Self-care Activation, Social Support, and Self-care Behaviors among Women Living with Heart Failure

References

• Ditewig JB, Blok H, Havers J, van Veenendaal H. Effectiveness of self-management interventions on mortality, hospital readmissions, chronic heart failure hospitalization rate and quality of life in patients with chronic heart failure: a systematic review. Patient Educ Couns. 2010;78:297–315.
   PubMed Web of Science ®Google Scholar
• Mozaffarian D, Benjamin EJ, Go AS, et al. Heart disease and stroke statistics—2016 update: a report from the American Heart Association. Circulation. 2016;133:e38–e60.
   Google Scholar
• Lee KS, Lennie TA, Dunbar SB, et al. The association between regular symptom monitoring and self-care management in patients with heart failure. J Cardiovasc Nurs. 2015;30:145–151.
   PubMed Web of Science ®Google Scholar
• Jessup M, Abraham WT, Casey DE, et al. 2009 Focused update: ACCF/AHA guidelines for the diagnosis and management of heart failure in adults: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines: developed in collaboration with the International Society for Heart and Lung Transplantation. Circulation. 2009;119:1977–2016.
   Google Scholar
• Riegel B, Carlson B, Glaser D. Development and testing of a clinical tool measuring self-management of heart failure. Heart Lung. 2000;29:4–15.
   PubMed Web of Science ®Google Scholar
• Riegel B, Carlson B, Moser D, Sebern M, Hicks FD, Roland V. Psychometric testing of the self-care of heart failure index. J Card Fail. 2004;10:350–360.
   PubMed Web of Science ®Google Scholar
• Riegel B, Jaarsma T, Stromberg A. A middle-range theory of self-care of chronic illness. ANS Adv Nurs Sci. 2012;35:194–204.
   PubMed Web of Science ®Google Scholar
• Evangelista LS, Rasmusson KD, Laramee AS, et al. Health literacy and the patient with heart failure—implications for patient care and research: a consensus statement of the Heart Failure Society of America. J Card Fail. 2010;16:9–16.
   PubMed Web of Science ®Google Scholar
• Lainscak M, Blue L, Clark AL, et al. Self-care management of heart failure: practical recommendations from the Patient Care Committee of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail. 2011;13:115–126.
   PubMed Web of Science ®Google Scholar
• Riegel B, Moser DK, Anker SD, et al. State of the science: promoting self-care in persons with heart failure: a scientific statement from the American Heart Association. Circulation. 2009;120:1141–1163.
   PubMed Web of Science ®Google Scholar
• Dickson VV, Tkacs N, Riegel B. Cognitive influences on self-care decision making in persons with heart failure. Am Heart J. 2007;154:424–431.
   PubMed Web of Science ®Google Scholar
• Dracup K, Moser DK, Pelter MM, et al. Randomized, controlled trial to improve self-care in patients with heart failure living in rural areas. Circulation. 2014;130:256–264.
   PubMed Web of Science ®Google Scholar
• Powell LH, Calvin JEJr, Richardson D, et al. Self-management counseling in patients with heart failure: the Heart Failure Adherence and Retention Randomized Behavioral Trial. JAMA. 2010;304:1331–1338.
   PubMed Web of Science ®Google Scholar
• Kitsiou S, Pare G, Jaana M. Effects of home telemonitoring interventions on patients with chronic heart failure: an overview of systematic reviews. J Med Internet Res. 2015;17:e63.
   PubMed Web of Science ®Google Scholar
• Boyne JJ, Vrijhoef HJ, Spreeuwenberg M, et al. Effects of tailored telemonitoring on heart failure patients’ knowledge, self-care, self-efficacy and adherence: a randomized controlled trial. Eur J Cardiovasc Nurs. 2014;13:243–252.
   PubMed Web of Science ®Google Scholar
• Gorst SL, Armitage CJ, Brownsell S, Hawley MS. Home telehealth uptake and continued use among heart failure and chronic obstructive pulmonary disease patients: a systematic review. Ann Behav Med. 2014;48:323–336.
