Access to conception planning information and services for people living with HIV in Ontario, Canada: A community-based research study

References

• Aka-Dago-Akribi , H. , Du Loû , A. , Msellati , P. , Dossou , R. and Welffens-Ekra , C. 1999 . Issues surrounding reproductive choice for women lying with HIV in Abidjan Côte d'ivoire . Reproductive Health Matters , 7 : 20 – 29 .
   Google Scholar
• Apoola , A. , tenHof , J and Allan , P.S. 2001 . Access to infertility investigations and treatment in couples infected with HIV: Questionnaire survey . British Medical Journal , 323 : 1285
   Google Scholar
• Baek , C. and Rutenberg , N. 2005 . Addressing the family planning needs of HIV-positive PMTCT clients: Baseline findings from an operations research study , Washington , DC : Horizons Research Update .
   Google Scholar
• Bedimo-Rung , A.L. , Clark , R.A. , Dumestre , J. , Rice , J. and Kissinger , P. 2005 . Reproductive decision-making among HIV-infected women . Journal of the National Medical Association (JNMA) , 97 : 1403 – 1410 .
   Google Scholar
• Bergenstrom , A. , Sherr , L. and Oklo , S. 1999 . HIV testing and prevention: Family planning clinic attenders in London . Sexually Transmitted Infections , 75 : 130
   Google Scholar
• Browne , K. 2005 . Snowball sampling: Using social networks to research non-heterosexual women . International Journal of Social Research Methodology , 8 : 47 – 60 .
   Google Scholar
• Bujan , L. , Hollander , L. , Coudert , M. , Gilling-Smith , C. , Vucetich , A. , Guibert , J., … and network , CREAThe . 2007 . Safety and efficacy of sperm washing in HIV-1-serodiscordant couples where the male is infected: Results from the European CREAThE network . AIDS , 21 : 1909 – 1914 .
   Google Scholar
• Chama , C. , Morrupa , J. and Gashau , W. 2007 . Sex and reproduction among HIV-infected people in Maiduguri, Nigeria . Journal of Obstetrics and Gynaecology , 27 : 812 – 815 .
   Google Scholar
• Chen , J.L. , Phillips , K.A. , Kanouse , D.E. , Collins , R.L. and Miu , A. 2001 . Fertility desires and intentions of HIV-positive men and women . Family Planning Perspectives , 33 : 144 – 152 .
   Google Scholar
• Cooper , D. , Harries , J. , Myer , L. , Orner , P. and Bracken , H. 2007 . “Life is still going on”: Reproductive intentions among HIV-positive women and men in South Africa . Social Science & Medicine , 65 : 274 – 283 .
   Google Scholar
• Cooper , D. , Moodley , J. , Zweigentha , V. , Bekker , L. , Shah , I. and Myer , L. 2009 . Fertility intentions and reproductive health care needs of people living with HIV in Cape Town, South Africa: Implications for integrating reproductive health and HIV care services . AIDS and Behavior , 13 : S38 – S45 .
   Google Scholar
• Craft , S.M. , Delaney , R.O. , Bautista , D.T. and Serovich , J.M. 2007 . Pregnancy decisions among women with HIV . AIDS and Behavior , 11 : 927 – 935 .
   Google Scholar
• Da Silveira Rossi , A. , Fonsechi-Carvasan , G.A. , Makuch , M.Y. , Amaral , E. and Bahamondes , L. 2005 . Factors associated with reproductive options in HIV-infected women . Contraception , 71 : 45 – 50 .
   Google Scholar
• Daar , E.S. and Daar , J.F. 2006 . Human immunodeficiency virus and fertility care: Embarking on a path of knowledge and access . Fertility and Sterility , 85 : 298 – 300 .
   Google Scholar
• Fakoya , A. , Lamba , H. , Mackie , N. , Nandwani , R. , Brown , A. , Bernard , E.J., … and Gazzard , B . 2008 . British HIV Association, BASHH and FSRH guidelines for the management of the sexual and reproductive health of people living with HIV infection 2008 . HIV Medicine , 9 : 681 – 720 .
   Google Scholar
• Feldman , R. and Maposhere , C. 2003 . Safer sex and reproductive choice: Findings from “Positive women: Voices and choices” in Zimbabwe . Reproductive Health Matters , 11 : 162 – 173 .
