References
- World Health Organization. Global action plan on physical activity 2018–2030: more active people for a healthier world. Geneva: Athour; 2018.
- Bull FC, Al-Ansari SS, Biddle S, et al. World Health Organization 2020 guidelines on physical activity and sedentary behavior. Br J Sports Med. 2020;54(24): 1451–1462.
- Goto M, Takedani H, Yokota K, et al. Strategies to encourage physical activity in patients with hemophilia to improve quality of life. J Blood Med. 2016;7:85–98.
- Tiktinsky R, Falk B, Heim M, et al. The effect of resistance training on the frequency of bleeding in haemophilia patients: a pilot study. Haemophilia. 2002;8(1):22–27.
- Pulles AE, Mastbergen SC, Schutgens RE, et al. Pathophysiology of hemophilic arthropathy and potential targets for therapy. Pharmacol Res. 2017;115:192–199.
- Guthold R, Stevens GA, Riley LM, et al. Worldwide trends in insufficient physical activity from 2001 to 2016: a pooled analysis of 358 population-based surveys with 1·9 million participants. Lancet Glob Health. 2018;6(10):e1077–e1086.
- Guthold R, Stevens GA, Riley LM, et al. Global trends in insufficient physical activity among adolescents: a pooled analysis of 298 population-based surveys with 1·6 million participants. Lancet Child Adolesc Health. 2020;4(1):23–35.
- Ross C, Goldenberg NA, Hund D, et al. Athletic participation in severe hemophilia: bleeding and joint outcomes in children on prophylaxis. Pediatrics. 2009;124(5):1267–1272.
- Groen WG, Takken T, Van der Net J, et al. Habitual physical activity in dutch children and adolescents with hemophilia. Hemophilia. 2011;17:e906–e912.
- Howell C, Scott K, Patel DR. Sports participation recommendations for patients with bleeding disorders. Transl Pediatr. 2017;6(3):174–180.
- Putz P, Klinger M, Male C, et al. Lower physical activity and altered body composition in patients with haemophilia compared with healthy controls. Haemophilia. 2021;27(2):e260–e266.
- Falk B, Portal S, Tiktinsky R, et al. Anaerobic power and muscle strength in young hemophilia patients. Med Sci Sports Exerc. 2000;32:52–57.
- Tiktinsky R, Kenet G, Dvir Z, et al. Physical activity participation and bleeding characteristics in young patients with severe hemophilia. Hemophilia. 2009;15(3):695–700.
- Hofstede FG, Fijnvandraat K, Plug I, et al. Obesity: a new disaster for haemophilic patients? A nationwide survey. Hemophilia. 2008;14(5):1035–1038.
- Sammels M, Vandesande J, Vlaeyen E, et al. Falling and fall risk factors in adults with hemophilia: an exploratory study. Hemophilia. 2014;20(6):836–845.
- Hilberg T. Programmed sports therapy (PST) in people with hemophilia (PWH) “sports therapy model for rare diseases”. Orphanet J Rare Dis. 2018;13(1):38.
- Halperin I, Emanuel A. Rating of perceived effort: methodological concerns and future directions. Sports Med. 2020;50(4):679–687.
- Anderson A, Forsyth A National hemophilia foundation. playing it safe. 2005. [cited 2021 Apr 15]. Available online: http://wwwhemophilia.ca/files/PlayingItSafe.pdf
- Broderick CR, Herbert RD, Latimer J, et al. Association between physical activity and risk of bleeding in children with hemophilia. JAMA. 2012;308(14):1452–1459.
- Hernandez G, Baumann K, Knight S, et al. Ranges and drivers of risk associated with sports and recreational activities in people with haemophilia: results of the activity-intensity-risk consensus Survey of US physical therapists. Haemophilia. 2018;24(Suppl S7):5–26.
- Hassan S, Monahan RC, Mauser-Bunschoten EP, et al. Mortality, life expectancy, and causes of death of persons with hemophilia in the Netherlands 2001–2018. J Thromb Haemost. 2020 Nov 20;19(3):645–653. Epub ahead of print. PMID: 33217158 .
- Siqueira TC, Dominski FH, Andrade A. Effects of exercise in people with hemophilia: an umbrella review of systematic reviews and meta-analyses. Hemophilia. 2019;25(6):928–937.
- Schäfer GS, Valderramas S, Gomes AR, et al. Physical exercise, pain and musculoskeletal function in patients with hemophilia: a systematic review. Hemophilia. 2016;22(3):e119–e129.
- Strike K, Mulder K, Michael R. Exercise for hemophilia. Cochrane Database Syst Rev. 2016;12(12):CD011180.
- Longmuir PE, Woodruff SJ, Boyer C, et al. Physical literacy knowledge questionnaire: feasibility, validity, and reliability for Canadian children aged 8 to 12 years. BMC Public Health. 2018;18(Suppl S2):1035.
- Franchini M, Fasoli S, Gandini G, et al. Impact of exercise/sport on well-being in congenital bleeding disorders. Semin Thromb Hemost. 2018;44(8): 796–801.
- De La Corte-rodriguez H, Rodriguez-Merchan EC. The role of physical medicine and rehabilitation in hemophiliac patients. Blood Coagul Fibrinolysis. 2013;24(1):1–9.
- Lobet S, Lambert C, Hermans C. Stop only advising physical activity in adults with hemophilia … prescribe it now! The role of exercise therapy and nutrition in chronic musculoskeletal diseases. Hemophilia. 2016;22(6):e554–e556.
- Cecchini C, Creighton K, Hann A, et al. Destination fitness. Canadian Hemophilia Society. [cited 2021 Apr 15]. Available from: https://www.hemophilia.ca/wp-content/uploads/2018/05/Destination-fitness-FINAL.pdf
- Schoenmakers MA, Gulmans VA, Helders PJ, et al. Motor performance and disability in Dutch children with hemophilia: a comparison with their healthy peers. Hemophilia. 2001;7(3):293–298.
- Bandura A. Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977;84(2):191–215.
- Boccalandro EA, Dallari G, Mannucci PM. Telemedicine and telerehabilitation: current and forthcoming applications in hemophilia. Blood Transfus. 2019;17(5):385–390.
- Healthy Children: American Academy of Pediatrics. Energy out: daily physical activity recommendations. Updated 2015. Accessed 2017 Feb 17. Available online: https://www.healthychildren.org/English/healthy-living/fitness/Pages/Energy-Out-Daily-Physical-Activity-Recommendations.aspx
- Wagner B, Krüger S, Hilberg T, et al. The effect of resistance exercise on strength and safety outcome for people with hemophilia: a systematic review. Hemophilia. 2020;26(2):200–215.