Smartphone accessibility: understanding the lived experience of users with cervical spinal cord injuries

References

• World Health Organization. Spinal cord injury; 2013. November 19 [cited 2021 Nov 27]. Available from https://www.who.int/news-room/fact-sheets/detail/spinal-cord-injury.
   Google Scholar
• Carpenter C, Forwell SJ, Jongbloed LE, et al. Community participation after spinal cord injury. Arch Phys Med Rehabil. 2007;88(4):427–433.
   PubMed Web of Science ®Google Scholar
• Lidal IB, Huynh TK, Biering-Sørensen F. Biering-Sørensen F. Return to work following spinal cord injury: a review. Disabil Rehabil. 2007;29(17):1341–1375.
   PubMed Web of Science ®Google Scholar
• Noreau L, Fougeyrollas P. Long-term consequences of spinal cord injury on social participation: the occurrence of handicap situations. Disabil Rehabil. 2000;22:170–180.
   PubMed Web of Science ®Google Scholar
• Fernhall BO, Heffernan K, Jae SAEY, et al. Health implications of physical activity in individuals with spinal cord injury: a literature review. J Health Hum Serv Adm. 2008;30:468–502.
   PubMedGoogle Scholar
• Hammell KW. Exploring quality of life following high spinal cord injury: a review and critique. Spinal Cord. 2004;42(9):491–502.
   PubMed Web of Science ®Google Scholar
• Tyagi N, Amar Goel S, Alexander M. Improving quality of life after spinal cord injury in India with telehealth. Spinal Cord Ser Cases. 2019;5(1):1–5.
   PubMedGoogle Scholar
• Goldner M. Using the internet and email for health purposes: the impact of health status. Social Science Q. 2006;87(3):690–710.
   Web of Science ®Google Scholar
• Kim S, Lee BS, Kim JM. Comparison of the using ability between a smartphone and a conventional mobile phone in people with cervical cord injury. Ann Rehabil Med. 2014;38(2):183–188.
   PubMedGoogle Scholar
• Lupton D, Seymour W. Technology, selfhood and physical disability. Soc Sci Med. 2000;50(12):1851–1862.
   PubMed Web of Science ®Google Scholar
• Shem K, Irgens I, Skelton F, et al. Telerehabilitation in Spinal Cord Injury. Telerehabilitation: principles and Practice 2022. January 1 [cited 2022 October 8]:23–42.
   Google Scholar
• Naftali M, Findlater L. Accessibility in context: understanding the truly mobile experience of smartphone users with motor impairments In ASSETS14 - Proceedings of the 16th International ACM SIGACCESS Conference on Computers and Accessibility. Association for Computing Machinery, Inc; 2014. p. 209–216.
   Google Scholar
• Hooper B, Verdonck M, Amsters D, et al. Smart-device environmental control systems: experiences of people with cervical spinal cord injuries. Disabil Rehabil Assist Technol. 2018;13(8):724–730.
   PubMed Web of Science ®Google Scholar
• Rigot SK, Worobey LA, Boninger ML, et al. Changes in internet use over time among individuals with traumatic spinal cord injury. Arch Phys Med Rehabil. 2022;103(4):832–839.e2.
   PubMed Web of Science ®Google Scholar
• McRae L, Ellis K, Kent M, et al. Privacy and the ethics of disability research: changing perceptions of privacy and smartphone use. Second international handbook of internet research. Dordrecht: Springer; 2020. p. 413–429.
   Google Scholar
• Williams T. Percentage of households with durable goods: Table A45 - Office for National Statistics. Office for national statistics [Internet]; 2018. [cited 2021 April 29]. Available from https://www.ons.gov.uk/peoplepopulationandcommunity/personalandhouseholdfinances/expenditure/datasets/percentageofhouseholdswithdurablegoodsuktablea45.
   Google Scholar
• John E, Thomas G, Touchet A. The disability price tag 2019 Policy report. 2019.
   Google Scholar
• McDaid D, Park A, la Gall A, et al. Understanding and modelling the economic impact of spinal cord injuries in the United Kingdom. Spinal Cord. 2019;57(9):778–788.
   PubMed Web of Science ®Google Scholar
• Adams MM, Hicks AL. Spasticity after spinal cord injury. Spinal Cord. 2005;43(10):577–586.
   PubMed Web of Science ®Google Scholar
• Kaye HS, Yeager P, Reed M. Disparities in usage of assistive technology among people with disabilities. Assist Technol [Internet]. 2008;20(4):194–203.
