Publication Cover
Vulnerable Children and Youth Studies
An International Interdisciplinary Journal for Research, Policy and Care
Volume 19, 2024 - Issue 1
82
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Psychosocial aspects in children with transfusion-dependent thalassemia

ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon show all
Pages 124-139 | Received 28 Oct 2022, Accepted 13 Sep 2023, Published online: 20 Sep 2023

References

  • Baminiwatta, A., Gunathilake, R., Arambepola, S., & Arambepola, M. (2021). Non-adherence to chelation therapy and associated psychosocial factors among transfusion-dependent thalassaemia patients in Kandy, Sri Lanka. Sri Lanka Journal of Child Health, 50(1), 116–123. https://doi.org/10.4038/sljch.v50i1.9412
  • Behdani, F., Badiee, Z., Hebrani, P., Moharreri, F., Badiee, A. H., Hajivosugh, N., Rostami, Z., & Akhavanrezayat, A. (2015). Psychological aspects in children and adolescents with major thalassemia: A case-control study. Iranian Journal of Pediatrics, 25(3), e322. https://doi.org/10.5812/ijp.25(3)2015.322
  • Elzaree, F. A., Shehata, M. A., El Wakeel, M. A., El-Alameey, I. R., AbuShady, M. M., & Helal, S. I. (2018). Adaptive functioning and psychosocial problems in children with beta thalassemia major. Open Access Macedonian Journal of Medical Sciences, 6(12), 2337–2341. https://doi.org/10.3889/oamjms.2018.367
  • Giannakopoulos, G., Tzavara, C., Dimitrakaki, C., Kolaitis, G., Rotsika, V., & Tountas, Y. (2009). The factor structure of the Strengths and difficulties questionnaire (SDQ) in Greek adolescents. Annals of General Psychiatry, 8(1), 20. https://doi.org/10.1186/1744-859X-8-20
  • Goodman, R. (1997). The Strengths and difficulties questionnaire: A research note. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 38(5), 581–586. https://doi.org/10.1111/j.1469-7610.1997.tb01545.x
  • Hernanda, P. Y., Tursilowati, L., Arkesteijn, S. G., Ugrasena, I. D., Larasati, M. C., Soeatmadji, S. M., Giordano, P. C., & Harteveld, C. L. (2012). Towards a prevention program for β-thalassemia. The molecular spectrum in East Java, Indonesia. Hemoglobin, 36(1), 1–6. https://doi.org/10.3109/03630269.2011.642914
  • Hernaningsih, Y., Syafitri, Y., Indrasari, Y. N., Rahmawan, P. A., Andarsini, M. R., Lesmana, I., Moses, E. J., Abdul Rahim, N. A., & Yusoff, N. M. (2022). Analysis of common beta-thalassemia (β-thalassemia) mutations in East Java, Indonesia. Frontiers in Pediatrics, 10, 925599. https://doi.org/10.3389/fped.2022.925599
  • Hongally, C., Benakappa, A. D., & Reena, S. (2012). Study of behavioral problems in multi-transfused thalassemic children. Indian Journal of Psychiatry, 54(4), 333–336. https://doi.org/10.4103/0019-5545.104819
  • Kattamis, A., Forni, G. L., Aydinok, Y., & Viprakasit, V. (2020). Changing patterns in the epidemiology of β-thalassemia. European Journal of Haematology, 105(6), 692–703. https://doi.org/10.1111/ejh.13512
  • Keşkek, S. O., Kirim, S., Turhan, A., & Turhan, F. G. (2013). Depression in subjects with beta-thalassemia minor. Annals of Hematology, 92(12), 1611–1615. https://doi.org/10.1007/s00277-013-1851-9
  • Maurice-Stam, H., Haverman, L., Splinter, A., van Oers, H. A., Schepers, S. A., & Grootenhuis, M. A. (2018). Dutch norms for the Strengths and difficulties questionnaire (SDQ) - parent form for children aged 2-18 years. Health and Quality of Life Outcomes, 16(1), 123. https://doi.org/10.1186/s12955-018-0948-1
  • Mazzone, L., Battaglia, L., Andreozzi, F., Romeo, M. A., & Mazzone, D. (2009). Emotional impact in β-thalassaemia major children following cognitive-behavioural family therapy and quality of life of caregiving mothers. Clinical Practice and Epidemiology in Mental Health: CP & EMH, 5(1), 5. https://doi.org/10.1186/1745-0179-5-5
  • Medise, B. E., Fadhila, N., Wiguna, T., Munasir, Z., Batubara, J. R., Wahidiyat, P. A., Wulandari, H. F., & Roeslani, R. D. (2020). Gambaran masalah psikososial pada remaja dengan thalassemia mayor dan Diabetes Mellitus type-1. Sari Pediatri, 22(2), 83–91. https://doi.org/10.14238/sp22.2.2020.83-91
  • Mettananda, S. (2021). Genetic and epigenetic therapies for β-thalassaemia by altering the expression of α-globin gene. Frontiers in Genome Editing, 3, 752278. https://doi.org/10.3389/fgeed.2021.752278
  • Mohan, L., Yilanli, M., & Ray, S. (2023, March 13). StatPearls: Conduct Disorder. StatPearls Publishing; Retrieved June 11, 2023 from https://www.ncbi.nlm.nih.gov/books/NBK470238/
  • Naderi, M., Hormozi, M. R., Ashrafi, M., & Emamdadi, A. (2012). Evaluation of mental Health and related factors among patients with beta-thalassemia major in South East of Iran. Iranian Journal of Psychiatry, 7(1), 47–51.
