Family Caregiver Uplift and Burden: Associations With Aggressive Behavior in Adults With Intellectual Disability

REFERENCES

• Allen , D. 1999 . Mediator analysis: An overview of recent research on carers supporting people with intellectual disability and challenging behaviour . Journal of Intellectual Disability Research , 43 ( 4 ) : 325 – 339 .
   Google Scholar
• Aman , M. G. , Burrow , W. and Wolford , P. 1995 . The Aberrant Behavior Checklist-Community: Factor validity and effect of subject variables for adults in group homes . American Journal on Mental Retardation , 100 ( 3 ) : 283 – 292 .
   Google Scholar
• Aman , M. G. , Singh , N. N. , Stewart , A. W. and Field , C. J. 1985 . The Aberrant Behavior Checklist: A behaviour rating scale for the assessment of treatment effects . American Journal of Mental Deficiency , 89 : 492 – 502 .
   Google Scholar
• Ben-Zur , H. , Duvdevany , I. and Lury , L. 2005 . Associations of social support and hardiness with mental health among mothers of adult children with intellectual disability . Journal of Intellectual Disability Research , 49 : 54 – 62 .
   Google Scholar
• Blacher , J. and Hatton , C. 2001 . Current perspectives on family research in mental retardation . Current Opinion in Psychiatry , 14 : 477 – 482 .
   Google Scholar
• Braddock , D. 1999 . Aging and developmental disabilities: Demographic and policy issues affecting American families. Cited in M. M. Seltzer & M. W. Krauss (2001), Quality of life of adults with mental retardation/developmental disabilities who live with family . Mental Retardation and Developmental Disabilities Research Reviews , 7 : 105 – 114 .
   Google Scholar
• Caples , M. and Sweeney , J. 2010 . Quality of life: A survey of parents of children/adults with an intellectual disability who are availing of respite care . British Journal of Learning Disabilities , 39 : 64 – 72 .
   Google Scholar
• Cooper , S.-A. , Smiley , E. , Jackson , A. , Finlayson , J. , Allan , L. , Mantry , D. and Morrison , J. 2009a . Adults with intellectual disabilities: Prevalence, incidence and remission of aggressive behaviour and related factors . Journal of Intellectual Disability Research , 53 ( 3 ) : 217 – 232 .
   Google Scholar
• Cooper , S.-A. , Smiley , E. , Jackson , A. , Finlayson , J. , Allan , L. , Mantry , D. and Morrison , J. 2009b . Adults with intellectual disabilities: Prevalence, incidence and remission of self-injurious behaviour and related factors . Journal of Intellectual Disability Research , 53 ( 3 ) : 200 – 216 .
   Google Scholar
• Crocker , A. G. , Mercier , C. , Lachapelle , Y. , Brunet , A. , Morin , D. and Roy , M.-E. 2006 . Prevalence and types of aggressive behaviour among adults with intellectual disabilities . Journal of Intellectual Disability Research , 50 ( 9 ) : 652 – 661 .
   Google Scholar
• Department of Health (UK) . 2001 . Family matters: Counting families in , London, , England : Department of Health .
   Google Scholar
• Dillenburger , K. and McKerr , L. 2010 . “How long are we able to go on for?” Issues faced by older caregivers of adults with disabilities . British Journal of Learning Disabilities , 39 : 29 – 38 .
   Google Scholar
• Essex , E. L. 1998 . Parental caregivers of adults with mental retardation: The experience of older mothers and fathers. Cited in M. M. Seltzer & M. W. Krauss (2001), Quality of life of adults with mental retardation/developmental disabilities who live with family . Mental Retardation and Developmental Disabilities Research Reviews , 7 : 105 – 114 .
   Google Scholar
• Field , A. 2005 . Discovering statistics using SPSS , 2nd , London, , England : Sage .
   Google Scholar
• Fujiura , G. T. 1998 . Demography of family households. Cited in M. M. Seltzer & M. W. Krauss (2001), Quality of life of adults with mental retardation/developmental disabilities who live with family . Mental Retardation and Developmental Disabilities Research Reviews , 7 : 105 – 114 .
