Publication Cover
Global Public Health
An International Journal for Research, Policy and Practice
Volume 14, 2019 - Issue 9
1,271
Views
3
CrossRef citations to date
0
Altmetric
Articles

The rebellious man: Next-of-kin accounts of the death of a male relative on antiretroviral therapy in sub-Saharan Africa

ORCID Icon, , , ORCID Icon, , ORCID Icon, ORCID Icon, , ORCID Icon, ORCID Icon & ORCID Icon show all
Pages 1252-1263 | Received 19 Sep 2018, Accepted 21 Dec 2018, Published online: 28 Jan 2019

References

  • Addington-Hall, J., & McPherson, C. (2001). After-death interviews with surrogates/bereaved family members: Some issues of validity. Journal of Pain and Symptom Management, 22(3), 784–790. doi: 10.1016/S0885-3924(01)00330-X
  • Attride-Stirling, J. (2001). Thematic networks: An analytic tool for qualitative research. Qualitative Research, 1(3), 385–405. doi: 10.1177/146879410100100307
  • Beckham, S. W., Beyrer, C., Luckow, P., Doherty, M., Negussie, E. K., & Baral, S. D. (2016). Marked sex differences in all-cause mortality on antiretroviral therapy in low-and middle-income countries: A systematic review and meta-analysis. Journal of the International AIDS Society, 19, 21106. doi: 10.7448/IAS.19.1.21106
  • Beckmann, N. (2013). Responding to medical crises: AIDS treatment, responsibilisation and the logic of choice. Anthropology & Medicine, 20(2), 160–174. doi: 10.1080/13648470.2013.800805
  • Berg, K. M., Demas, P. A., Howard, A. A., Schoenbaum, E. E., Gourevitch, M. N., & Arnsten, J. H. (2004). Gender differences in factors associated with adherence to antiretroviral therapy. Journal of General Internal Medicine, 19(11), 1111–1117. doi: 10.1111/j.1525-1497.2004.30445.x
  • Brown, J., Sorrell, J., & Raffaelli, M. (2005). An exploratory study of constructions of masculinity, sexuality and HIV/AIDS in Namibia, Southern Africa. Culture, Health & Sexuality, 7(6), 585–598. doi: 10.1080/13691050500250198
  • Byass, P., Kahn, K., Fottrell, E., Mee, P., Collinson, M. A., & Tollman, S. M. (2011). Using verbal autopsy to track epidemic dynamics: The case of HIV-related mortality in South Africa. Population Health Metrics, 9(1), 46. doi: 10.1186/1478-7954-9-46
  • Campbell, C., Skovdal, M., Madanhire, C., Mugurungi, O., Gregson, S., & Nyamukapa, C. (2011). We, the AIDS people …  How antiretroviral therapy enables Zimbabweans living with HIV/AIDS to cope with stigma. American Journal of Public Health, 101(6), 1004–1010. doi: 10.2105/AJPH.2010.202838
  • Chikovore, J., Gillespie, N., McGrath, N., Orne-Gliemann, J., Zuma, T., & Group, A. T. S. (2016). Men, masculinity, and engagement with treatment as prevention in KwaZulu-Natal, South Africa. AIDS Care, 28, 74–82. doi: 10.1080/09540121.2016.1178953
  • Courtenay, W. (2000). Construtions of masculinity and their influence on men's well-being: A theory of gender and health. Social Science & Medicine, 50(10), 1385–1401. doi: 10.1016/S0277-9536(99)00390-1
  • Dovel, K., Yeatman, S., Watkins, S., & Poulin, M. (2015). Men’s heightened risk of AIDS-related death: The legacy of gendered HIV testing and treatment strategies. AIDS, 29(10), 1123–1125. doi: 10.1097/QAD.0000000000000655
  • Doyal, L. (2016). Living with HIV and dying with AIDS: Diversity, inequality and human rights in the global pandemic. London: Routledge.
