Promoting well-being among people with early-stage dementia and their family carers through community-based group singing: a phenomenological study

References

• Ascenso, S., Perkins, R., Atkins, L., Fancourt, D., & Williamon, A. (2018). Promoting well- being through group drumming with mental health service users and their carers. International Journal of Qualitative Studies on Health and Well-being, 13(1), 1484219. https://doi.org/https://doi.org/10.1080/17482631.2018.1484219
   PubMed Web of Science ®Google Scholar
• Blackburn, R., & Bradshaw, T. (2014). Music therapy for service users with dementia: A critical review of the literature. Journal of Psychiatric and Mental Health Nursing, 21(10), 879–888. https://doi.org/https://doi.org/10.1111/jpm.12165
   PubMed Web of Science ®Google Scholar
• Bowell, S., & Bamford, S. M. (2018). What would life be - without a song or dance, what are we? A report from the commission on dementia and music. International Longevity Centre.
   Google Scholar
• Brocki, J. M., & Wearden, A. J. (2006). A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology. Psychology and Health, 21(1), 87–108. https://doi.org/https://doi.org/10.1080/14768320500230185
   Web of Science ®Google Scholar
• Camic, P. M., Williams, C. M., & Meeten, F. (2011). Does a ‘Singing Together Group’ improve the quality of life of people with a dementia and their carers? A pilot evaluation study. Dementia, 12(2), 157–176.https://doi.org/https://doi.org/10.1177/1471301211422761
   PubMedGoogle Scholar
• Cho, H. K. (2018). The effects of music therapy-singing group on quality of life and affect of persons with dementia: A randomized controlled trial. Frontiers in Medicine, 5, 279. https://doi.org/https://doi.org/10.3389/fmed.2018.00279
   Web of Science ®Google Scholar
• Clark, I. N., Tamplin, J. D., & Baker, F. A. (2018). Community-dwelling people living with dementia and their family caregivers experience enhanced relationships and feelings of well-being following therapeutic group singing: A qualitative thematic analysis. Frontiers in Psychology, 9, 1332. https://doi.org/https://doi.org/10.3389/fpsyg.2018.01332
   PubMed Web of Science ®Google Scholar
• Cridland, E. K., Phillipson, L., Brennan-Horley, C., & Swaffer, K. (2016). Reflections and recommendations for conducting in-depth interviews with PLWD. Qualitative Health Research, 26(13), 1774–1786. https://doi.org/https://doi.org/10.1177/1049732316637065
   PubMed Web of Science ®Google Scholar
• Dementia. (2019, September 19). Retrived from: https://www.who.int/news-room/fact-sheets/detail/dementia
   Google Scholar
• Dickinson, C., Dow, J., Gibson, G., Hayes, L., Robalino, S., & Robinson, L. (2017).Psychosocial intervention for carers of PLWD: What components are most effective and when? A systematic review of systematic reviews. International Psychogeriatrics, 29(1), 31–43. https://doi.org/https://doi.org/10.1017/S1041610216001447
   PubMed Web of Science ®Google Scholar
• Draper, B. (2013). Understanding Alzheimer’s disease and other dementias. Jessica Kingsley Publishers.
