Phone calls and political ping-pong: nodding syndrome and healthcare provision in Uganda

Bibliography

• Branch, A. “The Political Dilemmas of Global Justice: Anti-Civilian Violence andthe Violence of Humanitarianism, the Case of Northern Uganda.” PhD diss., Columbia University, 2007.
   Google Scholar
• Centers for Disease Control and Prevention (CDC). “Prevalence of Nodding Syndrome – Uganda 2012-2013.” Morbidity and Mortality Weekly Report 63, no. 28 (2014): 603–606.
   PubMed Web of Science ®Google Scholar
• De Bruijn, M. E., and R. Van Dijk. “Introduction. Connectivity and the Postglobal Moment: (Dis)Connections and Social Change in Africa.” Chapter 1 in The Social Life of Connectivity in Africa, edited by Mirjam De Bruijn, and Rijk Van Dijk, 1–20. New York: Palgrave/MacMillan, 2012.
   Google Scholar
• De Jong, J., and R. Reis. “Kiyang-yang, a West-African Post-war Idiom of Distress.” Culture, Medicine, and Psychiatry 34, no. 2 (2010): 301–321. doi: 10.1007/s11013-010-9178-7
   PubMed Web of Science ®Google Scholar
• Finnström, S. Living with bad Surroundings. War, History, and Everyday Moments in Northern Uganda. Durham and London: Duke University Press, 2008.
   Google Scholar
• Föger, K., G. Gora-Stahlberg, J. Sejvar, E. Ovuga, L. Jilek-Aall, E. Schmutzhard, C. Kaiser, and A. Winkler. “Nakalanga Syndrome: Clinical Characteristics, Potential Causes, and Its Relationship with Recently Described Nodding Syndrome.” PLoS Neglected Tropical Diseases 11, no. 2 (2017): e0005201. doi: 10.1371/journal.pntd.0005201
   PubMed Web of Science ®Google Scholar
• Geissler, P. W. “The Archipelago of Public Health. Comments on the Landscape of Medical Research in Twenty-First-Century Africa.” Chapter 13 in Making and Unmaking Public Health in Africa, edited by Ruth J. Prince, and Rebecca Marsland, 231–256. Ohio: Ohio University Press, 2014.
   Google Scholar
• Geissler, P. W. “Introduction: A Life Science in Its African Para-State.” Chapter 1 in Para- States and Medical Science: Making African Global Health, edited by P.W. Geissler, 1–46. Durham, NC: Duke University Press, 2015.
   Google Scholar
• Idro, R., K. A. Musubire, B. Byamah Mutamba, H. Namusoke, J. Muron, C. Abbo, R. Oriyabuzu, et al. “Proposed Guidelines for the Management of Nodding Syndrome.” African Health Sciences 13, no. 2 (2013): 219–323.
   PubMed Web of Science ®Google Scholar
• Idro, R., H. Namusoke, C. Abbo, B. Mutamba, A. Kakooza-Mwesige, R. Opoka, A. Musubire, A. Mwaka, and B. Opar. “Patients with Nodding Syndrome in Uganda Improve with Symptomatic Treatment: a Cross-Sectional Study.” BMJ Open 4 (2014): e006476. doi: 10.1136/bmjopen-2014-006476
   PubMed Web of Science ®Google Scholar
• Idro, R., B. Opar, J. Wamala, C. Abbo, S. Onzivua, D. Mwaka, A. Kakooza-Mwesige, A. Mbonye, and J. Aceng. “Is Nodding Syndrome an Onchocerca Volvulus-Induced Neuroinflammatory Disorder? Uganda’s Story of Research in Understanding the Disease.” International Journal of Infectious Diseases 45 (2016): 112–117. doi: 10.1016/j.ijid.2016.03.002
   PubMed Web of Science ®Google Scholar
• Johnson, T., R. Tyagi, P. Lee, M. Lee, K. Johnson, J. Kowalak, A. Elkahloun, et al. “Nodding Syndrome may be an Autoimmune Reaction to the Parasitic Worm Onchocerca Volvulus.” Science Translational Medicine 9 (2017): eaaf6953. doi: 10.1126/scitranslmed.aaf6953
   PubMed Web of Science ®Google Scholar
• Kaiser, C., T. Rubaale, E. Tukesiga, W. Kipp, and G. Asaba. “Case Report: Nodding Syndrome, Western Uganda, 1994.” The American Journal of Tropical Medicine and Hygiene 93, no. 1 (2015): 198–202. doi: 10.4269/ajtmh.14-0838
   PubMed Web of Science ®Google Scholar
• Landis, J., V. Palmer, and P. Spencer. “Nodding Syndrome in Kitgum District, Uganda: Association with Conflict and Internal Displacement.” BMJ Open 4 (2014): e006195. doi: 10.1136/bmjopen-2014-006195
   PubMed Web of Science ®Google Scholar
• Lord’s Resistance Army/Movement. The Duty to Foster Peace Making and Prevent War in Central Africa. Open communication to the 67th session of the United Nations general assembly. Labeja, Justine Nyeko, Ag Leader/LRA/M Peace Team. October 5, 2012.
