Perception of autonomy among people who use wheeled mobility assistive devices: dependence on environment and contextual factors

References

• Okoro CA, Hollis NTD, Cyrus AC, et al. Prevalence of disabilities and health care access by disability status and type among adults - United States, 2016. MMWR Morb Mortal Wkly Rep. 2018;67(32):882–887.
   PubMed Web of Science ®Google Scholar
• Bizier C, Fawcett G, Gilbert S. Mobility disabilities among Canadians aged 15 years and older, 2012. Canad Survey Disab. 2016. Available from: https://www150.statcan.gc.ca/n1/pub/89-654-x/89-654-x2016005-eng.htm
   Google Scholar
• Cardol M, De Jong B. A, Ward CD. On autonomy and participation in rehabilitation: a response. Disabil Rehabil. 2002;24(18):1001–1004.
   Web of Science ®Google Scholar
• Martin Ginis KA, Evans MB, Mortenson WB, et al. Broadening the conceptualization of participation of persons with physical disabilities: a configurative review and recommendations. Arch Phys Med Rehabil. 2017;98(2):395–402.
   PubMed Web of Science ®Google Scholar
• Hammell KW. Quality of life among people with high spinal cord injury living in the community. Spinal Cord. 2004;42(11):607–620.
   PubMed Web of Science ®Google Scholar
• Lund ML, Nordlund A, Bernspång B, et al. Perceived participation and problems in participation are determinants of life satisfaction in people with spinal cord injury. Disabil Rehabil. 2007;29(18):1417–1422.
   PubMed Web of Science ®Google Scholar
• Chan RCK. Active participation and autonomy: an ultimate target for rehabilitation. Disabil Rehabil. 2002;24(18):983–984.
   Web of Science ®Google Scholar
• Reid D, Angus J, McKeever P, et al. Home is where their wheels are: experiences of women wheelchair users. Am J Occup Ther. 2003;57(2):186–195.
   PubMed Web of Science ®Google Scholar
• Grimby G. On autonomy and participation in rehabilitation. Disabil Rehabil Assist Technol. 2002;24(18):975–976.
   Google Scholar
• Cardol M, de Jong BA, van den Bos GAM, et al. Beyond disability: perceived participation in people with a chronic disabling condition. Clin Rehabil. 2002;16(1):27–35.
   PubMed Web of Science ®Google Scholar
• Lund ML, Lexell J. Associations between perceptions of environmental barriers and participation in persons with late effects of polio. Scand J Occup Ther. 2009;16(4):194–204.
   PubMed Web of Science ®Google Scholar
• Harris F, Yang H, Sanford J, et al. The impact of home modifications and wheelchair usability on activity and participation. In: Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) annual conference; Toronto. 2011. p. 6–9.
   Google Scholar
• Pettersson C, Brandt Å, Lexell EM, et al. Autonomy and housing accessibility among powered mobility device users. Am J Occup Ther. 2015;69(5):6905290030.
   PubMedGoogle Scholar
• Mortenson WB, Miller WC, Auger C. Issues for the selection of Wheelchair-Specific activity and participation outcome measures: a review. Arch Phys Med Rehabil. 2008;89(6):1177–1186.
   PubMed Web of Science ®Google Scholar
• Harris F. Conceptual issues in the measurement of participation among wheeled mobility device users. Disabil Rehabil Assist Technol. 2007;2(3):137–148.
   PubMedGoogle Scholar
• Cardol M, de Haan RJ, van den Bos GAM, et al. The development of a handicap assessment questionnaire: the impact on participation and autonomy (IPA). Clin Rehabil. 1999;13(5):411–419.
   PubMed Web of Science ®Google Scholar
• Ripat JD, Brown CL, Ethans KD. Barriers to wheelchair use in the winter. Arch Phys Med Rehabil. 2015;96(6):1117–1122.
   PubMed Web of Science ®Google Scholar
• Eysenbach G. Improving the quality of web surveys: the checklist for reporting results of internet E-Surveys (CHERRIES). J Med Internet Res. 2004;6(3):e34–6.
   PubMed Web of Science ®Google Scholar
• Cook AM, Polgar JM. Assistive technologies-e-book: principles and practice. St. Louis (MO): Elsevier Health Sciences; 2004.
   Google Scholar
• Khalili M, Borisoff J, Van der Loos HFM. Towards an autonomy-based approach to design and develop mobility assistive technologies for spinal cord injury populations. Proceedings of the Rehabilitation Engineering and Assistive Technology Society of North America Conference; Jul 13–15; Arlington, VA. 2018.
