‘It’s my home and your work’: the views of a filmed vignette describing a challenging everyday situation from the perspective of people with intellectual disabilities

References

• Arndt, S. A., Konrad, M., & Test, D. W. (2006). Effects of the self-directed IEP on student participation in planning meetings. Remedial and Special Education, 27(4), 194–9.
   Web of Science ®Google Scholar
• Bandura, A. (1997). The exercise of control. New York, NY: Freeman.
   Google Scholar
• Baxter, L. A. (1994). Content analysis. In B. M. Montgomery & S. Duck (Eds.), Studying interpersonal interaction (pp. 239–254). London, UK: Guilford.
   Google Scholar
• Björnsdóttir, K., Stefánsdóttir, G. V., & Stefánsdóttir, Á. (2015). ‘It’s my life’: Autonomy and people with intellectual disabilities. Journal of Intellectual Disabilities, 19(1), 5–21.
   PubMed Web of Science ®Google Scholar
• Brown, F., Gothelf, C. R., Guess, D., & Lehr, D. H. (1998). Self-determination for individuals with the most severe disabilities: Moving beyond Chimera1. The Journal of the Association for Persons with Severe Handicaps, 23(1), 17–26.
   Web of Science ®Google Scholar
• Burke, P. (2005). Listening to young people with special needs: The influence of group activities. Journal of Intellectual Disabilities, 9(4), 359–376.
   PubMedGoogle Scholar
• Caldwell, J., Arnold, K., & Rizzolo, M. (2012). Envisioning the future: Allies in self-advocacy report. Chicago: Institute on Disability and Human Development, University of Illinois at Chicago.
   Google Scholar
• Carlson, L. (2010). The faces of intellectual disability: Philosophical reflections. Bloomington, IN: Indiana University Press.
   Google Scholar
• Carter, E. W., Lane, K. L., Cooney, M., Weir, K., Moss, C. K., & Machalicek, W. (2013). Parent assessments of self-determination importance and performance for students with autism or intellectual disability. American Journal on Intellectual and Developmental Disabilities, 118(1), 16–31.
   PubMedGoogle Scholar
• Chartres, D., & Brayley, J. (2010). Office of the public advocate South Australia: Submission to the productivity commission inquiry into disability care and support. Collinswood: Office of the Public Advocate.
   Google Scholar
• Chen, Y.-C., Del Ben, K. S., Fortson, B., & Lewis, J. (2006). Differential dimensions of death anxiety in nursing students with and without nursing Experience. Death Studies, 30(10), 919–929.
   PubMed Web of Science ®Google Scholar
• Downe-Wamboldt, B. (1992). Content analysis: Method, applications, and issues. Health Care for Women International, 13(3), 313–321.
   PubMedGoogle Scholar
• Dunn, M. C., Clare, I. C. H., & Holland, A. J. (2010). Living ‘a life like ours’: Support workers accounts of substitute decision-making in residential care homes for adults with intellectual disabilities. Journal of Intellectual Disability Research, 54(2), 144–160.
   PubMed Web of Science ®Google Scholar
• Dunn, M. C., Clare, I. C. H., & Holland, A. J. (2008). Substitute decision-making for adults with intellectual disabilities living in residential care: Learning through experience. Health Care Analysis, 16(1), 52–64.
   Web of Science ®Google Scholar
• Ekdahl, A. W., Andersson, L., & Friedrichsen, M. (2010). “They do what they think is the best for me”. Frail elderly patients’ preferences for participation in their care during hospitalization. Patient Education and Counseling, 80(2), 233–240.
   PubMed Web of Science ®Google Scholar
• Gadamer, H. G. (1994). Truth and methods (German original 1960) (2nd ed.). New York, NY: Continuum.
   Google Scholar
• Goodley, D. (2000). Self-advocacy in the lives of people with intellectual disabilities: The politics of resilience. Buckingham: Open University Press.
   Google Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112.
   PubMed Web of Science ®Google Scholar
• Gustavsson, A., Tøssebro, J., & Traustadóttir, R. (2005). Introduction: Approaches and perspectives in Nordic disability research. In A. Gustavsson, R. Sandvin, R. Traustadóttir, & J. Tøssebro (Eds.), Resistance, reflection and change: Nordic disability research (pp. 23–44). Lund, Sweden: Student literature.
   Google Scholar
• Harris, N., Beringer, A., & Fletcher, M. (2016). Families’ priorities in life-limiting illness: Improving quality with online empowerment. Archives of Disease in Childhood, 101(3), 247–252.
   Web of Science ®Google Scholar
• Hawkins, R., Redley, M., & Holland, A. J. (2011). Duty of care and autonomy: How support workers managed the tension between protecting service users from risk and promoting their independence in a specialist group home. Journal of Intellectual Disability Research, 55(9), 873–884.
   PubMed Web of Science ®Google Scholar
• Hoole, L., & Morgan, S. (2011). “It’s only right that we get involved”: Service-user perspectives on involvement in learning disability services. British Journal of Learning Disabilities, 39(1), 5–10.
   Web of Science ®Google Scholar
• Inglis, P., & Cook, T. (2012). Ten top tips for effectively involving people with a learning disability in research. Journal of Learning Disabilities and Offending Behaviour, 2(2), 98–104.
