Community and stakeholders’ engagement in the prevention and management of Type 2 diabetes: a qualitative study in socioeconomically disadvantaged suburbs in region Stockholm

References

• The NCD Alliance. NCDs across the SDGs: a call for an intergrated approach1. The NCD Alliance, 2016.
   Google Scholar
• IDF. IDF diabetes atlas; Eighth edition 2017. The International Diabetes Federation, 2017 Citation2017. Report No.
   Google Scholar
• Statistika Centralbyran. Statistik årsbok för Stockholm 2018. Internet: Stockholm Stad, 2018.
   Google Scholar
• Immigration and emigration by sex and country of birth 1970–2017 and projection 2018–2070 [Internet]. Statistika Centralbyran 2018. 2018 [cited 2018 Jul 12]. Available from: https://www.scb.se/en/finding-statistics/statistics-by-subject-area/population/population-projections/population-projections/pong/tables-and-graphs/immigration-and-emigration-by-sex-and-country-of-birth-19702017-and-projection-20182070/.
   Google Scholar
• Agerholm J, Bruce D, Ponce de Leon A, et al. Socioeconomic differences in healthcare utilization, with and without adjustment for need: an example from Stockholm, Sweden. Scand J Public Health. 2013;41:318–11. Epub 2013/ 02/15. PubMed PMID: 23406653.
   PubMed Web of Science ®Google Scholar
• Ee A, Ahlbom A, Andersson T, et al. Explanations of socioeconomic differences in excess risk of type 2 diabetes in Swedish men and women. Diabetes Care. 2004;27:716–721, Epub 2004/02/28.PubMed PMID: 14988291
   Web of Science ®Google Scholar
• Andersson T, Ahlbom A, Carlsson S. Diabetes prevalence in sweden at present and projections for year 2050. PLOS ONE. 2015;10:e0143084.
   Web of Science ®Google Scholar
• Wandell PE, Gafvels C. High prevalence of diabetes among immigrants from non-European countries in Sweden. Prim Care Diabetes. 2007;1:13–16. PubMed PMID: 18632014.
   Google Scholar
• Socialstyrelsen. National guidelines for Diabetes Care: support for governance and management. The National Board of Health and Welfare, 2015.
   Google Scholar
• Saha S, Leijon M, Gerdtham U, et al. A culturally adapted lifestyle intervention addressing a Middle Eastern immigrant population at risk of diabetes, the MEDIM (impact of Migration and Ethnicity on Diabetes In Malmo): study protocol for a randomized controlled trial. Trials. 2013;14:279. PubMed PMID: 24006857; PubMed Central PMCID: PMC3844588.
   Web of Science ®Google Scholar
• Schwarz PE, Lindstrom J, Kissimova-Scarbeck K, et al. The European perspective of type 2 diabetes prevention: diabetes in Europe–prevention using lifestyle, physical activity and nutritional intervention (DE-PLAN) project. Exp Clin Endocrinol Diabetes. 2008;116:167–172. Epub 2008/ 03/20. PubMed PMID: 18350480.
   PubMed Web of Science ®Google Scholar
• Lindstrom J, Neumann A, Sheppard KE, et al. Take action to prevent diabetes–the IMAGE toolkit for the prevention of type 2 diabetes in Europe. Horm Metab Res. 2010;42:S37–55. Epub 2010/ 04/28. PubMed PMID: 20391307.
   PubMed Web of Science ®Google Scholar
• Tuomilehto J, Lindstrom J, Jg E, et al. Prevention of type 2 diabetes mellitus by changes in lifestyle among subjects with impaired glucose tolerance. N Engl J Med. 2001;344:1343–1350. Epub 2001/05/03. PubMed PMID: 11333990.
   PubMed Web of Science ®Google Scholar
• The World Health Organization. Global action plan for the prevention and control of noncommunicable diseases 2013-2020. 2013 2017. Report No.: Contract No.: ISBN: 978 92 4 150623 6.
   Google Scholar
• World Health Organization. Framework on integrated, people-centred health services. The World Health Organisation, 2016 [2016 Apr 15].
   Google Scholar
• The World Health Organization. WHO Community Engagement Framework For Quality People-Centered and Resilient Health Services. Switzerland: The World Health Organization, (QHC) UHCaQU; 2017.
   Google Scholar
• Rosenthal EL, Brownstein JN, Rush CH, et al. Community health workers: part of the solution. Health Aff (Millwood). 2010;29:1338–1342. Epub 2010/ 07/08. PubMed PMID: 20606185.
