Survival and end-of-life aspects among subjects on long-term noninvasive ventilation

References

• Mokhlesi B, Kryger MH, Grunstein RR. Assessment and management of patients with obesity hypoventilation syndrome. Proc Am Thorac Soc. 2008;5(2):218–9.
   PubMedGoogle Scholar
• Budweiser S, Riedl SG, Jörres RA, et al. Mortality and prognostic factors in patients with obesity-hypoventilation syndrome undergoing noninvasive ventilation. J Intern Med. 2007;261(4):375–383.
   PubMed Web of Science ®Google Scholar
• Kleopa KA, Sherman M, Neal B, et al. Bipap improves survival and rate of pulmonary function decline in patients with ALS. J Neurol Sci. 1999;164(1):82–88.
   PubMed Web of Science ®Google Scholar
• Bourke SC, Tomlinson M, Williams TL, et al. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomised controlled trial. Lancet Neurol. 2006;5(2):140–147.
   PubMed Web of Science ®Google Scholar
• Mokhlesi B. Obesity hypoventilation syndrome: a state-of-the-art review. Respir Care. 2010;55(10):134–135.
   Web of Science ®Google Scholar
• Masa JF, Corral J, Caballero C, et al. Non-invasive ventilation in obesity hypoventilation syndrome without severe obstructive sleep apnoea. Thorax. 2016;71(10):899–906.
   PubMed Web of Science ®Google Scholar
• Murphy PB, Rehal S, Arbane G, et al. Effect of home noninvasive ventilation with oxygen therapy vs oxygen therapy alone on hospital readmission or death after an acute COPD exacerbation. JAMA. 2017;317(21):2177.
   PubMed Web of Science ®Google Scholar
• Goldberg A, Leger P, Hill N, et al. Clinical indications for noninvasive positive pressure ventilation in chronic respiratory failure due to restrictive lung disease, COPD, and nocturnal hypoventilation—A consensus conference report. Chest. 1999;116(2):521–534.
   Web of Science ®Google Scholar
• Ergan B, Oczkowski S, Rochwerg B, et al. European respiratory society guidelines on long-term home non-invasive ventilation for management of COPD. Eur Respir J. 2019;54(3):1901003.
   PubMed Web of Science ®Google Scholar
• Mokhlesi B, Masa JF, Brozek JL, et al. Evaluation and management of obesity hypoventilation syndrome. An official American thoracic society clinical practice guideline. Am J Respir Crit Care Med. 2019;200(3):e6–e24.
   Web of Science ®Google Scholar
• Boyd K, Murray SA. Recognising and managing key transitions in end of life care. BMJ. 2010;341(sep16 2):c4863.
   Web of Science ®Google Scholar
• Brinkman-Stoppelenburg A, Rietjens JA. van der Heide A. The effects of advance care planning on end-of-life care: A systematic review. Palliat Med. 2014;28(8):1000–1025.
   PubMed Web of Science ®Google Scholar
• Smith M, Wrobel J. Epidemiology and clinical impact of major comorbidities in patients with COPD. Int J Chron Obstruct Pulmon Dis. 2014;9:871–888.
   Web of Science ®Google Scholar
• Windisch W, Geiseler J, Simon K, et al. German national guideline for treating chronic respiratory failure with invasive and non-invasive ventilation – Revised edition 2017: PART 2. Respiration. 2018;96(2):171–203.
   PubMed Web of Science ®Google Scholar
• Global Initiative for Chronic Obstructive Lung Disease. published in Fontana, WI, USA; [cited 2020 Jun 8] Available from: www.goldcopd.org
   Google Scholar
• Charlson ME, Pompei P, Ales KL, et al. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis. 1987;40(5):373–383.
   PubMedGoogle Scholar
• Charlson ME, Szatrowski TP, Peterson J, et al. Validation of a combined comorbidity index. J Clin Epidemiol. 1994;47(11):1245–1251.
   PubMed Web of Science ®Google Scholar
• Blankenburg T, Benthin C, Pohl S, et al. Survival of hypercapnic patients with COPD and obesity hypoventilation syndrome treated with high intensity non invasive ventilation in the daily routine care. Open Respir Med J. 2017;11(1):31–40.
