Outcome measures and prognostic indicators in patients with amyotrophic lateral sclerosis

References

• Lee JR, Annegers JF, Appel SH. Prognosis of amyotrophic lateral sclerosis and the effect of referral selection. J Neurol Sci. 1995; 132: 207–15
   PubMed Web of Science ®Google Scholar
• Preux PM, Couratier P, Boutros-Toni F, Salle JY, Tabaraud F, Bernet-Bernady P, et al. Survival prediction of amyotrophic lateral sclerosis. Neuroepidemiology. 1996; 15: 153–60
   PubMed Web of Science ®Google Scholar
• Traynor BJ, Codd MB, Corr B, Forde C, Frost E, Hardiman OM. Clinical features of amyotrophic lateral sclerosis according to the El Escorial and Airlie House diagnostic criteria. Arch Neurol. 2000; 57: 1171–6
   PubMed Web of Science ®Google Scholar
• Leigh PN, Swash M, Iwasaki Y, Ludolph A, Meininger V, Miller RG, et al. Amyotrophic lateral sclerosis: a consensus viewpoint on designing and implementing a clinical trial. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004; 5: 84–98
   PubMed Web of Science ®Google Scholar
• Bach JR. Amyotrophic lateral sclerosis: prolongation of life by non-invasive respiratory AIDS. Chest. 2002; 122: 92–8
   PubMed Web of Science ®Google Scholar
• Lechtzin N, Rothstein J, Clawson L, Diette GB, Wiener CM. Amyotrophic lateral sclerosis: evaluation and treatment of respiratory impairment. Amyotroph Lateral Scler Other Motor Neuron Disord. 2002; 3: 5–13
   PubMed Web of Science ®Google Scholar
• Mazzini L, Corra T, Zaccala M, Mora G, Del Piano M, Galante M. Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis. J Neurol. 1995; 242: 695–8
   PubMed Web of Science ®Google Scholar
• Mitsumoto H, Davidson M, Moore D, Gad N, Brandis M, Ringel S, et al. Percutaneous endoscopic gastrostomy (PEG) in patients with ALS and bulbar dysfunction. Amyotroph Lateral Scler Other Motor Neuron Disord. 2003; 4: 177–85
   PubMed Web of Science ®Google Scholar
• Mustfa N, Walsh E, Bryant V, Lyall RA, Addington-Hall J, Goldstein LH, et al. The effect of non-invasive ventilation on ALS patients and their caregivers. Neurology. 2006; 66: 1211–7
   PubMed Web of Science ®Google Scholar
• Shaw AS, Ampong MA, Rio A, Al-Chalabi A, Sellars ME, Ellis C, et al. Survival of patients with ALS following institution of enteral feeding is related to pre-procedure oximetry: a retrospective review of 98 patients in a single centre. Amyotroph Lateral Scler Other Motor Neuron Disord. 2006; 7: 16–21
   PubMed Web of Science ®Google Scholar
• Brooks BR. El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. J Neurol Sci 1994; 124(Suppl)96–107
   PubMed Web of Science ®Google Scholar
• Beghi E, Millul A, Micheli A, Vitelli E, Logroscino G, for the SLALOM Group Incidence of ALS in Lombardy, Italy. Neurology. 2007;68:141–5.
