Experience in care, burden, and hope of the family members of HIV patients with and without a history of injecting drug use in Indonesia: An exploratory case

References

• Achmad, Y. M., Istiqomah, A. N., Iskandar, S., Wisaksana, R., van Crevel, R., & Hidayat, T. (2009). Integration of methadone maintenance treatment and HIV care for injecting drug users: A cohort study in Bandung, Indonesia. Acta Medica Indonesiana, 41(Suppl 1), 23–27.
   PubMedGoogle Scholar
• Afriandi, I., Siregar, A. Y., Meheus, F., Hidayat, T., van der Ven, A., van Crevel, R., & Baltussen, R. (2009). Costs of hospital-based methadone maintenance treatment in HIV/AIDS control among injecting drug users in Indonesia. Health Policy, 95(1), 69–73. doi:S0168-8510(09)00288-7
   Google Scholar
• Ahsan Ullah, A. K. (2011). HIV/AIDS-Related stigma and discrimination: A study of health care providers in Bangladesh. Journal of the International Association Physicians AIDS Care (Chicago, Ill), 10(2), 97–104. doi:10.1177/1545109710381926
   PubMedGoogle Scholar
• Altice, F. L., Kamarulzaman, A., Soriano, V. V., Schechter, M., & Friedland, G. H. (2010). Treatment of medical, psychiatric, and substance-use comorbidities in people infected with HIV who use drugs. Lancet, 376(9738), 367–387. doi:S0140-6736(10)60829-X
   PubMed Web of Science ®Google Scholar
• Berkman, N. D., & Wechsberg, W. M. (2007). Access to treatment-related and support services in methadone treatment programs. Journal of Substance Abuse Treatment, 32(1), 97–104. doi:S0740-5472(06)00217-0
   Google Scholar
• Broadhead, R. S., Heckathorn, D. D., Altice, F. L., van Hulst, Y., Carbone, M., Friedland, G. H., … Selwyn, P. A. (2002). Increasing drug users’ adherence to HIV treatment: Results of a peer-driven intervention feasibility study. Social Science & Medicine, 55(2), 235–246.
   Google Scholar
• Carrieri, M. P., Chesney, M. A., Spire, B., Loundou, A., Sobel, A., Lepeu, G., & Moatti, J. P. (2003). Failure to maintain adherence to HAART in a cohort of French HIV-positive injecting drug users. International Journal of Behavioral Medicine, 10(1), 1–14.
   PubMed Web of Science ®Google Scholar
• Chamroonsawasdi, K., Insri, N., & Pitikultang, S. (2011). Predictive factors of antiretroviral (ARV) drug adherence among people living with HIV/AIDS attending at Taksin Hospital, Bangkok, Thailand. Journal of the Medical Association of Thailand, 94(7), 775–781.
   PubMedGoogle Scholar
• Connock, M., Juarez-Garcia, A., Jowett, S., Frew, E., Liu, Z., Taylor, R. J., … Taylor, R. S. (2007). Methadone and buprenorphine for the management of opioid dependence: A systematic review and economic evaluation. Health Technology Assessment, 11(9), 1–171, iii–iv. doi:04/22/01
   Google Scholar
• Degenhardt, L., Mathers, B., Vickerman, P., Rhodes, T., Latkin, C., & Hickman, M. (2010). Prevention of HIV infection for people who inject drugs: Why individual, structural, and combination approaches are needed. Lancet, 376(9737), 285–301. doi:S0140-6736(10)60742-8
   PubMed Web of Science ®Google Scholar
• DeJong, C., Noppen, M., & deJong-Verhagen, J. (2009). De ontwikkeling van een vragenlijst voor familie van patiënten in de GGZ en de verslavingszorg: de Family C.I.S. Systeemtherapie, 21(2), 78–93.
   Google Scholar
• Golub, E. T., Astemborski, J. A., Hoover, D. R., Anthony, J. C., Vlahov, D., & Strathdee, S. A. (2003). Psychological distress and progression to AIDS in a cohort of injection drug users. Journal of Acquired Immune Deficiency Syndromes, 32(4), 429–434.
