‘We are the people whose opinions don’t matter’. A photovoice study exploring challenges faced by community health workers in Uganda

References

• Atieli, H., Menya, D., Githeko, A., & Scott, T. (2009). House design modifications reduce indoor resting malaria vector densities in rice irrigation scheme area in western Kenya. Malaria Journal, 8, 108–108. doi: 10.1186/1475-2875-8-108
   PubMed Web of Science ®Google Scholar
• Bergold, J., & Thomas, S. (2012). Participatory research methods: A methodological approach in motion. In Historical social research/Historische Sozialforschung (pp. 191–222). Berlin, Germany: FQS.
   Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi: 10.1191/1478088706qp063oa
   Google Scholar
• Cometto, G., Ford, N., Pfaffman-Zambruni, J., Akl, E. A., Lehmann, U., McPake, B., … Taylor, D. (2018). Health policy and system support to optimise community health worker programmes: An abridged WHO guideline. The Lancet Global Health, 6(12), e1397–e1404. doi: 10.1016/s2214-109x(18)30482-0
   PubMed Web of Science ®Google Scholar
• Delisle, H., Roberts, J. H., Munro, M., Jones, L., & Gyorkos, T. W. (2005). The role of NGOs in global health research for development. Health Research Policy and Systems, 3(1), 3. doi: 10.1186/1478-4505-3-3
   PubMedGoogle Scholar
• Devakumar, D., Brotherton, H., Halbert, J., Clarke, A., Prost, A., & Hall, J. (2013). Taking ethical photos of children for medical and research purposes in low-resource settings: An exploratory qualitative study. BMC Medical Ethics, 14(1), 27. doi: 10.1186/1472-6939-14-27
   PubMed Web of Science ®Google Scholar
• Ekirapa-Kiracho, E., Muhumuza Kananura, R., Tetui, M., Namazzi, G., Mutebi, A., George, A., … Namusoke Kiwanuka, S. (2017). Effect of a participatory multisectoral maternal and newborn intervention on maternal health service utilization and newborn care practices: A quasi-experimental study in three rural Ugandan districts. Global Health Action, 10(sup4), 1363506. doi: 10.1080/16549716.2017.1363506
   PubMed Web of Science ®Google Scholar
• Grant, M., Wilford, A., Haskins, L., Phakathi, S., Mntambo, N., & Horwood, C. M. (2017). Trust of community health workers influences the acceptance of community-based maternal and child health services. African Journal of Primary Health Care & Family Medicine, 9(1), e1–e8. doi: 10.4102/phcfm.v9i1.1281
   Web of Science ®Google Scholar
• Haines, A., Sanders, D., Lehmann, U., Rowe, A. K., Lawn, J. E., Jan, S., … Bhutta, Z. (2007). Achieving child survival goals: Potential contribution of community health workers. Lancet, 369(9579), 2121–2131. doi: 10.1016/s0140-6736(07)60325-0
   PubMed Web of Science ®Google Scholar
• Hannes, K., & Parylo, O. (2014). Let's play it safe: Ethical considerations from participants in a photovoice research project. International Journal of Qualitative Methods, 13(1), 255–274. doi: 10.1177/160940691401300112
   Web of Science ®Google Scholar
• Harley, A. (2012). Picturing reality: Power, ethics, and politics in using photovoice. International Journal of Qualitative Methods, 11(4), 320–339. doi: 10.1177/160940691201100402
   Web of Science ®Google Scholar
• Ingram, M., Schachter, K. A., Sabo, S. J., Reinschmidt, K. M., Gomez, S., De Zapien, J. G., & Carvajal, S. C. (2014). A community health worker intervention to address the social determinants of health through policy change. The Journal of Primary Prevention, 35(2), 119–123. doi: 10.1007/s10935-013-0335-y
   PubMed Web of Science ®Google Scholar
• Jaskiewicz, W., & Tulenko, K. (2012). Increasing community health worker productivity and effectiveness: A review of the influence of the work environment. Human Resources for Health, 10, 38. doi: 10.1186/1478-4491-10-38
   PubMed Web of Science ®Google Scholar
