“It’s just a very taboo and secretive kind of thing”: making sense of living with stigma and discrimination from accounts of people with psychosis

References

• Angermeyer, M.C., & Matschinger, H. (1996). The effect of violent attacks by schizophrenic persons on the attitude of the public towards the mentally ill. Social Science and Medicine, 43, 1721–1728.10.1192/bjp.187.48.s116
   PubMed Web of Science ®Google Scholar
• Bos, A.E.R., Kanner, D., Muris, P., Janssen, B., & Mayer, B. (2009). Mental illness stigma and disclosure: Consequences of coming out of the closet. Issues in Mental Health Nursing, 30, 509–513.
   PubMedGoogle Scholar
• Brohan, E., Elgie, R., Sartorius, N., & Thornicroft, G. (2010). Self-stigma, empowerment and perceived discrimination among people with schizophrenia in 14 European countries: the GAMIAN-Europe study. Schizophrenia Research, 122, 232–238.10.1016/j.schres.2010.02.1065
   PubMed Web of Science ®Google Scholar
• Chaudoir, S.R., & Fisher, J.D. (2010). The disclosure process model: understanding disclosure decision-making and post disclosure outcomes among people living with a concealable stigmatised idenity. Psychological Bulletin, 136, 236–256.10.1037/a0018193
   PubMed Web of Science ®Google Scholar
• Dinos, S., Stevens, S., Serfaty, M., Weich, S., & King, M. (2004). Stigma: the feelings and experiences of 46 people with mental illness: qualitative study. The British Journal of Psychiatry, 184, 176–181.10.1192/bjp.184.2.176
   PubMed Web of Science ®Google Scholar
• French, P., Hutton, P., Barratt, S., Parker, S., Byrne, R., Shryane, N., et al. (2010). Provision of online normalising information to reduce stigma associated with psychosis: Can an audio podcast challenge negative appraisals of psychotic experiences?[doi: 10.1080/17522431003717683]. Psychosis, 3, 52–62.
   Web of Science ®Google Scholar
• Gallo, K.M. (1994). First person account: self-stigmatization. Schizophrenia Bulletin, 20, 407–410.10.1093/schbul/20.2.407
   PubMed Web of Science ®Google Scholar
• Geekie, J., & Read, J. (2009). Making sense of madness. East Sussex: Routledge.
   Google Scholar
• Goffman, E. (1963). Stigma: notes on the management of a spoiled identity. New York: Simon & Schuster.
   Google Scholar
• González-Torres, M., Oraa, R., Arístegui, M., Fernández-Rivas, A., & Guimon, J. (2007). Stigma and discrimination towards people with schizophrenia and their family members. Social Psychiatry and Psychiatric Epidemiology, 42, 14–23.10.1007/s00127-006-0126-3
   PubMed Web of Science ®Google Scholar
• Heijnders, M., & van der Meij. (2006). The fight against stigma: an overview of stigma reduction. Psychology, Health & Medicine, 11, 353–363.
   PubMedGoogle Scholar
• Knight, M.T.D., Wykes, T., & Hayward, P. (2003). ‘People don’t understand’: An investigation of stigma in schizophrenia using Interpretative Phenomenological Analysis (IPA). Journal of Mental Health, 12, 209–222.10.1080/0963823031000118203
   Google Scholar
• Knight, M.T.D., Wykes, T., & Hayward, P. (2006). Group treatment of perceived stigma and self-esteem in schizophrenia: a waiting list trial of efficacy. Behavioural and Cognitive Psychotherapy, 34, 305–318.10.1017/S1352465805002705
   Web of Science ®Google Scholar
• Lieberman, P.B. (1989). “Objective” methods and “qualitative” experiences. Schizophrenia Bulletin, 15, 267–275.10.1093/schbul/15.2.267
   PubMedGoogle Scholar
• Link, B.G., Struening, E.L., Neese-Todd, S., Asmussen, S., & Phelan, J.C. (2001). Stigma as a barrier to recovery: the consequences of stigma for the self-esteem of people with mental illness. Psychiatric Services, 52, 1621–1626.10.1176/appi.ps.52.12.1621
   PubMed Web of Science ®Google Scholar
• Link, B.G., Struening, E.L., Rahav, M., Phelan, J.C., & Nuttbrock, L. (1997). On stigma and its consequences: evidence from a longitudinal study of men with dual diagnosis of mental illness and substance abuse. Journal of Health and Social Behavior, 38, 177–190.10.2307/2955424
   PubMed Web of Science ®Google Scholar
• Lucksted, A., Drapalski, A., Calmes, C., Forbes, C., DeForge, B., & Boyd, J. (2011). Ending self stigma: pilot evaluation of a new intervention to reduce internalised stigma among people with mental illness. Psychiatric Rehabilitation, 35, 51–54.10.2975/35.1.2011.51.54
   PubMed Web of Science ®Google Scholar
• MacInnes, D.L., & Lewis, M. (2008). The evaluation of a short group programme to reduce self-stigma in peole with serious and enduring mental health problems. Journal of Psychiatric and Mental Health Nursing, 15, 59–65.10.1111/jpm.2008.15.issue-1
   PubMed Web of Science ®Google Scholar
• Nicolson, P. (1995). Qualitative research, psychology and mental health: analysing subjectivity. Journal of Mental Health, 4, 337–346.10.1080/09638239550037398
   Google Scholar
• Pinfold, V., Toulmin, H., Thornicroft, G., Huxley, P., Farmer, P., & Graham, T. (2003). Reducing psychiatric stigma and discrimination: evaluation of educational interventions in UK secondary schools. The British Journal of Psychiatry, 182, 342–346.10.1192/bjp.182.4.342
   PubMed Web of Science ®Google Scholar
• Ritsher, J.B., & Phelan, J.C. (2004). Internalized stigma predicts erosion of morale among psychiatric outpatients. Psychiatry Research, 129, 257–265.10.1016/j.psychres.2004.08.003
   PubMed Web of Science ®Google Scholar
• Schulze, B., & Angermeyer, M. (2003). Qualitative experiences of stigma. a focus group study of schizophrenic patients, their relatives and mental health professionals. [doi: 10.1016/s0277-9536(02)00028-x]. Social Science & Medicine, 56, 299–312.
   PubMed Web of Science ®Google Scholar
• Smith, J.A. (1996). Beyond the divide between cognition and discourse: Using interpretative phenomenological analysis in health psychology. [doi: 10.1080/08870449608400256]. Psychology & Health, 11, 261–271.
   Web of Science ®Google Scholar
• Smith, J.A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: theory, method and research. London: Sage.
   Google Scholar
• Thornicroft, G. (2007). Shunned: discrimination against people with mental illness. New York: Oxford University Press.
   Google Scholar
• Thornicroft, G., Brohan, E., Rose, D., Sartorius, N., & Leese, M. (2009). Global pattern of experienced and anticipated discrimination against people with schizophrenia: a cross-sectional survey. The Lancet, 373, 408–415.10.1016/S0140-6736(08)61817-6
   PubMed Web of Science ®Google Scholar
• Thornicroft, G., Rose, D., & Kassam, A. (2007). Discrimination in health care against people with mental illness. International Review of Psychiatry, 19, 113–122.10.1080/09540260701278937
   PubMed Web of Science ®Google Scholar
• Verhaeghe, M., Bracke, P., & Bruynooghe, K. (2008). Stigmatization and self-esteem of persons in recovery from mental illness: the role of peer support. International Journal of Social Psychiatry, 54, 206–218.10.1177/0020764008090422
   PubMed Web of Science ®Google Scholar