   Google Scholar
• Grant , G. , Ramcharan , P. , McGrath , M. , Nolan , M. and Keady , J. 1998 . Rewards and gratifications among family caregivers: Towards a refined model of caring and coping . Journal of Intellectual Disability Research , 42 ( 1 ) : 58 – 71 .
   Google Scholar
• Grant , G. and Whittell , B. 2000 . Differentiated coping strategies in families with adults or children with intellectual disabilities: The relevance of gender, family composition and the life span . Journal of Applied Research in Intellectual Disabilities , 13 : 256 – 275 .
   Google Scholar
• Hatton , C. , Emerson , E. , Kirby , S. , Kotwal , H. , Baines , S. , Hutchinson , C. … and Marks , B. 2010 . Majority and minority ethnic family carers of adults with intellectual disabilities: Perceptions of challenging behaviour and family impact . Journal of Applied Research in Intellectual Disabilities , 23 : 63 – 74 .
   Google Scholar
• Hayden , M. and Goldman , J. 1996 . Families of adults with mental retardation: Stress levels and needs for services . Social Work , 41 : 657 – 667 .
   Google Scholar
• Heller , T. , Hsieh , K. and Rowitz , L. 1997 . Maternal and paternal caregiving of persons with mental retardation across the lifespan . Family Relations , 46 : 407 – 415 .
   Google Scholar
• Heller , T. , Miller , A. B. and Factor , A. 1997 . Adults with mental retardation as supports to their parents: Effects on parental caregiving appraisal . Mental Retardation , 35 : 338 – 346 .
   Google Scholar
• Hill , C. and Rose , J. 2009 . Parenting stress in mothers of adults with an intellectual disability: Parental cognitions in relation to child characteristics and family support . Journal of Intellectual Disability Research , 53 ( 12 ) : 969 – 980 .
   Google Scholar
• Hodapp , R. M. , Dykens , E. M. , Evans , D. W. and Merighi , J. R. 1992 . Maternal emotional reactions to young children with different types of handicaps . Developmental and Behavioral Pediatrics , 13 : 118 – 123 .
   Google Scholar
• Jokinen , N. S. and Brown , R. I. 2005 . Family quality of life from the perspective of older parents . Journal of Intellectual Disability Research , 49 ( 10 ) : 789 – 793 .
   Google Scholar
• Kenny , K. and McGilloway , S. 2007 . Caring for children with learning disabilities: An exploratory study of parental strain and coping . British Journal of Learning Disabilities , 35 : 221 – 228 .
   Google Scholar
• Lecavalier , L. , Leone , S. and Wiltz , J. 2006 . The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders . Journal of Intellectual Disability Research , 50 ( 3 ) : 172 – 183 .
   Google Scholar
• Maes , B. , Broekman , T. G. , Dsen , A and Nauts , J. 2003 . Caregiving burden of families looking after persons with intellectual disability and behavioural or psychiatric problems . Journal of Intellectual Disability Research , 47 ( 6 ) : 447 – 455 .
   Google Scholar
• Matthews , T. , Weston , N. , Baxter , H. , Felce , D. and Kerr , M. 2008 . A general practice based prevalence study of epilepsy among adults with intellectual disabilities and of its association with psychiatric disorder, behaviour disturbance and carer stress . Journal of Intellectual Disability Research , 52 ( 2 ) : 163 – 173 .
   Google Scholar
• McIntyre , L. L. , Blacher , J. and Baker , B. L. 2002 . Behaviour/mental health problems in young adults with intellectual disability: The impact on families . Journal of Intellectual Disability Research , 46 ( 3 ) : 239 – 249 .
   Google Scholar
• Murphy , G. 2009 . Challenging behaviour: A barrier to inclusion? . Journal of Policy and Practice in Intellectual Disabilities , 6 ( 2 ) : 89 – 90 .
   Google Scholar
• Oliver , P. C. , Crawford , M. J. , Rao , B. , Reece , B. and Tyrer , P. 2007 . Modified Overt Aggression Scale (MOAS) for people with intellectual disability and aggressive challenging behaviour: A reliability study . Journal of Applied Research in Intellectual Disability , 20 : 368 – 372 .
