The Development and Evaluation of the Powered Mobility Function Scale (PMFS) for Children and Adolescents with Cerebral Palsy

References

• Routhier F, Vincent C, Desrosiers J, Nadeau S. Mobility of wheelchair users: a proposed performance assessment framework. Disabil Rehabil. 2003 Jan 1;25(1):19–34.
   PubMed Web of Science ®Google Scholar
• Ruff HA. The development of perception and recognition of objects. Child Dev. 1980; 51(4):981–92.
   PubMed Web of Science ®Google Scholar
• Anderson DI, Campos JJ, Witherington DC, Dahl A, Rivera M, He M, Uchiyama I, Barbu-Roth M. The role of locomotion in psychological development. 2013;
   Google Scholar
• Livingstone R, Field D. The child and family experience of power mobility: a qualitative synthesis. Dev Med Child Neurol. 2015 Apr 1;57(4):317–27.
   PubMed Web of Science ®Google Scholar
• Rosen L, Plummer T, Sabet A, Lange ML, Livingstone R. RESNA position on the application of power mobility devices for pediatric users. Assist Technol. 2017 Dec 12:1–9.
   PubMedGoogle Scholar
• Jones MA, McEwen IR, Neas BR. Effects of power wheelchairs on the development and function of young children with severe motor impairments. Pediatr Phys Ther. 2012;24:131–40.
   PubMed Web of Science ®Google Scholar
• Lynch A, Ryu J-C, Agrawal S, Galloway JC. Power mobility training for a 7-month-old infant with spina bifida. Pediatr Phys Ther. 2009;21:362–68.
   PubMed Web of Science ®Google Scholar
• Nilsson L, Eklund M. Driving to learn: powered wheelchair training for those with cognitive disabilities. Int J Ther Rehabil. 2006;13:11.
   Google Scholar
• Nilsson L, Nyberg P, Eklund M. Training characteristics important for growing consciousness of joystick-use in people with profound cognitive disabilities. Int J Ther Rehabil. 2010;17:588–95.
   Google Scholar
• Livingstone R, Paleg G. Practice considerations for the introduction and use of power mobility for children. Dev Med Child Neurol. 2014;56:210–21.
   PubMed Web of Science ®Google Scholar
• Livingstone R, Field D. Systematic review of power mobility outcomes for infants, children and adolescents with mobility limitations. Clin Rehabil. 2014 Apr;24:0269215514531262.
   Google Scholar
• Field DA, Livingstone RW. Power mobility skill progression for children and adolescents: a systematic review of measures and their clinical application. Dev Med Child Neurol. 2018 Oct 1;60(10):997–1011.
   PubMed Web of Science ®Google Scholar
• Furumasu J, Guerette P, Tefft D. The development of a powered wheelchair mobility program for young children. Technol Disabil. 1996;5:41–48.
   Google Scholar
• Kenyon LK, Farris JP, Cain B, King E, VandenBerg A. Development and content validation of the power mobility training tool. Disabil Rehabil Assist Technol. 2017 Jan 26:1–15.
   Web of Science ®Google Scholar
• Butler C, Okamoto GA, McKay TM. Powered mobility for very young disabled children. Dev Med Child Neurol. 1983;25:472–74.
   PubMed Web of Science ®Google Scholar
• Butler C, Okamoto GA, McKay TM. Motorized wheelchair driving by disabled children. Arch Phys Med Rehabil. 1984 Feb;65(2):95–97.
   PubMed Web of Science ®Google Scholar
• Nilsson L, Durkin J. Assessment of learning powered mobility use-applying grounded theory to occupational performance. J Rehabil Res Dev Wash. 2014;51:963–74.
   PubMed Web of Science ®Google Scholar
• Nilsson L, Durkin J. Powered mobility intervention: understanding the position of tool use learning as part of implementing the ALP tool. Disabil Rehabil Assist Technol. 2017 Oct 3;12(7):730–39.
   PubMed Web of Science ®Google Scholar
• Kenyon LK, Jones M, Livingstone R, Breaux B, Tsotsoros J, Williams KM. Power mobility for children: a survey study of American and Canadian therapists’ perspectives and practices. Dev Med Child Neurol. 2018;60(10): [Internet] https://www.onlinelibrary.wiley.com/doi/abs/10.1111/dmcn.13960.
   Web of Science ®Google Scholar
• Magasi S, Heinemann AW. Integrating stakeholder perspectives in outcome measurement. Neuropsychol Rehabil. 2009 Dec 1;19(6):928–40.
   PubMed Web of Science ®Google Scholar
• Camden C, Shikako-Thomas K, Nguyen T, Graham E, Thomas A, Sprung J, Morris C, Russell DJ. . Engaging stakeholders in rehabilitation research: a scoping review of strategies used in partnerships and evaluation of impacts. Disabil Rehabil. 2015 Jul 17;37(15):1390–400.