   PubMedGoogle Scholar
• Green, H. D., Jr., Atuyambe, L., Ssali, S., Ryan, G. W., & Wagner, G. J. (2011). Social networks of PLHA in Uganda: Implications for mobilizing PLHA as agents for prevention. AIDS and Behavior, 15(5), 992–1002. doi:10.1007/s10461-010-9707-y
   PubMed Web of Science ®Google Scholar
• Hofstede, G., & McCrae, R. R. (2004). Personality and culture revisited: Linking traits and dimensions of culture. Cross-Cultural Research, 38(52), 52–88. doi:10.1177/1069397103259443
   Web of Science ®Google Scholar
• Howe, G. W., Levy, M. L., & Caplan, R. D. (2004). Job loss and depressive symptoms in couples: Common stressors, stress transmission, or relationship disruption? Journal of Family Psychology, 18(4), 639–650. doi:10.1037/0893-3200.18.4.639
   PubMed Web of Science ®Google Scholar
• Ironson, G., & Hayward, H. (2008). Do positive psychosocial factors predict disease progression in HIV-1? A review of the evidence. Psychosomatic Medicine, 70(5), 546–554. doi:10.1097/PSY.0b013e318177216c
   PubMed Web of Science ®Google Scholar
• Iskandar, S., Kamal, R., & De Jong, C. A. (2012). Psychiatric comorbidity in injecting drug users in Asia and Africa. Current Opinion Psychiatry, 25(3), 213–218. doi:10.1097/YCO.0b013e3283523d66
   PubMed Web of Science ®Google Scholar
• Johns, B., Probandari, A., Mahendradhata, Y., & Ahmad, R. A. (2009). An analysis of the costs and treatment success of collaborative arrangements among public and private providers for tuberculosis control in Indonesia. Health Policy, 93(2–3), 214–224. doi:10.1016/j.healthpol.2009.08.004
   PubMed Web of Science ®Google Scholar
• Johnson, M. O., Chesney, M. A., Goldstein, R. B., Remien, R. H., Catz, S., Gore-Felton, C., … Morin, S. F. (2006). Positive provider interactions, adherence self-efficacy, and adherence to antiretroviral medications among HIV-infected adults: A mediation model. AIDS Patient Care STDS, 20(4), 258–268. doi:10.1089/apc.2006.20.258
   Google Scholar
• Johnson, S. C., & Gerber, J. G. (2000). Advances in HIV/AIDS therapy. Advances in Internal Medicine, 45, 1–40.
   PubMedGoogle Scholar
• Kosasih, H., Ibrahim, I. N., Wicaksana, R., Alisjahbana, B., Hoo, Y., Yo, I. H., … Blair, P. J. (2011). Evidence of human hantavirus infection and zoonotic investigation of hantavirus prevalence in rodents in western Java, Indonesia. Vector Borne Zoonotic Dis, 11(6), 709–713. doi:10.1089/vbz.2010.0093
   Google Scholar
• van-Laere, I., Diana, A., van-Crevel, R., Pinxten, W., van-der-Ven, A., Istiqomah, A., … Jong, C. d. (2012). HIV prevention and control in injecting drug users in West Java, Indonesia: An evidence based approach. Aids Fonds project final report. Bandung/Nijmegen: RSHS, FK-UNPAD, Indonesia/NISPA, Radboud University.
   Google Scholar
• Latkin, C., Yang, C., Srikrishnan, A. K., Solomon, S., Mehta, S. H., Celentano, D. D., … Solomon, S. S. (2011). The relationship between social network factors, HIV, and Hepatitis C among injection drug users in Chennai, India. Drug and Alcohol Dependence, 117(1), 50–54. doi:10.1016/j.drugalcdep.2011.01.005
   Google Scholar
• Li, X., Wang, R., Wicaksana, F., Zhao, Y., Tang, C., Torres, J., & Fane, A. G. (2013). Fusion behaviour of aquaporin Z incorporated proteoliposomes investigated by quartz crystal microbalance with dissipation (QCM-D). Colloids and Surfaces B Biointerfaces, 111C, 446–452. doi:10.1016/j.colsurfb.2013.06.008
   PubMed Web of Science ®Google Scholar
• Mayberry, L. S., & Heflinger, C. A. (2011). The role of quality service systems in involving families in mental health treatment for children with severe emotional disturbances. Journal of Emotional and Behavioral Disorders, 1. doi:10.1177/1063426611398876
   Web of Science ®Google Scholar
• McLellan, A. T., Lewis, D. C., O'Brien, C. P., & Kleber, H. D. (2000). Drug dependence, a chronic medical illness: Implications for treatment, insurance, and outcomes evaluation. JAMA, 284(13), 1689–1695. doi:jsc00024
   PubMed Web of Science ®Google Scholar
• Mitrani, V. B., Feaster, D. J., Weiss-Laxer, N. S., & McCabe, B. E. (2011). Malaise, motivation and motherhood: Predictors of engagement in behavioral interventions from a randomized controlled trial for HIV+ women in drug abuse recovery. AIDS and Behavior, 15(2), 396–406. doi:10.1007/s10461-010-9714-z
   PubMed Web of Science ®Google Scholar
• Murray, C. J., Vos, T., Lozano, R., Naghavi, M., Flaxman, A. D., Michaud, C., … Memish, Z. A. (2012). Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990–2010: A systematic analysis for the Global Burden of Disease Study 2010. Lancet, 380(9859), 2197–2223. doi:10.1016/S0140-6736(12)61689-4
   Google Scholar
• Orford, J., Templeton, L., Velleman, R., & Copello, A. (2005). Family members of relatives with alcohol, drug and gambling problems: A set of standardized questionnaires for assessing stress, coping and strain. Addiction, 100(11), 1611–1624. doi:10.1111/j.1360-0443.2005.01178.x
   PubMed Web of Science ®Google Scholar
• Owens, S. (2003). African American women living with HIV/AIDS: Families as sources of support and of stress. Social Work, 48(2), 163–171.
