‘Yummy or crummy?’ The multisensory components of medicines-taking among HIV-positive youth

References

• Adams, V. (2013). Evidence-based global public health: Subjects, profits, erasures. In J. Biehl & A. Petryna (Eds.), When people come first: Critical studies in global health (pp. 54–90). Princeton: Princeton University Press.
   Google Scholar
• Agwu, A. L., & Fairlie, L. (2013). Antiretroviral treatment, management challenges and outcomes in perinatally HIV-infected adolescents. Journal of the International AIDS Society, 16(1), 18579. doi: 10.7448/IAS.16.1.18579
   PubMedGoogle Scholar
• Ammon, R., Mason, S., & Corkery, J. M. (2018). Factors impacting antiretorviral therapy adherence among human immunodeficiency virus-positive adolescents in Sub-saharan Africa: A systematic review. Public Health, 157(April), 20–31. doi: 10.1016/j.puhe.2017.12.010
   PubMedGoogle Scholar
• Bekker, L. G., Slack, C., Lee, S., Shah, S., & Kapogiannis, B. (2014). Ethical issues in adolescent HIV research in resource-limited countries. Journal of Acquired Immune Deficiency Syndromes, 65(1), S24–S28. doi: 10.1097/QAI.0000000000000036
   PubMedGoogle Scholar
• Blas, E., Sommerfeld, J., & Sivasankara Kurup, A. (2011). Introduction and methods of work. In E. Blas, J. Sommerfeld, & A. Sivasankara Kurup (Eds.), Social determinants approaches to public health: From concept to practice (pp. 1–8). Geneva: WHO.
   Google Scholar
• Bray, R., Gooskens, I., Kahn, L., Moses, S., & Seekings, J. (Eds.). (2010). Growing up in the new South Africa: Childhood and adolescents in post-Apartheid Cape Town. Cape Town: HSRC Press.
   Google Scholar
• Carty, R., Hodes, R., Cluver, L., & Bhardwaj, S. (2017). Symptom or sentiment?: Considerations for mHealth interventions designed for HIV+ adolescents. Proceedings of the 2017 International Conference on Digital Health, 227–228. (London, Association for Computing Machinery).
   Google Scholar
• Cluver, L., Hodes, R., Sherr, L., Orkin, M., Meinck, F., Ken, P., … Vicari, M. (2015). Social protection: Potential for improving outcomes among adolescents. Journal of the International AIDS Society, 18(6), S1–S7.
   Google Scholar
• Cluver, L., Hodes, R., Toska, E., Kidia, K. K., Orkin, F. M., Sherr, L., & Meinck, F. (2015). HIV is like a tsotsi. ARVs are your guns: Associations between HIV-disclosure and adherence to antiretroviral treatment among adolescents in South Africa. AIDS, 29(1), S57–S65. doi: 10.1097/QAD.0000000000000695
   PubMedGoogle Scholar
• Cluver, L., Meinck, F., Toska, E., Orkin, F. M., Hodes, R., & Sherr, L. (2018). Violence exposure and adolescent antiretroviral non-adherence in South Africa. AIDS, 32(8), 975–983.
   PubMed Web of Science ®Google Scholar
• Cluver, L., Toska, E., Orkin, M., Meinck, F., Hodes, R., Yakubovich, A., & Sherr, L. (2016). Achieving equity in HIV-treatment outcomes: Can social protection improve adolescent ART-adherence in South Africa? AIDS Care, 28(2), 73–82. doi: 10.1080/09540121.2016.1179008
   PubMedGoogle Scholar
• Colvin, C. J. (2015). Anthropologies in and of evidence making in global health research and policy. Medical Anthropology, 34(2), 99–105. doi: 10.1080/01459740.2014.963196
   PubMed Web of Science ®Google Scholar
• Cornwall, A., & Jewkes, R. (1995). What is participatory research? Social Sciences and Medicine, 41(12), 1667–1676. doi: 10.1016/0277-9536(95)00127-S
   PubMed Web of Science ®Google Scholar
• Department of Health, South Africa. (2012). The 2011 national antenatal sentinel HIV and syphilis prevalence survey in South Africa. Pretoria: National Department of Health.
   Google Scholar
• Department of Health, South Africa. (2017a). Let our actions count: South Africa’s national strategic plan on HIV, TB and STI’s 2017–2022.
   Google Scholar
• Department of Health, South Africa. (2017b). National adolescent and youth health policy. Pretoria: National Department of Health.
