References

• Armstrong , D. 1995 . The rise of surveillance medicine . Sociology of Health and Illness , 17 ( 3 ) : 393 – 404 .
   Web of Science ®Google Scholar
• Bindura-Mutangadura , G. 2000 . HIV/AIDS, poverty, and elderly women in urban Zimbabwe . Southern African Feminist Review , 4 ( 2 ) : 93 – 105 .
   Google Scholar
• Blanchard , C. G. , Ruckdeschel , J. C. and Albrecht , T. L. 1996 . “ Patient-family communication with physicians ” . In Cancer and the Family , Edited by: Baider , L. , Cooper , C. L. and Kaplan De-Nour , A. 369 – 387 . New York : John Wiley & Sons .
   Google Scholar
• Brown , P. 1995 . Naming and framing: The social construction of diagnosis and illness . Journal of Health and Social Behaviour, Extra Issue , : 34 – 52 .
   PubMedGoogle Scholar
• Bury , M. 1997 . Health and Illness in a Changing Society , London : Routledge .
   Google Scholar
• Carricaburu , D. and Pierret , J. 1995 . From biographical disruption to biographical reinforcement: the case of HIV-positive men . Sociology of Health and Illness , 17 ( 1 ) : 65 – 88 .
   Web of Science ®Google Scholar
• Cohen , R. , Lynch , S. , Bygrave , H. , Eggers , E. , Vlahakis , N. , Hilderbrand , K. , Knight , L. , Pillay , P. , Saranchuk , P. , Goemaere , E. , Makakole , L. and Ford , N. 2009 . Antiretroviral treatment outcomes from a nurse-driven, community supported HIV/AIDS treatment programme in rural Lesotho: observational cohort assessment at two years . Journal of the International AIDS Society , 12 : 23
   PubMed Web of Science ®Google Scholar
• Crawford , R. 1994 . The boundaries of the self and the unhealthy other: reflections on health, culture and AIDS . Social Science & Medicine , 38 ( 10 ) : 1347 – 1365 .
   PubMed Web of Science ®Google Scholar
• Creswell , J. W. 1998 . Qualitative Inquiry and Research Design: Choosing Among Five Traditions , Thousand Oaks , CA : Sage Publications .
   Google Scholar
• Dworzanowski , B. 2002 . Caring for people dying of AIDS: lessons learnt from hospices . Society in Transition , 33 ( 3 ) : 420 – 431 .
   Google Scholar
• Gotay , C. C. 1996 . “ Cultural variations in adjustment to cancer ” . In Cancer and the Family , Edited by: Baider , L. , Cooper , C. L. and Kaplan De-Nour , A. 31 – 52 . New York : John Wiley & Sons .
   Google Scholar
• Gwyn , R. 2002 . Communicating Health and Illness , London : Sage Publications .
   Google Scholar
• Hatt , G. 1998 . “ Uncertainty in medical decision-making ” . In Health Matters: Sociology of Illness, Prevention and Care , Edited by: Petersen , A. and Waddell , C. 223 – 239 . Buckingham : Open University Press .
   Google Scholar
• Hunte , P. A. and Sultana , F. 1992 . Health-seeking behaviour and the meaning of medication in Balochistan, Pakistan . Social Science and Medicine , 34 ( 12 ) : 1385 – 1397 .
   PubMed Web of Science ®Google Scholar
• Karasz , A. , Dyche , L. and Selwyn , P. 2003 . Physicians' experiences of caring for late-stage HIV patients in the post-HAART era: challenges and adaptations . Social Science and Medicine , 57 : 1609 – 1620 .
   PubMed Web of Science ®Google Scholar
• Kell , M. E. and Walley , J. D. 2009 . Palliative care for HIV in the era of antiretroviral therapy availability: perspectives of nurses in Lesotho . BMC Palliative Care , 8 : 11 doi:10.1186/1472-686X-8-11
   PubMedGoogle Scholar
• Lachmund , J. 1998 . Between scrutiny and treatment: Physical diagnosis and restructuring of 19th century medicine practice . Sociology of Health and Illness , 20 ( 6 ) : 779 – 801 .