   PubMed Web of Science ®Google Scholar
• Protopopescu, C., Raffi, F., Roux, P., Reynes, J., Dellamonica, P., Spire, B., … Carrieri, M. P. (2009). Factors associated with non-adherence to long-term highly active antiretroviral therapy: A 10 year follow-up analysis with correction for the bias induced by missing data. Journal of Antimicrobial Chemotherapy, 64(3), 599–606. doi:10.1093/jac/dkp232
   Google Scholar
• Republic of Indonesia Country Report on the Follow up to the Declaration of Commitment On HIV/AIDS (UNGASS): Reporting Period 2008–2009. (2009).
   Google Scholar
• Rotheram-Borus, M. J., Flannery, D., Rice, E., & Lester, P. (2005). Families living with HIV. AIDS Care, 17(8), 978–987. doi:10.1080/09540120500101690
   PubMed Web of Science ®Google Scholar
• Sallquist, J., Eisenberg, N., French, D. C., Purwono, U., & Suryanti, T. A. (2010). Indonesian adolescents’ spiritual and religious experiences and their longitudinal relations with socioemotional functioning. Developmental Psychology, 46(3), 699–716. doi:10.1037/a0018879
   PubMed Web of Science ®Google Scholar
• SAMHSA. (2006). Family-based services substance abuse: Clinical issues in intensive outpatient treatment. Rockville, MD: Center for Substance Abuse Treatment.
   Google Scholar
• Seybold, K. S. (2007). Physiological mechanisms involved in religiosity/spirituality and health. Journal of Behavioral Medicine, 30(4), 303–309. doi:10.1007/s10865-007-9115-6
   PubMed Web of Science ®Google Scholar
• Sumintardja, E. N., Pinxten, L. W., Siregar, J. R., Suherman, H., Wisaksana, R., Iskandar, S., … Hospers, H. J. (2009). Behavioral aspects of HIV prevention and care in Indonesia: A plea for a multi-disciplinary, theory- and evidence-based approach. Acta Medica Indonesiana, 41 (Suppl 1), 79–86.
   Google Scholar
• Swendeman, D., Ingram, B. L., & Rotheram-Borus, M. J. (2009). Common elements in self-management of HIV and other chronic illnesses: An integrative framework. AIDS Care, 21(10), 1321–1334. doi:10.1080/09540120902803158
   PubMed Web of Science ®Google Scholar
• UNAIDS. (2012). Global report. Switzerland: UNAIDS. Retrieved from http://www.unaids.org/en/media/unaids/contentassets/documents/epidemiology/2012/gr2012/20121120_unaids_global_report_2012_with_annexes_en.pdf
   Google Scholar
• Uzochukwu, B. S., Onwujekwe, O. E., Onoka, A. C., Okoli, C., Uguru, N. P., & Chukwuogo, O. I. (2009). Determinants of non-adherence to subsidized anti-retroviral treatment in southeast Nigeria. Health Policy Plan, 24(3), 189–196. doi:10.1093/heapol/czp006
   PubMed Web of Science ®Google Scholar
• WHO. (2003). WHO collaborative study on substitution therapy of opioid dependence and HIV/AIDS: General protocol. Retrieved from http://www.who.int/substance_abuse/research_tools/translation/en/print.html
   Google Scholar
• WHO-SEARO. (2013). Tuberculosis control in the South-East Asia region: Annual TB Report 2013. India: WHO. Retrieved from http://www.searo.who.int/entity/tb/annual_tb_report_2013.pdf
   Google Scholar
• Wisaksana, R., Alisjahbana, B., van Crevel, R., Kesumah, N., Sudjana, P., & Sumantri, R. (2009). Challenges in delivering HIV-care in Indonesia: Experience from a referral hospital. Acta Medica Indonesiana, 41(Suppl 1), 45–51.
   PubMedGoogle Scholar
• Wisaksana, R., Indrati, A. K., Fibriani, A., Rogayah, E., Sudjana, P., Djajakusumah, T. S., … van Crevel, R. (2010). Response to first-line antiretroviral treatment among human immunodeficiency virus-infected patients with and without a history of injecting drug use in Indonesia. Addiction, 105(6), 1055–1061. doi:10.1111/j.1360-0443.2010.02898.x
   Google Scholar
• Wolfe, D., Carrieri, M. P., & Shepard, D. (2010). Treatment and care for injecting drug users with HIV infection: A review of barriers and ways forward. Lancet, 376(9738), 355–366. doi:S0140-6736(10)60832-X
   PubMed Web of Science ®Google Scholar