Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review

References

• World Health Organization. Burden of COPD. [cited 2017 Feb 10]; Available from http://www.who.int/respiratory/copd/burden/en.
   Google Scholar
• Gershon AS, Warner L, Cascagnette P, Victor JC, To T. Lifetime risk of developing chronic obstructive pulmonary disease: a longitudinal population study. Lancet. 2011;378:991–96. doi:10.1016/S0140-6736(11)60990-2.
   PubMed Web of Science ®Google Scholar
• Carter R, Tiep BL, Tiep RE. The emerging chronic obstructive pulmonary disease epidemic. Clinical impact, economic burden, and opportunities for disease management. Dis Manag Health Out. 2008;16:275–84. doi:10.2165/0115677-200816050-00002.
   Google Scholar
• Sorenson HM. Improving end-of-life care for patients with chronic obstructive pulmonary disease. Ther Adv Respir Dis. 2013;7:320–6.
   PubMed Web of Science ®Google Scholar
• Weingaertner V, Scheve C, Gerdes V, Schwarz-Eywill M, Prenzel R, Bausewein C, Higginson IJ, Voltz R, Herich L, Simon ST, et al. Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: a cohort study. J Pain Symptom Manage. 2014;48:569–81.
   PubMed Web of Science ®Google Scholar
• Maddocks M, Lovell N, Booth S, Man WDC, Higginson IJ. Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease. Lancet. 2017;390:988–1002. doi:10.1016/S0140-6736(17)32127-X.
   PubMed Web of Science ®Google Scholar
• Lilly EJ, Senderovich H. Palliative care in chronic obstructive pulmonary disease. J Crit Care. 2016;35:150–4.
   PubMed Web of Science ®Google Scholar
• Van der Klauw D, Molema H, Grooten L, Vrijhoef H. Identification of mechanims enabling integrated care for patients with chronic diseases: a literature review. Int J Integr Care. 2014;14:e024. Available at http://www.ijic.org (Accessed 10 February 2017).
   Web of Science ®Google Scholar
• Van der Linden BA, Spreeuwenberg C, Schrijvers AJP. Integration of care in The Netherlands: the development of transmural care since 1994. Health Policy. 2001;55:111–20.
   PubMed Web of Science ®Google Scholar
• Burton CR, Payne S. Integrating palliative care within acute stroke services: developing a programme theory of patient and family needs, preferences and staff perspectives. BMC Palliat Care. 2012;11:22. Available at http://www.biomedcentral.com/1472-684X/11/22 (Accessed 10 February 2017).
   PubMedGoogle Scholar
• Luckett T, Phillips J, Agar M, Virdun C, Green A, Davidson PM. Elements of effective palliative care models: a rapid review. BMC Health Serv Res. 2014;14:136. Available at http://www.biomedcentral.com/1472-6963/14/136 (Accessed 10 February 2017).
   PubMed Web of Science ®Google Scholar
• McIlfatrick S. Assessing palliative care needs: views of patients, informal carers and healthcare professionals. J Adv Nurs. 2007;57:77–86.
   PubMed Web of Science ®Google Scholar
• Bekelman DB, Nowels CT, Retrum JH, Allen LA, Shakar S, Hutt E, Heyborne T, Main DS, Kutner JS. Giving voice to patients’ and family caregivers’ needs in chronic heart failure: implications for palliative care programs. J Palliat Med. 2011;14:1317–24. doi:10.1089/jpm.2011.0179.
   PubMed Web of Science ®Google Scholar
• Johnson C, Paul C, Girgis A, Adams J, Currow DC. Australian general practitioners’ and oncology specialists’ perceptions of barriers and facilitators of access to specialist palliative care services. J Palliat Med. 2011;14:429–35. doi:10.1089/jpm.2010.0259.
   PubMed Web of Science ®Google Scholar
• Siouta N, van Beek K, Preston N, Hasselaar J, Hughes S, Payne S, Garralda E, Centeno C, van der Eerden M, Groot M, et al. Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways. BMC Palliat Care. 2016;15:18. doi:10.1186/s12904-016-0089-4.
   Google Scholar
• Siouta N, van Beek K, van der Eerden ME, Preston N, Hasselaar JG, Hughes S, Garralda E, Centeno C, Csikos A, Groot M, et al. Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease. BMC Palliat Care. 2016;15:56. doi:10.1186/s12904-016-0130-7.
   Google Scholar
• Vejlgaard T, Addington-Hall J. Attitudes of Danish doctors and nurses to palliative and terminal care. Palliat Med. 2005;19:119–27.
   PubMed Web of Science ®Google Scholar
• Lingard LA, McDougall A, Schulz V, Shadd J, Marshall D, Strachan PH, Tait GR, Arnold JM, Kimel G. Understanding palliative care on the heart failure care team: an innovative research methodology. J Pain Symptom Manage. 2013;45:901–11. doi:10.1016/j.jpainsymman.2012.04.006.