   Google Scholar
• Dyer, S. M., Harrison, S. L., Laver, K., & Whitehead, C. (2018). An overview of systematic reviews of pharmacological and non-pharmacological interventions for the treatment of behavioural and psychological symptoms of dementia. International Psychogeriatrics, 30(3), 295–309. https://doi.org/https://doi.org/10.1017/S1041610217002344
   PubMed Web of Science ®Google Scholar
• Elliott, R., Fischer, C. T., & Rennie, D. L. (1999). Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38(3), 215–229. https://doi.org/https://doi.org/10.1348/014466599162782
   PubMed Web of Science ®Google Scholar
• Ennis, G. E., Hess, T. M., & Smith, B. T. (2013). The impact of age and motivation on cognitive effort: Implications for cognitive engagement in older adulthood. Psychology and Aging, 28(2), 495–504. https://doi.org/https://doi.org/10.1037/a0031255
   PubMed Web of Science ®Google Scholar
• Fang, R., Ye, S., Huangfu, J., & Calimag, D. P. (2017). Music therapy is a potential intervention for cognition of Alzheimer’s disease: A mini-review. Translational Neurodegeneration, 6(1), 2. https://doi.org/https://doi.org/10.1186/s40035-017-0073-9
   PubMed Web of Science ®Google Scholar
• Hallam, S., Creech, A., McQueen, H., Varvarigou, M., & Gaunt, H. (2016). The facilitator of community music-making with older learners: Characteristics, motivations and challenges. International Journal of Music Education, 34(1), 19–31. https://doi.org/https://doi.org/10.1177/0255761415617039
   Web of Science ®Google Scholar
• Harman, G., & Clare, L. (2006). Illness representations and lived experience in early-stage dementia. Qualitative Health Research, 16(4), 484–502. https://doi.org/https://doi.org/10.1177/1049732306286851
   PubMed Web of Science ®Google Scholar
• Innes, A., Szymczynska, P., & Stark, C. (2014). Dementia diagnosis and post-diagnostic support in Scottish rural communities: Experiences of people with dementia and their families. Dementia, 13(2), 233–247. https://doi.org/https://doi.org/10.1177/1471301212460608
   PubMedGoogle Scholar
• Keyes, C. L. M. (1998). Social well-being. Social Psychology Quarterly, 61(2), 121–140. https://doi.org/https://doi.org/10.2307/2787065
   Web of Science ®Google Scholar
• Keyes, C. L. M. (2002). The mental health continuum: From languishing to flourishing in life. Journal of Health and Social Behavior, 43(2), 207–222. https://doi.org/https://doi.org/10.2307/3090197
   PubMed Web of Science ®Google Scholar
• Lloyd, V., Gatherer, A., & Kalsy, S. (2006). Conducting qualitative interview research with people with expressive language difficulties. Qualitative Health Research, 16(10), 1386–1404. https://doi.org/https://doi.org/10.1177/1049732306293846
   PubMed Web of Science ®Google Scholar
• McDermott, O., Crellin, N., Ridder, H. M., & Orrell, M. (2013). Music therapy in dementia: A narrative synthesis systematic review. International Journal of Geriatric Psychiatry, 28(8), 781–794. https://doi.org/https://doi.org/10.1002/gps.3895
   PubMed Web of Science ®Google Scholar
• Medvedev, O. N., & Landhuis, C. E. (2018). Exploring constructs of well-being, happiness and quality of life. Peer Journal, 6, e4903. https://doi.org/https://doi.org/10.7717/peerj.4903
   PubMed Web of Science ®Google Scholar
• Mittelman, M. S., & Papayannopoulou, P. M. (2018). The unforgettables: A chorus for people with dementia with their family members and friends. International Psychogeriatrics, 30(6), 779–789. https://doi.org/https://doi.org/10.1017/S1041610217001867
   PubMed Web of Science ®Google Scholar
• Moreno-Morales, C., Calero, R., Moreno-Morales, P., & Pintado, C. (2020). Music therapy in the treatment of dementia: A systematic review and meta-analysis. Frontiers in Medicine, 7,160. https://doi.org/https://doi.org/10.3389/fmed.2020.00160
   Google Scholar
• Moss, H. (2016). Arts and health: A new paradigm. Voices: A World Forum for Music Therapy, 16(3), 1–16. https://doi.org/https://doi.org/10.15845/voices.v16i3
   Google Scholar
• Moss, H., & O’Neill, D. (2009). What training do artists need to work in healthcare settings? Medical Humanities, 35(2), 101–105. https://doi.org/https://doi.org/10.1136/jmh.2009.001792
   PubMed Web of Science ®Google Scholar
• Osman, S. E., Tischler, V., & Schneider, J. (2016). ‘Singing for the Brain’: A qualitative study exploring the health and well-being benefits of singing for people with dementia and their carers. Dementia, 15(15),1326–1339. https://doi.org/https://doi.org/10.1177/1471301214556291
   PubMedGoogle Scholar
• Ryff, C. (1989). Happiness is everything, or is it? Explorations on the meaning of psychological well-being. Journal of Personality and Social Psychology, 57(6), 1069–1081. https://doi.org/https://doi.org/10.1037/0022-3514.57.6.1069
   Web of Science ®Google Scholar
• Särkämö, T. (2017). Music for the ageing brain: Cognitive, emotional, social, and neural benefits of musical leisure activities in stroke and dementia. Dementia, 17(6), 670–685.https://doi.org/https://doi.org/10.1177/1471301217729237
   Google Scholar
• Särkämö, T., Tervaniemi, M., Laitinen, S., Numminen, A., Kurki, M., Johnson, J. K., & Rantanen, P. (2014). Cognitive, emotional, and social benefits of regular musical activities in early dementia: Randomized controlled study. The Gerontologist, 54(4), 634–650.https://doi.org/https://doi.org/10.1093/geront/gnt100
   Google Scholar
• Seligman, M. (2011). Flourish: A visionary new understanding of happiness and well-being. Free Press.
