Economic and humanistic burden of HPV-related disease in Indonesia: A qualitative analysis

References

• Alonzo, A. A., & Reynolds, N. R. (1995). Stigma, HIV and AIDS: An exploration and elaboration of a stigma trajectory. Social Science & Medicine, 41(3), 303–315. https://doi.org/10.1016/0277-9536(94)00384-6
   PubMed Web of Science ®Google Scholar
• Arrossi, S., Ramos, S., Straw, C., Thouyaret, L., & Orellana, L. (2016). HPV testing: A mixed-method approach to understand why women prefer self-collection in a middle-income country. BMC Public Health, 16(1), 832. https://doi.org/10.1186/s12889-016-3474-2
   PubMedGoogle Scholar
• Bhatia, N., Lynde, C., Vender, R., & Bourcier, M. (2013). Understanding genital warts: Epidemiology, pathogenesis, and burden of disease of human papillomavirus. Journal of Cutaneous Medicine and Surgery, 17(2), S47–S54. https://doi.org/10.2310/7750.2013.13072
   PubMedGoogle Scholar
• Braun, V., & Clarke, V. (2012). Thematic analysis. In APA handbook of research methods in psychology. Research designs: Quantitative, qualitative, neuropsychological, and biological (Vol. 2., pp. 57–71). American Psychological Association. https://doi.org/10.1037/13620-004
   Google Scholar
• Casas, C. P. R., Albuquerque, R. C. R., Loureiro, R. B., Gollner, A. M., Freitas, M. G., Duque, G., & Viscondi, J. Y. K. (2022). Cervical cancer screening in low- and middle-income countries: A systematic review of economic evaluation studies. Clinics, https://doi.org/10.1016/j.clinsp.2022.100080
   PubMed Web of Science ®Google Scholar
• Castle, P. E. (2008). How does tobacco smoke contribute to cervical carcinogenesis? Journal of Virology, 82(12), 6084–6086. https://doi.org/10.1128/JVI.00103-08
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention. (2022). Human Papillomavirus (HPV): Genital HPV Infection. Retrieved 19th July from https://www.cdc.gov/std/hpv/stdfact-hpv.htm.
   Google Scholar
• Charlie Parker, S. S. A. G. (2020). Sage research methods foundations https://doi.org/10.4135/9781526421036831710
   Google Scholar
• Corrigan, P. W. (2014). The stigma of disease and disability: Understanding causes and overcoming injustices. American Psychological Association. http://www.jstor.org/stable/j.ctv1chrz90
   Google Scholar
• de Martel, C., Georges, D., Bray, F., Ferlay, J., & Clifford, G. M. (2020). Global burden of cancer attributable to infections in 2018: A worldwide incidence analysis. The Lancet Global Health, 8(2), e180–e190. https://doi.org/10.1016/S2214-109X(19)30488-7
   PubMed Web of Science ®Google Scholar
• Elhalawani, H., Mohamed, A. S. R., Elgohari, B., Lin, T. A., Sikora, A. G., Lai, S. Y., Abusaif, A., Phan, J., Morrison, W. H., Gunn, G. B., Rosenthal, D. I., Garden, A. S., Fuller, C. D., & Sandulache, V. C. (2020). Tobacco exposure as a major modifier of oncologic outcomes in human papillomavirus (HPV) associated oropharyngeal squamous cell carcinoma. BMC Cancer, 20(1), 912. https://doi.org/10.1186/s12885-020-07427-7
   PubMed Web of Science ®Google Scholar
• Endarti, D., Kristina, S. A., Farida, M. A., & Andriani, T. (2018). Knowledge, perception, and acceptance of HPV vaccination and screening for cervical cancer among women in Yogyakarta province, Indonesia. Asian Pacific Journal of Cancer Prevention. https://doi.org/10.22034/APJCP.2018.19.4.1105
   Google Scholar
• Endarti, D., Riewpaiboon, A., Thavorncharoensap, M., Praditsitthikorn, N., Hutubessy, R., & Kristina, S. A. (2015). Evaluation of health-related quality of life among patients with cervical cancer in Indonesia. Asian Pacific Journal of Cancer Prevention, 16(8), 3345–3350. https://doi.org/10.7314/APJCP.2015.16.8.3345
   PubMedGoogle Scholar
• Expatistan. (2022). Cost of living in Indonesia. Retrieved 6/9/22 from https://www.expatistan.com/cost-of-living/country/indonesia.