   PubMed Web of Science ®Google Scholar
• Elbasiouny SM, Moroz D, Bakr MM, et al. Management of spasticity after spinal cord injury: current techniques and future directions. Neurorehabil Neural Repair. 2010;24(1):23–33.
   PubMed Web of Science ®Google Scholar
• Baldassin V, Shimizu HE, Fachin-Martins E. Computer assistive technology and associations with quality of life for individuals with spinal cord injury: a systematic review. Qual Life Res. 2018;27(3):597–607.
   PubMed Web of Science ®Google Scholar
• Folan A, Barclay L, Cooper C, et al. Exploring the experience of clients with tetraplegia utilising assistive technology for computer access. Disabil Rehabil Assist Technol. 2015;10(1):46–52.
   PubMed Web of Science ®Google Scholar
• Mattar AAG, Hitzig SL, McGillivray CF. A qualitative study on the use of personal information technology by persons with spinal cord injury. Disabil Rehabil. 2015;37(15):1362–1371.
   PubMed Web of Science ®Google Scholar
• MHRA. Assistive technology: definition and safe use - GOV.UK. GOVUK [Internet]. 2021. October 28 [cited 2021 November 30]. Available from: https://www.gov.uk/government/publications/assistive-technology-definition-and-safe-use/assistive-technology-definition-and-safe-use#assistive-technology-medical-device-or-not.
   Google Scholar
• Coleman R, Lebbon C, Clarkson J, et al. From margins to mainstream. In: Inclusive Design, Design for the Whole Population. 1st ed. London, Springer; 2003. pp 1–25.
   Google Scholar
• AbleNet. iOS 11 Accessibility Switch Control-The Missing User Guide. 2017. Available from https://www.ablenetinc.com/hook-switch-interface.
   Google Scholar
• Google. Accessibility | Android. 2021. [cited 2021 November 30]. Available from https://www.android.com/intl/en_uk/accessibility/.
   Google Scholar
• Apple. Inclusion - Technologies - Human Interface Guidelines - Apple Developer. 2021. [cited 2021 November 30]. Available from: https://developer.apple.com/design/human-interface-guidelines/inclusion/overview.
   Google Scholar
• Kong F, Sahadat MN, Ghovanloo M, et al. A Stand-Alone intraoral Tongue-Controlled computer interface for people with tetraplegia. IEEE Trans Biomed Circuits Syst. 2019; 13(5):848–857.
   PubMed Web of Science ®Google Scholar
• José MA, de Deus Lopes R. Human-computer interface controlled by the lip. IEEE J Biomed Health Inform. 2015;19(1):302–308.
   PubMed Web of Science ®Google Scholar
• Cotton RJ. Smartphone control for people with tetraplegia by decoding wearable electromyography with an on-device convolutional neural network. Proceedings of the IEEE RAS and EMBS International Conference on Biomedical Robotics and Biomechatronics; 2020. Nov 1; [cited 2022 October 8];2020-November. p. 1140–1145.
   Google Scholar
• Torlincasi AM, Waseem M. Cervical injury. Treasure Island (FL): StatPearls Publishing; 2019. Available from: http://www.ncbi.nlm.nih.gov/pubmed/28846253
   Google Scholar
• Creswell J, Plano Clark V. Chapter 3. Choosing a mixed methods research design. In Designing and conducting mixed methods research. Thousand Oaks (CA): SAGE Publications; 2006. p. 53–105.
   Google Scholar
• Bryman A. Integrating quantitative and qualitative research: how is it done? Qualitative Research [Internet]. 2006;6(1):97–113.
   Google Scholar
• Onwuegbuzie A, Collins K. A typology of mixed methods sampling designs in social science research. TQR. 2007;12 (2):281–316.
   Google Scholar
• Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field Methods. 2006;18(1):59–82.
   Web of Science ®Google Scholar
• Yamane T. Statistics : an introductory analysis. New York (N.Y.): Harper and Row; 1973.
   Google Scholar
• Braun V, Clarke V. Successful qualitative research: a practical guide for beginners. 1st ed. London: SAGE Publications; 2013.
   Google Scholar
• Legard R, Keegan J, Ward K. Qualitative research practice: a guide for social science students and researchers; 2003.
   Google Scholar
• Ryan F, Coughlan M, Cronin P, et al. The one-to-one interview. Int J Ther Rehabil. 2009;16(6):309–314.
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.
   Google Scholar
• Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exerc Health. 2019;11(4):589–597
   Web of Science ®Google Scholar
• Blandford A, Furniss D, Makri S. Qualitative HCI Research Going Behind the Scenes. 1st ed. Cham: Springer Cham; 2016.