   Google Scholar
• Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method, & research. SAGE Publications, Inc.
   Google Scholar
• Steptoe, A., Deaton, A., & Stone, A. A. (2015). Subjective wellbeing, health, and ageing. The Lancet, 385 (9968), 640–648. https://doi.org/https://doi.org/10.1016/S0140-6736(13)61489-0
   PubMed Web of Science ®Google Scholar
• Tamplin, J., Clark, I. N., Lee, Y. E. C., & Baker, F. A. (2018). Remini-Sing: A feasibility study of therapeutic group singing to support relationship quality and wellbeing for community-dwelling people living with dementia and their family caregivers. Frontiers in Medicine, 5, 245. https://doi.org/https://doi.org/10.3389/fmed.2018.00245
   Google Scholar
• Teahan, Á., Lafferty, A., McAuliffe, E., Phelan, A., O’Sullivan, L., O’Shea, D., Nicholson, E., & Fealy, G. (2020). Psychosocial interventions for family carers of PLWD: A systematic review and meta-analysis. Journal of Aging and Health, 1–16. https://doi.org/https://doi.org/10.1177/0898264319899793
   Google Scholar
• Thomas, K. S., Baier, R., Kosar, C., Ogarek, J., Trepman, A., & Mor, V. (2017). Individualized music program is associated with improved outcomes for U.S. nursing home residents with dementia. American Journal of Geriatric Psychiatry, 25(9), 931–938. https://doi.org/https://doi.org/10.1016/j.jagp.2017.04.008
   PubMed Web of Science ®Google Scholar
• Tsekleves, E., Bingley, A. F., Luján Escalante, M. A., & Gradinar, A. (2020). Engaging people with dementia in designing playful and creative practices: Co-design or co-creation? Dementia, 19(3), 915–931. https://doi.org/https://doi.org/10.1177/1471301218791692
   PubMedGoogle Scholar
• van der Steen, J. T., Smaling, H. J. A., van der Wouden, J. C., Bruinsma, M. S., Scholten, R. J. P. M., & Vink, A. C. (2018). Music-based therapeutic interventions for people with dementia. Cochrane Database of Systematic Reviews, 7(CD003477), 1–120. https://doi.org/https://doi.org/10.1002/14651858.CD003477.pub4
   Google Scholar
• Victor, C. R., Rippon, I., Quinn, C., Nelis, S. M., Martyr, A., Hart, N., Lamont, R., & Clare, L. (2020). The prevalence and predictors of loneliness in caregivers of people with dementia: Findings from the IDEAL programme. Aging & Mental Health, 1–7. https://doi.org/https://doi.org/10.1080/13607863.2020.1753014
   Google Scholar
• Walsh, K. A., O’Regan, N. A., Byrne, S., Browne, J., Meagher, D. J., & Timmons, S. (2016). Patterns of psychotropic prescribing and polypharmacy in older hospitalized patients in Ireland: The influence of dementia on prescribing. International Psychogeriatrics, 28(11), 1807–1820. https://doi.org/https://doi.org/10.1017/S1041610216001307
   PubMed Web of Science ®Google Scholar
• Westerhof, G. J., & Keyes, C. L. M. (2010). Mental illness and mental health: The two continua model across the lifespan. Journal of Adult Development, 17(2), 110–119.https://doi.org/https://doi.org/10.1007/s10804-009-9082-y
   PubMed Web of Science ®Google Scholar
• Yardley, L. (2000). Dilemmas in qualitative health research. Psychology & Health, 15(2), 215–228. https://doi.org/https://doi.org/10.1080/08870440008400302
   Web of Science ®Google Scholar