   Google Scholar
• Flicker , S. , Wilson , M. , Travers , R. , Bereket , T. , McKay , C. , van der Meulen , A., … and Rourke , S.B. 2009 . Community-based research in AIDS-service organizations: What helps and what doesn't? . AIDS Care , 21 : 94 – 102 .
   Google Scholar
• Fonn , S. , Xaba , M. , Tint , K.S. , Conco , D. and Varkey , S. 1998 . Reproductive health services in South Africa: From rhetoric to implementation . Reproductive Health Matters , 6 : 22 – 32 .
   Google Scholar
• Fowler , F.J. 2002 . Survey research methods , Thousand Oaks , CA : Sage Publications .
   Google Scholar
• Frodsham , L.C.G. , Boag , F. , Barton , S. and Gilling-Smith , C. 2006 . Human immunodeficiency virus infection and fertility care in the United Kingdom: Demand and supply . Fertility and Sterility , 85 : 285 – 289 .
   Google Scholar
• Gilling-Smith , C. , Emiliani , S. , Almeida , P. , Liesnard , C. and Englert , Y. 2005 . Laboratory safety during assisted reproduction in patients with blood-borne viruses . Human Reproduction , 20 : 1433 – 1438 .
   Google Scholar
• Gilling-Smith , C. , Smith , J.R. and Semprini , A.E. 2001 . HIV and infertility: Time to treat. There's no justification for denying treatment to parents who are HIV positive . British Medical Journal , 322 : 566 – 567 .
   Google Scholar
• Gready, M., Klugman, B., Xaba, M., Boikanyo, E., & Rees, H. (1997). South African women's experiences of contraception and contraceptive services. In T.K.S. Ravindran, M. Berer, & J. Cottingham (Eds.), Beyond acceptability: Users perspectives on contraception (pp. 23–35). London: Reproductive Health Matters for WHO. www.rhmjournal.org.uk (http://www.rhmjournal.org.uk)
   Google Scholar
• Gruskin , S. , Firestone , R. , MacCarthy , S. and Ferguson , L. 2008 . HIV and pregnancy intentions: Do services adequately respond to women's needs? . American Journal of Public Health , 98 : 1746 – 1750 .
   Google Scholar
• Harris , G.E. 2006 . Practicing HIV/AIDS community-based research . AIDS Care , 18 : 731 – 738 .
   Google Scholar
• Jackson , W. 1995 . Methods: Doing social research , Scarborough , ON : Prentice Hall .
   Google Scholar
• Kalu , E. , Wood , R. , Vourliotis , M. and Gilling-Smith , C. 2010 . Fertility needs and funding in couples with blood-borne viral infections . HIV Medicine , 10 : 90 – 93 .
   Google Scholar
• Kanniappan , S. , Jeyapaul , M.J. and Kalyanwala , S. 2008 . Desire for motherhood: Exploring HIV-positive women's desires, intentions and decision-making in attaining motherhood . AIDS Care , 20 : 625 – 630 .
   Google Scholar
• Kim , L.U. , Johnson , M.R. , Barton , S. , Nelson , M.R. , Sontag , G. , Smith , J.R., … and Chilmour , J.W. 1999 . Evaluation of sperm washing as a potential method of reducing HIV transmission in HIV-discordant couples wishing to have children . AIDS , 13 : 645 – 651 .
   Google Scholar
• King , E. , De Silva , M. , Stein , A. and Patel , V. 2009 . Interventions for improving the psychosocial well-being of children affected by HIV and AIDS (review) . The Cochrane Database of Systematic Reviews , : 1 – 16 .
   Google Scholar
• Kline , A. , Strickler , J. and Kempf , J. 1995 . Factors associated with pregnancy and pregnancy resolution in HIV seropositive women . Social Science & Medicine , 40 : 1539 – 1547 .
   Google Scholar
• Loutfy, M.R., Hart, T.A., Mohammed, S.S., Su, D., Ralph, E.D., Walkmsley, S.L., … Ontario HIV Fertility Research Team. (2009). Fertility desires and intentions of HIV-positive women of reproductive age in Ontario, Canada: A cross-sectional study. Public Library of Science one, 4, e7925. http://www.ncbi.nlm.nih.gov.myaccess.library.utoronto.ca/sites/entrez?db=pmc&cmd=Search&term=1932-6203[jour]%20AND%204[volume]%20AND%20e7925[page (http://www.ncbi.nlm.nih.gov.myaccess.library.utoronto.ca/sites/entrez?db=pmc&cmd=Search&term=1932-6203[jour]%20AND%204[volume]%20AND%20e7925[page)
   Google Scholar
• Margolese , S. January/February 2004 . “ Baby boom – the challenges of HIV and reproduction ” . In Living + January/February , 23
   Google Scholar
• Marina , S. , Marina , F. , Alcolea , R. , Exposito , R. , Huguet , J. , Nadal , J. and Verges , A. 1998 . Human immunodeficiency virus type I-serodiscordant couples can bear healthy children after undergoing intrauterine insemination . Fertility and Sterility , 70 : 35 – 39 .
