“TOGETHER WE ARE UNBEATABLE”: young sisters’ narration of a sibling’s cancer in personal blogs on the internet

References

• Alderfer, M. A., Labay, L. E., & Kazak, A. E. (2003). Brief report: Does posttraumatic stress apply to siblings of childhood cancer survivors? Journal of Pediatric Psychology, 28(4), 281–13.
   PubMed Web of Science ®Google Scholar
• Alderfer, M. A., Long, K. A., Lown, E. A., Marsland, A. L., Ostrowski, N. L., Hock, J. M., & Ewing, L. J. (2009). Psychosocial adjustment of siblings of children with cancer: A systematic review. Psycho-Oncology, 19(8), 789–805.
   Web of Science ®Google Scholar
• Andrews, M. (2004). Opening to the original contributions: Counter-narratives and the power to impose. In M. Bamberg & M. Andrews (Eds.), Considering counter narratives: Narrating, resisting and making sense (pp. 1–6). Philadelphia: John Benjamin Publishing Company.
   Google Scholar
• Bamberg, M. G. (1997). Positioning between structure and performance. Journal of Narrative and Life History, 7(1–4), 335–342.
   Web of Science ®Google Scholar
• Bury, M. R. (1982). Chronic illness as biographical disruption. Sociology of Health and Illness, 4(2), 167–182.
   PubMedGoogle Scholar
• Clausen, J. A. (1998). Life reviews and life stories. In J. Giele & G. Elder (Eds.), Methods of life course research: Qualitative and quantitative approaches (pp. 189–212). London: SAGE.
   Google Scholar
• Coulson, N. S., & Greenwood, N. (2012). Families affected by childhood cancer: An analysis of the provision of social support within online support groups. Child: Care, Health and Development, 38(6), 870–877.
   PubMed Web of Science ®Google Scholar
• D’Urso, A., Mastroyannopoulou, K., & Kirby, A. (2016). Experiences of posttraumatic growth in siblings of children with cancer. Clinical Child Psychology and Psychiatry. doi:10.1177/1359104516660749
   PubMed Web of Science ®Google Scholar
• Eastham, L. A. (2011). Research using blogs for data: Public documents or private musings?. Research in Nursing & Health, 34(4), 353–361.
   PubMed Web of Science ®Google Scholar
• Eilertsen, M. B., Lövgren, M., Wallin, A. E., & Kreicbergs, U. (2017). Cancer-bereaved siblings’ positive and negative memoirs and experiences of illness and death: A nationwide follow-up. Palliative and Supportive Care, 16(4), 406–413.
   PubMed Web of Science ®Google Scholar
• Elder, J., & Burke, L. A. (2015). Parental grief expression in online cancer support groups. Illness, Crisis & Loss, 23(2), 175–190.
   Google Scholar
• Findahl, O., & Davidsson, P. (2015). Svenskarna och Internet: 2015 års undersökning av svenska folkets internetvanor [The Swedes and the Internet: 2015 survey of the Swedish people’s Internet habits]. Stockholm: SE, Stiftelsen för internetinfrastruktur.
   Google Scholar
• Fivush, R. (2010). Speaking silence: The social construction of silence in autobiographical and cultural narratives. Memory, 18(2), 88–98.
   PubMed Web of Science ®Google Scholar
• Frank, A. W. (2013). The wounded storyteller: Body, illness, and ethics (2nd ed.). Chicago: University of Chicago Press.
   Google Scholar
• Frydenberg, E., & Lewis, R. (1993). Boys play sport and girls turn to others: Age, gender and ethnicity as determinants of coping. Journal of Adolescence, 16(3), 253–266.
   PubMed Web of Science ®Google Scholar
• Gerhardt, C. A., Lehmann, V., Long, K. A., & Alderfer, M. A. (2015). Supporting siblings as a standard of care in pediatric oncology: Standard of care for siblings. Pediatric Blood & Cancer, 62(S5), S750–S804.
   PubMed Web of Science ®Google Scholar
• Gibson, F., Hibbins, S., Grew, T., Morgan, S., Pearce, S., Stark, D., & Fern, L. A. (2016). How young people describe the impact of living with and beyond a cancer diagnosis: Feasibility of using social media as a research method. Psycho-Oncology, 25(11), 1317–1323.
   PubMed Web of Science ®Google Scholar
• Goffman, E. (1963/1990). Stigma: Notes on the management of a spoiled identity. London: Penguin Books.