   Web of Science ®Google Scholar
• Lohr AM, Ingram M, Nunez AV, et al. Community-clinical linkages with community health workers in the USA: a scoping review. Health Promot Pract. 2018;19:349–360. Epub 2018/ 01/25. PubMed PMID: 29363334.
   Web of Science ®Google Scholar
• Kanström L. Community-based methods and tools to promote dietary changes: some experiences from the stockholm Cancer prevention program. Stockholm: Diss. (sammanfattning); 1994. Stockholm: Karolinska Institutet.
   Google Scholar
• Norman A, Burström B, Haglund BJ, et al. Strategies and methods for implementing a community-based diabetes primary prevention program in Sweden. Health Promot Int. 1997;12:151–160.
   Web of Science ®Google Scholar
• Andersson C Challenges of studying complex community health promotion programmes: experiences from Stockholm diabetes prevention programme. Institutionen för folkhälsovetenskap/Department of Public Health Sciences; 2010.
   Google Scholar
• MacQueen KM, McLellan E, Metzger DS, et al. What is community? An evidence-based definition for participatory public health. Am J Public Health. 2001;91:1929–1938, PubMed PMID: PMC1446907
   PubMed Web of Science ®Google Scholar
• Green LW, Mercer SL. Can public health researchers and agencies reconcile the push from funding bodies and the pull from communities? Am J Public Health. 2001;91: 1926–1929. Epub 2001/ 12/01.PubMed PMID: 11726367; PubMed Central PMCID: PMCPMC1446906.
   PubMed Web of Science ®Google Scholar
• Tindana PO, Singh JA, Tracy CS, et al. Grand challenges in global health: community engagement in research in developing countries. PLoS Med. 2007;4:e273.
   PubMed Web of Science ®Google Scholar
• Carpiano RM. Toward a neighborhood resource-based theory of social capital for health: can Bourdieu and sociology help? Soc Sci Med. 2006;62:165–175. Epub 2005/ 07/05. PubMed PMID: 15992978.
   PubMed Web of Science ®Google Scholar
• Wallin AM, Lofvander M, Ahlstrom G. Diabetes: a cross-cultural interview study of immigrants from Somalia. J Clin Nurs. 2007;16:305–314. PubMed PMID: 17931324.
   Web of Science ®Google Scholar
• Hjelm K, Bard K, Apelqvist J. Gestational diabetes: prospective interview-study of the developing beliefs about health, illness and health care in migrant women. J Clin Nurs. 2012;21:3244–3256. PubMed PMID: 23083394.
   Web of Science ®Google Scholar
• Aweko J, Man JD, Absetz P, et al. Patient and provider dilemmas of type 2 diabetes self-management: a qualitative study in socioeconomically disadvantaged communities in Stockholm. Int J Environ Res Public Health (Accepted). 2018;15(9). pii: E1810. doi: 10.3390/ijerph15091810.
   Web of Science ®Google Scholar
• Wachtler C, Brorsson A, Troein M. Meeting and treating cultural difference in primary care: a qualitative interview study. Fam Pract. 2006;23:111–115. Epub 2005/ 10/26. PubMed PMID: 16246851.
   PubMed Web of Science ®Google Scholar
• Guwatudde D, Absetz P, Delobelle P, et al. Study protocol for the SMART2D adaptive implementation trial: a cluster randomised trial comparing facility-only care with integrated facility and community care to improve type 2 diabetes outcomes in Uganda, South Africa and Sweden. BMJ Open. 2018;8:3.
   Web of Science ®Google Scholar
• Vertovec S. Super-diversity and its implications AU. Ethn Racial Stud. 2007;30:1024–1054.
   Google Scholar
• Bradby H, Green G, Davison C, et al. Is superdiversity a useful concept in european medical sociology? Front Sociol. 2017;1. DOI:10.3389/fsoc.2016.00017.
   Google Scholar
• Hamed S, Klingberg S, Mahmud AJ, et al. Researching health in diverse neighbourhoods: critical reflection on the use of a community research model in Uppsala, Sweden. BMC Res Notes. 2018;11:612.
   PubMedGoogle Scholar
• Sundquist K, Malmstrom M, Johansson SE, et al. Care need index, a useful tool for the distribution of primary health care resources. J Epidemiol Community Health. 2003;57: 347–352. Epub 2003/04/18.PubMed PMID: 12700218; PubMed Central PMCID: PMCPMC1732439.
