“Many wasted months”: Stakeholders’ perspectives about waiting for speech-language pathology services

References

• Austin, H. (2019, March 9). Speech therapy lottery leaves a million children languishing on waiting lists. Mirror Online. Retrieved from https://www.mirror.co.uk/news/politics/speech-therapy-lottery-leaves-million-14110846?utm_source=twitter.com&utm_medium=social&utm_campaign=sharebar
   Google Scholar
• Baxter, P., & Jack, S. (2008). Qualitative case study methodology: Study design and implementation for novice researchers. Qualitative Report, 13, 544–559.
   Google Scholar
• Bleustein, C., Rothschild, D.B., Valen, A., Valatis, E., Schweitzer, L., & Jones, R. (2014). Wait times, patient satisfaction scores, and the perception of care. American Journal of Managed Care, 20, 393–400.
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. doi:10.1191/1478088706qp0630a
   Google Scholar
• Burnard, P., Edwards, D., Fothergill, A., Hannigan, B., & Coyle, D. (2000). Community mental health nurses in Wales: Self-reported stressors and coping strategies. Journal of Psychiatric and Mental Health Nursing, 7, 523–528. doi:10.1046/j.1365-2850.2000.00351.x
   PubMedGoogle Scholar
• Burns, C.L., Wishart, L.R., Kularatna, S., & Ward, E.C. (2020). Knowing the costs of change: An introduction to health economic analyses and considerations for their use in implementation research. Speech, Language and Hearing, 23, 30–36. doi:10.1080/2050571X.2019.1693750
   Web of Science ®Google Scholar
• Commonwealth of Australia. (2014). Senate Community Affairs References Committee: Prevalence of different types of speech, language and communication disorders and speech pathology services in Australia. Canberra, Australia: Commonwealth of Australia.
   Google Scholar
• Dew, A., Bulkeley, K., Veitch, C., Bundy, A., Gallego, G., Lincoln, M., … Griffiths, S. (2013). Addressing the barriers to accessing therapy services in rural and remote areas. Disability and Rehabilitation, 35, 1564–1570. doi:10.3109/09638288.2012.720346
   PubMed Web of Science ®Google Scholar
• Edgar, D.L., & Rosa-Lugo, L.I. (2007). The critical shortage of speech-language pathologists in the public school setting: Features of the work environment that affect recruitment and retention. Language, Speech, and Hearing Services in Schools, 38, 31–46. doi:10.1044/0161-1461(2007/004)
   PubMed Web of Science ®Google Scholar
• Eltringham, S.A., Smith, C.J., Pownall, S., Sage, K., & Bray, B. (2019). Variation in dysphagia assessment and management in acute stroke: An interview study. Geriatrics, 4, 60. doi:10.3390/geriatrics4040060
   PubMed Web of Science ®Google Scholar
• Feldman, D.E., Champagne, F., Korner-Bitensky, N., & Meshefedjian, G. (2002). Waiting time for rehabilitation services for children with physical disabilities. Child: Care, Health and Development, 28, 351–358. doi:10.1046/j.1365-2214.2002.00284.x
   PubMed Web of Science ®Google Scholar
• Fogarty, C., & Cronin, P. (2008). Waiting for healthcare: A concept analysis. Journal of Advanced Nursing, 61, 463–471. doi:10.1111/j.1365-2648.2007.04507.x
   PubMed Web of Science ®Google Scholar
• Førde, R., & Aasland, O.G. (2008). Moral distress among Norwegian doctors. Journal of Medical Ethics, 34, 521–525. doi:10.1136/jme.2007.021246
   PubMed Web of Science ®Google Scholar
• Foxe, K. (2019, April 19). ‘Nobody seems to care’: Why some children face years of waiting for ‘early intervention’. TheJournal.ie. Retrieved from https://www.thejournal.ie/early-intervention-delays-ireland-4594895-Apr2019/
   Google Scholar
