Individuals With Intellectual Disabilities Who Live With Family and Experience Psychiatric Crisis: Who Uses the Emergency Department and Who Stays Home?

REFERENCES

• Allen , M. H. , Forster , P. , Zealberg , J. and Currier , G. 2002 . Report and recommendations regarding psychiatric emergency and crisis services: A review and model of program description , Arlington, VA : American Psychiatric Association .
   Google Scholar
• Balogh , R. , Hunter , D. and Ouellete-Kuntz , H. 2005 . Hospital utilization among persons with an intellectual disability, Ontario, Canada, 1995-2001 . Journal of Applied Research in Intellectual Disabilities , 18 ( 2 ) : 181 – 190 .
   Google Scholar
• Bradley , E. and Lofchy , J. 2005 . Learning disability in the accident and emergency department . Advances in Psychiatric Treatment , 11 : 345 – 357 .
   Google Scholar
• Carter , G. 1984 . Why are the mentally handicapped admitted to hospital? A ten-year survey . British Journal of Psychiatry , 145 ( 3 ) : 283 – 288 .
   Google Scholar
• Cooper , S. A. , Smiley , E. , Morrison , J. , Williamson , A. and Allen , L. 2007 . Mental-ill health in adults with intellectual disabilities: Prevalence and associated factors . British Journal of Psychiatry , 190 : 27 – 35 .
   Google Scholar
• Cooray , S. E. and Bakala , A. 2005 . Anxiety disorders in people with learning disabilities . Advances in Psychiatric Treatment , 11 : 355 – 361 .
   Google Scholar
• Cowley , A. , Newton , J. , Sturmey , P. , Bouras , N. and Holt , G. 2005 . Psychiatric inpatient admissions of adults with intellectual disabilities: Predictive factors . American Journal of Mental Retardation , 110 : 216 – 225 .
   Google Scholar
• Davidson , P. W. , Cain , N. N. , Sloane-Reeves , J. E. , Van Speybroech , A. , Segel , J. and Gitkin , J. 1994 . Characteristics of community-based individuals with mental retardation and aggressive behavioral disorders . American Journal of Mental Retardation , 98 : 704 – 716 .
   Google Scholar
• Dekker , M. and Koot , H. 2003 . DSM-IV disorders in children with borderline to moderate intellectual disability: II. Child and family predictors . Journal of the American Academy of Child & Adolescent Psychiatry , 42 ( 8 ) : 923 – 931 .
   Google Scholar
• Edelstein , T. M. and Glenwick , D. S. 1997 . Referral reasons for psychological services for adults with mental retardation . Research in Developmental Disabilities , 18 ( 1 ) : 45 – 49 .
   Google Scholar
• Einfeld , S. , Piccinin , A. , Mackinnon , A. , Hofer , S. , Taffe , J. , Gray , K. M. … and Tonge , B. J. 2006 . Psychopathology in young people with intellectual disability . The Journal of the American Medical Association , 296 : 1981 – 1989 .
   Google Scholar
• Elford , H. , Beail , N. and Clarke , Z. 2010 . “A very fine line”: Parents’ experiences of using restraint with their adult son/daughter with intellectual disabilities . Journal of Applied Research in Intellectual Disabilities , 23 : 75 – 84 .
   Google Scholar
• Fiedler , C. R. and Antonak , R. F. 1991 . “ Advocacy ” . In Handbook of mental retardation , Edited by: Matson , J. L. and Mulick , J. A. 23 – 32 . Elmsford, NY : Pergamon Press .
   Google Scholar
• Fujiura , G. T. and Braddock , D. 1992 . “ Fiscal and demographic trends in mental retardation services: The emergence of the family ” . In Mental retardation in the year 2000 , Edited by: Rowitz , L. 316 – 338 . New York, NY : Springer .
   Google Scholar
• Groden , J. , Cautela , J. , Prince , S. and Berryman , J. 1994 . “ The impact of stress and anxiety on individuals with autism and developmental disabilities ” . In Behavioral issues in autism , Edited by: Schopler , E. and Mesibov , G. B. 177 – 194 . New York, NY : Plenum Press .
   Google Scholar
• Grossman , S. A. , Richards , C. F. , Anglin , D. and Hutson , H. R. 2000 . Caring for the patient with mental retardation in the emergency department . Annals of Emergency Medicine , 35 ( 1 ) : 69 – 76 .
   Google Scholar
• Hastings , R. P. , Hatton , C. , Taylor , J. L. and Maddison , C. 2004 . Life events and psychiatric symptoms in adults with intellectual disabilities . Journal of Intellectual Disability Research , 48 : 42 – 46 .
   Google Scholar
• Haveman , M. , van Berkum , G. , Reijnders , R. and Heller , T. 1997 . Differences in service needs, time demands, and caregiving burden among parents of persons with mental retardation across the life cycle . Family Relations , 46 : 417 – 425 .
   Google Scholar
• Hayden , M. and Heller , T. 1997 . Support, problem-solving/coping ability, and personal burden of younger and older caregivers of adults with mental retardation . Mental Retardation , 35 ( 5 ) : 364 – 372 .