   Google Scholar
• Ginjupalli, R., Mundaden, R., Choi, Y., Herfel, E., Oketch, S. Y., Watt, M. H., Makhulo, B., Bukusi, E. A., & Huchko, M. (2022). Developing a framework to describe stigma related to cervical cancer and HPV in western Kenya. BMC Women's Health, 22(1), 39. https://doi.org/10.1186/s12905-022-01619-y
   PubMed Web of Science ®Google Scholar
• GLOBOCAN. (2020). Indonesia fact sheet. Retrieved 10 May from https://gco.iarc.fr/today/data/factsheets/populations/360-indonesia-fact-sheets.pdf.
   Google Scholar
• Hatzenbuehler, M. L., Phelan, J. C., & Link, B. G. (2013). Stigma as a fundamental cause of population health inequalities. American Journal of Public Health, 103(5), 813–821. https://doi.org/10.2105/AJPH.2012.301069
   PubMed Web of Science ®Google Scholar
• Hennink, M. M., Kaiser, B. N., & Weber, M. B. (2019). What influences saturation? Estimating sample sizes in focus group research. Qualitative Health Research, 29(10), 1483–1496. https://doi.org/10.1177/1049732318821692
   PubMed Web of Science ®Google Scholar
• Himawan, K. K. (2020). Singleness, sex, and spirituality: How religion affects the experience of being single in Indonesia. Mental Health, Religion & Culture, 23(2), 204–215. https://doi.org/10.1080/13674676.2020.1767555
   Web of Science ®Google Scholar
• Holipah, H., Sulistomo, H. W., & Maharani, A. (2020). Tobacco smoking and risk of all-cause mortality in Indonesia. PloS one, 15(12), e0242558. https://doi.org/10.1371/journal.pone.0242558
   PubMed Web of Science ®Google Scholar
• Islami, F., Ferlay, J., Lortet-Tieulent, J., Bray, F., & Jemal, A. (2016). International trends in anal cancer incidence rates. International Journal of Epidemiology, 46(3), dyw276–dyw938. https://doi.org/10.1093/ije/dyw276
   Web of Science ®Google Scholar
• Joo, E.-J., Chang, Y., Kwon, M.-J., Cho, A., Cheong, H. S., & Ryu, S. (2019). High-Risk human papillomavirus infection and the risk of cardiovascular disease in Korean women. Circulation Research, 124(5), 747–756. https://doi.org/10.1161/CIRCRESAHA.118.313779
   PubMed Web of Science ®Google Scholar
• Kompas.com. (2019). Program Vaksin HPV Terhambat, Apa Kabar Anak Perempuan di Indonesia? [HPV vaccination program has been delayed. What is going to happen to Indonesian girls?]. Retrieved 27 July 2022 from https://sains.kompas.com/read/2019/12/20/190200923/program-vaksin-hpv-terhambat-apa-kabar-anak-perempuan-di-indonesia?page = all.
   Google Scholar
• Lebel, S., & Devins, G. M. (2008). Stigma in cancer patients whose behavior may have contributed to their disease. Future Oncology. https://doi.org/10.2217/14796694.4.5.717
   PubMed Web of Science ®Google Scholar
• Linda Rae Bennett, S. M. D. (2022). INDONESIA TAKES AN IMPRESSIVE STEP TOWARD CERVICAL CANCER CONTROL. Retrieved 02 August 2022 from https://pursuit.unimelb.edu.au/articles/indonesia-takes-an-impressive-step-toward-cervical-cancer-control#:~:text = In%20April%2C%20Indonesian%20Health%20Minister,routine%20free%20immunisations%20administered%20nationwide.
