Intervention strategies in residential immersive life skills programs for youth with disabilities: a study of active ingredients and program fidelity

References

• King G, McPherson A, Kingsnorth S, Stewart D, Glencross-Eimantas T, Jones-Galley K, Morrison A, Isihi AM, & Gorter JW. Residential immersive life skills programs for youth with disabilities: service providers’ perceptions of change processes. Disabil Rehabil. 2015;37(26):2418–28. doi:10.3109/09638288.2015.1031285.
   PubMed Web of Science ®Google Scholar
• Poltawski L, Norris M, Dean S. Intervention fidelity: developing an experience-based model for rehabilitation research. J Rehabil Med. 2014;46:609–15. doi:10.2340/16501977-1848.
   PubMed Web of Science ®Google Scholar
• Whyte J, Hart T. It’s more than a black box; it’s a Russian doll: defining rehabilitation treatments. Am J Phys Med Rehabil. 2003;82(8):639–52. doi:10.1097/01.PHM.0000078200.61840.2D.
   PubMed Web of Science ®Google Scholar
• Kramer JM. Identifying and evaluating the therapeutic strategies used during a manualized self-advocacy intervention for transition-age youth. OTJR: Occupation, Participation and Health. 2015;35(1):23–33. doi:10.1177/1539449214564146.
   PubMed Web of Science ®Google Scholar
• Armitage S, Swallow V, Kolehmainen N. Ingredients and change processes in occupational therapy for children: a grounded theory study. Scand J Occup Ther. 2017;24(3):208–13. doi:10.1080/11038128.2016.1201141.
   PubMed Web of Science ®Google Scholar
• Medical Research Council. A framework for development and evaluation of RCTs for complex interventions to improve health2000. Available from: https://www.mrc.ac.uk/documents/pdf/rcts-for-complex-interventions-to-improve-health.
   Google Scholar
• Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ. 2008;337:979–83.
   Web of Science ®Google Scholar
• Bond GR, Evans L, Salyers MP, Williams J, Kim H-W. Measurement of fidelity in psychiatric rehabilitation. Ment Health Serv Res. 2000;2:75–87.
   PubMedGoogle Scholar
• Kazdin AE, Nock MK. Delineating mechanisms of change in child and adolescent therapy: methodological issues and research recommendations. Journal Child Psychology Psychiatry. 2003;44:1116–29.
   PubMed Web of Science ®Google Scholar
• Pinsof WM, Wynne LC. Toward progress research: closing the gap between family therapy practice and research. J Marital Fam Ther. 2000;26:1–8.
   PubMed Web of Science ®Google Scholar
• Doss BD. Changing the way we study change in psychotherapy. Clin Psychology: Sci Pract. 2004;11:368–86.
   Web of Science ®Google Scholar
• Dumas HM, Bedell GM, Hamill MS. Strategies to promote activity and participation in children and youths with acquired brain injuries. Int J Rehabil Res. 2003;26(4):303–08. doi:10.1097/01.mrr.0000102063.48781.fe.
   PubMed Web of Science ®Google Scholar
• Smart E, Edwards B, Kingsnorth S, Sheffe S, Curran CJ, Pinto M, Crossman S, & King G. Creating an inclusive leisure space: strategies used to engage children with and without disabilities in the arts-mediated program Spiral Garden. Disabil Rehabil. 2018;40(2):199–207. doi:10.1080/09638288.2016.1250122.
   PubMed Web of Science ®Google Scholar
• McDougall J, King G, Malloy-Miller T, Gritzan J, Tucker MA, Evans J. A checklist to determine the methods of intervention used in school-based therapy: development and pilot testing. Phys Occup Ther Pediatr. 1999;19:53–77.
   Google Scholar
• May-Benson TA, Roley SS, Mailloux Z, Parham LD, Koomar J, Schaaf RC, Van Jaarsveld A, & Cohn E. Interrater reliability and discriminative validity of the structural elements of the Ayres Sensory Integration® Fidelity Measure©. Am J Occup Ther. 2014;68(5):506–13. doi:10.5014/ajot.2014.010652.
   PubMed Web of Science ®Google Scholar
• Parham LD, Cohn ES, Spitzer S, Koomar JA. Fidelity in sensory integration intervention research. Am J Occup Ther. 2007;61:216.
   PubMed Web of Science ®Google Scholar
• Dunn W, Little LM, Pope E, Wallisch A. Establishing fidelity of occupational performance coaching. OTJR: Occupation, Participation and Health. 2018;38(2) 96–104. doi:10.1177/1539449217724755.