   Google Scholar
• Lawn , S. D. , Wood , R. De Cock , K. M. 2010 . Antiretrovirals and isoniazid preventive therapy in the prevention of HIV-associated tuberculosis in settings with limited health-care resources . The Lancet Infectious Diseases , 10 ( 7 ) : 489 – 498 . doi:10.1016/S1473-3099(10)70078-5
   PubMed Web of Science ®Google Scholar
• Levine , C. 1991 . “ AIDS and changing concepts of family ” . In A Disease of Society: Cultural and Institutional Responses to AIDS , Edited by: Nelkin , D. , Willis , D. P. and Parris , S. V. 45 – 70 . New York : Cambridge University Press .
   Google Scholar
• Liddell , C. , Barrett , L. and Bydawell , M. 2005 . Indigenous representations of illness and AIDS in Sub-Saharan Africa . Social Science and Medicine , 60 : 691 – 700 .
   PubMed Web of Science ®Google Scholar
• Lupton , D. 2003 . Medicine as Culture: Illness, Disease and the Body in Western Societies , 2nd ed , London : Sage Publications .
   Google Scholar
• Magliano , L. , Fiorillo , A. , De Rosa , C. , Malangone , C. Maj , M. 2005 . Family burden in long-term diseases: a comparative study in schizophrenia vs. physical disorders . Social Science and Medicine , 61 : 313 – 322 .
   PubMed Web of Science ®Google Scholar
• Makoae , M. 2011 . Food meanings in caregiving trajectories: rituals, optimism and anguish among AIDS caregivers in Lesotho . Psychology, Health & Medicine , 16 ( 2 ) : 190 – 202 .
   PubMed Web of Science ®Google Scholar
• Makoae , M. G. 2009 . The phenomenology of bodily care: caregivers' experiences with AIDS patients before antiretroviral therapies in Lesotho . African Journal of AIDS Research , 8 ( 1 ) : 17 – 27 .
   PubMed Web of Science ®Google Scholar
• Makoae , M. G. and Jubber , K. 2008 . Confidentiality or continuity? Family caregivers' experiences with care for HIV/AIDS patients in home-based care in Lesotho . Journal of Social Aspects of HIV/AIDS , 5 ( 1 ) : 36 – 46 .
   PubMed Web of Science ®Google Scholar
• Mantovani , G. , Anker , S. D. , Morley , J. E. , Scevola , D. , Yeh , S.-S. , Inui , A. , Fanelli , F. R. and Schuster , M. W. , eds. 2006 . Cachexia and Wasting: A Modern Approach , Italy : Spinger .
   Google Scholar
• Moustakas , C. 1994 . Phenomenological Research Methods , Thousand Oaks : Sage .
   Google Scholar
• Mupedziswa , R. 1998 . “ AIDS in Africa: The social work response ” . In Journal of Social Development in Africa , Harare : School of Social Work .
   Google Scholar
• Nilmanat , K. and Street , A. 2004 . Search for a cure: narratives of Thai family caregivers living with a person with AIDS . Social Science and Medicine , 59 : 1003 – 1010 .
   PubMed Web of Science ®Google Scholar
• O'Brien , M. 1993 . “ Social research and sociology ” . In Researching Social Life , Edited by: Gilbert , N. London : Sage .
   Google Scholar
• Persson , A. 2004 . Incorporating Pharmakon: HIV, medicine, and body shape change . Body and Society , 10 ( 4 ) : 45 – 67 .
   Google Scholar
• Peterson , A. and Waddell , C. , eds. 1998 . I Health Matters: Sociology of Illness, Prevention and Care , Buckingham : Open University Press .