   Google Scholar
• Lu, Y., Xie, Z., Luo, G., Yan, H., Qian, H. Z., Fu, L., Wang, B., Huang, R., Cao, F., Lin, H., You, R., Tan, L., Yu, T., Chen, M., Li, C., Liu, X., Lei, W., & Zou, H. (2022). Global burden of oropharyngeal cancer attributable to human papillomavirus by anatomical subsite and geographic region. Cancer Epidemiology, 78, 102140. https://doi.org/10.1016/j.canep.2022.102140
   PubMed Web of Science ®Google Scholar
• Ma'som, M., Bhoo-Pathy, N., Nasir, N. H., Bellinson, J., Subramaniam, S., Ma, Y., Yap, S. H., Goh, P. P., Gravitt, P., & Woo, Y. L. (2016). Attitudes and factors affecting acceptability of self-administered cervicovaginal sampling for human papillomavirus (HPV) genotyping as an alternative to Pap testing among multiethnic Malaysian women. BMJ Open, 6(8), e011022. https://doi.org/10.1136/bmjopen-2015-011022
   PubMed Web of Science ®Google Scholar
• Mayadev, J., Lim, J., Durbin-Johnson, B., Valicenti, R., & Alvarez, E. (2018). Smoking decreases survival in locally advanced cervical cancer treated with radiation. American Journal of Clinical Oncology, 41(3), 295–301. https://doi.org/10.1097/COC.0000000000000268
   PubMed Web of Science ®Google Scholar
• Menezes, F. D. S., Fernandes, G. A., Antunes, J. L. F., Villa, L. L., & Toporcov, T. N. (2021). Global incidence trends in head and neck cancer for HPV-related and -unrelated subsites: A systematic review of population-based studies. Oral Oncology, 115, 105177. https://doi.org/10.1016/j.oraloncology.2020.105177
   PubMed Web of Science ®Google Scholar
• Murdiyarso, L. S., Kartawinata, M., Jenie, I., Widjajahakim, G., Hidajat, H., Sembiring, R., Nasar, I. M., Cornain, S., Sastranagara, F., & Utomo, A. R. H. (2016). Single and multiple high-risk and low-risk human papillomavirus association with cervical lesions of 11,224 women in Jakarta. Cancer Causes & Control, 27(11), 1371–1379. https://doi.org/10.1007/s10552-016-0816-4
   PubMed Web of Science ®Google Scholar
• National Cancer Institute. (2021). HPV and cancer. Retrieved 14 January from https://www.cancer.gov/about-cancer/causes-prevention/risk/infectious-agents/hpv-and-cancer.
   Google Scholar
• Nyblade, L., Stockton, M., Travasso, S., & Krishnan, S. (2017). A qualitative exploration of cervical and breast cancer stigma in karnataka, India. BMC Women's Health, 17(1), 58. https://doi.org/10.1186/s12905-017-0407-x
   PubMed Web of Science ®Google Scholar
• Okunade, K. S. (2020). Human papillomavirus and cervical cancer. Journal of Obstetrics and Gynaecology, 40(5), 602–608. https://doi.org/10.1080/01443615.2019.1634030
   PubMed Web of Science ®Google Scholar
• Östensson, E., Hellström, A.-C., Hellman, K., Gustavsson, I., Gyllensten, U., Wilander, E., Zethraeus, N., & Andersson, S. (2013). Projected cost-effectiveness of repeat high-risk human papillomavirus testing using self-collected vaginal samples in the Swedish cervical cancer screening. Acta Obstetricia et Gynecologica Scandinavica, 92(7), 830–840. https://doi.org/10.1111/aogs.12143
   PubMed Web of Science ®Google Scholar
• Petersen, P. E. (2009). Oral cancer prevention and control – The approach of the World Health Organization. Oral Oncology, 45(4-5), 454–460. https://doi.org/10.1016/j.oraloncology.2008.05.023
   PubMed Web of Science ®Google Scholar
• Prayudi, P. K. A., Permatasari, A. A. I. Y., Winata, I. G. S., & Suwiyoga, K. (2016). Impact of human papilloma virus vaccination on adolescent knowledge, perception of sexual risk and need for safer sexual behaviors in Bali, Indonesia. Journal of Obstetrics and Gynaecology Research, 42(12), 1829–1838. https://doi.org/10.1111/jog.13123
   PubMed Web of Science ®Google Scholar
• Racey, C. S., & Gesink, D. C. (2016). Barriers and facilitators to cervical cancer screening Among women in rural Ontario, Canada: The role of self-collected HPV testing. The Journal of Rural Health. https://doi.org/10.1111/jrh.12136
