Initial development of the Health Literacy and Resiliency Scale: Youth version

References

• Shaw SR, Glaser SE, Stern M, Sferdenschi C, McCabe, P. Responding to students’ chronic illness. Princ Leader 2010;10:12–6.
   Google Scholar
• Pulcini CD, Zima B, Kelleher K, Houtrow AJ. National trends in prevalence and comorbid chronic conditions among children with asthma, autism spectrum disorder, and attention deficit hyperactivity disorder. Poster session presented at the Pediatric Academic Societies Meeting; 2016 May; Baltimore, MD.
   Google Scholar
• Taylor RM, Gibson F, Franck LS. The experience of living with a chronic illness during adolescence: a critical review of the literature. J Clin Nurs 2008;17(23):3083–91. doi: 10.1111/j.1365-2702.2008.02629.x
   PubMed Web of Science ®Google Scholar
• Power T, Bradley-Klug KL. Pediatric school psychology: conceptualization, applications, and strategies for leadership development. New York: Routledge; 2013.
   Google Scholar
• Selden CR, Zorn M, Ratzan S, Parker RM. Health literacy: January 1990 through 1999. NLM Publication #CBM2000. National Library of Medicine: Bethesda, MD; 2000 [cited 2016 June 3]. Available from: https://www.nlm.nih.gov/archive/20061214/pubs/cbm/hliteracy.pdf.
   Google Scholar
• Shapiro ER. Chronic illness as a family process: a social-developmental approach to promoting resilience. J Clin Psychol 2002;58:1375–84. doi: 10.1002/jclp.10085
   PubMed Web of Science ®Google Scholar
• Kralik D, van Loon A, Visentin K. Resilience in the chronic illness experience. Edu Action Res 2006;14:187–201. doi: 10.1080/09650790600718035
   Google Scholar
• Prince-Embury S. Introduction to the special issue: assessing resiliency in children and adolescents. J Psychoedu Assess 2010;28:287–90. doi: 10.1177/0734282910366830
   Web of Science ®Google Scholar
• Kickbusch I. Health literacy: an essential skill for the twenty-first century. Health Edu 2008;108:101–4. doi: 10.1108/09654280810855559
   Google Scholar
• Klaczynski PA. Analytic and heuristic processing influences on adolescent reasoning and decision. Child Develop 2001;72:844–61. doi: 10.1111/1467-8624.00319
   PubMed Web of Science ®Google Scholar
• Freebody P, Luke A. Literacites programs: debates and demands in cultural context. Prospect 1990;5:7–16.
   Google Scholar
• Patel V, Goodman A. Researching protective and promotive factors in mental health. Int J Epidemiol 2007;36:703–7. doi: 10.1093/ije/dym147
   PubMed Web of Science ®Google Scholar
• Jenson JM, Fraser MW. A risk and resilience framework for child, youth, and family policy. In: Jenson JM, Fraser MW, (eds.) Social policy for children and families: a risk and resilience perspective. Thousand Oaks, CA: Sage; 1994.
   Google Scholar
• Rew L, Horner SD. Youth Resilience Framework for reducing health-risk behaviors in adolescents. J Pediatric Nurs 2003;18:379–88. doi: 10.1016/S0882-5963(03)00162-3
   PubMedGoogle Scholar
• Heijmans W, Waverijn G, Rademakers J, van der Vaart R, Rijken M. Health literacy: functional communicative and critical health literacy of chronic disease patients and their importance for self-management. Patient Edu Counsel 2015: 9841–8. doi:10.1016/j.pec.2014.10.006.
   Web of Science ®Google Scholar
• Tay L, Tan K, Diener E, Gonzalez E. Social relations, health behaviors, and health outcomes: a survey and synthesis. Appl Psychol Health Well Being 2013;5(1):28–78. doi: 10.1111/aphw.12000
   PubMed Web of Science ®Google Scholar
• Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the patient activation measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Service Res 2004;39(4 Pt 1):1005–26. doi:10.1111/j.1475-6773.2004.00269.
   PubMed Web of Science ®Google Scholar
• Hibbard JH, Greene J. What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. Health Affair 2013;32(2):207–14. doi: 10.1377/hlthaff.2012.1061
   PubMed Web of Science ®Google Scholar
• Dunn SM, Bryson JM, Hoskins PL, Alford JB, Handelsman DJ, Turtle JR. Development of the Diabetes Knowledge (DKN) Scales: forms DKNA, DKNB, and DKNC. Diabetes Care 1984;7:36–41. doi: 10.2337/diacare.7.1.36
   PubMed Web of Science ®Google Scholar
• Baker DW, Asch SM, Keesey JW, Brown JA, Chan KS, Joyce G, et al. Differences in education, knowledge, self-management activities, and health outcomes for patients with heart failure cared for under the chronic disease model: the improving chronic illness care evaluation. J Card Fail 2005;11:405–13. doi: 10.1016/j.cardfail.2005.03.010
   PubMed Web of Science ®Google Scholar
• Arnett JJ. Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol 2000;55:469–80. doi: 10.1037/0003-066X.55.5.469
   PubMed Web of Science ®Google Scholar
• Hendricks MC, Soutor S, Chen R, Morgan K, Powell P, Holmes CS. Psychological adjustment, self-care behaviors, and health status in emerging adults with Type 1 diabetes. Diabetes Care 2008;57:195–202.
   Google Scholar
• Manganello JA, DeVellis RF, Davis TC, Schottler-Thai, C. Development of the Health Literacy Assessment Scale for Adolescents (HAS-A). J Commun Healthcare 2015;0:1–13. doi:10.1179/1753807615Y.0000000016.
   Google Scholar
• Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Ped 2003;3(6):329–41. doi:10/1093/gmo/9781561592630.article.18225.
   PubMedGoogle Scholar
• DeVellis RF. Scale development: theory and applications. Los Angeles: Sage Publications; 2012.
   Google Scholar
• Davis, SL, Morrow, AK. Creating usable assessment tools: A step by step guide to instrument design; 2004. Available from: http://www.jmu.edu/assessment/wm_library/ID_Davis_Morrow_AAHE2004.pdf
   Google Scholar
• Moskowitz JT. Positive affect at the onset of chronic illness: planting the seeds of resilience. In: J.W. Reich, A.J. Zautra, J.S. Hall, (eds.)Handbook of adult resilience. New York: Guilford Press; 2010. p. 465–83.
   Google Scholar
• Jha AK, DesRoches CM, Kralovec PD, Joshi MS. A progress report on electronic health records in U.S. hospitals. Health Affair 2010;29:1951–7. doi: 10.1377/hlthaff.2010.0502
   PubMed Web of Science ®Google Scholar
• Thompson B. Exploratory and confirmatory factor analysis: understanding concepts and applications. Washington (DC): American Psychological Association; 2004.
   Google Scholar
• Costello AB, Osborne JW. Best practices in exploratory factor analysis: four recommendations for getting the most from your analysis. Pract Assess Res Eval 2005;10:1–9.
   Google Scholar
• Ledesma RD, Valero-Mora P. Determining the number of factors to retain in EFA: an easy-to-use computer program for carrying out parallel analysis. Pract Assess, Res Eval 2007;12:1–11.
   Google Scholar
• Compas BE, Jaser SS, Dunn MJ, Rodriguez EM. Coping with chronic illness in childhood and adolescence. Ann Rev Clin Psychol 2012;8:455–80. doi: 10.1146/annurev-clinpsy-032511-143108
   PubMed Web of Science ®Google Scholar