   PubMed Web of Science ®Google Scholar
• Thorndike RM, Cunningham GK, Thorndike RL, Hagen EP. Measurement and evaluation in psychology and education. Macmillan Publishing Co, Inc; 1991.
   Google Scholar
• Kottner J, Audigé L, Brorson S, Donner A, Gajewski BJ, Hróbjartsson A, Roberts C, Shoukri M, Streiner DL. Guidelines for reporting reliability and agreement studies (GRRAS) were proposed. Int J Nurs Stud. 2011;48(6):661–71.
   PubMed Web of Science ®Google Scholar
• Rodby-Bousquet E, Paleg G, Casey J, Wizert A, Livingstone R. Physical risk factors influencing wheeled mobility in children with cerebral palsy: a cross-sectional study. BMC Pediatr. 2016 Oct 10;16(1):165.
   PubMedGoogle Scholar
• Gefen N, Rigbi A, Weiss PL (Tamar). Reliability and validity of pediatric powered mobility outcome measures. Disabil Rehabil Assist Technol. 2020 Sep 12:1–6.
   PubMed Web of Science ®Google Scholar
• Rosenberg L, Maeir A, Gilboa Y. Feasibility study of a therapeutic mobility summer camp for children with severe cerebral palsy: power fun. Phys Occup Ther Pediatr. 2020;40:395–409.
   PubMed Web of Science ®Google Scholar
• Rosenbaum PL, Palisano RJ, Bartlett DJ, Galuppi BE, Russell DJ. Development of the gross motor function classification system for cerebral palsy. Dev Med Child Neurol. 2008;50:249–53.
   PubMed Web of Science ®Google Scholar
• Eliasson A-C, Krumlinde-Sundholm L, Rösblad B, Beckung E, Arner M, Öhrvall A-M, Rosenbaum P. The manual ability classification system (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48(7):549–54.
   PubMed Web of Science ®Google Scholar
• Portney, Leslie G, and Watkins, Mary P. Foundations of Clinical Research. 3rd ed. New York, NY: F.A. Davis; 2009
   Google Scholar
• Haley S, Coster W, Dumas H, Fragala-Pinkham M, Moed R. PEDI-CAT: development, standardization and administration manual. Boston MA, USA: CRECare LLC; 2010.
   Google Scholar
• Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Gross motor function classification system for cerebral palsy. Dev Med Child Neurol. 1997;39(4):214–3
   PubMed Web of Science ®Google Scholar
• Haley SM, Coster WJ, Dumas HM, Fragala-Pinkham MA, Kramer J, Ni P, Tian F, Kao YC, Moed R, Ludlow LH. Accuracy and precision of the pediatric evaluation of disability inventory computer-adaptive tests (PEDI-CAT). Dev Med Child Neurol. 2011 Dec 1;53(12):1100–06.
   PubMed Web of Science ®Google Scholar
• Green B, Jones M, Hughes D, Williams A. Applying the Delphi technique in a study of GPs’ information requirements. Health Soc Care Community. 1999;7:198–205.
   PubMed Web of Science ®Google Scholar
• Acquadro C, Conway K, Hareendran A, Aaronson N. European regulatory issues and quality of life assessment (ERIQA) group. Literature review of methods to translate health‐related quality of life questionnaires for use in multinational clinical trials. Value Health. 2008;11:509–21.
   PubMed Web of Science ®Google Scholar
• Streiner DL, Norman GR, Cairney J. Health measurement scales: a practical guide to their development and use. USA: Oxford University Press; 2015.
   Google Scholar
• Kelley E, Hurst J Health care quality indicators project: conceptual framework paper. 2006
   Google Scholar
• Feldner HA, Logan SW, Galloway JC. Why the time is right for a radical paradigm shift in early powered mobility: the role of powered mobility technology devices, policy and stakeholders. Disabil Rehabil Assist Technol. 2016 Feb 17;11(2):89–102.
   PubMed Web of Science ®Google Scholar
• Jenkins GR, Vogtle LK, Yuen HK. Factors associated with the use of standardized power mobility skills assessments among assistive technology practitioners. Assist Technol. 2015 Oct 2;27(4):219–25.
   PubMed Web of Science ®Google Scholar
• Tefft D, Guerette P, Furumasu J. Cognitive predictors of young children’s readiness for powered mobility. Dev Med Child Neurol. 1999 Oct 1;41(10):665–70.
   PubMed Web of Science ®Google Scholar
• Araújo P, Kirkwood R, Figueiredo E. Validity and intra-and inter-rater reliability of the observational gait scale for children with spastic cerebral palsy. Braz J Phys Ther. 2009;13:267–73.
   Web of Science ®Google Scholar
• Jewell AT, Stokes AI, Bartlett DJ. Correspondence of classifications between parents of children with cerebral palsy aged 2 to 6 years and therapists using the gross motor function classification system. Dev Med Child Neurol. 2011;53:334–37.
   PubMed Web of Science ®Google Scholar