   Google Scholar
• DiMatteo, M. R. (2004). Social support and patient adherence to medical treatment: A meta-analysis. Health Psychology, 23(2), 207–218. doi: 10.1037/0278-6133.23.2.207
   PubMed Web of Science ®Google Scholar
• Ferrand, R. A., Corbett, E. L., Wood, R., Hargrove, J., Ndhlovu, C. E., Cowan, F. M., … Williams, B. G. (2009). AIDS among older children and adolescents in Southern Africa: Projecting the time course and magnitude of the epidemic. AIDS, 23(15), 2039–2046. doi: 10.1097/QAD.0b013e32833016ce
   PubMed Web of Science ®Google Scholar
• Fox, M. P., Maskew, M., Brennan, A. T., Evans, D., Onoya, D., Malete, G., … Sanne, I. (2017). Cohort profile: The right to care clinical HIV cohort, South Africa. BMJ Open, 7(6), e015620. doi: 10.1136/bmjopen-2016-015620
   PubMed Web of Science ®Google Scholar
• Goldenberg, T., Finneran, C., Andes, K. L., & Stephenson, R. (2016). Using participant-empowered visual relationship timelines in a qualitative study of sexual behavior. Global Public Health, 11(5–6), 699–718. doi: 10.1080/17441692.2016.1170869
   PubMed Web of Science ®Google Scholar
• Heestermans, T., Browne, J. L., Aitken, S. C., Vervoort, S. C., & Klipstein-Grobusch, K. (2016). Determinants of adherence to antiretroviral therapy among HIV-positive adults in Sub-saharan Africa: A systematic review. BMJ Global Health, 1(4), e000125. doi: 10.1136/bmjgh-2016-000125
   PubMed Web of Science ®Google Scholar
• Hodes, R., Doubt, J., Toska, E., Vale, B., Zungu, N., & Cluver, L. (2018). The stuff that dreams are made of: HIV-positive adolescents’ aspirations for development. Journal of the International AIDS Society, 21(S1), E25057. doi: 10.1002/jia2.25057
   Google Scholar
• Hodes, R., Dowse, R., Cluver, L., Vale, B., Toska, E., Gittings, L., & Ashorn, M. (June 2017). Yummy or crummy? Pill burden, palatability and ART adherence among adolescents. Oral presentation at the Southern African AIDS Conference, Durban, South Africa.
   Google Scholar
• Hodes, R., & Morrell, R. (2018). Incursions from the epicentre: Southern theory, social science, and the global HIV research domain. African Journal of AIDS Research, 17(1), 22–31. doi: 10.2989/16085906.2017.1377267
   PubMed Web of Science ®Google Scholar
• Hodes, R., Price, I., Bungane, N., Toska, E., & Cluver, L. (2017). How frontline healthcare workers respond to stock-outs of essential medicines in the Eastern Cape. South African Medical Journal, 107(9), 738–740. doi: 10.7196/SAMJ.2017.v107i9.12476
   PubMed Web of Science ®Google Scholar
• Hofmeyr, G., Georgiou, T., & Baker, C. (2009). The Keiskamma AIDS treatment programme: Evaluation of a community-based antiretroviral programme in a rural setting. Southern African Journal of HIV Medicine, 10(1), 38–41.
   Google Scholar
• Hudelson, C., & Cluver, L. (2015). Factors associated with adherence to antiretroviral therapy among adolescents living with HIV/AIDS in low- and middle-income countries: A systematic review. AIDS Care, 27, 805–816. doi: 10.1080/09540121.2015.1011073
   PubMed Web of Science ®Google Scholar
• Khan, K. S., & Ajmal, A. (2011). Women’s empowerment and its challenges: Review of a multi-partner national project to reduce malnutrition in rural girls in Pakistan. In E. Blas, J. Sommerfeld, & A. Sivasankara Kurup (Eds.), Social determinants approaches to public health: From concept to practice (pp. 118–127). Geneva: WHO.
   Google Scholar
• Lall, P., Lim, S. H., Khairuddin, N., & Kamarulzama, A. (2015). Review: An urgent need for research on factors impacting adherence to and retention in care among HIV-positive youth and adolescents from key populations. Journal of the International AIDS Society, 18(2S1), 19393.
   PubMedGoogle Scholar
• Maskew, M., Fox, M. P., Evans, D., Govindasamy, D., Jamieson, L., Malete, G., … Technau, K. (2016). Insights into adherence among a cohort of adolescents aged 12–20 years in South Africa: Reported barriers to antiretroviral treatment. AIDS Research and Treatment, 2016, 1–12. doi: 10.1155/2016/4161738
   Web of Science ®Google Scholar
• Mitchell, C. M., & Sommer, M. (2016). Participatory visual methodologies in global public health. Global Public Health, 11(5–6), 521–527. doi: 10.1080/17441692.2016.1170184
   PubMed Web of Science ®Google Scholar
• Mofenson, L., & Cotton, M. (2013). The challenges of success: Adolescents with perinatal HIV infection. Journal of the International AIDS Society, 16(1860), 1–3.