   PubMed Web of Science ®Google Scholar
• White P, Lynch M. Palliative interventions and acute respiratory care in Ireland. In: Hockley J, Froggatt K, Heimerl K, editors. Participatory research in palliative care: actions and reflections, Oxford, United Kingdom Scholarship Online; 2013. doi:10.1093/acprof:oso/9780199644155.001.0001.
   Google Scholar
• Cooper HM. Scientific guidelines for conducting integrative research reviews. Rev Educ Res. 1982;52(2):291–302. doi:10.3102/00346543052002291.
   Web of Science ®Google Scholar
• Whittemore R, Knafl K. The integrative review: updated methodology. J Adv Nurs. 2005;52(5):546–53.
   PubMed Web of Science ®Google Scholar
• Committee on Diagnostic Standards for Nontuberculous Respiratory Diseases, American Thoracic Society (ATS). Definitions and classification of chronic bronchitis, asthma, and pulmonary emphysema. Am Rev Respir Dis. 1962;85:762–9.
   Web of Science ®Google Scholar
• Hawker S, Payne S, Kerr C, Hardey M, Powell J. Appraising the evidence: reviewing disparate data systematically. Qual Health Res. 2002;12:1284–99. doi:10.1177/1049732302238251.
   PubMed Web of Science ®Google Scholar
• Miles MB, Huberman AM. Qualitative Data Analysis. Thousand Oaks, CA: Sage Publications; 1994.
   Google Scholar
• Crawford GB, Brooksbank MA, Brown M, Burgess TA, Young M. Unmet needs of people with end-stage chronic obstructive pulmonary disease: recommendations for change in Australia. Intern Med J. 2012;43:183–90. doi:10.1111/j.1445-5994.2012.02791.x.
   Web of Science ®Google Scholar
• Cawley D, Billings J, Oliver D, Kendall M, Pinnock H. Potential triggers for the holistic assessment of people with severe chronic obstructive pulmonary disease: analysis of multiperspective, serial qualitative interviews. BMJ Support Palliat Care. 2014;4:152–60. doi:10.1136/bmjspcare-2013-000629.
   PubMedGoogle Scholar
• Pinnock H, Kendall M, Murray SA, Worth A, Levack P, Porter M, MacNee W, Sheikh A. Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study. BMJ. 2011;342:d142. doi:10.1136/bmj.d142.
   PubMed Web of Science ®Google Scholar
• Hayle C, Coventry PA, Gomm S, Caress A. Understanding the experience of patients with chronic obstructive pulmonary disease who access specialist palliative care: A qualitative study. Palliat Med. 2013;27:861–8. doi:10.1177/0269216313486719.
   PubMed Web of Science ®Google Scholar
• Elkington H, White P, Addington-Hall J, Higgs R, Pettinari C. The last year of life of COPD: a qualitative study of symptoms and services. Respir Med. 2004;98:439–45.
   PubMed Web of Science ®Google Scholar
• Schroedl C, Yount S, Szmuilowicz E, Rosenberg SR, Kalhan R. Outpatient palliative care for chronic obstructive pulmonary disease: a case series. J Palliat Med. 2014;17:1256–61. doi:10.1089/jpm.2013.0669.
   PubMed Web of Science ®Google Scholar
• Landers A, Wiseman R, Pitama S, Beckert L. Patient perceptions of severe COPD and transitions towards death: a qualitative study identifying milestones and developing key opportunities. NPJ Prim Care Respir Med. 2015;25:15043. doi:10.1038/npjpcrm.2015.43.
   PubMed Web of Science ®Google Scholar
• Crawford GB, Burgess TA, Young M, Brooksbank MA, Brown M. A patient-centred model of care incorporating a palliative approach: a framework to meet the needs of people with advanced COPD? Progr Palliat Care. 2013;21:286–94. doi:10.1179/1743291X13Y.0000000053.
   Google Scholar
• Duenk RG, Verhagen C, Dekhuijzen PNR, Vissers KCP, Engels Y, Heijdra Y. The view of pulmonologists on palliative care for patients with COPD: a survey study. Int J Chron Obstruct Pulmon Dis COPD. 2017;12:299–311. doi:10.2147/COPD.S121294.
   PubMed Web of Science ®Google Scholar
• Partridge MR, Khatri A, Sutton L, Welham S, Ahmedzai SH. Palliative care services for those with chronic lung disease. Chron Respir Dis. 2009;6:13–7.
   PubMedGoogle Scholar
• Spence A, Hasson F, Waldron M, Kernohan WG, McLaughlin D, Watson B, Cochrane B, Marley AM. Professionals delivering palliative care to people with COPD: qualitative study. Palliat Med. 2009;23:126–31. doi:10.1177/0269216308098804.
   PubMed Web of Science ®Google Scholar
• Beernaert K, Cohen J, Deliens L, Devroey D, Vanthomme K, Pardon K, Van den Block L. Referral to palliative care in COPD and other chronic diseases: a population-based study. Respir Med. 2013;107:1731–9. doi:10.1016/j.rmed.2013.06.003.