   Google Scholar
• Marlow , C. 2001 . Research methods for generalist social work , Belmont , CA : Brooks/Cole .
   Google Scholar
• Mertens , D.M. 2005 . Research and evaluation in education and psychology: Integrating diversity with quantitative, qualitative, and mixed methods , 2nd , Thousand Oaks , CA : Sage Publications .
   Google Scholar
• Minkoff , H. 2006 . Human immunodeficiency virus and fertility services: The glass is half full . Fertility and Sterility , 85 : 290 – 292 .
   Google Scholar
• Minkoff , H. and Santoro , N. 2000 . Ethical considerations in the treatment of infertility in women with human immunodeficiency virus infection . The New England Journal of Medicine , 342 : 1748 – 1750 .
   Google Scholar
• Mocroft , A. , Ledergerber , B. , Katiama , C. , Kirk , O. , Reiss , P., d , Arminio Monforte , A., … and EuroSIDA Study Group . 2003 . Decline in the AIDS and death rates in the EuroSIDA study: An observational study . Lancet , 362 : 22 – 29 .
   Google Scholar
• Myer , L. , Morroni , C. and El-Sadr , W.M. 2005 . Reproductive decisions in HIV-infected individuals . Lancet , 366 : 698 – 700 .
   Google Scholar
• Myer , L. , Morroni , C. and Rebe , K. 2007 . Prevalence and determinants of fertility intentions of HIV-infected women and men receiving antiretroviral therapy in South Africa . AIDS Patient Care STDs , 21, 278–285
   Google Scholar
• Nakayiwa , S. , Abang , B. , Packel , L. , Lifshay , J. , Purcell , D. , King , R. and Bunnell , R. 2006 . Desire for children and pregnancy risk behaviour among HIV-infected men and women in Uganda . AIDS and Behavior , 10 : S95 – S104 .
   Google Scholar
• Nattabi , B. , Li , J. , Thompson , S.C. , Orach , C.G. and Earnest , J. 2009 . A systematic review of factors influencing fertility desires and intentions among people living with HIV/AIDS: Implications for policy and service delivery . AIDS and Behavior , 13 : 949 – 968 .
   Google Scholar
• Nebie , Y. , Meda , N. , Leroy , V. , Mandelbrot , L. , Yaro , S. , Sombié , I. and … Dabis , F. 2001 . Sexual and reproductive life of women informed of their HIV seropositivity: A prospective cohort study in Burkina Faso . Journal of Acquired Immune Deficiency Syndromes , 28 : 367 – 372 .
   Google Scholar
• Nobrega , A.A. , Oliveira , F.A.S. , Galvao , M.T.G. , Mota , R.S. , Barbosa , R.M. , Dourado , O., … and Kerr-Pontes , L.R.S. 2007 . Desire for a child among women living with HIV/AIDS in northeast Brazil . AIDS Patient Care STDs , 21 : 261 – 267 .
   Google Scholar
• Ogilvie , G.S. , Palepu , A. , Remple , V.P. , Maan , E. , Heath , K. , MacDonald , G., … and Burdge , D.R. 2007 . Fertility intentions of women of reproductive age living with HIV in British Columbia, Canada . AIDS , 21 : 583 – 588 .
   Google Scholar
• Ohl , J. , Partisani , M. , Wittemer , C. , Schmitt , M.-P. , Cranz , C. , Stoll-Keller , F., … and Nisand , I. 2003 . Assisted reproduction techniques for HIV serodiscordant couples: 18 months of experience . Human Reproduction , 18 : 1244 – 1249 .
   Google Scholar
• Oladapo , O.T. , Daniel , O.J. , Odusoga , O.L. and Ayoola-Sotubo , O. 2005 . Fertility desires and intentions of HIV-positive patients at a suburban specialist center . Journal of the National Medical Association (JNMA) , 97 : 1672 – 1681 .
