“Like a drawing of breath”: leisure-based art-making as a source of respite and identity among older women caring for loved ones with dementia

References

• Camic, P. M., Tischler, V., & Pearman, C. H. (2014). Viewing and making art together: A multi-session art-gallery-based intervention for people with dementia and their carers. Aging & Mental Health, 18, 161–168. doi:10.1080/13607863.2013.818101
   PubMed Web of Science ®Google Scholar
• Camic, P. M., Williams, C. M., & Meeten, F. (2011). Does a ‘singing together group’ improve the quality of life of people with a dementia and their carers? A pilot evaluation study. Dementia, 12, 152–171. doi:10.1177/1471301211422761
   Google Scholar
• Castora-Binkley, M., Noelker, L., Prohaska, T., & Satariano, W. (2010). Impact of arts participation on health outcomes for older adults. Journal of Aging, Humanities, and the Arts, 4, 352–367. doi:10.1080/19325614.2010.533396
   Google Scholar
• Clark-Ibáñez, M. (2004). Framing the social world with photo-elicitation interviews. American Behavioral Scientist, 47, 1507–1527. doi:10.1177/0002764204266236
   Web of Science ®Google Scholar
• Charmaz, K. (1994). Identity dilemmas of chronically ill men. The Sociological Quarterly, 35, 269–288. doi:10.1111/j.1533-8525.1994.tb00410.x
   Web of Science ®Google Scholar
• Dekker, M. (1996). Why oblique and why Jung? In J. Pearson (Ed.), Discovering the self through drama and movement (pp. 39–45). London: Jessica Kingsley.
   Google Scholar
• Donnellan, W. J., Bennett, K. M., & Soulsby, L. K. (2015). What are the factors that facilitate or hinder resilience in older spousal dementia carers? A qualitative study. Aging & Mental Health, 19, 932–939. doi:10.1080/13607863.2014.977771
   PubMed Web of Science ®Google Scholar
• Eifert, E. K., Adams, R., Dudley, W., & Perko, M. (2015). Family caregiver identity: A literature review. American Journal of Health Education, 46, 357–367. doi:10.1080/19325037.2015.1099482
   Web of Science ®Google Scholar
• Fisher, B. J., & Specht, D. K. (1999). Successful aging and creativity in later life. Journal of Aging Studies, 13, 457–472. doi:10.1016/S0890-4065(99)00021-3
   Web of Science ®Google Scholar
• Gahagan, J., Loppie, C., Rehaman, L., Maclellan, M., & Side, K. (2007). “Far as I get is the clothesline”: The impact of leisure on women’s health and unpaid caregiving experiences in Nova Scotia, Canada. Health Care for Women International, 28, 47–68. doi:10.1080/07399330601003408
   PubMedGoogle Scholar
• Gillies, B., & Johnston, G. (2004). Identity loss and maintenance: Commonality of experience in cancer and dementia. European Journal of Cancer Care, 13, 436–442. doi:10.1111/j.1365-2354.2004.00550.x
   PubMed Web of Science ®Google Scholar
• Greaves, C. J., & Farbus, L. (2006). Effects of creative and social activity on the health and well-being of socially isolated older people: Outcomes from a multi-method observational study. The Journal of the Royal Society for the Promotion of Health, 126, 134–142. doi:10.1177/1466424006064303
   PubMedGoogle Scholar
• Hammar, L. M., Götell, E., & Engström, G. (2011). Singing while caring for persons with dementia. Arts & Health, 3, 39–50. doi:10.1080/17533015.2010.481289
   Google Scholar
• Hasselkus, B. R., & Murray, B. J. (2007). Everyday occupation, well-being, and identity: The experience of caregivers in families with dementia. American Journal of Occupational Therapy, 61, 9–20. doi:10.5014/ajot.61.1.9
   PubMed Web of Science ®Google Scholar
• Lightsey, O. R. (2006). Resilience, meaning, and well-being. The Counseling Psychologist, 34, 96–107. doi:10.1177/0011000005282369
   Web of Science ®Google Scholar
• Losada, A., Pérez-Peñaranda, A., Rodriguez-Sanchez, E., Gomez-Marcos, M. A., Ballesteros-Rios, C., Ramos-Carrera, I.R., … Garcia-Ortiz, L. (2010). Leisure and distress in caregivers for elderly patients. Archives of Gerontology and Geriatrics, 50, 347–350. doi:10.1016/j.archger.2009.06.001
   PubMed Web of Science ®Google Scholar
• Malchiodi, C. A., & Rozum, A. L. (2012). Cognitive-behavioral and mind-body approaches. In C. Malchiodi (Ed.), Handbook of art therapy (pp. 89–103). New York, NY: Guilford Press.