   Google Scholar
• Lincoln YS, Guba E. Naturalistic Inquiry. 1985.
   Google Scholar
• Nowell LS, Norris JM, White DE, et al. Thematic analysis: striving to meet the trustworthiness criteria. Int J Qual Methods. 2017;16:1–13.
   Web of Science ®Google Scholar
• Guerreiro TJV, Nicolau H, Jorge J, et al. Assessing mobile touch interfaces for tetraplegics. ACM International Conference Proceeding Series 2010. p. 31–34.
   Google Scholar
• Trewin S, Swart C, Pettick D. Physical accessibility of touchscreen smartphones Proceedings of the 15th International ACM SIGACCESS Conference on Computers and Accessibility, ASSETS 2013. 2013.
   Google Scholar
• Nicolau H, Guerreiro J, Guerreiro T. Stressing the Boundaries of Mobile Accessibility. 2014. February 5 [cited 2021 November 30]. Available from: https://arxiv.org/abs/1402.1001v1.
   Google Scholar
• National SCI Statistical Center. Facts and figures at a glance. Birmingham; 2018.
   Google Scholar
• Parette P, Marcia S. Assistive technology use and stigma. Educ Train Dev Disabil. 2004;39:217–226.
   Web of Science ®Google Scholar
• Kane SK, Jayant C, Wobbrock JO, et al. Freedom to roam: a study of mobile device adoption and accessibility for people with visual and motor disabilities. ASSETS’09 - Proceedings of the 11th International ACM SIGACCESS Conference on Computers and Accessibility. New York, New York, USA: ACM Press; 2009. p. 115–122.
   Google Scholar
• Braithwaite DO. Just how much did that wheelchair cost? Management of privacy boundaries by persons with disabilities. Western J Speech Commun. 1991;55(3):254–274.
   Google Scholar
• Bland R. Independence, privacy and risk: two contrasting approaches to residential care for older people. Ageing Soc. 1999;19(5):539–560.
   Web of Science ®Google Scholar
• Hurst A, Tobias J. Empowering individuals with do-it-yourself assistive technology ASSETS’11: Proceedings of the 13th International ACM SIGACCESS Conference on Computers and Accessibility. Dundee Scotland, UK; 2011. p. 11–18.
   Google Scholar
• Scherer MJ, Cushman LA. Predicting satisfaction with assistive technology for a sample of adults with new spinal cord injuries. Psychol Rep. 2000;87(3 Pt 1):981–987.
   PubMed Web of Science ®Google Scholar
• Riemer-Reiss ML, Wacker RR. Factors associated with assistive technology discontinuance among individuals with disabilities - ProQuest. J Rehabil. 2000;66:45–50.
   Web of Science ®Google Scholar
• García TP, Garabal-Barbeira J, Trillo PP, et al. A framework for a new approach to empower users through low-cost and do-it-yourself assistive technology. Int J Environ Res Public Health [Internet]. 2021;18:1–17.
   Web of Science ®Google Scholar
• MHRA. Guidance on Class I medical devices - GOV.UK. GOVUK [Internet]. 2020. December 31 [cited 2021 December 18]. Available from: https://www.gov.uk/government/collections/guidance-on-class-1-medical-devices.
   Google Scholar
• Burns SP, Terblanche M, MacKinen A, et al. Smartphone and mHealth use after stroke: results from a pilot survey. OTJR. 2022;42(2):127–136.
   PubMedGoogle Scholar
• Kamwesiga JT, Tham K, Guidetti S. Experiences of using mobile phones in everyday life among persons with stroke and their families in Uganda – a qualitative study. Disabil Rehabil. 2017;39(5):438–449.
   PubMed Web of Science ®Google Scholar
• Wong D, Sinclair K, Seabrook E, et al. Smartphones as assistive technology following traumatic brain injury: a preliminary study of what helps and what hinders. Disabil Rehabil. 2017;39(23):2387–2394.
   PubMed Web of Science ®Google Scholar
• Heitplatz VN, Bühler C, Hastall MR. Caregivers’ influence on smartphone usage of people with cognitive disabilities: an explorative case study in Germany. Lecture Notes in Comp Sci. 2019;11573:98–115.
   Google Scholar
• Simpson LA, Eng JJ, Hsieh JTC, et al. The health and life priorities of individuals with spinal cord injury: a systematic review. J Neurotrauma. 2012;29(8):1548–1555.
   PubMed Web of Science ®Google Scholar