   Google Scholar
• Oosterhoff , P. , Anh , N.T. , Hanh , N.T. , Yen , P.N. , Wright , P. and Hardon , A. 2008 . Holding the line: Family responses to pregnancy and the desire for a child in the context of HIV in Vietnam . Culture, Health & Sexuality , 10 : 403 – 416 .
   Google Scholar
• Paiva , V. , Ventura Filipe , E. , Santos , N. , Novaes Lima , R. and Segurado , A. 2003 . The right to love: The desire for parenthood among men living with HIV . Reproductive Health Matters , 11 : 91 – 100 .
   Google Scholar
• Palella , F.J. Jr. , Delaney , K.M. , Moorman , A.C. , Loveless , M.O. , Fuhrer , J. , Satten , G.A., … and Holmberg , S.D. 1998 . Declining morbidity and mortality among patients with advanced human immunodeficiency virus infection. HIV Outpatient Study Investigators . The New England Journal of Medicine , 338 : 853 – 860 .
   Google Scholar
• Panel on Treatment of HIV-Infected Pregnant Women and Prevention of Perinatal Transmission. (2011). Recommendations for use of antiretroviral drugs in pregnant HIV-1-infected women for maternal health and interventions to reduce perinatal HIV transmission in the United States. Sep. 14, 2011: 1–207. http://aidsinfo.nih.gov/contentfiles/PerinatalGL.pdf (http://aidsinfo.nih.gov/contentfiles/PerinatalGL.pdf)
   Google Scholar
• Panozzo , L. , Battegay , M. , Friedl , A. and Vernazza , P.L. 2003 . High risk behaviour and fertility desires among heterosexual HIV-positive patients with a serodiscordant partner – Two challenging issues . Swiss Medical Weekly , 133 : 124 – 127 .
   Google Scholar
• Peltzer , K. , Chao , L.W. and Dana , P. 2009 . Family Planning among HIV positive and negative Prevention of Mother to Child Transmission (PMTCT) clients in a resource poor setting in South Africa . AIDS and Behavior , 13 : 973 – 997 .
   Google Scholar
• Pitts , M. and Shields , P. 2004 . Access to infertility investigations and treatment for HIV+ people: A survey of Australian infertility clinics . Australian and New Zealand Journal of Public Health , 28 : 360 – 362 .
   Google Scholar
• Public Health Agency of Canada. (2010). HIV/AIDS Epi Updates – July 2010. Author. http://www.phac-aspc.gc.ca/aids-sida/publication/epi/2010/1-eng.php (http://www.phac-aspc.gc.ca/aids-sida/publication/epi/2010/1-eng.php)
   Google Scholar
• Remis, R.S., Swantee, C., & Liu, J. (2009). Report on HIV/AIDS in Ontario. www.phs.utoronto.ca/ohemu/doc/PHERO2007_report_final.pdf (http://www.phs.utoronto.ca/ohemu/doc/PHERO2007_report_final.pdf)
   Google Scholar
• Rithcet , D.L. , Sowell , R.L. and Pluto , D.M. 2002 . Factors affecting reproductive decisions of African American women living with HIV . Women Health , 36 : 81 – 96 .
   Google Scholar
• Rozenberg , S. , Gerard , M. , Manigart , Y. , Ham , H. and Delvigne , A. 2002 . Acceptance by Belgian physicians of in-vitro fertilization treatment in women with HIV infection . AIDS , 16 : 497 – 498 .
   Google Scholar
• Santos , N. , Ventura-Filipe , E. and Paiva , V. 1998 . HIV positive women, reproduction and sexuality in São Paulo, Brazil . Reproductive Health Matters , 6 : 31 – 40 .
   Google Scholar
• Sauer , M.V. 2006 . American physicians remain slow to embrace the reproductive needs of human immunodeficiency virus-infected patients . Fertility and Sterility , 85 : 295 – 297 .
   Google Scholar
• Semprini , A.E. , Levi-Setti , P. , Bozzo , M. , Ravizza , M. , Taglioretti , A. , Sulpizoo , P., … and Pardi , G. 1992 . Insemination of HIV-negative women with processed semen of HIV-positive partners . Lancet , 340 : 1317 – 1319 .
   Google Scholar
• Sherr , L. 2010 . Fathers and HIV: Considerations for families . Journal of International AIDS Society , 13 : 54
   Google Scholar
• Sherr , L. and Barry , N. 2004 . Fatherhood and HIV-positive heterosexual men . HIV Medicine , 5 : 258 – 263 .