   PubMed Web of Science ®Google Scholar
• Di Rezze B, Law M, Eva K, Pollock N, Gorter JW. Therapy behaviours in paediatric rehabilitation: essential attributes for intervention with children with physical disabilities. Disabil Rehabil. 2014;36(1):16–22. doi:10.3109/09638288.2013.775358.
   PubMed Web of Science ®Google Scholar
• Levin-Rozalis M. Evaluation and research: differences and similarities. Can J Program Eval. 2003;18:1–31.
   Google Scholar
• Mowbray CT, Holter MC, Teague GB, Bybee D. Fidelity criteria: development, measurement, and validation. American Journal of Evaluation. 2003;24(3):315–40. doi:10.1177/109821400302400303.
   Web of Science ®Google Scholar
• Hogue A, Liddle HA, Rowe C. Treatment adherence process research in family therapy: A rationale and some practical guidelines. Psychotherapy: Theory, Research, Practice, Training. 1996;33(2):332–45. doi:10.1037/0033-3204.33.2.332.
   Web of Science ®Google Scholar
• Allan R, Ungar M. Developing a measure of fidelity for an ecological approach to family therapy. J Fam Psychother. 2014;25(3):193–208. doi:10.1080/08975353.2014.939931.
   Google Scholar
• Parham LD, Roley SS, May-Benson TA, Koomar J, Brett-Green B, Burke JP, Cohn ES, Mailloux Z, Miller LJ, & Schaaf RC. Development of a fidelity measure for research on the effectiveness of the Ayres Sensory Integration® intervention. Am J Occup Ther. 2011;65(2):133–42.
   PubMed Web of Science ®Google Scholar
• Di Rezze B, Law M, Eva K, Pollock N, Gorter JW. Development of a generic fidelity measure for rehabilitation intervention research for children with physical disabilities. Dev Med Child Neurol. 2013;55(8):737–44. doi:10.1111/dmcn.12114.
   PubMed Web of Science ®Google Scholar
• King G, Kingsnorth S, McPherson A, Jones-Galley K, Pinto M, Fellin M, Timbrell N, & Savage D. Residential immersive life skills programs for youth with disabilities: A pilot study of program opportunities, intervention strategies, and youth experiences. Res Dev Disabil. 2016;55:242–55. doi:10.1016/j.ridd.2016.04.014.
   PubMed Web of Science ®Google Scholar
• Waltz J, Addis ME, Koerner K, Jacobson NS. Testing the integrity of a psychotherapy protocol: assessment of adherence and competence. J Consult Clin Psychol. 1993;61:620–30.
   PubMed Web of Science ®Google Scholar
• Kingsnorth S, King G, McPherson A, Jones-Galley K. A retrospective study of past graduates of a residential life skills program for youth with physical disabilities. Child Care Health Dev. 2015;41(3):374–83. doi:10.1111/cch.12196.
   PubMed Web of Science ®Google Scholar
• McPherson AC, King G, Rudzik A, Kingsnorth S, & Gorter JW.Optimizing life success through residential immersive life skills programs for youth with disabilities: study protocol of a mixed-methods, prospective, comparative cohort study. BMC Pediatr. 2016;16:153. doi:10.1186/s12887-016-0694-7.
   PubMed Web of Science ®Google Scholar
• Leon AC, Davis LL, Kraemer HC. The role and interpretation of pilot studies in clinical research. J Psychiatr Res. 2011;45(5):626–29. doi:10.1016/j.jpsychires.2010.10.008.
   PubMed Web of Science ®Google Scholar
• Lamal P. On the importance of replication. J Soc Behav Pers. 1990;5:31–35.
   Google Scholar
• King G, McPherson A, Mosleh D, Hartman L, Rapley J, Pinto M. Program opportunities of residential immersive life skills programs for youth with disabilities. Manuscript Submitted for Publication. 2017.
   Google Scholar
• Batorowicz B, King G, Mishra L, Missiuna C. An integrated model of social environment and social context for pediatric rehabilitation. Disabil Rehabil. 2016;38(12):1204–15. doi:10.3109/09638288.2015.1076070.
   PubMed Web of Science ®Google Scholar
• King G, Rigby P, Batorowicz B. Conceptualizing participation in context for children and youth with disabilities: an activity setting perspective. Disabil Rehabil. 2013;35(18):1578–85. doi:10.3109/09638288.2012.748836.