   Google Scholar
• McGuigan, K. A., Legget, J. A., & Horsburgh, M. (2015). Visiting the museum together: Evaluating a programme at Auckland Museum for people living with dementia and their carers. Arts & Health, 7, 261–270. doi:10.1080/17533015.2015.1045531
   Web of Science ®Google Scholar
• Newbronner, L., Chamberlain, R., Borthwick, R., Baxter, M., & Glendinning, C. (2013). A road less rocky: Supporting carers of people with dementia. Research Report. London: Carers Trust. Retrieved from http://php.york.ac.uk/inst/spru/pubs/2639/
   Google Scholar
• Nolan, M., Ingram, P., & Watson, R. (2002). Working with family carers of people with dementia: ‘Negotiated’ coping as an essential outcome. Dementia, 1, 75–93. doi:10.1177/147130120200100104
   Google Scholar
• O’Shaughnessy, M., Lee, K., & Lintern, T. (2010). Changes in the couple relationship in dementia care: Spouse carers’ experiences. Dementia, 9, 237–258. doi:10.1177/1471301209354021
   Google Scholar
• O’Dwyer, S., Moyle, W., & Van Wyk, S. (2013). Suicidal ideation and resilience in family carers of people with dementia: A pilot qualitative study. Aging & Mental Health, 17, 753–760. doi:10.1080/13607863.2013.789001
   PubMed Web of Science ®Google Scholar
• Pickard, S., Shaw, S., & Glendinning, C. (2000). Health care professionals’ support for older carers. Ageing and Society, 20, 725–744. Retrieved from http://journals.cambridge.org/action/displayAbstract?fromPage=online&aid=68945&fulltextType=RA&fileId=S0144686X0100799110.1017/S0144686X01007991
   Web of Science ®Google Scholar
• Pienaar, L., & Reynolds, F. (2015). ‘A respite thing’: A qualitative study of a creative arts leisure programme for family caregivers of people with dementia. Health Psychology Open, 2, 2055102915581563. doi:10.1177/2055102915581563
   Google Scholar
• Pinquart, M., & Sörensen, S. (2007). Correlates of physical health of informal caregivers: A meta-analysis. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 62, P126–P137. Retrieved from http://psychsocgerontology.oxfordjournals.org/content/62/2/P126.full10.1093/geronb/62.2.P126
   PubMed Web of Science ®Google Scholar
• Reynolds, F. (2010). ‘Colour and communion’: Exploring the influences of visual art-making as a leisure activity on older women’s subjective well-being. Journal of Aging Studies, 24, 135–143. doi:10.1016/j.jaging.2008.10.004
   Web of Science ®Google Scholar
• Reynolds, F., & Prior, S. (2006). Creative adventures and flow in art-making: A qualitative study of women living with cancer. The British Journal of Occupational Therapy, 69, 255–262. doi:10.1177/030802260606900603
   Google Scholar
• Robinson, L., Clare, L., & Evans, K. (2005). Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples. Aging & Mental Health, 9, 337–347. doi:10.1080/13607860500114555
   PubMed Web of Science ®Google Scholar
• Schoenmakers, B., Buntinx, F., & Delepeleire, J. (2010). Factors determining the impact of care-giving on caregivers of elderly patients with dementia: A systematic literature review. Maturitas, 66, 191–200. doi:10.1016/j.maturitas.2010.02.009
   PubMed Web of Science ®Google Scholar
• Schumacher, L. A. P., MacNeill, R., Mobilily, K., Teague, M., & Butcher, H. (2012). The leisure journeys for sandwich generation caregivers. Therapist Recreation Journal, 46, 42–59. Retrieved from http://js.sagamorepub.com/trj/article/view/2548
   Google Scholar
• Searson, R., Hendry, A. M., Ramachandran, R., Burns, A., & Purandare, N. (2008). Activities enjoyed by patients with dementia together with their spouses and psychological morbidity in carers. Aging and Mental Health, 12, 276–282. doi:10.1080/13607860801956977
   PubMed Web of Science ®Google Scholar
• Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. London: Sage.
   Google Scholar
• Sörensen, S., Duberstein, P., Gill, D., & Pinquart, M. (2006). Dementia care: Mental health effects, intervention strategies, and clinical implications. The Lancet Neurology, 5, 961–973. doi:10.1016/S1474-4422(06)70599-3
   PubMed Web of Science ®Google Scholar
• Srikanth, S., Nagaraja, A. V., & Ratnavalli, E. (2005). Neuropsychiatric symptoms in dementia – frequency, relationship to dementia severity and comparison in Alzheimer’s disease, vascular dementia and frontotemporal dementia. Journal of the Neurological Sciences, 236, 43–48. doi:10.1016/j.jns.2005.04.014
   PubMed Web of Science ®Google Scholar
• Steinberg, M., Shao, H., Zandi, P., Lyketsos, C. G., Welsh-Bohmer, K. A., Norton, M. C., … Cache County Investigators. (2008). Point and 5-year period prevalence of neuropsychiatric symptoms in dementia: The Cache County study. International Journal of Geriatric Psychiatry, 23, 170–177. doi:10.1002/gps.1858
   PubMed Web of Science ®Google Scholar
• Van Lith, T., Fenner, P., & Schofield, M. (2011). The lived experience of art making as a companion to the mental health recovery process. Disability and Rehabilitation, 33, 652–660. doi:10.3109/09638288.2010.505998
   PubMed Web of Science ®Google Scholar
• Vikström, S., Josephsson, S., Stigsdotter-Neely, A., & Nygard, L. (2008). Engagement in activities: Experiences of persons with dementia and their caregiving spouses. Dementia, 7, 251–270. doi:10.1177/1471301208091164
   Google Scholar
• Wiles, J. (2003). Daily geographies of caregivers: Mobility, routine, scale. Social Science & Medicine, 57, 1307–1325. doi:10.1016/S0277-9536(02)00508-7
   PubMed Web of Science ®Google Scholar
• Zeilig, H. (2016). Mark making: Methodologies and methods (innovative practice). Dementia, 15, 1295–1305. doi:10.1177/1471301215595926
   PubMedGoogle Scholar