Ongoing debate on data governance principles for achieving Universal Health Coverage: a proposal to post-G20 Osaka Summit meetings

References

• United Nation. Sustainable development, the 17 goals. New York: United Nation. Available from: https://sdgs.un.org/goals
   Google Scholar
• United Nation. Political declaration of the high-level meeting on Universal Health Coverage. New York: United Nation; 2019. Available from: https://www.un.org/pga/73/wp-content/uploads/sites/53/2019/07/FINAL-draft-UHC-Political-Declaration.pdf
   Google Scholar
• United Nation. UN secretary general’s strategy on new technologies. New York: United Nations; 2018. Available from: https://www.un.org/en/newtechnologies/images/pdf/SGs-Strategy-on-New-Technologies.pdf
   Google Scholar
• World Economic Forum. ‘Defeatism about Japan is now defeated’: read Abe’s Davos speech in full. World Economic Forum; 2019. Available from: https://www.weforum.org/agenda/2019/01/abe-speech-transcript/
   Google Scholar
• World Health Organization. WHO guideline: recommendations on digital interventions for health system strengthening. Geneva: World Health Organization; 2019.
   Google Scholar
• Joint Learning Network for Universal Health Coverage. Using health data to improve universal health coverage three case studies. Virginia: Joint Learning Network for Universal Health Coverage; 2018.
   Google Scholar
• The World Bank. Government of Kenya releases data to public on easy to use web portal. Washington, DC: The World Bank; 2011. Available from: https://www.worldbank.org/en/news/press-release/2011/07/08/government-kenya-releases-data-public-easy-use-web-portal
   Google Scholar
• World Wide Web Foundation. Open data barometer - leaders edition. Washington, DC: World Wide Web Foundation; 2018.
   Google Scholar
• Tiffin N, George A, LeFevre AE. How to use relevant data for maximal benefit with minimal risk: digital health data governance to protect vulnerable populations in low-income and middle-income countries. BMJ Glob Health. 2019;4(2):e001395.
   Web of Science ®Google Scholar
• Tankard C. What the GDPR means for businesses. Network Secur. 2016;2016(6):5–6.
   Google Scholar
• Chen L, Cheng W, Ciuriak D, et al. The Digital Economy for Economic Development: Free Flow of Data and Supporting Policies. Task Force 8: Trade, Investment and Globalization; 2019. Available from: https://t20japan.org/wp-content/uploads/2019/03/t20-japan-tf8-4-digital-economy-economic-development.pdf.
   Google Scholar
• Kobie N. The complicated truth about China’s social credit system. WIRED; 2019. Available from: https://www.wired.co.uk/article/china-social-credit-system-explained
   Google Scholar
• Haug CJ. Turning the tables - the New European general data protection regulation. N Engl J Med. 2018;379(3):207–209.
   Web of Science ®Google Scholar
• Chico V. The impact of the general data protection regulation on health research. Br Med Bull. 2018;128(1):109–118.
   Web of Science ®Google Scholar
• Prata Ribeiro H, Ponte A, Robalo Cordeiro F, et al. [The new general data protection regulation and its implications regarding clinical information requests to healthcare professionals]. Acta Med Port. 2020;33(4):221–224.
   Web of Science ®Google Scholar
• Bloom G, Berdou E, Standing H, et al. ICTs and the challenge of health system transition in low and middle-income countries. Global Health. 2017;13(1):56.
   PubMedGoogle Scholar
• Jain P, Gyanchandani M, Khare N. Big data privacy: a technological perspective and review. J Big Data. 2016;3(1):25.
   Google Scholar
• The Guardian. Revealed: 50 million Facebook profiles harvested for Cambridge Analytica in major data breach: the Guardian. 2018. Available from: https://www.theguardian.com/news/2018/mar/17/cambridge-analytica-facebook-influence-us-election
   Google Scholar
• Sakamoto H, Rahman M, Nomura S, et al. Japan health system review. New Delhi: World Health Organization, Regional Office for South-East Asia; 2018.
   Google Scholar
• Japan: universal health care at 50 years. The Lancet. Japan: universal health care at 50 years. Lancet. 2011;378(9796):1049.
   Google Scholar
• Miyata H, Ezoe S, Hori M, et al. Japan’s vision for health care in 2035. Lancet. 2015;385(9987):2549–2550.
   PubMed Web of Science ®Google Scholar
• Prime Minister of Japan and his Cabinet. Future investment strategy 2018. Tokyo: Prime Minister of Japan and his Cabinet; 2018. Available from: https://www.kantei.go.jp/jp/singi/keizaisaisei/pdf/miraitousi2018_en.pdf
   Google Scholar
• Ministry of Health, Labour and Welfare. Towards the construction of “next generation health care system” utilizing ICT [Japanese]. Tokyo: Ministry of Health, Labour and Welfare; 2016. Available from: https://www.mhlw.go.jp/file/05-Shingikai-12601000-Seisakutoukatsukan-Sanjikanshitsu_Shakaihoshoutantou/0000140306.pdf
   Google Scholar
• Basch E, Deal AM, Dueck AC, et al. Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine cancer treatment. JAMA. 2017;318(2):197–198.
   PubMed Web of Science ®Google Scholar
• Stacey D, Legare F, Lewis K, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2017;4:CD001431.
   PubMed Web of Science ®Google Scholar
• Walsh S, Golden E, Priebe S. Systematic review of patients’ participation in and experiences of technology-based monitoring of mental health symptoms in the community. BMJ Open. 2016;6(6):e008362.
   Web of Science ®Google Scholar
• Wildevuur SE, Simonse LW. Information and communication technology-enabled person-centered care for the “big five” chronic conditions: scoping review. J Med Internet Res. 2015;17(3):e77.
   PubMed Web of Science ®Google Scholar
• Fernando B, King M, Sumathipala A. Advancing good governance in data sharing and biobanking - international aspects. Wellcome Open Res. 2019;4:184.
   Google Scholar