   Google Scholar
• Kåhlin, I., Kjellberg, A., & Hagberg, J. E. (2016). Choice and control for people with intellectual disability in group homes. Scandinavian Journal of Occupational Therapy, 23(2), 127–137.
   PubMed Web of Science ®Google Scholar
• Kondracki, N. L., Wellman, N. S., & Amundson, D. R. (2002). Content analysis: Review of methods and their applications in nutrition education. Journal of Nutrition Education and Behavior, 34(4), 224–230.
   PubMed Web of Science ®Google Scholar
• Lambert, S. D., & Loiselle, C. G. (2008). Combining individual interviews and focus groups to enhance data richness. Journal of Advanced Nursing, 62(2), 228–237.
   PubMed Web of Science ®Google Scholar
• Lyons, R. F., & Sullivan, M. J. L. (1998). Curbing loss in illness and disability: A relationship perspective. In J. H. Harvey (Ed.), Perspectives on loss: A sourcebook (pp. 137–152). Philadelphia, PA: Brunner/Mazel.
   Google Scholar
• Mahone, I. H., Farrell, S., Hinton, I., Johnson, R., Moody, D., Rifkin, K., … Barker, M. R. (2011). Shared decision making in mental health treatment: Qualitative findings from stakeholder focus groups. Archives of Psychiatric Nursing, 25(6), 27–36.
   PubMedGoogle Scholar
• McKelvey, V. A., Morgaine, K. C., & Thomson, W. M. (2014). Adults with intellectual disabilities: A mixed-methods investigation of their experiences of dental treatment under general anaesthetic. New Zealand Dental Journal, 110(2), 58–64.
   Google Scholar
• Meininger, H. P. (2001). Autonomy and professional responsibility in care for persons with intellectual disabilities. Nursing Philosophy, 2(3), 240–250.
   Google Scholar
• Nordenfelt, L. (2004). The varieties of dignity. Health Care Analysis, 12(2), 69–81.
   PubMed Web of Science ®Google Scholar
• Olney, M. F. (2001). Communication strategies of adults with severe disabilities. Rehabilitation Counseling Bulletin, 44(2), 87–94.
   Web of Science ®Google Scholar
• Paterson, J., & Stewart, J. (2002). Adults with acquired brain injury: Perceptions of their social world. Rehabilitation Nursing, 27(1), 13–18.
   Google Scholar
• Peek, L., & Fothergill, A. (2009). Using focus groups: Lessons from studying daycare centers, 9/11, and Hurricane Katrina. Qualitative Research, 9, 31–59.
   Web of Science ®Google Scholar
• Rapaport, J., Manthorpe, J., Moriarty, J., Hussein, S., & Collins, J. (2005). Advocacy and people with learning disabilities in the UK: How can local funders find value for money? Journal of Intellectual Disabilities, 9(4), 299–319.
   PubMedGoogle Scholar
• Roper, J. M., & Shapira, J. (2000). Ethnography in nursing research. Thousand Oaks, CA: Sage.
   Google Scholar
• Stiker, H. J. (1999). A history of disability. Ann Arbor, MI: University of Michigan Press.
   Google Scholar
• Tøssebro, J. (2004). Introduction to the special issue: Understanding disability. Scandinavian Journal of Disability Research, 6(1), 3–7.
   Google Scholar
• Tøssebro, J. (2013). Two decades of disability research in Norway – 1990–2010. Scandinavian Journal of Disability Research, 6(1), 3–7.
   Google Scholar
• United Nations, Division for social policy and development disability (2006). Convention on the rights of persons with disabilities, Retrieved October 22, 2016, from http://www.un.org/disabilities/documents/convention/convention_accessible_pdf.pdf
   Google Scholar
• Vatne, S. (2009). Korrigere og anerkjennelse, relationens betydning i miljøterapi [Correcting and acknowledging the importance of the relationship in environmental therapy]. Norwegian, Oslo, Norway: Gyldendal Akademisk.
   Google Scholar
• Wahmsley, J., & Johnson, K. (2003). Inclusive research with people with learning disabilities – Past, present and futures. London and New York: Jessica Kingsley Publishers.
   Google Scholar
• Wehmeyer, M. L., Avery, B., Mithaug, D. E., & Stancliff, R. (2003). Theory in self-determination: Foundations for educational practice. Springfield, IL: Charles C. Thomas.
   Google Scholar
• Wehmeyer, M. L., & Garner, N. W. (2003). The impact of personal characteristics of people with intellectual and developmental disability on self-determination and autonomous functioning. Journal of Applied Research in Intellectual Disabilities, 15(Supplement), 71–89.
   Google Scholar
• Wehmeyer, M. L., & Gragoudas, S. (2004). Centres for independent living and transition age youth: Empowerment and self-determination. Journal of Vocational Rehabilitation, 20, 53–58.
   Google Scholar
• Woods, N. F., & Catanzaro, M. (1988). Nursing research: Theory and practice. St. Louis, MO: Mosby.
   Google Scholar
• World Medical Association. (2013). Declaration of Helsinki. Ethical principles for medical research involving human subjects. Retrieved August 28, 2015, from http://www.wma.net/en/30publications/10policies/b3/
   Google Scholar