   PubMed Web of Science ®Google Scholar
• Lindenfeld J, Albert NM, Boehmer JP, et al. Heart Failure Society of America 2010 comprehensive heart failure practice guideline. J Card Fail. 2010;16:e1–e194.
   Google Scholar
• McMurray JJ, Adamopoulos S, Anker SD, et al. ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: the Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Failure 2012 of the European Society of Cardiology. Eur Heart J. 2012;33:1787–1847.
   Google Scholar
• Yancy CW, Jessup M, Bozkurt B, et al. 2013 ACCF/AHA guideline for the management of heart failure: executive summary: a report of the American College of Cardiology Foundation/American Heart Association Task Force on practice guidelines. Circulation. 2013;128:1810–1852.
   Google Scholar
• Jaarsma T, van der Wal MH, Lesman-Leegte I, et al. Effect of moderate or intensive disease management program on outcome in patients with heart failure: Coordinating Study Evaluating Outcomes of Advising and Counseling in Heart Failure (COACH). Arch Intern Med. 2008;168:316–324.
   PubMed Web of Science ®Google Scholar
• Hibbard JH, Mahoney ER, Stockard J, Tusler, M. Development and testing of a short form of the patient activation measure. Health Serv Res. 2005;40:1918–1930.
   Google Scholar
• Lorig K, Stewart A, Ritter P, González V, Laurent D, Lynch J. Outcome Measures for Health Education and Other Health Care Interventions. Thousand Oaks, CA: SAGE; 1996.
   Google Scholar
• Stansfeld SA, Roberts R, Foot SP. Assessing the validity of the SF-36 General Health Survey. Qual Life Res. 1997;6:217–224.
   PubMed Web of Science ®Google Scholar
• Jenkinson C, Wright L, Coulter A. Criterion validity and reliability of the SF-36 in a population sample. Qual Life Res. 1994;3:7–12.
   PubMed Web of Science ®Google Scholar
• Failde I, Ramos I. Validity and reliability of the SF-36 Health Survey Questionnaire in patients with coronary artery disease. J Clin Epidemiol. 2000;53:359–365.
   PubMed Web of Science ®Google Scholar
• Findler M, Cantor J, Haddad L, Gordon W, Ashman T. The reliability and validity of the SF-36 Health Survey questionnaire for use with individuals with traumatic brain injury. Brain Inj. 2001;8:715–723.
   Web of Science ®Google Scholar
• Zhang Y, Qu B, Lun SS, Guo Y, Liu J. The 36-Item Short Form Health Survey: reliability and validity in Chinese medical students. Int J Med Sci. 2012;9:521–526.
   PubMed Web of Science ®Google Scholar
• Scott KM, Tobias MI, Sarfati D, Haslett SJ. SF-36 Health Survey reliability, validity and norms for New Zealand. Aust N Z J Public Health. 1999;23:401–406.
   PubMed Web of Science ®Google Scholar
• Sinha R, van den Heuvel WJ, Arokiasamy P. Validity and reliability of MOS Short Form Health Survey (SF-36) for use in India. Indian J Community Med. 2013;38:22–26.
   PubMedGoogle Scholar
• Lim LL, Seubsman SA, Sleigh A. Thai SF-36 Health Survey: tests of data quality, scaling assumptions, reliability and validity in healthy men and women. Health Qual Life Outcomes. 2008;6;52.
   Web of Science ®Google Scholar
• Frempong-Ainguah F, Hill A. Reliability, validity and responsiveness of the Short Form-36 Health Survey: findings from the Women’s Health Study of Accra, Ghana. Quetelet Journal. 2014;2:7–29.
   Google Scholar
• Beckie TM, Fletcher GF, Beckstead JW, Schocken DD, Evans ME. Adverse baseline physiological and psychosocial profiles of women enrolled in a cardiac rehabilitation clinical trial. J Cardiopulm Rehabil Prev. 2008;28:52–60.
   PubMed Web of Science ®Google Scholar
• Mitchell PH, Powell L, Blumenthal J, et al. A short social support measure for patients recovering from myocardial infarction: the ENRICHD Social Support Inventory. J Cardiopulm Rehabil. 2003;23:398–403.
