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Original Articles

Ryan White CARE Act Part D: Matches and Gaps in Political Commitment and Local Implementation

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Pages 267-284 | Received 25 Mar 2013, Accepted 02 Apr 2013, Published online: 06 May 2014

REFERENCES

  • Abramowitz, S., & Greene, D. (2005, Fall/Winter). Ryan White CARE Act Title IV programs: A preliminary characterization of benefits and costs. AIDS & Public Policy, 20, 108–125.
  • Ahmed, A., Hanssens, C., & Kelly, B. (2009). Protecting HIV-positive women's human rights: Recommendations for the United States National HIV/AIDS strategy. Reproductive Health Matters, 17(34), 127–134.
  • AIDS Action. (n.d). Medicaid managed care and HIV/AIDS: A guide for community-based organizations. Washington DC: Author. Retrieved from http://www.ask.hrsa.gov/detail_material.cfm?ProdID=809.
  • AIDS Alliance for Children, Youth & Families. (2005). Renewing the commitment: The 2005 reauthorization of the Ryan White CARE Act (Policy Position Paper). Retrieved from www.aids-alliance.org/policy/2011policypriorities.pdf.
  • AIDS Alliance for Children, Youth & Families. (2010). Policy priorities. Washington DC: Author. Retrieved from www.aids-alliance.org.
  • AIDS Alliance for Children, Youth & Families. (n.d.). Title IV Summary. Ryan White HIV/AIDS Treatment Modernization Act of 2006: Overview of provisions affecting Title IV and services for women, children, youth and families. Retrieved from www.aid-alliance.org/policy/ryanwhite.
  • AIDS Policy Center for Children, Youth & Families. (n.d.). Advocating for quality in Medicaid Managed Care: Ideas for families and youth affected by HIV/AIDS. Retrieved from www.aids-alliance.org/resources/publications/advocatingquality.pdf.
  • Atun, R., de Jongh, T., Secci, F., Ohiri, K., & Adeyi, O. (2010). Integration of targeted health interventions into health systems: A conceptual framework for analysis. Health Policy Planning, 25, 104–111.
  • Aziz, M., & Smith, K. Y. (2011). Challenges and successes in linking HIV-infected women to are in the United States. Clinical Infectious Diseases, 52(Suppl 2), S231–237.
  • Bartlett, J. G., Branson, B. M., Fenton, K., Hauschild, B. C., Miller, V., & Mayer, K. (2008). Opt-out testing for HIV in the United States: progress and challenges. Journal of the American Medical Association, 300(8), 945–951.
  • Betancourt, T. S., Abrams, E. J., McBain, R., & Smith Fawsi, M. (2010). Family-centred approaches to the prevention of mother to child transmission of HIV. Journal of the International AIDS Society, 13(Suppl 2), 1–11.
  • Blair, J. M., Hanson, D. L., Jones, J. L., & Dworkin, M. S. (2004). Trends in pregnancy rates among women with immunodeficiency virus. Obstetrics & Gynecology, 103, 663–668.
  • Bova, C. (2000). Women with HIV infection: the three waves of scientific inquiry. Journal of the Association of Nurses in AIDS Care, 11(5), 19–28.
  • Britton, K., & Yager, A. (2010). HIV testing: pregnant women and newborns. New York City, NY: HIV Law Project. Retrieved from www.hivlawproject.org.
  • Caudill, S., Goldman, T., & Marconi, K. (2003). Evaluation of pediatric HIV care provided by Ryan White CARE Act Title IV women, infants, children and youth clinics. AIDS Patient Care and STDs, 17(2), 65–73.
  • Centers for Disease Control and Prevention. (2007). CDC HIV/AIDS fact sheet. Mother-to-child (Perinatal) HIV transmission and prevention. Retrieved from http://www.cdc.gov/hiv/risk/gender/pregnantwomen/facts.
  • Centers for Disease Control and Prevention. (2011). HIV among women in CDC HIV surveillance report: Diagnoses of HIV infection and AIDS in the United States and dependent areas, 2009. Retrieved from http://www.cdc.gov/hiv/surveillance/resources/reports/2011report/pdf/2011_hiv_surveillance_report_vol_23.pdf.
  • Clark, J., Sansom, S., Simpson, B. J., Walker, F., Wheeler, C., Yazdani, K., & Zapata, A. (2006). Promising strategies for preventing HIV transmission: model programs from three states. Maternal and Child Health Journal, 10(4), 367–373.
  • Eyakuze, C., Jones, D. A., Starrs, A. M., & Sorkin, N. (2008). From PMTCT to a more comprehensive AIDS response for women: A much needed shift. Developing World Bioethics, 8(1), 33–42.
