Struggling for freedom—lived experiences of being a relative of a stroke survivor in the first six months after hospital discharge

References

• Bäckström B., Sundin K. The meaning of being a middle-aged close relative of a person who has suffered a stroke, 1 month after discharge from a rehabilitation clinic. Nursing Inquiry 2007; 14: 243–254
   PubMed Web of Science ®Google Scholar
• Berg A., Palomäki H., Lönnqvist J., Lehtihalmes M., Kaste M. Depression among caregivers of stroke survivors. Stroke 2005; 36: 639–643
   PubMed Web of Science ®Google Scholar
• Blake H., Lincoln N. B., Clark D. D. Caregiver strain in spouses of stroke patients. Clinical Rehabilitation 2003; 17: 312–317
   PubMed Web of Science ®Google Scholar
• DeLaune M., Brown S.C. Spousal responses to role changes following a stroke. Medsurg Nursing 2001; 10(2)79–88
   Google Scholar
• Dewey H. M., Thrift A. G., Mihalopoulos C., Carter R., Macdonell R. A. L., McNeil J. J., et al. Informal care for stroke survivors. Results from the North East Melbourne stroke incidence study (NEMESIS). Stroke 2002; 33: 1028–1033
   PubMed Web of Science ®Google Scholar
• Freire P. Pedagogy of the oppressed. Clays Ltd, St Ives plc, LondonUK 1970
   Google Scholar
• Freire P. Education for critical consciousness. Continuum, London 1974
   Google Scholar
• Friberg F., Pilhammar Andersson E., Bengtsson J. Pedagogical encounters between nurses and patients in a medical ward—a field study. International Journal of Nursing Studies 2007; 44: 534–544
   PubMed Web of Science ®Google Scholar
• Goldsteen M., Abma T., Oeseburg B., Verkerk M., Verhey F., Widdershoven G. What is it to be a daughter? Identities under pressure in dementia care. Bioethics 2007; 21(1)1–12
   Web of Science ®Google Scholar
• Han B. M. A., Haley W. E. Family caregiving for patients with stroke. Review and analysis. Stroke 1999; 30: 1478–1485
   PubMed Web of Science ®Google Scholar
• Henz U. The effect of informal care on paid-work participation in Great Britain: A lifecourse perspective. Ageing & Society 2004; 24(6)851–880
   Web of Science ®Google Scholar
• Kerr S. M., Smith L. N. Stroke: An exploration of the experience of informal caregiving. Clinical Rehabilitation 2001; 15: 428–436
   PubMed Web of Science ®Google Scholar
• Lindahl B., Sandman P.-O., Rasmussen B. H. Meanings of living at home on ventilator. Nursing Inquiry 2003; 10(1)19–27
   PubMedGoogle Scholar
• Lindhardt T., Bolmsjö I. A., Rahm Hallberg I. Standing guard—being a relative to a hospitalised, elderly person. Journal of Aging Studies 2006; 20: 133–149
   Web of Science ®Google Scholar
• Lindseth A., Norberg A. A phenomenological hermeneutical method for researching lived experiences. Scandinavian Journal Caring Science 2004; 18: 145–153
   PubMed Web of Science ®Google Scholar
• Mackay, J., Mensah, G. A., Mendis, S., & Greenlund, K. 2004. The atlas of heart disease and stroke. Geneva World Health Organization (WHO). Retrieved December 18, 2007, from http://www.who.int/cardiovascular_diseases/resources/atlas/en/.
   Google Scholar
• Mishler E. G. Research interviewing. Context and narrative. Harvard University Press, Cambridge 1991
   Google Scholar
• Morse J. M., Barrett M., Mayan M., Olson K., Spiers J. Verification strategies for establishing reliability and validity in qualitative research. International Journal of Qualitative Methods 2002; 1(2)1–19
   Google Scholar
• Öhman, B. 2003. Sjuksköterskans patientundervisning inom geriatrisk vård och rehabilitering. (Nurses patient education in geriatric care and rehabilitation). Doctoral dissertation, University of Stockholm, Sweden.