• Gallego, G., Dew, A., Lincoln, M., Bundy, A., Chedid, R.J., Bulkeley, K., … Veitch, C. (2017). Access to therapy services for people with disability in rural Australia: A carers’ perspective. Health and Social Care in the Community, 25, 1000–1010. doi:10.1111/hsc.12399
   PubMed Web of Science ®Google Scholar
• Giske, T., & Gjengedal, E. (2007). ‘Preparative waiting’ and coping theory with patients going through gastric diagnosis. Journal of Advanced Nursing, 57, 87–94. doi:10.1111/j.1365-2648.2006.04082.x
   PubMed Web of Science ®Google Scholar
• Glogowska, M., & Campbell, R. (2000). Investigating parental views of involvement in pre-school speech and language therapy. International Journal of Language and Communication Disorders, 35, 391–405. doi:10.1080/136828200410645
   PubMed Web of Science ®Google Scholar
• Harris, S.F., Prater, M.A., Dyches, T.T., & Heath, M.A. (2009). Job stress of school-based speech-language pathologists. Communication Disorders Quarterly, 30, 103–111. doi:10.1177/1525740108323856
   Google Scholar
• Heritage, B., Quail, M., & Cocks, N. (2019). How important is embeddedness in predicting Australian speech-language pathologists’ intentions to leave their jobs and the profession?. International Journal of Speech-Language Pathology, 21, 189–200. doi:10.1080/17549507.2018.1441439
   PubMed Web of Science ®Google Scholar
• Hutton, B. (2019, May 4). 100,000 waiting for speech and language therapy, OT or physio. The Irish Times. Retrieved from https://www.irishtimes.com/news/health/100-000-waiting-for-speech-and-language-therapy-ot-or-physio-1.3881510
   Google Scholar
• I CAN & The Royal College of Speech and Language Therapists. (2018). Bercow: Ten years on. Retrieved from https://www.bercow10yearson.com/wp-content/uploads/2018/03/337644-ICAN-Bercow-Report-WEB.pdf
   Google Scholar
• Johnson, C.J., Beitchman, J.H., & Brownlie, E.B. (2010). Twenty-year follow-up of children with and without speech-language impairments: Family, educational, occupational, and quality of life outcomes. American Journal of Speech-Language Pathology, 19, 51–65. doi:10.1044/1058-0360(2009/08-0083)
   PubMed Web of Science ®Google Scholar
• Kenny, B., & Lincoln, M. (2012). Sport, scales, or war? Metaphors speech-language pathologists use to describe caseload management. International Journal of Speech-Language Pathology, 14, 247–259. doi:10.3109/17549507.2012.651747
   PubMed Web of Science ®Google Scholar
• Kenny, B., Lincoln, M., & Balandin, S. (2010). Experienced speech-language pathologists’ responses to ethical dilemmas: An integrated approach to ethical reasoning. American Journal of Speech-Language Pathology, 19, 121–134. doi:10.1044/1058-0360(2009/08-0007)
   PubMed Web of Science ®Google Scholar
• Law, J., Zeng, B., Lindsay, G., & Beecham, J. (2012). Cost-effectiveness of interventions for children with speech, language and communication needs (SLCN): A review using the Drummond and Jefferson (1996) ‘Referee’s Checklist’. International Journal of Language and Communication Disorders, 47, 1–10. doi:10.1111/j.1460-6984.2011.00084.x
   PubMed Web of Science ®Google Scholar
• Longfield, A. (2019). We need to talk: Access to speech and language therapy. London, UK: Children’s Commissioner for England. Retrieved from https://www.childrenscommissioner.gov.uk/wp-content/uploads/2019/06/cco-we-need-to-talk-june-2019.pdf
   Google Scholar
• Macquarie Dictionary. (2019). The Macquarie Dictionary Online. Retrieved from https://www-macquariedictionary-com-au.ezproxy.csu.edu.au/features/word/search/?search_word_type=Dictionary&word=wait
   Google Scholar
• Marsh, K., Bertranou, E., Suominen, H., & Venkatachalam, M. (2010). An economic evaluation of speech and language therapy. London, UK: Matrix Evidence.