  • Ezeanolue, E. E., Stumpf, P. G., Soliman, E., Fernandez, G., & Jack, I. (2011). Contraception choices in a cohort of HIV+ women in the era of highly active antiretroviral therapy. Contraception, 84, 94–97.
  • Farmer, P., Lindenbaum, S., & Good, M. D. (1993). Women, poverty and AIDS: An introduction. Culture, Medicine and Psychiatry, 17, 387–397.
  • Fields, L., & Kaplan, C. (2011). Opt-out HIV testing: An ethical analysis of women reproductive rights. Nursing Ethics, 18(5), 734–742. doi:10.1177/0969733011403555.
  • Fox, A. M., Goldberg, A. B., Gore, R. J., & Baminghausen, T. (2011). Conceptual and methodological challenges to measuring political commitment to respond to HIV. Journal of International AIDS Society, 14(Suppl 2), S5.
  • Freedman, L. P. (2011). Integrating HIV and Maternal Health Services: will organizational culture clash sow the seeds of a new and improved implementation practice? Journal of Acquired Immune Deficiency Syndrome, 57(Suppl 2), 80–82.
  • Gable, L., Gostin, L., & Hodge, J. G. (2009). A global assessment of the role of law in the HIV/AIDS pandemic. Public Health, 123, 260–264.
  • Galletly, C. L., & Pinkerton, S. D. (2006). Conflicting messages: How criminal HIV disclosure laws undermine public health efforts to control the spread of HIV. AIDS Behavior, 10, 451–461.
  • George Washington University, National Health Policy Forum. (2010). The basics: The Ryan White HIV/AIDS Program. Retrieved from www.nhpf.org/library/the-basics/Basics_RyanWhite_03-10-10.pdf.
  • Gostin, L. O., & Hodge, J. G. (1998). Piercing the veil of secrecy in HIV/AIDS and other sexually transmitted diseases: Theories of privacy and disclosure in partner notification. Duke Journal of Gender Law & Policy, 5, 9.
  • Health Resources and Services Administration, HIV/AIDS Bureau. (n.d.-a). A living history. Retrieved from http://hab.hrsa.gov/livinghistoryprograms/Program_PartF_Essay.pdf.
  • Health Resources and Services Administration. Maternal Child Health Bureau. (n.d.-b). Retrieved from http://mchb.hrsa.gov/about/index.html.
  • Health Resources and Services Administration. (n.d.-c). Ryan White HIV/AIDS Program: Parts A–F. Washington DC: HIV/AIDS Bureau. Retrieved from http://hab.hrsa.gov/abouthab/aboutprograms.html.
  • Henry J. Kaiser Family Foundation. (2009). HIV/AIDS policy fact sheet, Medicaid and HIV/AIDS. Retrieved from http://kaiserfamilyfoundation.files.wordpress.com/2013/03/7172-051.pdf.
  • Henry J. Kaiser Family Foundation. (2011). HIV/AIDS policy fact sheet, Women and HIV/AIDS in the United States. Retrieved from http://kaiserfamilyfoundation.files.wordpress.com/2013/12/6092-11.pdf.
  • Henry J. Kaiser Family Foundation. (n.d.). The Kaiser Family Foundation state facts. Retrieved from http://kff.org/statedata.
  • Hirschhorn, L. R., Landers, S., Mciness, D. K., Malitz, F., Ding, L., Joyce, R., & Cleary, P. D. (2009). Reported quality in federal Ryan White HIV/AIDS Program supported networks of HIV/AIDS care. AIDS Care, 21(6), 799–807.
  • Holditch-Davis, D., Miles, M. S., Burchinal, M., O'Donnell, K., McKinney, R., & Lim, W. (2001). Parental caregiving and developmental outcomes of infants of mothers with HIV. Nursing Research, 50(1), 5–14.
  • Kass, N. E., & Gielen, A. C. (1998). The ethics of contact tracing programs and their implications for women. Duke Journal of Gender Law & Policy, 5, 89–102.
  • Kronebusch, K., & Ebel, B. (2004). Simplifying children's Medicaid and SCHIP. Health Affairs, 23(3), 233–246.
  • Lee, B. (n.d.). H.R. 3053 REPEAL (“Repeal Existing Policies that Encourage and Allow”) HIV Discrimination Act. Retrieved from www.hivlawandpolicy.org/sites/www.hivlawandpolicy.org/files/REPEAL-ACTII-fact-sheet-CHLP-4-25-13-v-1.pdf.
  • Levitt, M., & Rosenthal, D. B. (1999). The third wave: A symposium on AIDS politics and policy in the United States in the 1990s. Policy Studies Journal, 27(4), 783–795.
  • Lindau, S. T., Jerome, J., Miller, K., Monk, E., Garcia, P., & Cohen, M. (2006). Mothers on the margins: Implications for eradicating perinatal HIV. Social Science & Medicine, 62, 59–69.
  • Malee, K. M., Tassiopoulos, K., Hou, Y., Siberry, G., Williams, P. L., Hazra, R., … Mellins, C. A. (2011). Mental health functioning among children and adolescents with perinatal HIV infection and perinatal HIV exposure. AIDS Care, 23(12), 1533–1544. doi:10.1080/09540121.2011.575120.
