428
Views
75
CrossRef citations to date
0
Altmetric
Articles

Health-related Internet use by patients with somatic diseases: Frequency of use and characteristics of users

, , , , , , & show all
Pages 18-29 | Published online: 12 Jul 2009

References

  • Kalichman S C, Weinhardt L, Benotsch E, DiFonzo K, Luke W, Austin J. Internet access and Internet use for health information among people living with HIV-AIDS. Patient Education and Counseling 2002; 46: 109–116
  • Baker L, Wagner T H, Singer S, Bundorf M K. Use of the Internet and e-mail for health care information: results from a national survey. Journal of the American Medical Association 2003; 289: 2400–2406
  • Wagner T H, Baker L, Singer S, Bundorf M K. Use of the Internet for health information by the chronically ill. Preventing Chronic Disease 2004; 1: A13
  • Bass S B, Ruzek S B, Gordon T F, Fleisher L, McKeown-Conn N, Moore D. Relationship of Internet health information use with patient behavior and self-efficacy: experiences of newly diagnosed cancer patients who contact the National Cancer Institute's Cancer Information Service. Journal of Health Communication 2006; 11: 219–236
  • van Uden-Kraan C F, Drossaert C HC, Taal E, Shaw B R, Seydel E R, van de Laar M AFJ. Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis and fibromyalgia. Qualitative Health Research 2008; 18: 405–417
  • van Uden-Kraan C F, Drossaert C HC, Taal E, Seydel E R, van de Laar M AFJ. Participation in online patient support groups endorses patients' empowerment. Patient Education Counseling 2009; 74: 61–69
  • van Lankveld W G, Derks A M, van den Hoogen F H. Disease-related use of the Internet in chronically ill adults: current and expected use. Annals of the Rheumatic Diseases 2006; 65: 121–123
  • Suarez-Almazor M E, Kendall C J, Dorgan M. Surfing the net – information on the world wide web for persons with arthritis: patient empowerment or patient deceit. The Journal of Rheumatology 2001; 28: 185–191
  • Statistics Netherlands. CBS statline on the Internet. CBS, Voorburg/Heerlen 2007, Available from: http://statline.cbs.nl/StatWeb/publication/?DM=SLNL&PA=71098ned&D1=33-133&D2=0-2&D3=2&VW=T (accessed 1 August 2008)
  • Fogel J, Albert S M, Schnabel F, Ditkoff B A, Neugut A I. Use of the Internet by women with breast cancer. Journal of Medical Internet Research 2002; 4: e9
  • Mancini J, Noguès C, Adenis C, Berthet P, Bonadona V, Chompret A, Coupier I, Eisinger F, Fricker J P, Gauthier-Villars M, Lasset C, Lortholary A, N'Guyen T D, Vennin P, Sobol H, Stoppa-Lyonnet D, Julian-Reynier C. Patients' characteristics and rate of Internet use to obtain cancer information. Journal of Public Health 2006; 28: 235–237
  • Peterson M W, Fretz P C. Patient use of the Internet for information in a lung cancer clinic. Chest 2003; 123: 452
  • van de Poll-Franse L V, van Eenbergen M C. Internet use by cancer survivors: current use and future wishes. Support Care Cancer 2008; 16: 1189–1195
  • Sabel M S, Strecher V J, Schwartz J L, Wang T S, Karimipour D J, Orringer J S, Johnson T, Bichakjian C K. Patterns of Internet use and impact on patients with melanoma. Journal of the American Academy of Dermatology 2005; 52: 779–785
  • Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L. How the Internet affects patients' experience of cancer: a qualitative study. British Medical Journal 2004; 328: 564
  • Satterlund M J, McCaul K D, Sandgren A K. Information gathering over time by breast cancer patients. Journal of Medical Internet Research 2003; 5: e15
  • Gordon M M, Capell H A, Madhok R. The use of the Internet as a resource for health information among patients attending a rheumatology clinic. Rheumatology 2002; 41: 1402–1405
  • Hay M C, Cadigan R J, Khanna D, Strathmann C, Lieber E, Altman R, McMahon M, Kokhab M, Furst D E. Prepared patients: Internet information seeking by new rheumatology patients. Arthritis and Rheumatism 2008; 59: 575–582
  • Kim H A, Bae Y D, Seo Y I. Arthritis information on the web and its influence on patients and physicians: a Korean study. Clinical and Experimental Rheumatology 2004; 22: 49–54
  • Neame R, Hammond A, Deighton C. Need for information and for involvement in decision making among patients with rheumatoid arthritis: a questionnaire survey. Arthritis and Rheumatism 2005; 53: 249–255
  • Richter J G, Becker A, Specker C, Monser R, Schneider M. [Disease-oriented Internet use in outpatients with inflammatory rheumatic diseases]. Zeitschrift fur Rheumatologie 2004; 63: 216–222, [Article in German]
  • Eysenbach G. Patient-to-patient communication: support groups and virtual communities. Consumer health informatics, D Lewis, G Eysenbach, R Kukafka, P Z Stavri, H Jimison. Springer, New York 2005; 97–106, Informing consumers and improving health care
  • Klemm P, Hardie T. Depression in Internet and face-to-face cancer support groups: a pilot study. Oncology Nursing Forum 2002; 29: E45–E51