   Google Scholar
• Prosser , H. , Moss , S. C. , Costello , H. , Simpson , N. , Patel , P. and Rowe , S. 1998 . Reliability and validity of the Mini PAS-ADD for assessing psychiatric disorders in adults with intellectual disability . Journal of Intellectual Disability Research , 42 : 264 – 272 .
   Google Scholar
• Pruchno , R. 1990 . The effects of help patterns on the mental health of spouse caregivers . Research on Ageing , 12 : 57 – 71 .
   Google Scholar
• Rapanaro , C. , Bartu , A. and Lee , A. H. 2007 . Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood . Journal of Applied Research in Intellectual Disabilities , 21 ( 1 ) : 34 – 47 .
   Google Scholar
• Ratey , J. J. and Gutheil , C. M. 1991 . The measurement of aggressive behaviour: Reflections on the use of the Overt Aggression Scale and the Modified Overt Aggression Scale . Journal of Neuropsychiatry , 3 : 557 – 560 .
   Google Scholar
• Seltzer , M. M. and Krauss , M. W. 2001 . Quality of life of adults with mental retardation/developmental disabilities who live with family . Mental Retardation and Developmental Disabilities Research Reviews , 7 : 105 – 114 .
   Google Scholar
• Shedlack , K. J. , Hennen , J. , Magee , C. and Cheron , D. M. 2005 . Brief reports: A comparison of the Aberrant Behavior Checklist and the GAF among adults with mental retardation and mental illness . Psychiatric Services , 56 : 484 – 486 .
   Google Scholar
• Silver , J. M. and Yudofsky , S. C. 1991 . The Overt Aggression Scale: Overview and guiding principles . Journal of Neuropsychiatry , 3 : 522 – 529 .
   Google Scholar
• Todd , S. and Jones , S. 2003 . “Mum's the word!” Maternal accounts of dealing with the professional world . Journal of Applied Research in Intellectual Disabilities , 16 : 229 – 244 .
   Google Scholar
• Turnbull , A. P. and Ruef , M. 1996 . Family perspectives on problem behaviour . Mental Retardation , 34 : 280 – 293 .
   Google Scholar
• Tyrer , F. , McGrother , C. W. , Thorp , C. F. , Donaldson , M. , Bhaumik , S. , Watson , J. M. and Hollin , C. 2006 . Physical aggression towards others in adults with learning disabilities: Prevalence and associated factors . Journal of Intellectual Disability Research , 50 ( 4 ) : 295 – 304 .
   Google Scholar
• Tyrer , P. , Oliver-Africano , P. , Romeo , R. , Knapp , M. , Dickens , S. , Bouras , N. and North , B. 2009 . Neuroleptics in the treatment of aggressive challenging behaviour for people with intellectual disabilities: A randomised controlled trial (NACHBID) . Health Technology Assessment , 13 ( 21 )
   Google Scholar
• Unwin , G. , LeMesurier , N. , Bathia , N. and Deb , S. 2008 . Transition for adolescents and young adults with learning disabilities and mental health problems/challenging behaviours: The parent carers' views . Advances in Mental Health and Learning Disabilities , 2 ( 1 ) : 22 – 28 .
   Google Scholar
• Weiss , J. A. , Sullivan , A. and Diamond , T. 2003 . Parent stress and adaptive functioning of individuals with developmental disabilities . Journal on Developmental Disabilities , 10 : 129 – 135 .
   Google Scholar
• World Health Organization. (2007). International statistical classification of diseases and related health problems, 10th revision. Retrieved from http://apps.who.int/classifications/apps/icd/icd10online/ (http://apps.who.int/classifications/apps/icd/icd10online/)
   Google Scholar
• Yannamani , N. , Zia , A. and Khalil , N. 2009 . Family carers of people with learning disabilities: Common themes across caring . Psychiatry , 8 ( 11 ) : 441 – 444 .
   Google Scholar