Short-term perspectives of parents and teachers on school reintegration of childhood brain tumour survivors

References

• Pollack IF, Jakacki RI. Childhood brain tumors: epidemiology, current management and future directions. Nat Rev Neurol. 2011;7(9):495–506. doi:10.1038/nrneurol.2011.110.
   PubMed Web of Science ®Google Scholar
• Boonen H, Petry K. How do children with a chronic or long-term illness perceive their school re-entry after a period of homebound instruction? Child Care Health Dev. 2012;38(4):490–96. doi:10.1111/j.1365-2214.2011.01279.x.
   PubMed Web of Science ®Google Scholar
• Bruce BS, Chapman A, MacDonald A, Newcombe J. School experiences of families of children with brain tumors. J Pediatr Oncol Nurs. 2008;25(6):331–39. doi:10.1177/1043454208323619.
   PubMed Web of Science ®Google Scholar
• Vance YH, Eiser C. The school experience of the child with cancer. Child Care Health Dev. 2002;28:5–19.
   PubMed Web of Science ®Google Scholar
• Emond A, Edwards L, Peacock S, Norman C, Evangeli M. Social competence in children and young people treated for a brain tumor. Support Care Cancer. 2016;24:4587–95.
   PubMed Web of Science ®Google Scholar
• Wakefield CE, McLoone JK, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. The psychosocial impact of completing childhood cancer treatment: a systematic review of the literature. J Pediatr Psychol. 2010;35(3):262–74. doi:10.1093/jpepsy/jsp056.
   PubMed Web of Science ®Google Scholar
• De Ruiter MA, Van Mourik R, Schouten-Van Meeteren AYN, Grootenhuis MA, Oosterlaan J. Neurocognitive consequences of a paediatric brain tumour and its treatment: a meta-analysis. Dev Med Child Neurol. 2013;55(5):408–17. doi:10.1111/dmcn.12020.
   PubMed Web of Science ®Google Scholar
• Wolfe KR, Madan-Swain A, Kana RK. Executive dysfunction in pediatric posterior fossa tumour survivors: a systematic literature review of neurocognitive deficits and interventions. Dev Neuropsychol. 2012;37(2):153–75. doi:10.1080/87565641.2011.632462.
   PubMed Web of Science ®Google Scholar
• Barrera M, Shaw AK, Speechley KN, Maunsell E, Pogany L. Educational and social late effects of childhood cancer and related clinical, personal, and familial characteristics. Cancer. 2005;104(8):1751–60. doi:10.1002/cncr.21390.
   PubMed Web of Science ®Google Scholar
• Turner CD, Rey-Casserly C, Liptak CC, Chordas C. Late effects of therapy for pediatric brain tumor survivors. J Child Neurol. 2009;24(11):1455–63. doi:10.1177/0883073809341709.
   PubMed Web of Science ®Google Scholar
• Holland AA, Hughes CW, Stavinoha PL. School competence and fluent academic performance: informing assessment of educational outcomes in survivors of pediatric medulloblastoma. Appl Neuropsychol. 2014;4(4):249–56. doi:10.1080/21622965.2014.892427.
   Google Scholar
• Mabbott DJ, Spiegler BJ, Greenberg ML, Rutka JT, Hyder DJ, Bouffet E. Serial evaluation of academic and behavioral outcome after treatment with cranial radiation in childhood. J Clin Oncol. 2005;23(10):2256–63. doi:10.1200/JCO.2005.01.158.
   PubMed Web of Science ®Google Scholar
• Raghubar KP, Mahone EM, Yeates KO, Ris MD. Performance-based and parent ratings of attention in children treated for a brain tumor: the significance of radiation therapy and tumor location on outcome. Child Neuropsychol. 2018;24(3):413–25. doi:10.1080/09297049.2017.1280144.
   PubMed Web of Science ®Google Scholar
• Hutchinson KC, Willard VW, Hardy KK, Bonner MJ. Adjustment of caregivers of pediatric patients with brain tumors: a cross-sectional analysis. Psychooncology. 2009;18(5):515–23. doi:10.1002/pon.1421.
   PubMed Web of Science ®Google Scholar
• Long KA, Marsland AL. Family adjustment to childhood cancer: a systematic review. Clin Child Fam Psychol Rev. 2011;14(1):57–88. doi:10.1007/s10567-010-0082-z.
   PubMed Web of Science ®Google Scholar
• Eaton Russell C, Bouffet E, Beaton J, Lollis S. Balancing grief and survival: experiences of children with brain tumours and their parents. J Psychosoc Oncol. 2016;34(5):376–99. doi:10.1080/07347332.2016.1212448.