   PubMedGoogle Scholar
• Nachega, J. B., Parienti, J. J., Uthman, O. A., Gross, R., Dowdy, D. W., Sax, P. E., … Giordano, T. P. (2014). Lower pill burden and once-daily antiretroviral treatment regimens for HIV infection: A meta-analysis of randomized controlled trials. Clinical Infectious Diseases, 58(9), 1297–1307. doi: 10.1093/cid/ciu046
   PubMed Web of Science ®Google Scholar
• Nyogea, D., Mtenga, S., Henning, L., Franzeck, F. C., Glass, T. R., Letang, E., … Geubbels, E. (2015). Determinants of antiretroviral adherence among HIV-positive children and teenagers in rural Tanzania: A mixed methods study. BMC Infectious Diseases, 15, 280901. doi: 10.1186/s12879-015-0753-y
   Web of Science ®Google Scholar
• Padian, N. S., McLoy, S. I., Balkus, J. E., & Wasserheit, J. N. (2010). Weighing the gold in the gold standard: Challenges in HIV prevention research. AIDS, 24(5), 621–635. doi: 10.1097/QAD.0b013e328337798a
   PubMed Web of Science ®Google Scholar
• Pope, A. (2007). HIV prevention research and minors. South African Law Journal, 124, 165–187.
   Google Scholar
• Ridgeway, K., Dulli, L. S., Murray, K. R., Silverstein, H., Dal Santo, L., Olsen, P., … Paraskevis, D. (2018). Interventions to improve antiretroviral therapy adherence among adolescents in low- and middle-income countries: A systematic review of the literature. PLoS ONE, 13(1), e0189770. doi: 10.1371/journal.pone.0189770
   PubMed Web of Science ®Google Scholar
• Scott, V., Schaay, N., Schneider, H., & Sanders, D. (2017). Addressing social determinants of health in South Africa: The journey continues. In A. Padarath & P. Barron (Eds.), South African health review 2017 (pp. 77–88). Durban: Health Systems Trust.
   Google Scholar
• Shubber, Z., Mills, E. J., Nachega, J. B., Vreeman, R., Freitas, M., Bock, P., … Weiser, S. D. (2016). Patient-reported barriers to adherence to antiretroviral therapy: A systematic review and meta-analysis. PLOS Medicine, 13, e1002183. doi: 10.1371/journal.pmed.1002183
   PubMed Web of Science ®Google Scholar
• Skovdal, M., & Cornish, F. (2016). Chapter 5: Participatory data collection methods. In Qualitative research for development: A guide for practitioners (pp. 99–130). Warwickshire: Practical Action.
   Google Scholar
• Smith, C. M., Sammons, H. M., & Conroy, S. (2013). A prospective study to assess the palatability of analgesic medicines in children. Journal of Advanced Nursing, 69(3), 655–663. doi: 10.1111/j.1365-2648.2012.06050.x
   PubMed Web of Science ®Google Scholar
• Sohn, A., & Hazra, R. (2013). The changing epidemiology of the global paediatric HIV epidemic: Keeping track of perinatally HIV-infected adolescents. Journal of the International AIDS Society, 16(1), 18555. doi: 10.7448/IAS.16.1.18555
   PubMed Web of Science ®Google Scholar
• Solar, O., & Irwin, A. (2010). A conceptual framework for action on the social determinants of health. Social Determinants of Health Discussion Paper 2 (Policy and Practice). Geneva: WHO.
   Google Scholar
• Toska, E., Cluver, L., Boyes, M., Isaacsohn, M., Hodes, R., & Sherr, L. (2016). School, supervision and adolescent-sensitive clinic care: Combination social protection and reduced unprotected sex among HIV-positive adolescents in South Africa. AIDS and Behavior, 21(9), 1–14.
   Web of Science ®Google Scholar
• Toska, E., Cluver, L., Hodes, R., & Kidia, K. (2015). Sex and secrecy: How HIV-status disclosure affects safe sex among HIV-positive adolescents. AIDS Care, 27(1), 47–58. doi: 10.1080/09540121.2015.1071775
   PubMed Web of Science ®Google Scholar
• UNAIDS. (2013). Report on the global AIDS epidemic. Geneva: UNAIDS.
   Google Scholar
• UNAIDS. (2016). Global AIDS update. Geneva: UNAIDS.
   Google Scholar
• UNICEF. (2016). For every child end AIDS, seventh stocktaking report. Geneva: UNICEF.
   Google Scholar
• Vale, B., Hodes, R., Cluver, L., & Thabeng, M. (2017). Bureaucracies of blood and belonging: Documents, HIV-positive youth and the state in South Africa. Development and Change, 48(6), 1287–1309. doi: 10.1111/dech.12341
   Web of Science ®Google Scholar
• Vale, B., & Thabeng, M. (2016). Redeeming lost mothers: Adolescent antiretroviral treatment and the making of home in South Africa. Medical Anthropology, 35(6), 489–502. doi: 10.1080/01459740.2016.1145218
   PubMed Web of Science ®Google Scholar
• Vindrola- Padros, C., Martins, A., Coyne, I., Bryan, G., & Gibson, F. (2016). From informed consent to dissemination: Using participatory visual methods with young people with long-term conditions at different stages of research. Global Public Health, 11(5–6), 636–650. doi: 10.1080/17441692.2016.1165718
   PubMed Web of Science ®Google Scholar
• World Health Organisation, Commission on Social Determinants of Health. (2008). Closing the gap in a generation: Health equity through action on the social determinants of health. Geneva: WHO Press.
   Google Scholar