  • Druyts, E., Dybul, M., Kanters, S., Nachega, J., Birungi, J., Ford, N., … Yaya, S. (2013). Male sex and the risk of mortality among individuals enrolled in antiretroviral therapy programs in Africa: A systematic review and meta-analysis. AIDS, 27(3), 417–425. doi: 10.1097/QAD.0b013e328359b89b
  • Galdas, P. M., Cheater, F., & Marshall, P. (2005). Men and health help-seeking behaviour: Literature review. Journal of Advanced Nursing, 49(6), 616–623. doi: 10.1111/j.1365-2648.2004.03331.x
  • Gari, S., Martin-Hilber, A., Malungo, J., Musheke, M., & Merten, S. (2014). Sex differentials in the uptake of antiretroviral treatment in Zambia. AIDS Care, 26(10), 1258–1262. doi: 10.1080/09540121.2014.897911
  • Gouda, H. N., Kelly-Hanku, A., Wilson, L., Maraga, S., & Riley, I. D. (2016). “Whenever they cry, I cry with them”: Reciprocal relationships and the role of ethics in a verbal autopsy study in Papua New Guinea. Social Science & Medicine, 163, 1–9. doi: 10.1016/j.socscimed.2016.06.041
  • Hawkins, C., Chalamilla, G., Okuma, J., Spiegelman, D., Hertzmark, E., Aris, E., … Fawzi, W. (2011). Sex differences in antiretroviral treatment outcomes among HIV-infected adults in an urban Tanzanian setting. AIDS, 25(9), 1189–1197. doi: 10.1097/QAD.0b013e3283471deb
  • Kalichman, S. C., DiMarco, M., Austin, J., Luke, W., & DiFonzo, K. (2003). Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women. Journal of Behavioral Medicine, 26(4), 315–332. doi: 10.1023/a:1024252926930
  • Källander, K., Kadobera, D., Williams, T. N., Nielsen, R. T., Yevoo, L., Mutebi, A., … Waiswa, P. (2011). Social autopsy: INDEPTH network experiences of utility, process, practices, and challenges in investigating causes and contributors to mortality. Population Health Metrics, 9(1), 44. doi: 10.1186/1478-7954-9-44
  • Kalter, H. D., Salgado, R., Babille, M., Koffi, A. K., & Black, R. E. (2011). Social autopsy for maternal and child deaths: A comprehensive literature review to examine the concept and the development of the method. Population Health Metrics, 9(1), 45. doi: 10.1186/1478-7954-9-45
  • Kranzer, K., Lewis, J. J., Ford, N., Zeinecker, J., Orrell, C., Lawn, S. D., … Wood, R. (2010). Treatment interruption in a primary care antiretroviral therapy programme in South Africa: Cohort analysis of trends and risk factors. Journal of Acquired Immune Deficiency Syndromes, 55(3), e17–e23. doi: 10.1097/QAI.0b013e3181f275fd
  • Kulzer, J. L., Penner, J. A., Marima, R., Oyaro, P., Oyanga, A. O., Shade, S. B., … Muttai, H. C. (2012). Family model of HIV care and treatment: A retrospective study in Kenya. Journal of the International AIDS Society, 15(1), 8. doi: 10.1186/1758-2652-15-8
  • Mattes, D. (2011). “We are just supposed to be quiet”: The production of adherence to antiretroviral treatment in urban Tanzania. Medical Anthropology, 30(2), 158–182. doi: 10.1080/01459740.2011.552454
  • Mburu, G., Ram, M., Siu, G., Bitira, D., Skovdal, M., & Holland, P. (2014). Intersectionality of HIV stigma and masculinity in eastern Uganda: Implications for involving men in HIV programmes. BMC Public Health, 14(1), 1061. doi: 10.1186/1471-2458-14-1061
  • Moyer, C. A., Johnson, C., Kaselitz, E., & Aborigo, R. (2017). Using social autopsy to understand maternal, newborn, and child mortality in low-resource settings: A systematic review of the literature. Global Health Action, 10, 1413917. doi: 10.1080/16549716.2017.1413917
  • Nattrass, N. (2008). Gender and access to antiretroviral treatment in South Africa. Feminist Economics, 14(4), 19–36. doi: 10.1080/13545700802266452
  • Njuki, R., Kimani, J., Obare, F., & Warren, C. (2014). Using verbal and social autopsies to explore health-seeking behaviour among HIV-positive women in Kenya: A retrospective study. BMC Women’s Health, 14(1), 77. doi: 10.1186/1472-6874-14-77
  • Nkosi, S., Rich, E. P., Kekwaletswe, C. T., & Morojele, N. K. (2016). Experiences of alcohol consumption and taking antiretroviral medication among men living with HIV in Tshwane, South Africa. African Journal of AIDS Research, 15(4), 367–376. doi: 10.2989/16085906.2016.1255651
  • Noone, J., & Stephens, C. (2008). Men, masculine identities, health care utilisation. Sociology of Health and Illness, 30(5), 711–725. doi: 10.1111/j.1467-9566.2008.01095.x
  • Ochieng-Ooko, V., Ochieng, D., Sidle, J. E., Holdsworth, M., Wools-Kaloustian, K., Siika, A. M., … Braitstein, P. (2010). Influence of gender on loss to follow-up in a large HIV treatment programme in western Kenya. Bulletin of the World Health Organization, 88(9), 681–688. doi: 10.2471/BLT.09.064329
  • Rhead, R., Skovdal, M., Takaruza, A., Maswera, R., Nyamukapa, C., & Gregson, S. (2019). The multidimensionality of masculine norms in east Zimbabwe: Implications for HIV prevention, testing and treatment. AIDS. Advance online publication. doi: 10.1097/QAD.0000000000002041
  • Rich, E. P., Nkosi, S., & Morojele, N. K. (2015). Masculinities, alcohol consumption, and sexual risk behavior among male tavern attendees: A qualitative study in North West Province, South Africa. Psychology of Men & Masculinity, 16(4), 382–392. doi: 10.1037/a0038871
  • Scott, M. B., & Lyman, S. M. (1968). Accounts. American Sociological Review, 33(1), 46–62. doi: 10.2307/2092239
  • Seckinelgin, H. (2007). International politics of HIV/AIDS: Global disease-local pain. London: Routledge.
