The Arc of Generational Care: A Case Series Considering Grandparent Roles and Care Needs in Pediatric Palliative Care^*

References

• Attig, T. (2004). Disenfranchised grief revisited: Discounting hope and love. OMEGA - Journal of Death and Dying, 49(3), 197–215. doi:10.2190/P4TT-J3BF-KFDR-5JB1
   Web of Science ®Google Scholar
• Brown, J. (1999). Family systems theory and practice: Illustration and critique. Australian and New Zealand Journal of Family Therapy, 20(2), 94–103. doi:10.1002/j.1467-8438.1999.tb00363.x
   Google Scholar
• Coall, D. A., & Hertwig, R. (2010). Grandparental investment: Past, present, and future. Behavioral and Brain Sciences, 33(1), 1–19. doi:10.1017/S0140525X09991105
   PubMed Web of Science ®Google Scholar
• Drew, L., & Smith, P. (2002). Implications for grandparents when they lose contact with their children: Divorce, family feud, and geographical separation. Journal of Mental Health and Aging, 8, 95–119. Retrieved from https://www.researchgate.net/profile/Linda_Drew/publication/232511119_Implications_for_grandparents_when_they_lose_contact_with_their_grandchildren_Divorce_family_feud_and_geographical_separation/links/54cea5740cf29ca810fc9a2b.pdf
   Google Scholar
• Dunifon, R. (2013). The influence of grandparents on the lives of children and adolescents. Child Development Perspectives, 7(1), 55–60. doi:10.1111/cdep.12016
   Web of Science ®Google Scholar
• Dunifon, R., & Bajracharya, A. (2012). The role of grandparents in the lives of youth. Journal of Family Issues, 33(9), 1168–1194. doi:10.1177/0192513X12444271
   PubMed Web of Science ®Google Scholar
• Dunifon, R., Near, C., & Ziol-Guest, K. (2018). Back up parents, playmates, friends: Grandparents’ time with grandchildren. Journal of Marriage and Family, 80(3), 752–767. doi:10.1111/jomf.12472
   Web of Science ®Google Scholar
• Findler, L. (2014). The experience of stress and personal growth among grandparents of children with and without intellectual disability. Intellectual and Developmental Disabilities, 52(1), 32–48. doi:10.1352/1934-9556-52.1.32
   PubMed Web of Science ®Google Scholar
• Fingerman, K. L. (2004). The role of offspring and in-laws in grandparents’ ties to their grandchildren. Journal of Family Issues, 25(8), 1026–1049. doi:10.1177/0192513X04265941
   Web of Science ®Google Scholar
• Gardner, E., Scherman, A., Mobley, D., Brown, P., & Schutter, M. (1994). Grandparents’ beliefs regarding their role and relationship with special needs grandchildren. Education and Treatment of Children, 17(2), 185–196. Retrieved from https://www-jstor-org.leo.lib.unomaha.edu/stable/42899352
   Google Scholar
• Jappens, M., & Van Bavel, J. (2016). Parental divorce, residence arrangements, and contact between grandchildren and grandparents. Journal of Marriage and Family, 78(2), 451–467. doi:10.1111/jomf.12275
   Web of Science ®Google Scholar
• Kaptijn, R., Thomese, F., van Tilburg, T. G., & Liefbroer, A. C. (2010). How grandparents matter. Human Nature, 21(4), 393–405. doi:10.1007/s12110-010-9098-9
   PubMed Web of Science ®Google Scholar
• Leininger, M., & McFarland, M. R. (2002). Transcultural nursing: Curricular concepts, principles, and teaching and learning activities for the 21st century. In M. Leininger & M. R. McFarland (Eds.), Transcultural nursing: Concepts, theories, research, & practice (3rd ed., pp. 527–561). New York: McGraw-Hill.
   Google Scholar
• Leveson, V. (2013). The grief related experiences of grandparents when a child has died or is terminally ill/severely disabled (Master’s Thesis). The University of Auckland, New Zealand. Retrieved from https://www.library.auckland.ac.nz/services/research-support/depositing-theses/copyright
   Google Scholar
• Miller, E., Buys, L., & Woodbridge, S. (2012). Impact of disability on families: Grandparents’ perspective. Journal of Intellectual Disability Research, 56(1), 102–110. Retrieved from doi:10.1111/j.1365-2788.2011.01403.x
   PubMed Web of Science ®Google Scholar
• Pilkauskas, N. V., & Dunifon, R. E. (2016). Understanding grandfamilies: Characteristics of grandparents, nonresident parents, and children. Journal of Marriage and Family, 78(3), 623–633. doi:10.1111/jomf.12291
   PubMed Web of Science ®Google Scholar
• Powdthavee, N. (2011). Life satisfaction and grandparenthood: Evidence from a nationwide survey (Discussion Paper Series//Forschungsinstitut Zur Zukunft Der Arbeit, 5869). Retrieved from https://www.econstor.eu/handle/10419/52042
   Google Scholar
• Ruiz, D. (2008). The changing roles of African American grandmothers raising grandchildren: An exploratory study in the piedmont region of North Carolina. Western Journal of Black Studies, 32(1), 62–71. Retrieved from http://web.b.ebscohost.com
   Google Scholar
• Sear, R., & Mace, R. (2008). Who keeps children alive? A review of the effects of kin on child survival. Evolution and Human Behavior, 29(1), 1–18. doi:10.1016/j.evolhumbehav.2007.10.001
   Web of Science ®Google Scholar
• United States Census Bureau (2010). Households and Families (2010 Census briefs). Retrieved from https://www.census.gov/prod/cen2010/briefs/c2010br-14.pdf
   Google Scholar