   Google Scholar
• Martin, R.M., Sterne, J.A., Gunnell, D., Ebrahim, S., Davey Smith, G., & Frankel, S. (2003). NHS waiting lists and evidence of national or local failure: Analysis of health service data. British Medical Journal, 326, 188–197. doi:10.1136/bmj.326.7382.188
   PubMed Web of Science ®Google Scholar
• McAllister, L., & Lyons, R. (2019). Ensuring rigour in qualitative research. In L. McAllister & R. Lyons (Eds.), Qualitative research in communication disorders: An introduction for students and clinicians (pp. 267–281). Surrey, UK: J & R Press.
   Google Scholar
• McAllister, L., McCormack, J., McLeod, S., & Harrison, L.J. (2011). Expectations and experiences of accessing and participating in services for childhood speech impairment. International Journal of Speech-Language Pathology, 13, 251–267. doi:10.3109/17549507.2011.535565
   PubMed Web of Science ®Google Scholar
• McCartney, E. (2000). Include us out? Speech and language therapists’ prioritization in mainstream schools. Child Language Teaching and Therapy, 16, 165–180. doi:10.1177/026565900001600204
   Google Scholar
• McCormack, J., Baker, E., & Crowe, K. (2018). The human right to communicate and our need to listen: Learning from people with a history of childhood communication disorder. International Journal of Speech-Language Pathology, 20, 142–151. doi:10.1080/17549507.2018.1397747
   PubMed Web of Science ®Google Scholar
• McCormack, J., Baker, E., Masso, S., Crowe, K., McLeod, S., Wren, Y., & Roulstone, S. (2017). Implementation fidelity of a computer-assisted intervention for children with speech sound disorders. International Journal of Speech-Language Pathology, 19, 265–276. doi:10.1080/17549507.2017.1293160
   PubMed Web of Science ®Google Scholar
• McCormack, J., McLeod, S., Harrison, L.J., & McAllister, L. (2010). The impact of speech impairment in early childhood: Investigating parents’ and speech-language pathologists’ perspectives using the ICF-CY. Journal of Communication Disorders, 43, 378–396. doi:10.1016/j.jcomdis.2010.04.009
   PubMed Web of Science ®Google Scholar
• McGill, N., & McLeod, S. (2019). Aspirations for a website to support families’ active waiting for speech-language pathology. International Journal of Speech-Language Pathology, 21, 263–274. doi:10.1080/17549507.2019.1604802
   PubMed Web of Science ®Google Scholar
• McGill, N., McLeod, S., Crowe, K., & Hopf, S.C. (2019). Waiting lists and prioritisation for paediatric speech pathology services: Speech pathologists’ perspectives. Paper presented at Speech Pathology Australia National Conference, Brisbane, Australia.
   Google Scholar
• McGill, N., McLeod, S., Crowe, K., Hopf, S.C., & Wang, C. (2019). Waiting lists and prioritization of children for services: Speech-language pathologists’ perspectives. Manuscript in submission.
   Google Scholar
• McLaughlin, E., Lincoln, M., & Adamson, B. (2008). Speech-language pathologists’ views on attrition from the profession. International Journal of Speech-Language Pathology, 10, 156–168. doi:10.1080/17549500801923310
   PubMed Web of Science ®Google Scholar
• McLeod, S. (2018). Communication rights: Fundamental human rights for all. International Journal of Speech-Language Pathology, 20, 3–11. doi:10.1080/17549507.2018.1428687
   PubMed Web of Science ®Google Scholar
• McLeod, S., Harrison, L.J., & Wang, C. (2019). A longitudinal population study of literacy and numeracy outcomes for children identified with speech, language, and communication needs in early childhood. Early Childhood Research Quarterly, 47, 507–517. doi:10.1016/j.ecresq.2018.07.004
   Web of Science ®Google Scholar
• Miller, A.R., Armstrong, R.W., Mâsse, L.C., Klassen, A.F., Shen, J., & O’Donnell, M.E. (2008). Waiting for child developmental and rehabilitation services: An overview of issues and needs. Developmental Medicine and Child Neurology, 50, 815–821. doi:10.1111/j.1469-8749.2008.03113.x
   PubMed Web of Science ®Google Scholar
• O’Callaghan, A.M., McAllister, L., & Wilson, L. (2005). Barriers to accessing rural paediatric speech pathology services: Health care consumers’ perspectives. Australian Journal of Rural Health, 13, 162–171. doi:10.1111/j.1440-1854.2005.00686.x
   PubMedGoogle Scholar
• QSR International Pty Ltd. (2012). NVivo qualitative data analysis software: Version 11.