• Kalinga, C. (2019). Caught between a rock and a hard place: Navigating global research partnerships in the global South as an indigenous researcher. Journal of African Cultural Studies, 31(3), 270–272. doi: 10.1080/13696815.2019.1630261
   Web of Science ®Google Scholar
• Kimbugwe, G., Mshilla, M., Oluka, D., Nalikka, O., Kyangwa, J., Zalwango, S., … Galiwango, J. (2014). Challenges faced by village health teams (VHTs) in Amuru, Gulu and Pader districts in Northern Uganda. Open Journal of Preventive Medicine, 4(9), 740–750. doi: 10.4236/ojpm.2014.49084
   PubMedGoogle Scholar
• Lee, J. (2015). How effective are Uganda's poorly funded community health workers? Retrieved from https://pulitzercenter.org/reporting/how-effective-are-ugandas-poorly-funded-community-health-workers
   Google Scholar
• Lewin, S. A., Dick, J., Pond, P., Zwarenstein, M., Aja, G., van Wyk, B., … Patrick, M. (2005). Lay health workers in primary and community health care. Cochrane Database of Systematic Reviews, 1, Cd004015. doi: 10.1002/14651858.CD004015.pub2
   Google Scholar
• Liebenberg, L. (2018). Thinking critically about photovoice: Achieving empowerment and social change. International Journal of Qualitative Methods, 17(1). doi: 10.1177/1609406918757631
   Web of Science ®Google Scholar
• Mangwi Ayiasi, M., Kolsteren, R., Batwala, P., Criel, B., & Orach, C. G. (2016). Effect of village health team home visits and mobile phone consultations on maternal and newborn care practices in Masindi and Kiryandongo, Uganda: A community-intervention trial. PLoS One, 11(4), e0153051. doi: 10.1371/journal.pone.0153051
   PubMed Web of Science ®Google Scholar
• Mays, D. C., O'Neil, E. J., Mworozi, E. A., Lough, B. J., Tabb, Z. J., Whitlock, A. E., … Talib, Z. M. (2017). Supporting and retaining village health Teams: An assessment of a community health worker program in two Ugandan districts. International Journal for Equity in Health, 16(1), 129. doi: 10.1186/s12939-017-0619-6
   PubMedGoogle Scholar
• McIntyre, A. (2003). Through the eyes of women: Photovoice and participatory research as tools for reimagining place. Gender, Place & Culture, 10(1), 47–66. doi: 10.1080/0966369032000052658
   Google Scholar
• Ministry of Health Uganda. (2015). National village health teams (VHT) assessment in Uganda. Kampala.
   Google Scholar
• Mukono District Local Government. (2015). District Development Plan 2015/2016-2019/2020. Retrieved from http://npa.ug/wp-content/uploads/2017/05/Mukono-DISTRICT-Development-Plan-Final.pdf
   Google Scholar
• Mullan, F., & Epstein, L. (2002). Community-oriented primary care: New relevance in a changing world. American Journal of Public Health, 92(11), 1748–1755. doi: 10.2105/ajph.92.11.1748
   PubMed Web of Science ®Google Scholar
• Musinguzi, L. K., Turinawe, E. B., Rwemisisi, J. T., de Vries, D. H., Mafigiri, D. K., Muhangi, D., … Pool, R. (2017). Linking communities to formal health care providers through village health teams in rural Uganda: Lessons from linking social capital. Human Resources for Health, 15(1), 4. doi: 10.1186/s12960-016-0177-9
   PubMedGoogle Scholar
• Musoke, D., Ekirapa-Kiracho, E., Ndejjo, R., & George, A. (2015). Using photovoice to examine community level barriers affecting maternal health in rural Wakiso district, Uganda. Reproductive Health Matters, 23(45), 136–147. doi: 10.1016/j.rhm.2015.06.011
   PubMed Web of Science ®Google Scholar
• Musoke, D., Ssemugabo, C., Ndejjo, R., Ekirapa-Kiracho, E., & George, A. S. (2018). Reflecting strategic and conforming gendered experiences of community health workers using photovoice in rural Wakiso district, Uganda. Human Resources for Health, 16(1), 41. doi: 10.1186/s12960-018-0306-8
   PubMedGoogle Scholar
• Namukwaya, Z., Barlow-Mosha, L., Mudiope, P., Kekitiinwa, A., Matovu, J. N., Musingye, E., … Musoke, P. M. (2015). Use of peers, community lay persons and village health team (VHT) members improves six-week postnatal clinic (PNC) follow-up and Early infant HIV Diagnosis (EID) in urban and rural health units in Uganda: A one-year implementation study. BMC Health Services Research, 15, 555. doi: 10.1186/s12913-015-1213-5