   Google Scholar
• Rassmussen B. H., Norberg A., Sandman P. O. Stories about becoming a hospice nurse. Reasons, expectations, hopes, and concerns. Cancer Nursing 1995; 18(5)344–354
   Web of Science ®Google Scholar
• Ricoeur P. Interpretation theory: Discourse and the surplus of meaning. Texas Christian University Press, Forth worth 1976
   Google Scholar
• Ricoeur P. Studies in the theory of interpretation. Hermeneutics & the Human Sciences. Essays on language, action and interpretation, P. Ricoeur. Cambridge University Press, Cambridge 1998; 131–193
   Google Scholar
• Riks-stroke. 2006. Analyserande rapport från riksstroke. För helåret 2006. (The Swedish National Registry for Quality Assessment of Acute Stroke Care, Report Year 2006). Stockholm: Sweden. Retrieved December 18, 2007, from http://www.riksstroke.org/content/analyser/Rapport06.pdf.
   Google Scholar
• Scholte op Reimer W. J. M., de Haan R. J., Rijnders P. T., Limburg M., van den Bos G. A. M. The burden of caregiving in partners of long-term stroke survivors. Stroke 1998; 29: 1605–1611
   PubMed Web of Science ®Google Scholar
• Silva-Smith A. L. Restructuring life. Preparing for and beginning a new caregiving role. Journal of Family Nursing 2007; 13(1)99–116
   PubMed Web of Science ®Google Scholar
• Sit J. W. H., Bong T. K. S., Clinton M., Li L. S. W., Fong Y. Stroke care in the home: the impact of social support on the general health of family caregivers. Journal of Clinical Nursing 2004; 13: 816–824
   PubMed Web of Science ®Google Scholar
• Smith L. N., Lawrence M., Kerr S. M., Langhorn P., Lees K. R. Informal carers’ experiences of caring for stroke survivors. Journal of Advanced Nursing 2004; 46(3)235–244
   PubMed Web of Science ®Google Scholar
• Socialstyrelsen. 2004. Livssituationen två år efter stroke—En uppföljning av strokedrabbade och deras närstående. (Life situation two years after the stroke event—a follow up of stroke patient and their relatives). Stockholm; Socialstyrelsen (The National Swedish Board of Health and Welfare). Retrieved April 15, 2008, from http://www.socialstyrelsen.se/NR/rdonlyres/40B56ADB-E819-4577-9BDA-5918476F5C78/2775/200412340.pdf.
   Google Scholar
• Söderlund, M. 1998 “En mänsklig atmosfär”. Trygghet, samhörighet och gemenskap—God vård ur ett patientperspektiv. (“In the atmosphere of humanity”. Security, solidarity and mutual understanding—A concept of good caring from the patients’ perspective). Doctoral dissertation, University of Uppsala, Sweden.
   Google Scholar
• Streutbert Speciale H. J., Rinaldi Carpenter D. Qualitative research in nursing. Advancing the humanistic imperative. Lippincott Williams & Wilkins, Philadelphia 2003
   Google Scholar
• Teel C. S., Duncan P., Min Lai S. Caregiving experiences after stroke. Nursing Research 2001; 50(1)53–60
   PubMed Web of Science ®Google Scholar
• Tooth L., McKenna K., Barnett A., Prescott C., Murphy S. Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Injury 2005; 19(12)963–974
   PubMed Web of Science ®Google Scholar
• Wallengren C., Friberg F., Segesten K. Like a shadow—on becoming a stroke victim's science relative. Scandinavian Journal of Caring Science 2008; 22: 48–55
   PubMed Web of Science ®Google Scholar
• Widén Holmqvist, L., von Kock, l., & de Pedro-Duesta, J. 2000. Use of healthcare impact on family caregivers and patient satisfaction of rehabilitation at home after stroke in southwest Stockholm. Scandinavian Journal of Medicine, 32, 173–179.
   Google Scholar