   Google Scholar
• Rice, A. (1998). Setting speech and language therapy priorities: Theory and practice. International Journal of Language and Communication Disorders, 33, 90–95. doi:10.3109/13682829809179403
   PubMedGoogle Scholar
• Rittenmeyer, L., Huffman, D., & Godfrey, C. (2012). The experiences of patients, families and/or significant others of waiting when engaging with the healthcare system: A qualitative systematic review. JBI Database of Systematic Reviews and Implementation Reports, 12, 193–258.
   Google Scholar
• Roberts, M.Y., & Kaiser, A.P. (2011). The effectiveness of parent-implemented language interventions: A meta-analysis. American Journal of Speech-Language Pathology, 20, 180–199. doi:10.1044/1058-0360(2011/10-0055)
   PubMed Web of Science ®Google Scholar
• Ruben, R.J. (2000). Redefining the survival of the fittest: Communication disorders in the 21st century. Laryngoscope, 110, 241–245. doi:10.1016/S0165-5876(99)00129-9
   PubMed Web of Science ®Google Scholar
• Ruggero, L., McCabe, P., Ballard, K.J., & Munro, N. (2012). Paediatric speech-language pathology service delivery: An exploratory survey of Australian parents. International Journal of Speech-Language Pathology, 14, 338–350. doi:10.3109/17549507.2011.650213
   PubMed Web of Science ®Google Scholar
• Rvachew, S., & Rafaat, S. (2014). Report on benchmark wait times for pediatric speech sound disorders. Canadian Journal of Speech-Language Pathology and Audiology, 38, 82–96.
   Google Scholar
• Scottish Executive. (2003). A Scottish Executive review of speech and language therapy, physiotherapy and occupational therapy for children and speech and language therapy for adults with learning disabilities and autistic spectrum disorder. Edinburgh, UK: Scottish Executive. Retrieved from https://eresearch.qmu.ac.uk/bitstream/handle/20.500.12289/27/ReviewofSpeech.pdf?sequence=1
   Google Scholar
• Snow, P.C. (2019). Speech-language pathology and the youth offender: Epidemiological overview and roadmap for future speech-language pathology research and scope of practice. Language, Speech, and Hearing Services in Schools, 50, 324–339. doi:10.1044/2018_LSHSS-CCJS-18-0027
   PubMed Web of Science ®Google Scholar
• Speech Pathology Australia. (2012). Dysphagia clinical guidelines. Retrieved from https://www.speechpathologyaustralia.org.au/SPAweb/Members/Clinical_Guidelines/spaweb/Members/Clinical_Guidelines/Clinical_Guidelines.aspx?hkey=f66634e4-825a-4f1a-910d-644553f59140
   Google Scholar
• Tosh, R., Arnott, W., & Scarinci, N. (2017). Parent-implemented home therapy programmes for speech and language: A systematic review. International Journal of Language and Communication Disorders, 52, 253–269. doi:10.1111/1460-6984.12280
   PubMed Web of Science ®Google Scholar
• Verdon, S., Wilson, L., Smith-Tamaray, M., & McAllister, L. (2011). An investigation of equity of rural speech-language pathology services for children: A geographic perspective. International Journal of Speech-Language Pathology, 13, 239–250. doi:10.3109/17549507.2011.573865
   PubMed Web of Science ®Google Scholar
• Xie, Z., & Or, C. (2017). Associations between waiting times, service times, and patient satisfaction in an endocrinology outpatient department: A time study and questionnaire survey. Inquiry: The Journal of Health Care Organization, Provision, and Financing, 54, 1-10. doi:10.1177/0046958017739527
   PubMed Web of Science ®Google Scholar