   Google Scholar
• Whiteneck G, Meade MA, Dijkers M, et al. Environmental factors and their role in participation and life satisfaction after spinal cord injury. Arch Phys Med Rehabil. 2004;85(11):1793–1803.
   PubMed Web of Science ®Google Scholar
• Rosenberg DE, Bombardier CH, Hoffman JM, et al. Physical activity among persons aging with mobility disabilities: shaping a research agenda. J Aging Res. 2011;2011:708510.
   PubMedGoogle Scholar
• Layton N. Barriers and facilitators to community mobility for assistive technology users. Rehabil Res Pract. 2012;2012:454195–454199.
   PubMedGoogle Scholar
• Carver J, Ganus A, Ivey JM, et al. The impact of mobility assistive technology devices on participation for individuals with disabilities. Disabil Rehabil Assist Technol. 2016;11(6):468–477.
   PubMed Web of Science ®Google Scholar
• Löfqvist C, Pettersson C, Iwarsson S, et al. Mobility and mobility-related participation outcomes of powered wheelchair and scooter interventions after 4-months and 1-year use. Disabil Rehabil Assist Technol. 2012;7(3):211–218.
   PubMedGoogle Scholar
• Richter WM, Rodriguez R, Woods KR, et al. Consequences of a cross slope on wheelchair handrim biomechanics. Arch Phys Med Rehabil. 2007;88(1):76–80.
   PubMed Web of Science ®Google Scholar
• Cooper R. A, Cooper R, Boninger ML. Trends and issues in wheelchair technologies. Assist Technol. 2008;20(2):61–72.
   PubMed Web of Science ®Google Scholar
• Ramirez DZM, Holloway C. But, i don’t want/need a power wheelchair”: toward accessible power assistance for manual wheelchairs. In: ASSETS 2017 - Proceedings of the 19th International ACM SIGACCESS Conference on Computers and Accessibility. Baltimore, MD, USA. 2017. p. 120–129.
   Google Scholar
• Pyer M, Tucker F. With us, we, like, physically can’t’: transport, mobility and the leisure experiences of teenage wheelchair users. Mobilities. 2017;12(1):36–52.
   Web of Science ®Google Scholar
• Qualtrics I. Qualtrics. Provo, UT, USA. 2019.
   Google Scholar
• IBM SPSS statistics for Windows, version 26.0. New York: IBM Corp. 2019.
   Google Scholar
• Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288.
   PubMed Web of Science ®Google Scholar
• Khalili M, Jonathan C, Hocking N, et al. Perception of autonomy among people who use wheeled mobility assistive devices: dependence on the type of wheeled assistive technology. Assist Technol. 2021. DOI: 10.1080/10400435.2021.1934611
   Google Scholar
• Lund ML, Nordlund A, Nygård L, et al. Perceptions of participation and predictors of perceived problems with participation in persons with spinal cord injury. J Rehabil Med. 2005;37(1):3–8.
   PubMed Web of Science ®Google Scholar
• Borisoff JF, Ripat J, Chan F. Seasonal patterns of community participation and mobility of wheelchair users over an entire year. Arch Phys Med Rehabil. 2018;99(8):1553–1560.
   PubMed Web of Science ®Google Scholar
• Mortenson WB, Clarke LH, Best K. Prescribers' experiences with powered mobility prescription among older adults. Am J Occup Ther. 2013;67(1):100–107.
   PubMed Web of Science ®Google Scholar
• James L, Shing J, Mortenson WB, et al. Experiences with and perceptions of an adaptive hiking program. Disabil Rehabil. 2018;40(13):1584–1590.
   PubMed Web of Science ®Google Scholar
• Labbé D, Bahen M, Hanna C, et al. Setting the sails: stakeholders perceptions of an adapted sailing program. Leis Sci. 2019;1–15. DOI: 10.1080/01490400.2019.1686446
   Web of Science ®Google Scholar
• Ripat J, Borisoff JF, Grant LE, et al. Patterns of community participation across the seasons: a year-long case study of three canadian wheelchair users. Disabil Rehabil. 2018;40(6):722–731.
   PubMed Web of Science ®Google Scholar
• Cooper RA, Candiotti J, Grindle G, et al. Kinematics and stability analysis of a novel power wheelchair when traversing architectural barriers. Top Spinal Cord Inj Rehabil. 2017;23(2):110–119.
   PubMed Web of Science ®Google Scholar
• Noreau L, Fougeyrollas P, Post M, et al. Participation after spinal cord injury: the evolution of conceptualization and measurement. J Neurol Phys Ther. 2005;29(3):147–156.
   PubMedGoogle Scholar