Epilepsy and identity: a linguistic analysis of seizure label semantics

References

• Things not to say to someone with epilepsy [Internet]. BBC Three; 2017 [cited 2017 July 1]. Available from: http://www.bbc.co.uk/bbcthree/item/1bc4433f-acb3-454e-8e3f-d1f80682ddcf
   Google Scholar
• Turning epilepsy on its head [Internet]. Chalfont St Peter: Epilepsy Society; 2017 [cited 2017 July 1]. Available from: https://www.epilepsysociety.org.uk/turning-epilepsy-its-head#.WWJCRIjyuUk
   Google Scholar
• Inappropriate terminology [Internet]. Glasgow: Epilepsy Scotland; 2011 [cited 2017 July 1]. Available from: http://www.epilepsyscotland.org.uk/other/info_148.html
   Google Scholar
• Jacoby A. Labels and lingo in epilepsy: a response to Dr Hatcher. Seizure. 2014;23:409.
   PubMed Web of Science ®Google Scholar
• Noble AJ, Robinson A, Snape D, Marson AG. ‘Epileptic’, ‘epileptic person’ or ‘person with epilepsy’? Bringing quantitative and qualitative evidence on the views of UK patients and carers to the terminology debate. Epilepsy Behav. 2017;67:20–7.
   PubMed Web of Science ®Google Scholar
• Plug L, Sharrack B, Reuber M. Seizure, fit or attack? The use of diagnostic labels by patients with epileptic or non-epileptic seizures. Appl Linguistics. 2010;31:94–114
   Web of Science ®Google Scholar
• Reuber M. “Epileptics”, “people with epilepsy”, “PWE”, “epilepsy patients” – what is the best label? Seizure. 2014;23(5):327.
   PubMed Web of Science ®Google Scholar
• Bucholtz M, Hall K. Language and identity. In: Duranti A, editor. A Companion to linguistic anthropology. London: Blackwell Publishing; 2004. p. 369–94.
   Google Scholar
• Hall JK. Teaching and researching language and culture. 2nd ed. London: Routledge; 2012.
   Google Scholar
• Norris S. The micropolitics of personal national and ethnicity identity. Discourse Soc. 2007;18(5):653–74.
   Web of Science ®Google Scholar
• Baxter J. Positioning language and identity: poststructuralist perspectives. In: The Routledge handbook of language and identity. London: Routledge; 2016. P. 34–49.
   Google Scholar
• Bucholtz M, Hall K. Locating identity in language. In: Llamas C, Watt DJL, editors. Language and identities. Edinburgh: Edinburgh University Press; 2010. p. 18–28.
   Google Scholar
• Jacoby A, Gorry J, Gamble C, Baker GA. Public knowledge, private grief: a study of public attitudes to epilepsy in the United Kingdom and implications for stigma. Epilepsia. 2004;45(11):1405–15.
   PubMed Web of Science ®Google Scholar
• Walton GM, Banaji MR. Being what you say: the effect of essentialist linguistic labels on preferences. Soc Cogn. 2004;22(2):193–213.
   Web of Science ®Google Scholar
• de Boer HM. Epilepsy stigma: moving from a global problem to global solutions. Seizure. 2010;19(10):630–6.
   PubMed Web of Science ®Google Scholar
• Kleinman A, Eisenberg L, Good B. Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research. Ann Intern Med. 1978;88:251–8.
   PubMed Web of Science ®Google Scholar
• Lowe R, Norman P. Information processing in illness representation: implications from an associative-learning framework. Health Psychol. 2017;36(3):280–90.
   PubMed Web of Science ®Google Scholar
• Kim HD, Kang H-C, Lee SA, Huh K, Lee B-I. Changing name of epilepsy in Korea; cerebroelectric disorder (noi-jeon-jeung),뇌전증,腦電症). Epilepsia. 2014;55(3):384–6.
   PubMed Web of Science ®Google Scholar
• Aydemir N, Kaya B, Yıldız G, Öztura İ, Baklan B. Determinants of felt stigma in epilepsy. Epilepsy Behav. 2016;58:76–80.
   PubMed Web of Science ®Google Scholar
• Baker GA, Brooks J, Buck D, Jacoby A. The stigma of epilepsy: a European perspective. Epilepsia. 2000;41(1):98–104.
   PubMed Web of Science ®Google Scholar
• Lim K-S, Tan C-T. Epilepsy stigma in Asia: the meaning and impact of stigma. Neurol Asia. 2014;19(1):1–10.
   Web of Science ®Google Scholar
• Reis R, Meinardi H. Ilae/WHO “Out of the Shadows Campaign” stigma: does the flag identify the cargo? Epilepsy Behav. 2002;3(6):33–7.