   PubMed Web of Science ®Google Scholar
• King G, Imms C, Stewart D, Freeman M, Nguyen T. A transactional framework for pediatric rehabilitation: shifting the focus to situated contexts, transactional processes, and adaptive developmental outcomes. Disabil Rehabil. 2018;40(15):1829–41. doi:10.1080/09638288.2017.1309583.
   PubMed Web of Science ®Google Scholar
• King G, Rigby P, Batorowicz B, McMain-Klein M, Petrenchik T, Thompson L, & Gibson M. Development of a direct observation measure of environmental qualities of activity settings. Dev Med Neurol. 2014;56:763–69. doi:10.1111/dmcn.12400.
   PubMed Web of Science ®Google Scholar
• King G, Batorowicz B, Rigby P, Pinto M, Thompson L. Goh F. Leisure Activity Settings Experiences Youth with Severe Disabilities Developmental Neurorehabilitation. 2014;17:259–69.
   Google Scholar
• King G, Law M, King S, Hurley P, Rosenbaum P, Hanna S, Kertoy M, & Young N. Children’s assessment of participation and enjoyment (CAPE) and preferences for activities of children (PAC). San Antonio (TX): Harcourt Assessment; 2004.
   Google Scholar
• King GA, Law M, King S, Hurley P, Hanna S, Kertoy M, & Rosenbaum P. Measuring children’s participation in recreation and leisure activities: construct validation of the CAPE and PAC. Child Care Health Dev. 2006;33(1):28–39.
   Web of Science ®Google Scholar
• King G, Rigby P, Avery L. Revised measure of environmental qualities of activity settings (MEQAS) for youth leisure and life skills activity settings. Disabil Rehabil. 2016;38(15):1509–20. doi:10.3109/09638288.2015.1103792.
   PubMed Web of Science ®Google Scholar
• King G, McPherson A, Kingsnorth S, Stewart D, Glencross-Eimantas T, Gorter JW, Jones-Galley K, Morrison A, & Isihi AM. Residential immersive life skills programs for youth with disabilities: service providers’ perceptions of experiential benefits and key program features. Disabil Rehabil. 2015;37(11):971–80. doi:10.3109/09638288.2014.949353.
   PubMed Web of Science ®Google Scholar
• Schlosser R. On the importance of being earnest about treatment integrity. Augmentative Altern Commun. 2002;18(1):36–44. doi:10.1080/aac.18.1.36.44.
   Google Scholar
• Stemler SE. A comparison of consensus, consistency, and measurement approaches to estimating interrater reliability. Pract Assessment, Res Eval. 2004;9:1–19.
   Google Scholar
• King G, Currie M, Bartlett D, Gilpin M, Willoughby C, Tucker MA, Strachan D, & Baxter D. The development of expertise in pediatric rehabilitation therapists: changes in approach, self-knowledge, and use of enabling and customizing strategies. Dev Neurorehabil. 2007;10(3):223–40. doi:10.1080/17518420701302670.
   PubMedGoogle Scholar
• Gorter JW, Stewart D, Woodbury Smith M, King G, Wright M, Nguyen T, Freeman M, & Swinton M. Pathways toward positive psychosocial outcomes and mental health for youth with disabilities: A knowledge synthesis of developmental trajectories. Can J Community Ment Health. 2014;33(1):45–61. doi:10.7870/cjcmh-2014-005.
   Google Scholar
• Dunst CJ, Trivette CM, Deal AG. Enabling and empowering families. Cambridge (MA): Brookline Books; 1988.
   Google Scholar
• King G, Shepherd TA, Servais M, Willoughby C, Bolack L, Strachan D, Moodie S, Baldwin P, Knickle K, Parker K, et al. Developing authentic clinical simulations for effective listening and communication in pediatric rehabilitation service delivery. Dev Neurorehabil. 2016;19(5):284–94. doi:10.3109/17518423.2014.989461.
   PubMed Web of Science ®Google Scholar
• King G, Chiarello LA, Thompson L, McLarnon MJW, Smart E, Ziviani J, & Pinto M. Development of an observational measure of therapy engagement for pediatric rehabilitation. Disabil Rehabil. 2017. doi:10.1080/09638288.2017.1375031.
   Web of Science ®Google Scholar
• Hildebrand MW, Host HH, Binder EF, Carpenter B, Freedland KE, Morrow-Howell N, Baum C, Dore P, & Lenze EJ. Measuring treatment fidelity in a rehabilitation intervention study. Am J Phys Med Rehabil. 2012;91(8):715–24. doi:10.1097/PHM.0b013e31824ad462.
   PubMed Web of Science ®Google Scholar