   PubMed Web of Science ®Google Scholar
• O'Donovan, J., Kabali, K., Taylor, C., Chukhina, M., Kading, J. C., Fuld, J., & O'Neil, E. (2018). The use of low-cost Android tablets to train community health workers in Mukono, Uganda, in the recognition, treatment and prevention of pneumonia in children under five: A pilot randomised controlled trial. Human Resources for Health, 16(1), 49. doi: 10.1186/s12960-018-0315-7
   PubMedGoogle Scholar
• O'Donovan, J., Stiles, C. E., Sekimpi, D., Ddumba, I., Winters, N., & O'Neil, E., Jr. (2018). Potential challenges of implementing the community health extension worker programme in Uganda. BMJ Global Health, 3(4), e000960. doi: 10.1136/bmjgh-2018-000960
   PubMed Web of Science ®Google Scholar
• O'Donovan, J., Thompson, A., Onyilofor, C., Hand, T., Rosseau, N., & O'Neil, E. (2018). The use of participatory visual methods with community health workers: A systematic scoping review of the literature. Global Public Health, 1–15. doi: 10.1080/17441692.2018.1536156
   Web of Science ®Google Scholar
• Ojo, T. T., Hawley, N. L., Desai, M. M., Akiteng, A. R., Guwatudde, D., & Schwartz, J. I. (2017). Exploring knowledge and attitudes toward non-communicable diseases among village health teams in Eastern Uganda: A cross-sectional study. BMC Public Health, 17(1), 947. doi: 10.1186/s12889-017-4954-8
   PubMedGoogle Scholar
• Oliver, M., Geniets, A., Winters, N., Rega, I., & Mbae, S. M. (2015). What do community health workers have to say about their work, and how can this inform improved programme design? A case study with CHWs within Kenya. Global Health Action, 8, 27168–27168. doi: 10.3402/gha.v8.27168
   PubMed Web of Science ®Google Scholar
• Ozano, K., Simkhada, P., Thann, K., & Khatri, R. (2018). Improving local health through community health workers in Cambodia: Challenges and solutions. Human Resources for Health, 16(1), 2. doi: 10.1186/s12960-017-0262-8
   PubMedGoogle Scholar
• QSR International Pty Ltd. (2018). NVivo qualitative data analysis Software (Version 12).
   Google Scholar
• Scott, K., Beckham, S. W., Gross, M., Pariyo, G., Rao, K. D., Cometto, G., & Perry, H. B. (2018). What do we know about community-based health worker programs? A systematic review of existing reviews on community health workers. Human Resources for Health, 16(1), 39. doi: 10.1186/s12960-018-0304-x
   PubMedGoogle Scholar
• Sekimpi, K. (2007). Report on study of community health workers in Uganda (with focus on village health team strategy-VHT). Geneva: WHO Global Health Workforce Alliance.
   Google Scholar
• Smith, S. A., & Blumenthal, D. S. (2012). Community health workers support community-based participatory research ethics: Lessons learned along the research-to-practice-to-community continuum. Journal of Health Care for the Poor and Underserved, 23(4 Suppl), 77–87. doi: 10.1353/hpu.2012.0156
   PubMed Web of Science ®Google Scholar
• Turinawe, E. B., Rwemisisi, J. T., Musinguzi, L. K., de Groot, M., Muhangi, D., de Vries, D. H., … Pool, R. (2015). Selection and performance of village health teams (VHTs) in Uganda: Lessons from the natural helper model of health promotion. Human Resources for Health, 13(1), 73. doi: 10.1186/s12960-015-0074-7
   PubMedGoogle Scholar
• Wang, C., & Burris, M. A. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education & Behavior, 24(3), 369–387. doi: 10.1177/109019819702400309
   PubMed Web of Science ®Google Scholar
• Winters, N., O'Donovan, J., & Geniets, A. (2018). A new era for community health in countries of low and middle income? The Lancet Global Health, 6(5), e489–e490. doi: 10.1016/s2214-109x(18)30072-x
   PubMed Web of Science ®Google Scholar