   PubMed Web of Science ®Google Scholar
• Bruera E, Hui D. Conceptual models for integrating palliative care at cancer centers. J Palliat Med. 2012;15:1261–9.
   PubMed Web of Science ®Google Scholar
• Buxton K L, Stone RA, Buckingham RJ, Pursey NA, Roberts CM. Current and planned palliative care service provision for chronic obstructive pulmonary disease patients in 239 UK hospital units: comparison with the gold standards framework. Palliat Med. 2010;24:480–5. doi:10.1177/0269216310363650.
   PubMed Web of Science ®Google Scholar
• Epiphaniou E, Shipman C, Harding R, Mason B, Murray SAA, Higginson IJ, Daveson BA. Coordination of end-of-life care for patients with lung cancer and those with advanced COPD: are there transferable lessons? A longitudinal qualitative study. Prim Care Respir J. 2014;23:46–51. doi:10.4104/pcrj.2014.00004.
   PubMedGoogle Scholar
• Higginson IJ, Bausewein C, Reilly CC, Gao W, Gysels M, Dzingina M, McCrone P, Booth S, Jolley CJ, Moxham J. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. Lancet Respir Med. 2014;2:979–87. doi:10.1016/S2213-2600(14)70226-7.
   PubMed Web of Science ®Google Scholar
• Buckingham S, Kendall M, Ferguson S, MacNee W, Sheik A, White P, Worth A, Boyd K, Murray S, Pinnock H. HELPing older people with very severe chronic obstructive pulmonary disease (HELP-COPD): mixed-method feasibility pilot randomised controlled trial of a novel intervention. NPJ Prim Care Respir Med. 2015;25:15020. doi:10.1038/npjpcrm.2015.20.
   PubMed Web of Science ®Google Scholar
• Strang S, Ekberg-Jansson A, Strang P, Larsson L. Palliative care in COPD–web survey in Sweden highlights the current situation for a vulnerable group of patients. Ups J Med Sci. 2013;118:181–6. doi:10.3109/03009734.2013.801059.
   PubMed Web of Science ®Google Scholar
• Goodridge DM, Marciniuk DD, Brooks D, van Dam A, Hutchinson S, Bailey P, Baxter S, Dorasamy P, Dumont S, Hassan S, et al. End-of-life care for persons with advanced chronic obstructive pulmonary disease: report of a national interdisciplinary consensus meeting. Can Respir J. 2009;16:e51–3. doi:10.1155/2009/987616.
   PubMedGoogle Scholar
• Hynes G, Kavanagh F, Hogan C, Ryan K, Rogers L, Brosnan J, Coghlan D. Understanding the challenges of palliative care in everyday clinical practice: an example from a COPD action research project. Nurs Inq. 2015;22:249–60. doi:10.1111/nin.12089.
   PubMed Web of Science ®Google Scholar
• Burgess T, Young M, Crawford GB, Brooksbank MA, Brown M. Best-practice care for people with advanced chronic obstructive pulmonary disease: The potential role of a chronic obstructive pulmonary disease care co-ordinator. Aust Health Rev. 2013;37:474–81. doi:10.1071/AH12044.
   PubMed Web of Science ®Google Scholar
• Emanuel L, Alexander C, Arnold RM, Bernstein R, Dart R, Dellasantina C, Dykstra L, Tulsky J; Palliative Care Guideline Group of the American Hospice Foundation. Integrating palliative care into disease management guidelines. J Palliat Med. 2004;7:774–83. doi:10.1089/jpm.2004.7.774.
   PubMedGoogle Scholar
• Aiken LS, Butner J, Lockhart CA, Volk-Craft BE, Hamilton G, Williams FG. Outcome evaluation of a randomized trial of the PhoenixCare intervention: program of case management and coordinated care for the seriously chronically ill. J Palliat Med. 2006;9:111–26. doi:10.1089/jpm.2006.9.111.
   PubMed Web of Science ®Google Scholar
• Horton R, Rocker G, Dale A, Young J, Hernandez P, Sinuff T. Implementing a palliative care trial in advanced COPD: a feasibility assessment (The COPD IMPACT Study). J Palliat Med. 2013;16:67–73. doi:10.1089/jpm.2012.0285.
   PubMed Web of Science ®Google Scholar
• Cassel J, Kerr KM, McClish DK, Skoro N, Johnson S, Wanke C, Hoefer D. Effect of a home based palliative care program on healthcare use and costs. J Am Geriatr Soc. 2016;64:2288–95.
   PubMed Web of Science ®Google Scholar
• Kirkpatrick DP, Dransfield MT, Wells JM, Tucker R, Leach L, Henry M. Improving the care of patients with COPD using an integrated practice unit. Am J Respir Crit Care Med. 2014;189:A3028.
   Web of Science ®Google Scholar
• Rocker GM, Verma JY. 'INSPIRED' COPD Outreach Program™: doing the right things right. Clin Invest Med. 2014;37:E311–9.
   PubMed Web of Science ®Google Scholar