   Google Scholar
• Sancho J, Martínez D, Bures E, et al. Bulbar impairment score and survival of stable amyotrophic lateral sclerosis patients after noninvasive ventilation initiation. ERJ Open Res. 2018;4(2):00159–02017.
   Google Scholar
• King CS, Nathan SD. Idiopathic pulmonary fibrosis: effects and optimal management of comorbidities. Lancet Respir Med. 2017;5(1):72–84.
   PubMed Web of Science ®Google Scholar
• Stineman MG, Xie D, Pan Q, et al. All-cause 1-, 5-, and 10-year mortality in elderly people according to activities of daily living stage. J Am Geriatr Soc. 2012;60(3):485–492.
   PubMed Web of Science ®Google Scholar
• Liu Y, Croft J, Anderson L, et al. The association of chronic obstructive pulmonary disease, disability, engagement in social activities, and mortality among US adults aged 70 years or older, 1994–2006. Int J Chron Obstruct Pulmon Dis. 2014;9:75.
   PubMed Web of Science ®Google Scholar
• Boudestein LCM, Rutten FH, Cramer MJ, et al. The impact of concurrent heart failure on prognosis in patients with chronic obstructive pulmonary disease. Eur J Heart Fail. 2009;11(12):1182–1188.
   PubMed Web of Science ®Google Scholar
• Mannino DM, Thorn D, Swensen A, et al. Prevalence and outcomes of diabetes, hypertension and cardiovascular disease in COPD. Eur Respir J. 2008;32(4):962–969.
   PubMed Web of Science ®Google Scholar
• Castro-Añón O, LA PDL, De la Fuente Sánchez S, et al. Obesity-hypoventilation syndrome: increased risk of death over sleep apnea syndrome. Atkin SL, ed. PLoS One. 2015;10(2):e0117808.
   Web of Science ®Google Scholar
• Dreher M, Storre JH, Schmoor C, et al. High-intensity versus low-intensity non-invasive ventilation in patients with stable hypercapnic COPD: a randomised crossover trial. Thorax. 2010;65(4):303–308.
   PubMed Web of Science ®Google Scholar
• Köhnlein T, Windisch W, Köhler D, et al. Non-invasive positive pressure ventilation for the treatment of severe stable chronic obstructive pulmonary disease: a prospective, multicentre, randomised, controlled clinical trial. Lancet Respir Med. 2014;2(9):698–705.
   PubMed Web of Science ®Google Scholar
• Priou P, Hamel J-F, Person C, et al. Long-term outcome of noninvasive positive pressure ventilation for obesity hypoventilation syndrome. Chest. 2010;138(1):84–90.
   PubMed Web of Science ®Google Scholar
• Raskin J, Vermeersch K, Everaerts S, et al. Do-not-resuscitate orders as part of advance care planning in patients with COPD. ERJ Open Res. 2018;4(1):00116–02017.
   Google Scholar
• Nava S, Sturani C, Hartl S, et al. End-of-life decision-making in respiratory intermediate care units: a European survey. Eur Respir J. 2007;30(1):156–164.
   Web of Science ®Google Scholar
• Gruneir A, Mor V, Weitzen S, et al. Where people die: a multilevel approach to understanding influences on site of death in America. Med Care Res Rev. 2007;64(4):351–378.
   PubMed Web of Science ®Google Scholar
• Gainza-Miranda D, Sanz-Peces EM, Alonso-Babarro A, et al. Breaking barriers: prospective study of a cohort of advanced chronic obstructive pulmonary disease patients to describe their survival and end-of-life palliative care requirements. J Palliat Med. 2019;22(3):290–296.
   Web of Science ®Google Scholar
• Borel J-C, Burel B, Tamisier R, et al. Comorbidities and mortality in hypercapnic obese under domiciliary noninvasive ventilation. Ma X-L, ed. PLoS One. 2013;8(1):e52006.
   PubMed Web of Science ®Google Scholar