   Google Scholar
• Jopp , D. A. and Keys , C. B. 2001 . Diagnostic overshadowing reviewed and reconsidered . American Journal on Mental Retardation , 106 : 416 – 433 .
   Google Scholar
• Lakin , K. C. , Prouty , R. and Coucouvanis , K. 2007 . HCBS recipients are increasingly likely to live with parents or other relatives . Intellectual and Developmental Disabilities , 45 ( 5 ) : 359 – 361 .
   Google Scholar
• Lunsky , Y. and Balogh , R. 2010 . Dual diagnosis: A national study of psychiatric hospitalization patterns of people with developmental disability . Canadian Journal of Psychiatry , 55 ( 11 ) : 721 – 728 .
   Google Scholar
• Lunsky , Y. and Elserafi , J. 2011 . Life events and emergency department visits in response to crisis in individuals with intellectual disabilities . Journal of Intellectual Disability Research , 55 : 714 – 718 .
   Google Scholar
• Lunsky , Y. , Gracey , C. and Gelfand , S. 2008 . Emergency psychiatric services for individuals with intellectual disabilities: Perspectives of hospital staff . Intellectual and Developmental Disabilities , 46 : 446 – 455 .
   Google Scholar
• Lunsky , Y. and Havercamp , S. 2002 . “ Women's mental health ” . In Health of women with intellectual disabilities , Edited by: Walsh , P. and Heller , T. 59 – 75 . Oxford, , England : Blackwell Science .
   Google Scholar
• McCarthy , J. and Boyd , J. 2002 . Mental health services and young people with intellectual disability: Is it time to do better? . Journal of Intellectual Disability Research , 46 ( 3 ) : 250 – 256 .
   Google Scholar
• Minnes , P. , Woodford , L. and Passey , J. 2007 . Mediators of well-being in ageing family carers of adults with intellectual disabilities . Journal of Applied Research in Intellectual Disabilities , 20 ( 6 ) : 539 – 552 .
   Google Scholar
• Moss , S. , Prosser , H. , Costello , H. , Simpson , N. , Patel , P. , Rowe , S. … and Hatton , C. 1998 . Reliability and validity of the PAS-ADD checklist for detecting psychiatric disorders in adults with intellectual disability . Journal of Intellectual Disability Research , 42 : 173 – 183 .
   Google Scholar
• Ouellette-Kuntz , H. , Garcin , N. , Lewis , S. , Minnes , P. , Freeman , C. and Holden , J. J. A. 2005 . Addressing health disparities through promoting equity for individuals with intellectual disability . Canadian Journal of Public Health , 96 : 8 – 22 .
   Google Scholar
• Seltzer , M. M. and Krauss , M. W. 1989 . Aging parents with adult mentally retarded children: Family risk factors and sources of support . American Journal on Mental Retardation , 94 : 303 – 312 .
   Google Scholar
• Shoham-Vardi , I. , Davidson , P. W. , Cain , N. N. , Sloane-Reeves , J. E. , Giesow , V. E. and Quijano , L. E. 1996 . Factors predicting re-referral following crisis intervention for community-based persons with developmental disabilities and behavioral and psychiatric disorders . American Journal of Mental Retardation , 101 ( 2 ) : 109 – 117 .
   Google Scholar
• Smull , M. W. 1988 . “ Systems issues in meeting the mental health needs of persons with mental retardation ” . In Mental retardation and mental health: Classification, diagnosis, treatment and services , Edited by: Stark , J. A. , Menolascino , F. J. , Albarelli , M. H. and Gray , V. C. 394 – 398 . New York, NY : Springer-Verlag .
   Google Scholar
• Stack , L. S. , Haldipur , C. V. and Thompson , M. 1987 . Stressful life events and psychiatric hospitalization of mentally retarded patients . American Journal of Psychiatry , 144 : 661 – 663 .
   Google Scholar
• Stavrakaki , C. 2002 . “ The DSM–IV and how it applies to persons with developmental disabilities ” . In Dual diagnosis: An introduction to the mental health needs of persons with developmental disabilities , Edited by: Griffiths , D. , Stavrakaki , C. and Summers , J. 115 – 149 . Toronto, Ontario, , Canada : Habilitative Mental Health Resource Network .
   Google Scholar
• Sullivan , W. , Berg , J. M. , Bradley , E. A. , Brooks-Hill , R. W. , Goldfarb , C. E. , Lovering , J. S. … and Anglin , D. 2000 . Enhancing the emergency department outcomes of patients with mental retardation . Annals of Emergency Medicine , 36 : 399 – 400 .
   Google Scholar
• Weiss , J. A. and Lunsky , Y. 2010 . Service utilization patterns in parents of youth and adults with intellectual disability who experienced behavioral crisis . Journal of Mental Health and Research in Intellectual Disabilities , 3 ( 3 ) : 145 – 163 .
   Google Scholar
• Weiss , J. A. , Lunsky , Y. , Gracey , C. , Canrinus , M. and Morris , S. 2009 . Emergency psychiatric services for individuals with intellectual disabilities: Caregivers’ perspectives . Journal of Applied Research in Intellectual Disabilities , 22 : 354 – 362 .
   Google Scholar