12,247
Views
39
CrossRef citations to date
0
Altmetric
Empirical Studies

Being mothers and fathers of a child with type 1 diabetes aged 1 to 7 years: a phenomenological study of parents’ experiences

, ORCID Icon, &
Article: 1487758 | Accepted 04 Jun 2018, Published online: 26 Jun 2018

References

  • Acerini, C., Craig, M. E., De Beaufort, C., Maahs, D. M., & Hanas, R. (2014). Introduction to ISPAD clinical practice consensus guidelines 2014 compendium. Pediatric Diabetes, 15(Suppl 20), 1–9.
  • Carel, H. (2008). Illness: The cry of the flesh. Stocksfield: Acumen.
  • Dahlberg, K., Dahlberg, H., & Nyström, M. (2008). Reflective lifeworld research (2 ed.). Lund: Studentlitteratur.
  • Hatton, D. L., Canam, C., Thome, S., & Hughes, A. M. (1995). Parents’ perceptions of caring for an infant or toddler with diabetes. Journal of Advanced Nursing, 22(3), 569–577.
  • Haugstvedt, A., Rokne, B., Graue, M., & Wentzel-Larsen, T. (2011). Psychosocial family factors and glycemic control among children aged 1–15 years with type 1 diabetes: A population-based survey. BMC Pediatrics, 11(1), 118.
  • Haugstvedt, A., Wentzel‐Larsen, T., Graue, M., Søvik, O., & Rokne, B. (2010). Fear of hypoglycaemia in mothers and fathers of children with type 1 diabetes is associated with poor glycaemic control and parental emotional distress: A population‐based study. Diabetic Medicine, 27(1), 72–78.
  • Haugstvedt, A., Wentzel‐Larsen, T., Rokne, B., & Graue, M. (2011). Perceived family burden and emotional distress: Similarities and differences between mothers and fathers of children with type 1 diabetes in a population‐based study. Pediatric Diabetes, 12(2), 107–114.
  • Heidegger, M. (1962). Being and time. New York: Harper.
  • International Diabetes Federation. (2015). IDF diabetes atlas. Retrieved from 6th December, 2017 http://www.diabetesatlas.org/.
  • Landolt, M. A., Vollrath, M., Laimbacher, J., Gnehm, H. E., & Sennhauser, F. H. (2005). Prospective study of posttraumatic stress disorder in parents of children with newly diagnosed type 1 diabetes. Journal of the American Academy of Child & Adolescent Psychiatry, 44(7), 682–689.
  • Lindström, C., Åman, J., & Norberg, A. L. (2010). Increased prevalence of burnout symptoms in parents of chronically ill children. Acta Paediatrica, 99(3), 427–432.
  • Lowes, L., & Lyne, P. (2000). Chronic sorrow in parents of children with newly diagnosed diabetes: A review of the literature and discussion of the implications for nursing practice. Journal of Advanced Nursing, 32(1), 41–48.
  • Merleau-Ponty, M., Landes, D. A., Carman, T., & Lefort, C. (2012). Phenomenology of perception. London: Routledge.
  • Monaghan, M. C., Hilliard, M. E., Cogen, F. R., & Streisand, R. (2009). Nighttime caregiving behaviors among parents of young children with Type 1 diabetes: Associations with illness characteristics and parent functioning. Families, Systems, & Health, 27(1), 28.
  • Patterson, C. C., Dahlquist, G. G., Gyürüs, E., Green, A., Soltész, G., & Group, E. S. (2009). Incidence trends for childhood type 1 diabetes in Europe during 1989–2003 and predicted new cases 2005–20: A multicentre prospective registration study. The Lancet, 373(9680), 2027–2033.
  • Rewers, M. J., Pillay, K., De Beaufort, C., Craig, M. E., Hanas, R., Acerini, C. L., & Maahs, D. M. (2014). Assessment and monitoring of glycemic control in children and adolescents with diabetes. Pediatric Diabetes, 15(Suppl 20), 102–114.
  • Sævi, T. (2013). Between being and knowing: Addressing the fundamental hesitation in hermeneutic phenomenological writing. Indo-Pacific Journal of Phenomenology, 13(1), 1–11.
  • Skrivarhaug, T., Kummernes, S. J., & Drivvoll, A. K. (2016). Barnediabetesregisteret: The Norwegian Childhood Diabetes Registry (NCDR) annual report 2016. Retrieved from 6th of December, 2017https://oslo-universitetssykehus.no/Documents/Barnediabetesregisteret/Årsrapport%202016%20BDR.pdf.
  • Smaldone, A., & Ritholz, M. D. (2011). Perceptions of parenting children with type 1 diabetes diagnosed in early childhood. Journal of Pediatric Health Care, 25(2), 87–95.
  • Stallwood, L. (2005). Influence of caregiver stress and coping on glycemic control of young children with diabetes. Journal of Pediatric Health Care, 19(5), 293–300.
  • Streisand, R., Mackey, E. R., Elliot, B. M., Mednick, L., Slaughter, I. M., Turek, J., & Austin, A. (2008). Parental anxiety and depression associated with caring for a child newly diagnosed with type 1 diabetes: Opportunities for education and counseling. Patient Education and Counseling, 73(2), 333–338.
  • Streisand, R., & Monaghan, M. (2014). Young children with type 1 diabetes: Challenges, research, and future directions. Current Diabetes Reports, 14(9), 520.
  • Sullivan-Bolyai, S., Deatrick, J., Gruppuso, P., Tamborlane, W., & Grey, M. (2003). Constant vigilance: Mothers’ work parenting young children with type 1 diabetes. Journal of Pediatric Nursing, 18(1), 21–29.
  • Sullivan-Bolyai, S., Rosenberg, R., & Bayard, M. (2006). Fathers’ reflections on parenting young children with type 1 diabetes. MCN: the American Journal of Maternal/Child Nursing, 31(1), 24–31.
  • Svenaeus, F. (2005). Sykdommens mening: Og møtet med det syke mennesket. Oslo: Gyldendal akademisk.
  • Van Manen, M. (1997). Researching lived experience: Human science for an action sensitive pedagogy (2 ed. ed.). London, Ont: Althouse Press.
  • Van Manen, M. (2006). Writing qualitatively, or the demands of writing. Qualitative Health Research, 16(5), 713–722.
  • Vetlesen, A. J., & Stänicke, E. (1999). Fra hermeneutikk til psykoanalyse: Muligheter og grenser i filosofiens møte med psykoanalysen. Oslo: Ad notam Gyldendal.
  • Wennick, A., & Hallström, I. (2006). Swedish families’ lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: An ongoing learning process. Journal of Family Nursing, 12(4), 368–389.
  • Wennick, A., & Hallström, I. (2007). Families’ lived experience one year after a child was diagnosed with type 1 diabetes. Journal of Advanced Nursing, 60(3), 299–307.
  • Wertz, F. J. (2011). A phenomenological Psychological Approach to Trauma and Resilience. In F. J. Wertz, K. Charmaz, L. M. McMullen, R. Josselson, R. Anderson, & E.McSpadden (Eds.), Five ways of doing qualitative analysis: Phenomenological psychology, grounded theory, discourse analysis, narrative research and intuitive inquiry. New York: Guilford Press.
  • Whittemore, R., Jaser, S., Chao, A., Jang, M., & Grey, M. (2012). Psychological experience of parents of children with type 1 diabetes: A systematic mixed-studies review. The Diabetes Educator, 38(4), 562–579.