   PubMedGoogle Scholar
• Vaglio J, Jr, Conard M, Poston WS, et al. Testing the performance of the ENRICHD Social Support Instrument in cardiac patients. Health Qual Life Outcomes. 2004;2:24.
   PubMedGoogle Scholar
• American Heart Association. American Heart Association Recommendations for Physical Activity in Adults. http://www.heart.org/HEARTORG/HealthyLiving/PhysicalActivity/FitnessBasics/American-Heart-Association-Recommendations-for-Physical-Activity-in-Adults_UCM_307976_Article.jsp#.V7cYIVc3eCM. Updated July 27, 2016. Accessed August 19, 2016.
   Google Scholar
• American Heart Association. Eat More Fruits and Vegetables. http://www.heart.org/HEARTORG/HealthyLiving/HealthyEating/Nutrition/Eat-More-Fruits-and-Vegetables_UCM_320237_Article.jsp#.V7ccb1c3eCM. Updated February 17, 2016. Accessed August 19, 2016.
   Google Scholar
• Dickson VV, Buck H, Riegel B. Multiple comorbid conditions challenge heart failure self-care by decreasing self-efficacy. Nurs Res. 2013;62:2–9.
   PubMed Web of Science ®Google Scholar
• Arigo D, Suls JM, Smyth JM. Social comparisons and chronic illness: research synthesis and clinical implications. Health Psychol Rev. 2014;8:154–214.
   PubMed Web of Science ®Google Scholar
• Farkas J, Nabb S, Zaletel-Kragelj L, Cleland JG, Lainscak M. Self-rated health and mortality in patients with chronic heart failure. Eur J Heart Fail. 2009;11:518–524.
   PubMed Web of Science ®Google Scholar
• Havranek EP, Lapuerta P, Simon TA, L’Italien G, Block AJ, Rouleau JL. A health perception score predicts cardiac events in patients with heart failure: results from the IMPRESS Trial. J Card Fail. 2001;7:153–157.
   PubMed Web of Science ®Google Scholar
• Berry JD, Pandey A, Gao A, et al. Physical fitness and risk for heart failure and coronary artery disease. Circ Heart Fail. 2013;6:627–634.
   PubMed Web of Science ®Google Scholar
• Agha G, Loucks EB, Tinker LF, et al. Healthy lifestyle and decreasing risk of heart failure in women: the Women’s Health Initiative observational study. J Am Coll Cardiol. 2014;64:1777–1785.
   Google Scholar
• Bos-Touwen I, Schuurmans M, Monninkhof EM, et al. Patient and disease characteristics associated with activation for self-management in patients with diabetes, chronic obstructive pulmonary disease, chronic heart failure and chronic renal disease: a cross-sectional survey study. PLoS One. 2015;10(5):e0126400.
   PubMed Web of Science ®Google Scholar
• Shively MJ, Gardetto NJ, Kodiath MF, et al. Effect of patient activation on self-management in patients with heart failure. J Cardiovasc Nurs. 2013;28:20–34.
   PubMed Web of Science ®Google Scholar
• Prochaska JO, Velicer WF. The transtheoretical model of health behavior change. Am J Health Promot. 1997;12:38–48.
   PubMed Web of Science ®Google Scholar
• Hooker SA, Grigsby ME, Riegel B, Bekelman DB. The impact of relationship quality on health-related outcomes in heart failure patients and informal family caregivers: an integrative review. J Cardiovasc Nurs. 2015;30:S52–S63.
   PubMedGoogle Scholar
• Rohrbaugh MJ, Shoham V, Coyne JC. Effect of marital quality on eight-year survival of patients with heart failure. Am J Cardiol. 2006;98:1069–1072.
   PubMed Web of Science ®Google Scholar
• Dickson VV, Riegel B. Are we teaching what patients need to know? Building skills in heart failure self-care. Heart Lung. 2009;38:253–261.