   PubMed Web of Science ®Google Scholar
• Chiò A, Mora G, Leone M, Mazzini L, Cocito D, Giordana MT, et al. Early symptom progression rate is related to ALS outcome: a prospective population-based study. Neurology. 2002; 59: 99–103
   PubMed Web of Science ®Google Scholar
• Kimura F, Fujimura C, Ishida S, Nakajima H, Furutama D, Uehara H, et al. Progression rate of ALSFRS-R at time of diagnosis predicts survival time in ALS. Neurology. 2006; 66: 265–7
   PubMed Web of Science ®Google Scholar
• Turner MR, Bakker M, Sham P, Shaw CE, Leigh PN, Al-Chalabi A. Prognostic modelling of therapeutic interventions in amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2002; 3: 15–21
   PubMed Web of Science ®Google Scholar
• Tysnes OB, Vollset SE, Larsen JP, Aarli JA. Prognostic factors and survival in amyotrophic lateral sclerosis. Neuroepidemiology. 1994; 13: 226–35
   PubMed Web of Science ®Google Scholar
• Alcaz S, Jarebinski M, Pekmezovic T, Stevic-Marinkovic Z, Pavlovic S, Apostolski S. Epidemiological and clinical characteristics of ALS in Belgrade, Yugoslavia. Acta Neurol Scand. 1996; 94: 264–8
   PubMed Web of Science ®Google Scholar
• Argyriou AA, Polychronopoulos P, Papapetropoulos S, Ellul J, Andripoulos I, Katsoulas G, et al. Clinical and epidemiological features of motor neuron disease in south-western Greece. Acta Neurol Scand. 2005; 111: 108–13
   PubMed Web of Science ®Google Scholar
• Del Aguila MA, Longstreth WT, Jr, McGuire V, Koepsell TD, van Belle G. Prognosis in amyotrophic lateral sclerosis: a population-based study. Neurology. 2003; 60: 813–9
   PubMed Web of Science ®Google Scholar
• Farrero E, Prats E, Provedano M, Martinez-Matos JA, Manresa F, Escarrabill J. Survival in amyotrophic lateral sclerosis with home mechanical ventilation: the impact of systematic respiratory assessment and bulbar involvement. Chest. 2005; 127: 2132–8
   PubMed Web of Science ®Google Scholar
• Forbes RB, Colville S, Cran GW, Swingler RJ. Unexpected decline in survival from amyotrophic lateral sclerosis/motor neuron disease. J Neurol Neurosurg Psychiatry. 2004; 75: 1753–5
   PubMed Web of Science ®Google Scholar
• Gubbay SS, Kahana E, Zilber N, Cooper G, Pintov S, Leibowitz Y. Amyotrophic lateral sclerosis: a study of its presentation and prognosis. J Neurol. 1985; 232: 295–300
   PubMed Web of Science ®Google Scholar
• Magnus T, Beck M, Giess R, Puls I, Naumann M, Toyka KV. Disease progression in amyotrophic lateral sclerosis: predictors of survival. Muscle Nerve. 2002; 25: 709–14
   PubMed Web of Science ®Google Scholar
• Millul A, Beghi E, Logroscino G, Micheli A, Vitelli E, Zardi A. Survival of patients with amyotrophic lateral sclerosis in a population-based registry. Neuroepidemiology. 2005; 25: 114–9
   PubMed Web of Science ®Google Scholar
• Murros K, Fogelholm R. Amyotrophic lateral sclerosis in middle Finland: an epidemiological study. Acta Neurol Scand. 1983; 67: 41–7
   PubMed Web of Science ®Google Scholar
• Albert SM, Murphy PL, Del Bene ML, Rowland LP. A prospective study of preferences and actual treatment choices in ALS. Neurology. 1999; 53: 278–83
   PubMed Web of Science ®Google Scholar
• Desport JC, Preux PM, Truong TC, Vallat JM, Sautereau D, Couratier P. Nutritional status is a prognostic factor for survival in ALS patients. Neurology. 1999; 53: 1059–63
   PubMed Web of Science ®Google Scholar
• Lechtzin N, Wiener CM, Clawson L, Davidson MC, Anderson F, Gowda N, et al. Use of non-invasive ventilation in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004; 5: 9–15
   PubMed Web of Science ®Google Scholar
• Jackson CE, Lovitt S, Gowda N, Anderson F, Miller RG. Factors correlated with NPPV use in ALS. Amyotroph Lateral Scler. 2006; 7: 80–5
   PubMed Web of Science ®Google Scholar
• Albert SM, Murphy PL, Del Bene ML, Rowland LP. Prospective study of palliative care in ALS: choice, timing, outcomes. J Neurol Sci. 1999; 169: 108–13
   PubMed Web of Science ®Google Scholar