sources among female patients who access the internet. Fertility and Sterility 91, no. 1: 83–90. doi:10.1016/j.fertnstert.2007.11.005.
   PubMed Web of Science ®Google Scholar
• Kelly-Hedrick, M., P. H. Grunberg, F. Brochu, and P. Zelkowitz. 2018. It’s totally okay to be sad, but never lose hope’: Content analysis of infertility-related videos on youtube in relation to viewer preferences. Journal of Medical Internet Research 20, no. 5: e10199. doi:10.2196/10199.
   PubMed Web of Science ®Google Scholar
• Leon, I. G. 2010. Understanding and treating infertility: Psychoanalytic considerations. The Journal of the American Academy of Psychoanalysis and Dynamic Psychiatry 38, no. 1: 47–75. doi:10.1521/jaap.2010.38.1.47.
   PubMedGoogle Scholar
• O'Connell, S. B. L., E. N. Gelgoot, P. H. Grunberg, J. Schinazi, D. Da Costa, C. L. Dennis, Z. Rosberger, and P. Zelkowitz. 2021. I felt less alone knowing I could contribute to the forum’: Psychological distress and use of an online infertility peer support forum. Health Psychology and Behavioral Medicine 9, no. 1: 128–148. doi:10.1080/21642850.2021.1884556.
   PubMed Web of Science ®Google Scholar
• Osadchiy, V., J. N. Mills, and S. V. Eleswarapu. 2020. Understanding patient anxieties in the social media era: Qualitative analysis and natural language processing of an online male infertility community. Journal of Medical Internet Research 22, no. 3: e16728. doi:10.2196/16728.
   PubMed Web of Science ®Google Scholar
• Porter, M., and S. Bhattacharya. 2008. Helping themselves to get pregnant: A qualitative longitudinal study on the information-seeking behaviour of infertile couples. Human Reproduction (Oxford, England) 23, no. 3: 567–572. doi:10.1093/humrep/dem398.
   PubMed Web of Science ®Google Scholar
• Schlesselman-Tarango, G. 2019. Reproductive failure and information work: An autoethnography. Library Trends 67, no. 3: 436–454. doi:10.1353/lib.2019.0005.
   Web of Science ®Google Scholar
• Shoebotham, A., and N. S. Coulson. 2016. Therapeutic affordances of online support group use in women with endometriosis. Journal of Medical Internet Research 18, no. 5: e5548. doi:10.2196/jmir.5548.
   Web of Science ®Google Scholar
• Slauson-Blevins, K. S., J. McQuillan, and A. L. Greil. 2013. Online and in-person health-seeking for infertility. Social Science & Medicine (1982) 99: 110–115. doi:10.1016/j.socscimed.2013.10.019.
   PubMed Web of Science ®Google Scholar
• van Empel, I. W., W. L. Nelen, E. T. Tepe, E. A. van Laarhoven, C. M. Verhaak, and J. A. Kremer. 2010. Weaknesses, strengths and needs in fertility care according to patients. Human Reproduction (Oxford, England) 25, no. 1: 142–149. doi:10.1093/humrep/dep362.
   PubMed Web of Science ®Google Scholar
• Vardell, E., and T. Wang. 2023. The Information consumer consumed by information. Poster presented at the Association for Information Science and Technology’s Mid-Year Conference, online, March 24. doi:10.5281/zenodo.7767695.
   Google Scholar
• Vardell, E., T. Wang, and B. Linares. 2023. I wish there was a one-stop shop for a lot of this”: Participant design of an infertility consumer health resource. Paper presented at the Medical Library Association’s Special Library Association Joint Annual Conference, Detroit, MI, May 19. https://cdmcd.co/nQKXzp.
   Google Scholar
• Welbourne, J. L., A. L. Blanchard, M. D. Boughton, and John M. Carroll. 2009. Supportive communication, sense of virtual community and health outcomes in online infertility groups. In C&T '09: Proceedings of the Fourth International Conference on Communities and Technologies, edited by 31–40. New York: Association for Computing Machinery. doi:10.1145/1556460.1556466.
   Google Scholar
• World Health Organization. 2023. Infertility prevalence estimates, 1990–2021. https://www.who.int/publications/i/item/978920068315 (accessed October 31, 2023).
   Google Scholar