   PubMed Web of Science ®Google Scholar
• Scambler G. Epilepsy, stigma and quality of life. Neurol Asia. 2011;16:35–6.
   Web of Science ®Google Scholar
• Goffman E. Stigma: notes on the management of spoiled identity. New York (NY): Simon & Schuster; 1963.
   Google Scholar
• Green S, Davis C, Karshmer E, Marsh P, Straight B. Living stigma: the impact of labeling, stereotyping, separation, status loss, and discrimination in the lives of individuals with disabilities and their families. Sociolog Inquiry. 2005;75(2):197–215.
   Web of Science ®Google Scholar
• Link BG, Phelan JC. Conceptualizing stigma. Ann Rev Sociol. 2001;27:363–85.
   Web of Science ®Google Scholar
• Link BG, Phelan JC. Stigma and its public health implications. Lancet. 2006;367(9509):528–9.
   PubMed Web of Science ®Google Scholar
• Schneider JW, Conrad P. In the closet with illness: epilepsy, stigma potential and information control. Soc Probl. 1980;28(1):32–44
   Web of Science ®Google Scholar
• Jacoby A. Stigma, epilepsy, and quality of life. Epilepsy Behav. 2002;3(6):10–20.
   PubMed Web of Science ®Google Scholar
• Jacoby A, Austin JK. Social stigma for adults and children with epilepsy. Epilepsia. 2007;48:6–9.
   PubMed Web of Science ®Google Scholar
• Fernandes PT, Snape DA, Beran RG, Jacoby A. Epilepsy stigma: what do we know and where next? Epilepsy Behav. 2011;22(1):55–62.
   PubMed Web of Science ®Google Scholar
• Brookes G, Harvey K. Examining the discourse of mental illness in a corpus of online advice-seeking messages. In: Pickering L, Friginal E, Staples S, editors. Talking at work. London: Palgrave Macmillan; 2016. p. 209–34.
   Google Scholar
• Demjén Z. Sylvia plath and the language of affective states: written discourse and the experience of depression. London: Bloomsbury; 2015.
   Google Scholar
• Demjén Z. Laughing at cancer: humour, empowerment, solidarity and coping online. J Pragmat. 2016;101:18–30.
   Web of Science ®Google Scholar
• Demjén Z, Semino E. Henry’s voices: the representation of auditory verbal hallucinations in an autobiographical narrative. Med Human. 2015;41(1):57–62.
   PubMed Web of Science ®Google Scholar
• Demmen J, Semino E, Demjén Z, Koller V, Hardie A, Rayson P, et al. A computer-assisted study of the use of violence metaphors for cancer and end of life by patients, family carers and health professionals. Int J Corpus Linguist. 2015;20(2):205–31.
   Web of Science ®Google Scholar
• Hunt D, Harvey K. Health communication and corpus linguistics: using corpus tools to analyse eating disorder discourse online. In: Baker P, McEnery, T, editors. Corpora and discourse studies: integrating discourse and corpora. London: Palgrave Macmillan; 2015. p. 134–54.
   Google Scholar
• Monzoni C, Reuber M. Conversational displays of coping resources in clinical encounters between patients with epilepsy and neurologists: a pilot study. Epilepsy Behav. 2009;16(4):652–9.
   PubMed Web of Science ®Google Scholar
• Potts A, Semino E. Healthcare professionals’ online use of violence metaphors for care at the end of life in the US: a corpus-based comparison with the UK. Corpora. 2017;12(1):55–84.
   Web of Science ®Google Scholar
• Fisher R, Cross JH, D'Souza C, French JA, Haut SR, Higurashi N, et al. Instruction manual for the ILAE 2017 operational classification of seizure types. Epilepsia. 2017;58(4):531–42.
   PubMed Web of Science ®Google Scholar
• Epilepsy Action: Take part in a research project [Internet]. Leeds: Epilepsy Action; 2017 [cited 2017 Sept 10]. Available from: https://www.epilepsy.org.uk/research/take-part/projects-you-can-take-part-in
   Google Scholar
• Schwabe M, Howell SJ, Reuber M. Differential diagnosis of seizure disorders: a conversation analytic approach. Soc Sci Med. 2007;65(4): 712–24.
   PubMed Web of Science ®Google Scholar
• Baxendale S. Epilepsy at the movies: possession to presidential assassination. Lancet Neurol. 2003;2(12):764–70.
   PubMed Web of Science ®Google Scholar
• Leventhal H, Diefenbach M, Leventhal EA. Illness cognition: using common sense to understand treatment adherence and affect cognition interactions. Cogn Therapy Res. 1992;16(2):143–63.
   Web of Science ®Google Scholar