  • McInnes, K., Landon, B. E., Malitz, F. E., Wilson, I. B., Marsden, P. V., Fleishman, J. A., … & Cleary, P. D. (2004). Differences in patient and clinic characteristics at CARE Act funded versus non-CARE Act funded HIV clinics. AIDS Care, 16, 851–857.
  • McNairy, M. L., Melaku, Z., Barker, P. M., & Abrams, E. J. (2011). Leveraging progress in prevention of mother-to-child transmission of HIV for improved maternal, neonatal, and child health services. Journal of Acquired Immune Deficiency Syndromes, 57, S83–86.
  • Miles, M. S., Holditch-Davis, D., Eron, J., Black, B. P., Pedersen, C., & Harris, D. A. (2003). An HIV self-care symptom management intervention for African-American mothers. Nursing Research, 52, 350–360.
  • Moore, R. D. (2011). Epidemiology of HIV infection in the United States: Implications for linkage to care. Clinical Infectious Diseases, 52(Suppl 2), 208–213.
  • Murphy, D. A., Greenwell, L., Moutappa, M., Brecht, M., & Schuster, M. (2006). Physical health of mothers with HIV/AIDS and the mental health of their children. Developmental and Behavioral Pediatrics, 27, 386–394.
  • Murphy, D. A., Marelich, W. D., Stritto, M. D., Swendeman, D., & Witkin, A. (2002). Mothers living with HIV/AIDS: Mental, physical, and family functioning. AIDS Care, 14, 633–644.
  • Murphy, D. A., Roberts, K. J., & Herberck, D. M. (2011). HIV disease impact on mothers: What they miss during their children's developmental years. Journal of Child and Family Studies, 20, 361–369.
  • Palenicek, J. G., Hidalgo, J., Hutton, N., & Weiss, B. (1996). Impact of on-site social work services on the documentation of client and family-centered information: The experience of Ryan White CARE Act (Title IV) pediatric program sites in Maryland. Pediatric AIDS and HIV Infection, 7(5), 337–345.
  • Parham, D., & Conviser, R. (2002). A brief history of the Ryan White CARE Act in the USA and its implications for other countries. AIDS Care, 14(Suppl 1), 3–6.
  • Perry, M., & Paradise, J. (2007). Enrolling children in Medicaid and SCHIP: Insights from focus groups with low-income parents. Menlo Park, CA: Kaiser Commission on Medicaid and the Uninsured.
  • Podhurst, L. S., Storm, D. S., & Dolgonos, S. (2009). Women's opinions about routine HIV testing during pregnancy: Implications for the opt-out approach. AIDS Patient Care and STDs, 23(5), 331–337.
  • Richter, L., Beyrer, C., Kippax, S., & Heidari, S. (2010). Visioning services for children affected by HIV and AIDS through a family lens. Journal of the International AIDS Society, 13(Suppl 2), I1.
  • Rotheram-Borus, M. J., Flannery, D., Rice, E., & Lester, P. (2005). Families living with HIV. AIDS Care, 17(8), 978–987.
  • Salisbury, K. M. (2000). National and state policies influencing the care of children affected by AIDS. Child and Adolescents Psychiatric Clinics of North America, 9(2), 425–447.
  • Schoettes, S., Hansens, C., & Chin, L. J. (2010). Unjust, unjustified, and just unacceptable: HIV criminalization's impact on human rights and public health. Retrieved from http://pwnusa.files.wordpress.com/2013/12/crim-us-map-july-2010.pdf.
  • Schor, E. L. (2003). Family pediatrics: report of the task force on the family. Pediatrics, 111(6), 1541–1571.
  • Segurado, A. C., & Paiva, V. (2007). Rights of HIV positive people to sexual and reproductive health: Parenthood. Reproductive Health Matters, 15(Suppl 29), 27–45.
  • Siplon, P. (1999). Washington's response to the AIDS epidemic: The Ryan White CARE Act. Policy Studies Journal, 27(4), 796–808.
  • Soto, T. A., Bell, J., & Pillen, M. B. (2004). Literature on integrated HIV care: A review. AIDS Care, 16(Suppl 1), 43–55.
  • White House Office of National AIDS Policy. (2010). National HIV/AIDS strategy for the United States. Retrieved from http://aids.gov/federal-resources/national-hiv-aids-strategy/nhas.pdf.
  • Whitmore, S., Zhang, X., & Taylor, A. W. (2009). Estimated number of births to HIV-positive women, United States, 2006. Poster presented at the 16th Conference on Retroviruses and Opportunistic Infections, Montreal, Canada.

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