   Google Scholar
• Karlsson, L. (2006). Acts of reading diary weblogs. Human IT: Journal for Information Technology Studies as a Human Science, 8(2), 1–59. Retrieved from http://lup.lub.lu.se/record/1858954
   Google Scholar
• Klass, D., Silverman, P., & Nickman, S. (1996). Continuing bonds: New understandings of grief. New York, NY: Taylor & Francis.
   Google Scholar
• Lenhart, A. (2015). Teens, social media & technology overview 2015. Pew Research Center. Retrieved from http://www.pewinternet.org/files/2015/04/PI_TeensandTech_Update2015_0409151.pdf
   Google Scholar
• Long, K. A., & Marsland, A. L. (2011). Family adjustment to childhood cancer: A systematic review. Clinical Child and Family Psychology Review, 14(1), 57–88.
   PubMed Web of Science ®Google Scholar
• Long, K. A., Marsland, A. L., Wright, A., & Hinds, P. (2015). Creating a tenuous balance: Siblings’ experience of a brother’s or sister’s childhood cancer diagnosis. Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses, 32(1), 21–31.
   PubMed Web of Science ®Google Scholar
• Markham, A., & Buchanan, E. (2012). Ethical decision-making and internet research: Version 2.0. Recommendations from the AOIR ethics working committee (version 2.0). Association of Internet Researchers. Retrieved from http://www.aoir.org/reports/ethics.pdf
   Google Scholar
• McKenna, K. Y. A., & Bargh, J. A. (2000). Plan 9 from cyberspace: The implications of the internet for personality and social psychology. Personality and Social Psychology Review, 4(1), 57–75.
   Web of Science ®Google Scholar
• Mishler, E. G. (2009). Storylines: Craftartists’ narratives of identity. Cambridge, MA: Harvard University Press.
   Google Scholar
• Neimeyer, R. A., & Sands, D. C. (2011). Meaning reconstruction in bereavement: From principles to practice. In R. A. Neimeyer, D. L. Harris, H. R. Winokuer, & G. F. Thornton (Eds.), Grief and bereavement in contemporary society: Bridging research and practice (pp. 9–22). New York, NY: Routledge.
   Google Scholar
• Nolbris, M., Abrahamsson, J., Hellström, A.-L., Olofsson, L., & Enskär, K. (2010). The experience of therapeutic support groups by siblings of children with cancer. Pediatric Nursing, 36(6), 298–305.
   PubMedGoogle Scholar
• Prchal, A., & Landolt, M. A. (2012). How siblings of pediatric cancer patients experience the first time after diagnosis: A qualitative study. Cancer Nursing, 35(2), 133–140.
   PubMed Web of Science ®Google Scholar
• Ribbens McCarthy, J. (2007). ‘They all look as if they’re coping but I’m not’: The relational power/lessness of ‘youth’ in responding to experiences of bereavement. Journal of Youth Studies, 10(3), 285–303.
   Google Scholar
• Riessman, C. K. (2008). Narrative methods for the human sciences. London: SAGE.
   Google Scholar
• Silvén Hagström, A. (2017). ‘Suicide stigma’ re-negotiated: Storytelling, social support and resistance in an Internet-based community for the young suicide-bereaved. Qualitative Social Work, 16(6), 775–792.
   Web of Science ®Google Scholar
• Silvén Hagström, A. (2018). Why did he choose to die?: A meaning-searching approach to parental suicide bereavement in youth. Death Studies (forthcoming).
   PubMed Web of Science ®Google Scholar
• Silverman, D. (2005). Doing qualitative research. London: SAGE.
   Google Scholar
• Sontag, S. (1978). Illness as metaphor. New York, NY: Farrar, Straus and Giroux.
   Google Scholar
• Stern, S. (2008). Producing sites, exploring identities: Youth online authorship. Youth, Identity, and Digital Media, 6, 95–118.
   Google Scholar
• Tasker, S. L., & Stonebridge, G. G. S. (2016). Siblings, you matter: Exploring the needs of adolescent siblings of children and youth with cancer. Journal of Pediatric Nursing, 31(6), 712–722.
   PubMed Web of Science ®Google Scholar
• Van Dijck, J. (2004). Composing the self: Of diaries and lifelogs. Fibreculture, 3. Retrieved from http://www.michelepolak.com/221fall10/Weekly_Schedule_files/vanDijck.docx
   Google Scholar
• Yang, H.-C., Mu, P.-F., Sheng, C.-C., Chen, Y.-W., & Hung, G.-Y. (2016). A systematic review of the experiences of siblings of children with cancer. Cancer Nursing, 39(3), E12–21.
   PubMed Web of Science ®Google Scholar