   PubMed Web of Science ®Google Scholar
• Norberg AL, Steneby S. Experiences of parents and children surviving brain tumour: a happy ending and a rough beginning. Eur J Cancer Care. 2009;18(4):371–80. doi:10.1111/j.1365-2354.2008.00976.x.
   PubMed Web of Science ®Google Scholar
• Thompson AL, Christiansen HL, Elam M, Hoag J, Irwin MK, Pao M, Voll M, Noll RB, Kelly KP. Academic continuity and school reentry support as a standard of care in pediatric oncology. Pediatr Blood Cancer. 2015;62(S5):S805–S817. doi:10.1002/pbc.25760.
   PubMedGoogle Scholar
• Moore JB, Kaffenberger CJ, Goldberg P, Oh K M, Hudspeth R. School reentry for children with cancer: perceptions of nurses, school personnel and parents. J Pediatr Oncol Nurs. 2009;26(2):86–99. doi:10.1177/1043454208328765.
   PubMed Web of Science ®Google Scholar
• Nabors L, Little SG, Akin-Little A, Iobst EA. Teacher knowledge of and confidence in meeting the needs of children with chronic medical conditions: pediatric psychology’s contribution to education. Psychol Sch. 2008;45(3):217–26. doi:10.1002/pits.20292.
   Web of Science ®Google Scholar
• Yin RK. Case study research: design and methods. 4th ed. Thousand Oaks (CA, USA): Sage Publications Inc; 2009.
   Google Scholar
• Patton MQ. Qualitative research and evaluation methods. 3rd ed. Thousand Oaks (CA, USA): Sage Publications Inc; 2002.
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa.
   Google Scholar
• Ritchie J, Spencer L, O’Connor W. Carrying out qualitative analysis. In: Ritchie J, Lewis J, editors. Qualitative research practice: a guide for social science students and researchers. London, UK: Sage Publications Inc; 2003. p. 219–62.
   Google Scholar
• QSR International Pty Ltd. NVivo qualitative data analysis software (version 8). Computer software. Cambridge (MA): USA; 2008.
   Google Scholar
• Morse JM. Critical analysis of strategies for determining rigor in qualitative inquiry. Qual Health Res. 2015;25(9):1212–22. doi:10.1177/1049732315588501.
   PubMed Web of Science ®Google Scholar
• Tobin GA, Begley CM. Methodological rigour within a qualitative framework. J Adv Nurs. 2004;48(4):388–96. doi:10.1111/j.1365-2648.2004.03207.x.
   PubMed Web of Science ®Google Scholar
• Thomas E, Magilvy JK. Qualitative rigor or research validity in qualitative research. J Spec Pediatr Nurs. 2011;16(2):151–55. doi:10.1111/j.1744-6155.2011.00283.x.
   PubMed Web of Science ®Google Scholar
• Sultan S, Leclair T, Rondeau E, Burns W, Abate C. A systematic review on factors and consequences of parental distress as related to childhood cancer. Eur J Cancer Care. 2016;25(4):616–37. doi:10.1111/ecc.12361.
   PubMed Web of Science ®Google Scholar
• Woodgate RL, Tailor K, Yanofsky R, Vanan MI. Childhood brain cancer and its psychosocial impact on survivors and their parents: a qualitative thematic synthesis. Eur J Oncol Nurs. 2016;20:140–49. doi:10.1016/j.ejon.2015.07.004.
   PubMed Web of Science ®Google Scholar
• Gorin SS, McAuliffe P. Implications of childhood cancer survivors in the classroom and the school. Health Educ. 2009;109(1):25–48. doi:10.1108/09654280910923363.
   Google Scholar
• Upton P, Eiser C. School experiences after treatment for a brain tumour. Child Care Health Dev. 2006;32(1):9–17. doi:10.1111/j.1365-2214.2006.00569.x.
   PubMed Web of Science ®Google Scholar
• Hewitt-Taylor J. Children who have complex health needs: parents’ experiences of their child’s education. Child Care Health Dev. 2009;35(4):521–26. doi:10.1111/j.1365-2214.2009.00965.x.
   PubMed Web of Science ®Google Scholar
• Mukherjee S, Lightfoot J, Sloper P. Communicating about pupils in mainstream school with special health needs: the NHS perspective. Child Care Health Dev. 2002;28:21–27.
   PubMed Web of Science ®Google Scholar
• Bonneau J, Lebreton J, Taque S, Chappe C, Bayart S, Edan C, Gandemer V. School performance of childhood cancer survivors: mind the teenagers! J Pediatr. 2011;158(1):21–27. doi:10.1016/j.jpeds.2010.07.008.
   Web of Science ®Google Scholar
• Yilmaz MC, Sari HY, Cetingul N, Kantar M, Erermis S, Aksoylar S. Determination of school-related problems in children treated for cancer. J Sch Nurs. 2014;30(5):376–84. doi:10.1177/1059840513506942.