   PubMed Web of Science ®Google Scholar
• Dunbar SB, Clark PC, Quinn C, Gary RA, Kaslow NJ. Family influences on heart failure self-care and outcomes. J Cardiovasc Nurs. 2008;23:258–265.
   PubMed Web of Science ®Google Scholar
• Dunbar SB, Clark PC, Reilly CM, et al. A trial of family partnership and education interventions in heart failure. J Card Fail. 2013;19:829–841.
   PubMed Web of Science ®Google Scholar
• Sayers SL, Riegel B, Pawlowski S, Coyne JC, Samaha FF. Social support and self-care of patients with heart failure. Ann Behav Med. 2008;35:70–79.
   PubMed Web of Science ®Google Scholar
• Wu JR, Moser DK, Lennie TA, Burkhart PV. Medication adherence in patients who have heart failure: a review of the literature. Nurs Clin North Am. 2008;43:133–153.
   PubMed Web of Science ®Google Scholar
• Riegel B, Knafl GJ. Electronically monitored medication adherence predicts hospitalization in heart failure patients. Patient Prefer Adherence. 2013;8:1–13.
   PubMed Web of Science ®Google Scholar
• Mastromarino V, Casenghi M, Testa M, et al. Polypharmacy in heart failure patients. Curr Heart Fail Rep. 2014;11:212–219.
   PubMedGoogle Scholar
• Pina IL, Bittner V, Clare RM, et al. Effects of exercise training on outcomes in women with heart failure: analysis of HF-ACTION (Heart Failure—A Controlled Trial Investigating Outcomes of Exercise TraiNing) by sex. JACC Heart Fail. 2014;2:180–186.
   PubMed Web of Science ®Google Scholar
• Ades PA, Keteyian SJ, Balady GJ, et al. Cardiac rehabilitation exercise and self-care for chronic heart failure. JACC Heart Fail. 2013;1:540–547.
   PubMed Web of Science ®Google Scholar
• Okin PM, Kjeldsen SE, Dahlof B, Devereux RB. Racial differences in incident heart failure during antihypertensive therapy. Circ Cardiovasc Qual Outcomes. 2011;4:157–164.
   PubMed Web of Science ®Google Scholar
• Møller L, Kristensen TS, Hollinagel H. Self rated health as a predictor of coronary heart disease in Copenhagen, Denmark. J Epidemiol Community Health. 1996;50:423–428.
   PubMed Web of Science ®Google Scholar
• Miilunpalo S, Vuori I, Oja P, Pasanen M, Urponen H. Self-rated health status as a measure: the predictive value of self-reported health status on the use of physician services and on mortality in the working-age population. J Clin Epidemiol. 1997;50:517–528.
   PubMed Web of Science ®Google Scholar
• Dennison CR, McEntee ML, Samuel L, et al. Adequate health literacy is associated with higher heart failure knowledge and self-care confidence in hospitalized patients. J Cardiovasc Nurs. 2011;26:359–367.
   PubMed Web of Science ®Google Scholar
• Giordano A, Scalvini S, Zanelli E, et al. Multicenter randomised trial on home-based telemanagement to prevent hospital readmission of patients with chronic heart failure. Int J Cardiol. 2009;131:192–199.
   PubMed Web of Science ®Google Scholar
• Hagglund E, Lynga P, Frie F, et al. Patient-centred home-based management of heart failure. Findings from a randomised clinical trial evaluating a tablet computer for self-care, quality of life and effects on knowledge. Scand Cardiov J. 2015;49:193–199.
   PubMed Web of Science ®Google Scholar
• National Commission for Health Education Credentialing, Inc., Society for Public health Education, and American Association for Health Education. Areas of Responsibilities, Competencies, and Sub-competencies for Health Education Specialists 2010. https://www.nchec.org/assets/2251/areas_of_responsibilities_and_competencies.pdf. Published 2010. Accessed February 6, 2017.
   Google Scholar
• Schmid KL, Rivers SE, Latimer AE, Salovey P. Targeting or tailoring? Maximizing resources to create effective health communications. Mark Health Serv. 2008;28:32–37.
   PubMedGoogle Scholar