  • Siu, G. E., Wight, D., & Seeley, J. A. (2014). Masculinity, social context and HIV testing: An ethnographic study of men in Busia district, rural eastern Uganda. BMC Public Health, 14(1), 33. doi: 10.1186/1471-2458-14-33
  • Skovdal, M., Campbell, C., Madanhire, C., Mupambireyi, Z., Nyamukapa, C., & Gregson, S. (2011). Masculinity as a barrier to men’s use of HIV services in Zimbabwe. Globalization and Health, 7, 13. doi: 10.1186/1744-8603-7-13
  • Skovdal, M., Wringe, A., Seeley, J., Renju, J., Paparini, S., Wamoyi, J., … Odenge, K. (2017). Using theories of practice to understand HIV-positive persons varied engagement with HIV services: A qualitative study in six sub-Saharan African countries. Sexually Transmitted Infections, 93, 1–7. doi: 10.1136/sextrans-2016-052977
  • Slaymaker, E., McLean, E., Wringe, A., Calvert, C., Marston, M., Reniers, G., … Michael, D. (2017). The network for Analysing Longitudinal Population-based HIV/AIDS data on Africa (ALPHA): Data on mortality, by HIV status and stage on the HIV care continuum, among the general population in seven longitudinal studies between 1989 and 2014. Gates Open Research, 1, 4. doi: 10.12688/gatesopenres.12753.1
  • Treves-Kagan, S., El Ayadi, A. M., Pettifor, A., MacPhail, C., Twine, R., Maman, S., … Lippman, S. A. (2017). Gender, HIV testing and Stigma: The Association of HIV testing Behaviors and community-level and individual-level Stigma in rural South Africa Differ for Men and women. AIDS and Behavior, 21(9), 2579–2588. doi: 10.1007/s10461-016-1671-8
  • Tronto, J. C. (1993). Moral boundaries: A political argument for an ethic of care. London: Routledge.
  • van Rooyen, H., Essack, Z., Rochat, T., Wight, D., Knight, L., Bland, R., & Celum, C. (2016). Taking HIV testing to families: Designing a family-based intervention to facilitate HIV testing, disclosure, and intergenerational communication. Frontiers in Public Health, 4, 154. doi: 10.3389/fpubh.2016.00154
  • Venkatesh, K. K., Madiba, P., De Bruyn, G., Lurie, M. N., Coates, T. J., & Gray, G. E. (2011). Who gets tested for HIV in a South African urban township? Implications for test and treat and gender-based prevention interventions. Journal of Acquired Immune Deficiency Syndromes, 56(2), 151–165. doi: 10.1097/QAI.0b013e318202c82c
  • Woolf-King, S. E., & Maisto, S. A. (2011). Alcohol use and high-risk sexual behavior in Sub-Saharan Africa: A narrative review. Archives of Sexual Behavior, 40(1), 17–42. doi: 10.1007/s10508-009-9516-4
  • Wringe, A., Renju, J., Seeley, J., Moshabela, M., & Skovdal, M. (2017). Bottlenecks to HIV care and treatment in sub-Saharan Africa: A multi-country qualitative study. Sexually Transmitted Infections, 93, 1–3. doi:10.1136/sextrans-2017-053172 doi: 10.1136/sextrans-2016-053045
  • Wyrod, R. (2008). Between women’s rights and men’s authority: Masculinity and shifting discourses of gender difference in urban Uganda. Gender & Society, 22(6), 799–823. doi: 10.1177/0891243208325888