  • Bjornsdottir G. Online social support for individuals concerned with heart disease: observing gender differences. Proceedings/AMIA Symposium … Annual Symposiium 1999; 681–5
  • Klemm P, Reppert K, Visich L. A nontraditional cancer support group. The Internet. Computers in Nursing 1998; 16: 31–36
  • van Uden-Kraan C F, Drossaert C HC, Taal E, Lebrun C EI, Drossaers-Bakker K W, Smit W M, Seydel E R, van de Laar M AFJ. Coping with somatic illnesses in online support groups. Do the feared disadvantages actually occur?. Computers in Human Behaviour 2008; 24: 309–324
  • Dickerson S, Reinhart A M, Feeley T H, Bidani R, Rich E, Garg V K, Hershey C O. Patient Internet use for health information at three urban primary care clinics. Journal of the American Medical Informatics Association 2004; 11: 499–504
  • Kalichman S C, Cain D, Cherry C, Pope H, Eaton L, Kalichman M O. Internet use among people living with HIV/AIDS: coping and health-related correlates. AIDS Patient Care and STDS 2005; 19: 439–448
  • Houston T K, Allison J J. Users of Internet health information: differences by health status. Journal of Medical Internet Research 2002; 4: E7
  • Kalichman S C, Benotsch E G, Weinhardt L, Austin J, Luke W, Cherry C. Health-related Internet use, coping, social support, and health indicators in people living with HIV/AIDS: preliminary results from a community survey. Health Psychology 2003; 22: 111–116
  • Fogel J, Albert S M, Schnabel F, Ditkoff B A, Neugut A I. Internet use and social support in women with breast cancer. Health Psychology 2002; 21: 398–404
  • Fogel J. Internet breast health information use and coping among women with breast cancer. Cyberpsychology and Behaviour 2004; 7: 59–63
  • Ware J E, Kosinski M, Turner-Bowker D M, Gandek B. How to score version 2 of the SF-12® health survey. QualityMetric Incorporated, Lincoln, RI 2002
  • de Jong-Gierveld J, van Tilburg T. A six-item scale for overall, emotional and social loneliness: confirmatory tests on survey data. Research Aging 2006; 28: 582–598
  • van Sonderen F LP. Het meten van sociale steun met de Sociale Steun Lijst-Interacties (SSL-I) en Sociale Steun Lijst Discrepanties (SSL-D): een handleiding. Noordelijk Centrum voor Gezondheidsvraagstukken, Rijksuniversiteit Groningen, Groningen 1993
  • Evers A WM, Kraaimaat F W, van Lankveld W, Jongen P JH, Jacobs J WG, Bijlsma J WJ. Beyond unfavorable thinking: the illness cognition questionnaire for chronic diseases. Journal of Consulting and Clinical Psychology 2001; 69: 1026–1036
  • Moss-Morris R, Weinman J, Petrie K J, Horne R, Cameron L D, Buick D. The revised illness perception questionnaire (IPQ-R). Psychology and Health 2002; 17: 1–16
  • Suurmeijer T PBM, Reuvekamp M F, Aldenkamp B P, Overweg J, Gie Sie O. Quality of life in epilepsy: multidimensional profile and underlying latent dimensions. Journal of Epilepsy 1998; 11: 84–97
  • Eysenbach G, Medicine 2.0 congress website launched (and: definition of medicine 2.0 / health 2.0). Posted at: Gunther Eysenbach's random research rants (Blog). Available from: http://gunther-eysenbach.blogspot.com/2008/03/medicine-20-congress-website-launched.html (accessed 18 August 2008)
  • Eysenbach G. Medicine 2.0: Social networking, collaboration, participation, apomediation, and openness. Journal of Medical Internet Research 2008; 10: e22
  • van Uden-Kraan C F, Drossaert C HC, Taal E, Smit W M, Bernelot Moens H J, van de Laar M AFJ. Determinants of engagement in face-to-face and online patient support groups. Online peer support for patients with somatic diseases, CF van Uden-Krnan. University of Twede, Enschede 2008; 117–140
  • Sands D Z. Electronic patient-centered communication: e-mail and other e-ways to communicate clinically. Consumer health informatics, D Lewis, G Eysenbach, R Kukafka, P Z Stavri, H Jimison. Springer, New York 2005; 107–121, Informing consumers and improving health care
  • Nijland N, van Gemert-Pijnen J EWC, Kelders S, Mol R, Hennemann G. Huisarts loopt nog niet warm voor e-consult. Medisch Contact 2008; 63: 202
  • Statistics Netherlands. CBS statline on the Internet. CBS, Voorburg/Heerlen 2007, Available from: http://www.cbs.nl/nl-NL/menu/themas/vrije-tijd-cultuur/publicaties/artikelen/archief/2008/2008-2397-wm.htm (accessed 1 August 2008)
  • Leimeister J M, Ebner W, Krcmar H. Design, implementation and evaluation of trust-supporting components in virtual communities for patients. Journal of Management Information Systems 2005; 21: 101–136
  • Frost J H, Massagli M P. Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data. Journal of Medical Internet Research 2008; 10: e15
  • Eysenbach G. The impact of the Internet on cancer outcomes. CA: a cancer journal for clinicans 2003; 53: 356–371

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.