  • Ningtiar, H. W., Suryawan, A., Ugrasena, I. D. G., & Irwanto, I. (2021). Determinant factors of depression in beta major thalassemia children. Folia Medica Indonesiana, 57(1), 46–52. https://doi.org/10.20473/fmi.v57i1.13664
  • Nourbakhsh, S. M. K., Atamanesh, M., Effatpanah, M., Salehi, M., & Heidari, M. (2021). The Association between behavioral problems with self-esteem and self-concept in pediatric patients with thalassemia. Iranian Journal of Psychiatry, 16(1), 36–42. https://doi.org/10.18502/ijps.v16i1.5377
  • Ortuño-Sierra, J., Chocarro, E., Fonseca-Pedrero, E., Riba, S. S. I., & Muñiz, J. (2015). The assessment of emotional and behavioural problems: Internal structure of the Strengths and difficulties questionnaire. International Journal of Clinical and Health Psychology: IJCHP, 15(3), 265–273. https://doi.org/10.1016/j.ijchp.2015.05.005
  • Pradhan, P. V., Shah, H., Rao, P., Ashturkar, D., & Ghaisas, P. (2003). Psychopathology and self-esteem in chronic illness. The Indian Journal of Pediatrics, 70(2), 135–138. https://doi.org/10.1007/BF02723739
  • Pranandita, F. (2021). Psychological problems of pediatric patients with thalassemia: A narrative literature review. Open Access Indonesian Journal of Medical Reviews, 1(3), 53–55. https://doi.org/10.37275/oaijmr.v1i3.41
  • Raman, V., Prakash, A., & D’Souza, F. (2019). Psychosocial issues in children with thalassemia: From identification to a Model for management in a developing country. Journal of Pediatric Hematology/oncology, 41(3), 218–221. https://doi.org/10.1097/MPH.0000000000001370
  • Reddy, P. S., Locke, M., & Badawy, S. M. (2022). A systematic review of adherence to iron chelation therapy among children and adolescents with thalassemia. Annals of Medicine, 54(1), 326–342. https://doi.org/10.1080/07853890.2022.2028894
  • Rikos, N., Giannadaki, G. K., Spontidaki, A., & Tzagkaraki, M. (2020). Health status, anxiety, depression, and quality of life of patients with thalassemia. Journal of Public Health, 29(6), 1313–1320. https://doi.org/10.1007/s10389-020-01241-y
  • Shah, A. S., Angastiniotis, M., Shenoy, S., Seth, T., Srivastava, V., Shastry, S., Vaidya, A., Islam, A., Getshen, M., Pathak, D., Shrestha, R. M., Win, S., Aung, T., Ekwattanakit, S., Saleem, J., Ratnamalala, V., Hooper, C., Deyde, V. … Junping, Y. (2021). Regional desk review of haemoglobinopathies with an emphasis on thalassaemia and accessibility and availability of safe blood and blood products as per these patients’ requirement in South-East Asia under universal health coverage. World Health Organization, Regional Office for South-East Asia. CC BY-NC-SA 3.0 IGO. License: CC BY-NC-SA 3.0 IGO
  • Shaligram, D., Girimaji, S. C., & Chaturvedi, S. K. (2007). Psychological problems and quality of life in children with thalassemia. The Indian Journal of Pediatrics, 74(8), 727–730. https://doi.org/10.1007/s12098-007-0127-6
  • Soliman, E. S., Mahdy, R. S., Fouad, H. A., Abbas, R. A., & Fayed, A. (2020). Multiple risk factors affecting childhood psychosocial dysfunction in primary school Egyptian children. Middle East Current Psychiatry, 27(1), 16. https://doi.org/10.1186/s43045-020-00023-2
  • Tarım, H. Ş., & Öz, F. (2022). Thalassemia major and associated psychosocial problems: A narrative review. Iranian Journal of Public Health, 51(1), 12–18. https://doi.org/10.18502/ijph.v51i1.8287
  • Viprakasit, V., Lee-Lee, C., Chong, Q. T., Lin, K. H., & Khuhapinant, A. (2009). Iron chelation therapy in the management of thalassemia: The Asian perspectives. International Journal of Hematology, 90(4), 435–445. https://doi.org/10.1007/s12185-009-0432-0
  • Vosper, J., Evangeli, M., Porter, J. B., & Shah, F. (2018). Psychological factors associated with episodic chelation adherence in thalassemia. Hemoglobin, 42(1), 30–36. https://doi.org/10.1080/03630269.2018.1433686
  • Wiguna, T., & Hestyanti, Y. (2020, January 26). SDQ info: Indonesia. Youth in Mind. Retrieved June 30, 2022, from https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Indonesian
  • Woodward, L. J., & Fergusson, D. M. (1999). Childhood peer relationship problems and psychosocial adjustment in late adolescence. Journal of Abnormal Child Psychology, 27(1), 87–104. https://doi.org/10.1023/a:1022618608802
  • Yengil, E., Acipayam, C., Kokacya, M. H., Kurhan, F., Oktay, G., & Ozer, C. (2014). Anxiety, depression and quality of life in patients with beta thalassemia major and their caregivers. International Journal of Clinical and Experimental Medicine, 7(8), 2165–2172.S.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.