   Google Scholar
• Ross , F. M. 1991 . Patient compliance — whose responsibility? . Social Science and Medicine , 32 ( 1 ) : 89 – 94 .
   PubMedGoogle Scholar
• Sachs , L. 1989 . Misunderstanding as therapy: Doctors, patients, and medicines in a rural clinic in Sri Lanka . Culture, Medicine and Psychiatry , 13 : 335 – 349 .
   PubMed Web of Science ®Google Scholar
• Sachs , L. and Tomson , G. 1992 . Medicines and culture — a double perspective on drug utilization in a developing country . Social Science and Medicine , 34 ( 3 ) : 307 – 315 .
   PubMed Web of Science ®Google Scholar
• Sanders , L. M. , Thompson , V. T. and Wilkinson , J. D. 2007 . Caregiver Health Literacy and the Use of Child Health Services . Pediatrics , 119 : e86 – e92 . 2007, DOI: 10.1542/peds.2005-1738 (Accessed on 23 July 2008)
   PubMed Web of Science ®Google Scholar
• Strasser , F. 2003 . Eating-related disorders in patients with advanced cancer . Support Care Cancer , 11 : 11 – 20 . DOI 10.1007/s00520-002-0391-y
   PubMed Web of Science ®Google Scholar
• Strasser , F. 2006 . The silent symptom early satiety: a forerunner of distinct phenotypes of anorexia/cachexia syndromes . Supportive Care in Cancer , 14 ( 7 ) : 689 – 692 . DOI: 10.1007/s00520-006-0061-6
   PubMedGoogle Scholar
• Stimson , G. V. 1974 . Obeying doctors' orders: a view from the other side . Social Science and Medicine , 8 : 97 – 104 .
   PubMed Web of Science ®Google Scholar
• Szolovits , P. and Pauker , S. G. 1978 . Categorical and probabilistic reasoning in medical diagnosis . Artificial Intelligence , 11 : 115 – 144 .
   Web of Science ®Google Scholar
• Thomas , C. , Morris , S. M. and Harman , J. C. 2002 . Companions through cancer: the care given by informal carers in cancer contexts . Social Science and Medicine , 54 : 529 – 544 .
   PubMed Web of Science ®Google Scholar
• UNAIDS . 2009 . AIDS Epidemic Update , Geneva : Joint United Nations Programme on HIV/AIDS (UNAIDS) and World Health Organization (WHO) . Retrieved: 6 October 2010 http://data.unaids.org/pub/Report/2009/JC1700_Epi_Update_2009_en.pdf
   Google Scholar
• Van der Geest , S. and Finkler , K. 2004 . Hospital Ethnography: introduction . Social Science and Medicine , 59 ( 10 ) : 1995 – 2001 .
   PubMed Web of Science ®Google Scholar
• Van der Geest , S. and Whyte , S. 1989 . The charm of medicines: metaphors and metonyms . Medical Anthropology Quarterly , 3 ( 4 ) : 345 – 367 .
   Google Scholar
• Van Dyk , A. 2001 . HIV/AIDS Care and Counselling: A Multidisciplinary Approach , 2nd ed , Cape Town : Pearson Education South Africa .
   Google Scholar
• WHO . WHO Three ‘I’s meeting: intensified case finding, isoniazid preventive therapy and TB infection control for people living with HIV . Report of a joint WHO HIV/AIDS and TB Department meeting . April 2–4 2008 , Geneva , Switzerland. Retrieved: 22 November 2010 http://www.who.int/hiv/topics/tb/3is/en/index.html
   Google Scholar
• WHO, UNAIDS & UNICEF . 2008 . Towards Universal Access: Scaling up priority HIV/AIDS interventions in the health sector — Progress Report 2008 , Geneva : World Health Organisation .
   Google Scholar
• Whyte , S. R. , van der Geest , S. and Hardon , A. 2002 . Social Lives of Medicines , Cambridge : Cambridge University Press .
   Google Scholar