   Google Scholar
• Ministry of Health, Uganda. Human Resources for Health bi-Annual Report. October 2014-March 2015. Kampala: Ministry of Health, 2015.
   Google Scholar
• Ministry of Health, Uganda. Integrated Response Plan for the Control of the Nodding Disease Syndrome in Acholi Sub-Region, Uganda. January 2012 to December 2014. Kampala: Ministry of Health, 2012.
   Google Scholar
• Ministry of Health, Uganda. Nodding Syndrome Health Workers’ Training Manual. Revised Edition: August 2012. Kampala: Ministry of Health, 2012.
   Google Scholar
• Ministry of Health, Uganda. Press release. Nodding Syndrome Under Control, No New Cases Reported in the Past Two Years. 4 April 2015, by Dr. Asuan Lukwago, Permanent Secretary. Kampala: Ministry of Health, 2015.
   Google Scholar
• Mutamba, B., C. Abbo, J. Muron, R. Idro, and A. Mwaka. “Stereotypes on Nodding Syndrome: Responses of Health Workers in the Affected Region of Northern Uganda.” African Health Sciences 13, no. 4 (2013): 986–991. doi: 10.4314/ahs.v13i4.18
   PubMed Web of Science ®Google Scholar
• Nduhuura, H. D. R. Statement by the Hon Minister of Health to Parliament on Nodding Disease in Northern Uganda. 8 February 2012. http://www.health.go.ug/docs/STATEMENT.pdf.
   Google Scholar
• NTV Uganda. “Nodding Syndrome Victims Lacking Drugs and Medical Care.” Feb. 1, 2017. Accessed May 17th 2017. https://www.youtube.com/watch?v=5IHS17XZmOI NTV Uganda. “Nodding syndrome could be linked to river blindness.” Feb. 12, 2017. Accessed 17 May, 2017. https://www.youtube.com/watch?v=kSxCXQCzAuI.
   Google Scholar
• Okech, T. “Analytical Review of Health Care Reforms in Uganda and its Implication on Health Equity.” World Journal of Medicine and Medical Science Research 2, no. 4 (2014): 55–62.
   Google Scholar
• Okony Tumangu Tim. Song: Aculube ocwalo kwena. Recorded by Van Bemmel, K., and E. Aalten, translated by Okidi Denish, 2014. http://www.ugandanrecordings.com/okony-tumangu-tim-aculube-ocwalo-kwena-english-subtitles/.
   Google Scholar
• Okony Tumangu Tim. Song: Otto Joe goo cim ilaa waa. Recorded by Van Bemmel, K., and E. Aalten, translated by Okidi Denish, 2014. Available from: http://www.ugandanrecordings.com/okony-tumangu-tim-otto-joe-goo-cim-ilaa-waa-otto-joe-make-a-phone-call-and-save-us/.
   Google Scholar
• Okony Tumangu Tim. Song: Two oneko latina. Recorded by Van Bemmel, K., and E. Aalten, translated by Okidi Denish, 2014. Available from: http://www.ugandanrecordings.com/okony-tumangu-tim-two-oneko-latina/.
   Google Scholar
• Parker, M., and T. Allen. “Does Mass Drug Administration for the Integrated Treatment of Neglected Tropical Diseases Really Work? Assessing Evidence for the Control of Schistosomiasis and Soil-Transmitted Helminths in Uganda.” Health Research Policy and Systems 9 (2011): 3. doi: 10.1186/1478-4505-9-3
   PubMed Web of Science ®Google Scholar
• Parker, M., T. Allen, and J. Hastings. “Resisting Control of Neglected Tropical Diseases: Dilemmas in the Mass Treatment of Schistosomiasis and Soil-Transmitted Helminths in North-West Uganda.” Journal of Biosocial Science 40 (2008): 161–181. doi: 10.1017/S0021932007002301
   PubMed Web of Science ®Google Scholar
• Parliament of Uganda. Parliament Meeting. Tuesday, 7 February 2012, at 2.27 pm in Parliament House, Kampala. Feb. 7, 2012. Accessed 18 May, 2016. Available from: http://www.parliament.go.ug/new/index.php/documents-and-reports/daily-hansard.
   Google Scholar
• Parliament of Uganda. Parliament meeting, Tuesday 28 February 2012, at 2.35 pm in Parliament House, Kampala. Feb. 28, 2012. Accessed 18 May, 2016. Available from: http://www.parliament.go.ug/new/index.php/documents-and-reports/daily-hansard.