   PubMed Web of Science ®Google Scholar
• Glenngård AH The Swedish health care system internet: international health care system profiles; 2017 [cited Apr 2018]. Available from: https://international.commonwealthfund.org/countries/sweden/.
   Google Scholar
• Wenzel H, Jansson S, Landin-Olsson M. Integrated diabetes care in Sweden. In: Simmons D, Wenzel H, Zgibor JC, editors. Integrated diabetes care: a multidisciplinary approach. Cham: Springer International Publishing. p. 201–214.; 2017
   Google Scholar
• Burström B, Burström K, Nilsson G, et al. Equity aspects of the primary health care choice reform in Sweden – a scoping review. Int J Equity Health. 2017;16:29.
   PubMed Web of Science ®Google Scholar
• Stockholm County council. Diabetes i primärvården 2013. Hälso- och sjukvårdsförvaltningen, Centrum for allmanmedicin, Center for family medicine, 2014.
   Google Scholar
• Green J. Qualitative methods for health research. 3rd ed. Thorogood N, editor. Los Angeles: SAGE; 2014.
   Google Scholar
• Noy C. Sampling knowledge: the hermeneutics of snowball sampling in qualitative research. Int J Soc Res Methodol. 2008;11:327–344.
   Web of Science ®Google Scholar
• Green J, Thorogood N Qualitative Methods for Health Research (Introducing Qualitative Methods series).
   Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24:105–112. Epub 2004/ 02/11. PubMed PMID: 14769454.
   PubMed Web of Science ®Google Scholar
• Krippendorff K. Content analysis: an introduction to its methodology. 3rd ed. Los Angeles, CA: Sage Publications Inc; 2013.
   Google Scholar
• Vaismoradi M, Turunen H, Bondas T. Content analysis and thematic analysis: implications for conducting a qualitative descriptive study. Nurs Health Sci. 2013-09-01;15:398–405.
   Google Scholar
• Blanks SH, Treadwell H, Bazzell A, et al. Community engaged lifestyle modification research: engaging diabetic and prediabetic African American women in community-based interventions. J Obes. 2016;2016(2016). (Research Article)(Report). DOI:10.1155/2016/3609289.
   Web of Science ®Google Scholar
• Bunton R, Macdonald G. Health promotion: disciplines and diversity. London: Routledge; 1992.
   Google Scholar
• Graham PW, Kim MM, Clinton-Sherrod AM, et al. What is the role of culture, diversity, and community engagement in transdisciplinary translational science? Transl Behav Med. 2016;6:115–124. PubMed PMID: PMC4807193.
   Web of Science ®Google Scholar
• Zapata-Barrero R. Interculturalism in the post-multicultural debate: a defence. Comp Migration Stud. 2017;5:14. PubMed PMID: PMC5583279.
   Google Scholar
• Taylor C. Interculturalism or multiculturalism? Philos Soc Crit. 2012;38:413–423.
   Google Scholar
• Meer N, Modood T. How does interculturalism contrast with multiculturalism? J Intercultural Stud. 2012;33:175–196.
   Google Scholar
• Modood, T., & Meer, N. (2011). Framing contemporary citizenship and diversity in Europe. In A. Triandafyllidou, T. Modood, & N. Meer (Eds.), European Multiculturalisms: Cultural, Religiousand Ethnic Challenges (pp. 33-60). Edinburgh University Press.
   Google Scholar
• Amin A. Ethnicity and the multicultural city: living with diversity. Environ Plann A. 2002;34:959–980.
   Web of Science ®Google Scholar
• Hermann K, Van Damme W, Pariyo GW, et al. Community health workers for ART in sub-Saharan Africa: learning from experience – capitalizing on new opportunities. Hum Resour Health. 2009;7:31.
   PubMed Web of Science ®Google Scholar
• Mwai GW, Mburu G, Torpey K, et al. Role and outcomes of community health workers in HIV care in sub-Saharan Africa: a systematic review. J Int AIDS Soc. 2013;16:18586. Epub 2013/ 09/14. PubMed PMID: 24029015; PubMed Central PMCID: PMCPMC3772323.
   PubMed Web of Science ®Google Scholar
• Anthony D, Baggott R, Tanner J, et al. Health, lifestyle, belief and knowledge differences between two ethnic groups with specific reference to tobacco, diet and physical activity. J Adv Nurs. 2012;68:2496–2503. PubMed PMID: 22360310.
   Web of Science ®Google Scholar
• Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2015;26:1753–1760.
   Web of Science ®Google Scholar