Promoting social inclusion for young people affected by psycho-social disability in India – a realist evaluation of a pilot intervention

References

• Barry, M. M., Clarke, A. M., Jenkins, R., & Patel, V. (2013). A systematic review of the effectiveness of mental health promotion interventions for young people in low and middle income countries. BMC Public Health, 13, 835. doi: 10.1186/1471-2458-13-835
   PubMed Web of Science ®Google Scholar
• Baumgartner, J., & Burns, J. (2014). Measuring social inclusion – a key outcome in global mental health. International Journal of Epidemiology, 43(2), 354–364. doi: 10.1093/ije/dyt224
   PubMed Web of Science ®Google Scholar
• Baumgartner, J. N., & Susser, E. (2013). Social integration in global mental health: What is it and how can it be measured? Epidemiology and Psychiatric Sciences, 22(1), 29–37. doi: 10.1017/s2045796012000303
   PubMed Web of Science ®Google Scholar
• Beirens, H., Hughes, N., Hek, R., & Spicer, N. (2007). Preventing social exclusion of refugee and asylum seeking children: Building new networks. Social Policy and Society, 6(2), 219–229. doi: 10.1017/S1474746406003484
   Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi: 10.1191/1478088706qp063oa
   Google Scholar
• Brown, S. L. (2009). Play: How it shapes the brain, opens the imagination, and invigorates the soul. New York, NY: Penguin.
   Google Scholar
• Campbell, C., Cornish, F., & McLean, C. (2004). Social capital, participation and the perpetuation of health inequalities: Obstacles to African-Caribbean participation in ‘partnerships’ to improve mental health. Ethnicity and Health, 9(4), 313–335. doi: 10.1080/1355785042000250120
   PubMed Web of Science ®Google Scholar
• Campbell, C., & MacPhail, C. (2002). Peer education, gender and the development of critical consciousness: Participatory HIV prevention by South African youth. Social Science and Medicine, 55(2), 331–345. doi: 10.1016/S0277-9536(01)00289-1
   PubMed Web of Science ®Google Scholar
• Drew, N., Funk, M., Tang, S., Lamichhane, J., Chavez, E., Katontoka, S., … Saraceno, B. (2011). Human rights violations of people with mental and psychosocial disabilities: An unresolved global crisis. Lancet, 378(9803), 1664–1675. doi: 10.1016/s0140-6736(11)61458-x
   PubMed Web of Science ®Google Scholar
• Fikree, F., & Pasha, O. (2004). Role of gender in health disparity: The South Asian context. British Medical Journal, 328, 823–826. doi: 10.1136/bmj.328.7443.823
   PubMed Web of Science ®Google Scholar
• Gailits, N., Mathias, K., Nouvet, E., Pillai, P., & Schwarz, L. (2017). Transformed women, transformed communities: Impact of mental health support groups for North Indian women. Annals of Global Health, 83(1), 94–109. doi: 10.1016/j.aogh.2017.03.225
   Google Scholar
• Goodman, R. (1997). The strengths and difficulties questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38(5), 581–586. doi: 10.1111/j.1469-7610.1997.tb01545.x
   PubMed Web of Science ®Google Scholar
• Government of India. (2011). Census of India 2011. New Delhi. Retrieved from http://www.census2011.co.in/census
   Google Scholar
• Kieling, C., Baker-Henningham, H., Belfer, M., Conti, G., Ertem, I., Omigbodun, O., … Rahman, A. (2011). Child and adolescent mental health worldwide: Evidence for action. The Lancet, 378(9801), 1515–1525. doi: 10.1016/S0140-6736(11)60827-1
   PubMed Web of Science ®Google Scholar
• Larson, R. W., & Verma, S. (1999). How children and adolescents spend time across the world: Work, play, and developmental opportunities. Psychological Bulletin, 125(6), 701. doi: 10.1037/0033-2909.125.6.701
   PubMed Web of Science ®Google Scholar
• Leventhal, K. S., DeMaria, L. M., Gillham, J. E., Andrew, G., Peabody, J., & Leventhal, S. M. (2016). A psychosocial resilience curriculum provides the “missing piece” to boost adolescent physical health: A randomized controlled trial of girls first in India. Social Science and Medicine, 161, 37–46. doi: 10.1016/j.socscimed.2016.05.004
   PubMed Web of Science ®Google Scholar
• Leventhal, K. S., Gillham, J., DeMaria, L., Andrew, G., Peabody, J., & Leventhal, S. (2015). Building psychosocial assets and wellbeing among adolescent girls: A randomized controlled trial. Journal of Adolescence, 45, 284–295. doi: 10.1016/j.adolescence.2015.09.011
   PubMed Web of Science ®Google Scholar
• Luchenski, S., Maguire, N., Aldridge, R. W., Hayward, A., Story, A., Perri, P., … Hewett, N. (2018). What works in inclusion health: Overview of effective interventions for marginalised and excluded populations. The Lancet, 391(10117), 266–280. doi: 10.1016/S0140-6736(17)31959-1
   PubMed Web of Science ®Google Scholar
• Mathias, K., Goicolea, I., Kermode, M., Singh, L., Shidhaye, R., & Sebastian, M. S. (2015). Cross-sectional study of depression and help-seeking in Uttarakhand, North India. BMJ Open, 5(11). doi: 10.1136/bmjopen-2015-008992