   Google Scholar
• Prince, R. J. “Situating Health and the Public in Africa. Historical and Anthropological Perspectives.” Chapter 1 in Making and Unmaking Public Health in Africa, edited by Ruth Jane Prince, and Rebecca Marsland, 1–51. Ohio: Ohio University Press, 2014.
   Google Scholar
• Sejvar, J. J., A. M. Kakooza, J. L. Foltz, I. Makumbi, A. D. Atai-Omoruto, M. Malimbo, R. Ndyomugyenyi, et al. “Clinical, Neurological, and Electrophysiological Features of Nodding Syndrome in Kitgum, Uganda: an Observational Case Series.” The Lancet Neurology 12 (2013): 166–174. doi: 10.1016/S1474-4422(12)70321-6
   PubMed Web of Science ®Google Scholar
• Uganda Radio Network. “Health Ministry Queries Accountability for Nodding Syndrome Funds.” Feb. 19, 2014. https://ugandaradionetwork.com/story/health-ministry-queries-accountability-for-nodding-syndrome-funds.
   Google Scholar
• Van Bemmel, K. “The Quest for Treatment. The Violated Body of Nodding Syndrome in Northern Uganda.” Journal of Peace and Security Studies 2, no. 2 (2016): 63–78.
   Google Scholar
• Van Bemmel, K. “The Rise and Fall of Nodding Syndrome in Public Discourse: an Analysis of Newspaper Coverage in Uganda.” Critique of Anthropology 36, no. 2 (2016): 168–196. doi: 10.1177/0308275X15614635
   Web of Science ®Google Scholar
• Van Bemmel, K., and E. Aalten. Nodding Syndrome: an illness in the making. Film documentary. Directed by Van Bemmel and Aalten. The Netherlands: Scandal Studios, 2017. www.vimeo.com/noddingsyndrome/docu.
   Google Scholar
• Van Bemmel, K., I. Derluyn, and K. Stroeken. “Nodding Syndrome or Disease? On the Conceptualization of an Illness-in-the- Making.” Ethnicity & Health 19, no. 1 (2014): 100–118. doi: 10.1080/13557858.2013.780233
   PubMed Web of Science ®Google Scholar
• Vokes, R. “Before the Call: Mobile Phones, Exchange Relations, and Social Change in South- Western Uganda.” Ethnos 83, no. 2 (2018): 274–290. doi: 10.1080/00141844.2015.1133689
   Web of Science ®Google Scholar
• Vokes, R., and K. Pype. “Chronotypes of Media in Sub-Saharan Africa.” Ethnos 83, no. 2 (2018): 207–217. doi: 10.1080/00141844.2016.1168467
   Web of Science ®Google Scholar
• Wamala, J., M. Malimbo, F. Tepage, L. Lukwago, C. Okot, R. Cannon, A. Laudisoit, and R. Colebunders. “Nodding Syndrome May Be Only the Ears of the Hippo.” PLOS Neglected Tropical Diseases 9, no. 8 (2015): e0003880. doi: 10.1371/journal.pntd.0003880
   PubMed Web of Science ®Google Scholar
• Whitmore, D. “Genocide or Just Another ‘Casualty of War’? The Implications of the Memo Attributed to President Yoweri. K. Museveni of Uganda.” Practical Matters 3 (2010): 1–49.
   Google Scholar
• Whyte, S. R. “The Publics of the New Public Health. Life Conditions and ‘Lifestyle Diseases’ in Uganda.” Chapter 7 in Making and Unmaking Public Health in Africa, edited by Ruth Jane Prince, and Rebecca Marsland, 187–207. Ohio: Ohio University Press, 2014.
   Google Scholar
• Whyte, S. R. “Uncertain Undertakings: Practicing Health Care in the Subjunctive Mood.” Chapter 11 in Managing Uncertainty. Ethnographic Studies of Illness, Risk and the Struggle for Control, edited by Vibeke Steffen, Richard Jenkins, and Hanne Jessen, 245–264. Copenhagen: Museum Tusculanum Press, 2005.
   Google Scholar
• Winkler, A. S., K. Friedrich, R. König, M. Meindl, R. Helbok, I. Unterberger, T. Gotwald, et al. “The Head Nodding Syndrome – Clinical Classification and Possible Causes.” Epilepsia 49, no. 12 (2008): 2008–2015. doi: 10.1111/j.1528-1167.2008.01671.x
   PubMed Web of Science ®Google Scholar
• World Health Organization. Uganda Adopts a Multi-sectoral Response to Nodding Syndrome. Press Release No 1/2012, Kampala, 2 March 2012. http://who.insomnation.com/sites/default/files/pdf/kampala-nodding-press-release-02032012.pdf.
   Google Scholar