   Google Scholar
• Siegel , K. and Schrimshaw , E.W. 2001 . Reasons and justifications for considering pregnancy among women living with HIV/AIDS . Psychology of Women Quarterly , 25 : 112 – 123 .
   Google Scholar
• Singleton , R.A. and Straits , B.C. 2005 . Approaches to social research , 4th , New York : Oxford University Press .
   Google Scholar
• Smith , D.J. and Mbakwem , B.C. 2007 . Life projects and therapeutic itineraries: Marriage, fertility and antiretroviral therapy in Nigeria . AIDS , 21 : S37 – S41 .
   Google Scholar
• Sowell , R.L. , Murdaugh , C.L. , Addy , C.L. , Moneyham , L. and Tavokoli , A. 2002 . Factors influencing intent to get pregnant in HIV-infected women living in the southern USA . AIDS Care , 14 : 181 – 191 .
   Google Scholar
• Sowell , R.L. , Philipes , K.D. and Misener , T.R. 1999 . HIV-infected women and motivation to add children to their families . Journal of Family Nursing , 5 : 316 – 331 .
   Google Scholar
• Stanitis , J.A. , Brow , D.R. and Wiczyk , H. 2008 . Fertility services for human immunodeficiency virus-positive patients: Provider policy, practice, and perspectives . Fertility and Sterility , 89 : 1154 – 1158 .
   Google Scholar
• Stanwood , N.L. , Cohn , S.E. , Heiser , J.R. and Pugliese , M. 2007 . Contraception and fertility plans in a cohort of HIV-positive women in care . Contraception , 75 : 294 – 298 .
   Google Scholar
• Talge , N.M. , Neal , C. and Glover , V. 2007 . The early stress, translational research and prevention science network: Fetal and neonatal experience on child and adolescent mental health. Antenatal maternal stress and long-term effects on child neurodevelopment: How and why? . The Journal of Child Psychology and Psychiatry , 48 : 245 – 261 .
   Google Scholar
• Travers , R. , Wilson , M.G. , Flicker , S. , Guta , A. , Bereket , T. , McKay , C., … and Rourke , S.B. 2008 . The greater involvement of people living with AIDS principle: Theory versus practice in Ontario's HIV/AIDS community-based research sector . AIDS Care , 20 : 615 – 624 .
   Google Scholar
• Trochim , W. and Donnelly , J.P. 2008 . The research methods knowledge base , Mason , OH : Cengage Learning .
   Google Scholar
• VanDevanter , N. , Stuart Thacker , A. , Bass , G. and Arnold , M. 1999 . Heterosexual couples confronting the challenges of HIV infection . AIDS Care , 11 : 181 – 193 .
   Google Scholar
• Walker , S.P. , Wachs , T.D. , Grantham-McGregor , S. , Black , M.M. , Nelson , C.A. , Huffman , S.L., … and Richter , L. 2011 . Inequality in early childhood: Risk and protective factors for early child development . Lancet , 378 : 1325 – 1338 .
   Google Scholar
• Wesley , Y. 2003 . Desire for children among Black women with and without HIV infection . Journal of Nursing Scholarship , 31 : 37 – 43 .
   Google Scholar
• Wesley , Y. , Smeltzer , S.C. , Redeker , N.S. , Walker , S. , Palumbo , P. and Whipple , B. 2000 . Reproductive decision making in mothers with HIV-1 . Health Care for Women International , 21 : 291 – 304 .
   Google Scholar
• World Health Organization. (2008). Essential prevention and care interventions for adults and adolescents living with HIV in resource-limited settings. Geneva: Author. http://www.who.int/hiv/pub/plhiv/interventions/en/index.html (http://www.who.int/hiv/pub/plhiv/interventions/en/index.html)
   Google Scholar
• Yudin , M.H. , Shapiro , H.M. and Loutfy , M.R. 2010 . Access to infertility services in Canada for HIV-positive individuals and couples: A cross-sectional study . Reproductive Health , 7 : 1 – 7 .
   Google Scholar
• Zhao , Q. , Li , X. , Zhao , G. , Zhao , J. , Fang , X. , Lin , X. and Stanton , B. 2011 . Aids knowledge and HIV stigma among children affected by HIV/AIDS in rural China . AIDS Education and Prevention , 23 : 341 – 350 .
   Google Scholar