   PubMed Web of Science ®Google Scholar
• Mathias, K., Kermode, K., San Sebastian, M., Korschorke, M., & Goicolea, I. (2015). Under the banyan tree - exclusion and inclusion of people with mental distress in rural North India. BMC Public Health, 15(446). doi: 10.1186/s12889-015-1778-2
   PubMedGoogle Scholar
• Mathias, K., Kermode, M., Goicolea, I., Seefeldt, L., Shidaye, R., & San Sebastian, M. (2017). Social distance and community attitudes towards people with psycho-social disabilities in Uttarakhand. India Community Mental Health Journal. doi: 10.1007/s10597-017-0211-y
   Google Scholar
• Mathias, K., Kermode, M., San Sebastian, M., Davar, B., & Goicolea, I. (2018). An asymmetric burden: Experiences of men and women as caregivers of people with psycho-social disabilities in rural North India. Transcultural Psychiatry, 56(1), 76–102. doi: 10.1177/1363461518792728
   PubMed Web of Science ®Google Scholar
• Mathias, K., Pant, H., Marella, M., Singh, L., Murthy, G., & Grills, N. (2018). Multiple barriers to participation for people with psychosocial disability in Dehradun district, North India: A cross-sectional study. BMJ Open, 8(2). doi: 10.1136/bmjopen-2017-019443
   Web of Science ®Google Scholar
• McGorry, P., & Van Os, J. (2013). Redeeming diagnosis in psychiatry: Timing vs specificity. Lancet, 381, 343–345. doi: 10.1016/S0140-6736(12)61268-9
   PubMed Web of Science ®Google Scholar
• McManus, A., & Dhar, L. (2008). Study of knowledge, perception and attitude of adolescent girls towards STIs/HIV, safer sex and sex education: A cross sectional survey of urban adolescent school girls in South Delhi, India. BMC Women's Health, 8(1), 12. doi: 10.1186/1472-6874-8-12
   PubMedGoogle Scholar
• Mehrotra, N. (2012). Disability, gender and caste: Marginality, exclusion and opportunities in Indian Economy. Women’s Link, 18(2), 5–8.
   Google Scholar
• Mikami, A. Y., Griggs, M. S., Lerner, M. D., Emeh, C. C., Reuland, M. M., Jack, A., & Anthony, M. R. (2013). A randomized trial of a classroom intervention to increase peers’ social inclusion of children with attention-deficit/hyperactivity disorder. Journal of Consulting and Clinical Psychology, 81(1), 100–112. doi:10.1037%2Fa0029654 doi: 10.1037/a0029654
   PubMed Web of Science ®Google Scholar
• Ministry of Health and Family Welfare. (2014a). National mental health policy. New Delhi. Retrieved from http://mohfw.nic.in/index1.php?lang=1&level=2&sublinkid=4723&lid=2964
   Google Scholar
• Ministry of Health and Family Welfare. (2014b). Rashtriya Kishor Swasthya Karyakram (RKSK) (National Adolescent Health Program). New Delhi. Retrieved from https://nhm.gov.in/index1.php?lang=1&level=2&sublinkid=818&lid=221
   Google Scholar
• Patton, G. C., Bond, L., Carlin, J. B., Thomas, L., Butler, H., Glover, S., … Bowes, G. (2006). Promoting social inclusion in schools: A group-randomized trial of effects on student health risk behavior and well-being. American Journal of Public Health, 96(9), 1582–1587. doi: 10.2105/ajph.2004.047399
   PubMed Web of Science ®Google Scholar
• Pawson, R., & Tilley, N. (1997). Realistic evaluation. London: Sage.
   Google Scholar
• Popay, J., Escorel, S., Hernandez, M., & Johnston, J. (2008). Understanding and tackling social exclusion – Final Report to the WHO Commission on Social Determinants of Health. Geneva. Retrieved from https://www.who.int/social_determinants/publications/socialexclusion/en/
   Google Scholar
• Sayce, L., & Measey, L. (1999). Strategies to reduce social exclusion for people with mental disorders. Psych Bulletin, 23, 65–67. Retrieved from http://pb.rcpsych.org/ doi: 10.1192/pb.23.2.65
   Google Scholar
• Shidhaye, R., & Kermode, M. (2013). Stigma and discrimination as a barrier to mental health service utilization in India. International Health, 5(1), 6–8. doi: 10.1093/inthealth/ihs011
   PubMed Web of Science ®Google Scholar
• State nodal officer in mental health Uttarakhand. (2018, September). Department of Health and Family Welfare.
   Google Scholar
• Stevelink, S. A. M., Hoekstra, T., Nardi, S. M. T., van der Zee, C. H., Banstola, N., Premkumar, R., … van Brakel, W. H. (2012). Development and structural validation of a shortened version of the participation scale. Disability and Rehabilitation, 34(19), 1596–1607. doi: 10.3109/09638288.2012.656793
   PubMed Web of Science ®Google Scholar
• Umea University. (2014). Open code 4.01. Umea. Retrieved from http://www.phmed.umu.se/english/divisions/epidemiology/research/open-code/?languageId=1
   Google Scholar
• United Nations. (2008). United Nations Conventions on the Rights of Persons with Disabilities. Geneva. Retrieved from http://www.un.org/disabilities/convention/news.shtml
   Google Scholar