   PubMed Web of Science ®Google Scholar
• Scott, N., Crane, M., Lafontaine, M., Seale, H., & Currow, D. (2015). Stigma as a barrier to diagnosis of lung cancer: Patient and general practitioner perspectives. Primary Health Care Research & Development, 16(6), 618–622. https://doi.org/10.1017/S1463423615000043
   PubMed Web of Science ®Google Scholar
• Setiawan, D., Andrijono, Hadinegoro, S. R., Meyta, H., Sitohang, R. V., Tandy, G., Perwitasari, D. A., & Postma, M. J. (2020). Cervical cancer prevention in Indonesia: An updated clinical impact, cost-effectiveness and budget impact analysis. PloS one, 15(3), e0230359. https://doi.org/10.1371/journal.pone.0230359
   PubMed Web of Science ®Google Scholar
• Suk, R., Hong, Y.-R., Rajan, S. S., Xie, Z., Zhu, Y., & Spencer, J. C. (2022). Assessment of US preventive services task force guideline–concordant cervical cancer screening rates and reasons for underscreening by age, race and ethnicity, sexual orientation, rurality, and insurance, 2005 to 2019. JAMA Network Open, 5(1), e2143582–e2143582. https://doi.org/10.1001/jamanetworkopen.2021.43582
   PubMed Web of Science ®Google Scholar
• Suls, J., & Rothman, A. (2004). Evolution of the biopsychosocial model: Prospects and challenges for health psychology. Health Psychology, 23(2), 119–125. https://doi.org/10.1037/0278-6133.23.2.119
   PubMed Web of Science ®Google Scholar
• Sung, H., Ferlay, J., Siegel, R. L., Laversanne, M., Soerjomataram, I., Jemal, A., & Bray, F. (2021). Global cancer statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA: A Cancer Journal for Clinicians, 71(3), 209–249. https://doi.org/10.3322/caac.21660
   PubMed Web of Science ®Google Scholar
• UK Health Security Agency. (2018). Ten years on since the start of the HPV vaccine programme – what impact is it having? Retrieved 21/10/2022 from https://ukhsa.blog.gov.uk/2018/06/18/ten-years-on-since-the-start-of-the-hpv-vaccine-programme-what-impact-is-it-having/.
   Google Scholar
• Vahabi, M., & Lofters, A. (2016). Muslim immigrant women’s views on cervical cancer screening and HPV self-sampling in Ontario, Canada. BMC Public Health, 16(1), 868. https://doi.org/10.1186/s12889-016-3564-1
   PubMedGoogle Scholar
• Wahidin, M. (2018). Cervical cancer screening financing in Indonesia. Journal of Global Oncology, 4(Supplement 2), 93s–93s. https://doi.org/10.1200/jgo.18.22700
   Google Scholar
• Wijayanti, K. E., Schütze, H., & MacPhail, C. (2021). Parents’ attitudes, beliefs and uptake of the school-based human papillomavirus (HPV) vaccination program in Jakarta, Indonesia - A quantitative study. Preventive Medicine Reports, 101651–103355. (Print) https://doi.org/10.1016/j.pmedr.2021.101651
   PubMedGoogle Scholar
• World Health Organization. (2021). Human Papillomavirus (HPV) vaccination coverage. Retrieved 21/10/2022 from https://immunizationdata.who.int/pages/coverage/hpv.html?CODE = IDN&ANTIGEN = &YEAR = .
   Google Scholar
• World Health Organization. (2022a). Cancer. Retrieved 2022 from https://www.who.int/news-room/fact-sheets/detail/cancer.
   Google Scholar
• World Health Organization. (2022b). Cervical cancer. Retrieved 26/10/2022 from https://www.who.int/news-room/fact-sheets/detail/cervical-cancer.
   Google Scholar
• Yabroff, K. R., Reeder-Hayes, K., Zhao, J., Halpern, M. T., Lopez, A. M., Bernal-Mizrachi, L., Collier, A. B., Neuner, J., Phillips, J., Blackstock, W., & Patel, M. (2020). Health insurance coverage disruptions and cancer care and outcomes: Systematic review of published research. JNCI: Journal of the National Cancer Institute, https://doi.org/10.1093/jnci/djaa048
   Google Scholar
• Zhao, G., Okoro, C. A., Li, J., & Town, M. (2018). Health insurance status and clinical cancer screenings Among U.S. Adults. American Journal of Preventive Medicine, 54(1), e11–e19. https://doi.org/10.1016/j.amepre.2017.08.024
   PubMed Web of Science ®Google Scholar