   PubMed Web of Science ®Google Scholar
• Hinton D, Kirk S. Teachers’ perspectives of supporting pupils with long-term health conditions in mainstream schools: a narrative review of the literature. Health Soc Care Community. 2015;23(2):107–20. doi:10.1111/hsc.12104.
   PubMed Web of Science ®Google Scholar
• Lum A, Wakefield CE, Donnan B, Burns MA, Fardell JE, Marshall GM. Understanding the school experiences of children and adolescents with serious chronic illness: a systematic meta-review. Child Care Health Dev. 2017;43(5):645–62. doi:10.1111/cch.12475.
   PubMed Web of Science ®Google Scholar
• Harris SM. School reintegration for children and adolescents with cancer: the role of school psychologists. Psychol Sch. 2009;46(7):579–92. doi:10.1002/pits.20399.
   Web of Science ®Google Scholar
• Robinson S, Summers K. An evaluation of the educational support for teachers who teach children with life-limiting illness in schools. Pastoral Care Ed. 2012;30(3):191–207. doi:10.1080/02643944.2012.671341.
   Google Scholar
• Linden MA, Braiden H, Miller S. Educational professionals understanding of childhood traumatic brain injury. Brain Inj. 2013;27(1):92–102. doi:10.3109/02699052.2012.722262.
   PubMed Web of Science ®Google Scholar
• West AM, Denzer AQ, Wildman BG, Anhalt K. Teacher perception of burden and willingness to accommodate children with chronic health conditions. Adv Sch Ment Health Promot. 2013;6(1):35–50. doi:10.1080/1754730X.2012.760920.
   Google Scholar
• Aukema EJ, Last BF, Schouten-Van Meeteren AYN, Grootenhuis MA. Explorative study on the aftercare of pediatric brain tumor survivors: a parents’ perspective. Support Care Cancer. 2011;19(10):1637–46. doi:10.1007/s00520-010-0995-6.
   PubMed Web of Science ®Google Scholar
• McLoone JK, Wakefield CE, Cohn RJ. Childhood cancer survivors’ school (re)entry: australian Parents’ perceptions. Eur J Cancer Care. 2013;22(4):484–192. doi:10.1111/ecc.12054.
   PubMed Web of Science ®Google Scholar
• Bruce BS, Newcombe J, Chapman A. School liaison program for children with brain tumors. J Pediatr Oncol Nurs. 2012;29(1):45–54. doi:10.1177/1043454211432296.
   PubMed Web of Science ®Google Scholar
• Hartman LR, Tibbles A, Paniccia A, Lindsay S. A qualitative synthesis of families’ and students’ hospital-to-school transition experiences following acquired brain injury. J Sch Psychol. 2015;2:1–22.
   Google Scholar
• Wakefield CE, McLoone JK, Butow P, Lenthen K, Cohn RJ. Parental adjustment to the completion of their child’s cancer treatment. Pediatr Blood Cancer. 2011;56(4):524–31. doi:10.1002/pbc.22725.
   PubMed Web of Science ®Google Scholar
• Bradley-Klug KL, Sundman AN, Nadeau J, Cunningham J, Ogg J. Communication and collaboration with schools: pediatricians’ perspectives. J Appl Sch Psychol. 2010;26(4):263–81. doi:10.1080/15377903.2010.518583.
   Google Scholar
• Willard VW, Allen TM, Hardy KK, Bonner MJ. Social functioning in survivors of pediatric brain tumors: contribution of neurocognitive and social-cognitive skills. Child Health Care. 2015;46(2):181–95. doi:10.1080/02739615.2015.1124769.
   Web of Science ®Google Scholar
• Soejima T, Sato I, Takita J, Koh K, Maeda M, Ida K, Kamibeppu K. Support for school reentry and relationships between children with cancer, peers, and teachers. Pediatr Int. 2015;57(6):1101–07. doi:10.1111/ped.12730.
   PubMed Web of Science ®Google Scholar
• Selekman J. Students with chronic conditions: experiences and challenges of regular education teachers. J Sch Nurs. 2017;33(4):307–15. doi:10.1177/1059840516674053.
   PubMed Web of Science ®Google Scholar
• Chesire DJ, Canto AI, Buckley VA. Hospital-school collaboration to serve the needs of children with traumatic brain injury. J Appl Sch Psychol. 2011;27(1):60–76. doi:10.1080/15377903.2011.540513.
   Google Scholar
• Grossoehme D, Lipstein E. Analyzing longitudinal qualitative data: the application of trajectory and recurrent cross-sectional approaches. BMC Res Notes. 2016;9:136. doi:10.1186/s13104-016-1938-1.
   PubMedGoogle Scholar