1,866
Views
2
CrossRef citations to date
0
Altmetric
Research Article

Danish translation and linguistic validation of the multidimensional dyspnea profile

ORCID Icon, , ORCID Icon & ORCID Icon
Article: 1905498 | Received 16 Feb 2020, Accepted 19 Oct 2020, Published online: 30 Mar 2021

References

  • https://www.who.int/en/news-room/fact-sheets/detail/noncommunicable-diseases [Internet]. https://www.who.int/en/news-room/fact-sheets/detail/noncommunicable-diseases. 2014. Available from: https://www.who.int/en/news-room/fact-sheets/detail/noncommunicable-diseases
  • Stevens Jenifer P, Dechen T, Schwartzstein R, et al. Prevalence of dyspnea among hospitalized patients at the time of admission. J Pain Symptom Manage. 2019;56(1):15–6. .
  • GOLD. Global initiative for chronic obstructive lung disease. Global strategy for the diagnosis, management and prevention of COPD [Internet]. 2019. Available from: www.goldcopd.orgdatelastaccesedfeb.nov2019
  • Aepc C, Society I, Uk SG, et al. 2015 ESC/ERS guidelines for the diagnosis and treatment of pulmonary hypertension. The Joint Task Force for the Diagnosis and Treatment of Pulmonary Hypertension of the European Society of Cardiology (ESC) and the European Respiratory Society (ERS). 2016;67–119.
  • Parshall MB, Schwartzstein RM, Adams L, et al. American Thoracic Society documents an official American Thoracic Society statement: update on the mechanisms, assessment, and management of dyspnea. American journal of respiratory and critical care medicin. 2012;185(4):435–452.
  • Abebabaw MY, George SA. Depression and anxiety in patients with COPD. Eur Respir Rev [Internet]. 2014;23(133):345–349. Available from: http://err.ersjournals.com/content/23/133/345.full.pdf+html%5Cnhttp://ovidsp.ovid.com/ovidweb.cgi?T=JS&PAGE=reference&D=emed12&NEWS=N&AN=2014584248
  • Mahler DA, Selecky PA, Harrod CG. Management of dyspnea in patients with advanced lung or heart disease. Practical guidance from the American College of Chest Physicians consensus statement. Chest journal [Internet]. 2010;120(5):160–166. Available from. chestjournal.chestpubs.org.
  • Sundh J, Ekström M. Persistent disabling breathlessness in chronic obstructive pulmonary disease. International Journal of COPD [Internet]. 2016;11(1):2805–2812. Available from. http://www.embase.com/search/results?subaction=viewrecord&from=export&id=L613201190%0Ahttp://dx.doi.org/10.2147/COPD.S119992%0Ahttp://sfxhosted.exlibrisgroup.com/sfxtul?sid=EMBASE&=11782005&id=doi:10.2147%2FCOPD.S119992&atitle=Persistent+disabling+bre
  • Pooler A, Beech R. Examining the relationship between anxiety and depression and exacerbations of COPD which result in hospital admission: a systematic review. Int J COPD. 2014;9:315–330.
  • Xu W, Collet J-P, Shapiro S, et al. Independent effect of depression and anxiety on chronic obstructive pulmonary disease exacerbations and hospitalizations. American journal of Respiratory and Crit Care Med [Internet]. 2008 Nov [cited 2019 Feb 27];178(9):913–920. Available from. http://www.atsjournals.org/doi/abs/10.1164/rccm.200804-619OC
  • Stevens JP, Baker K, Howell MD, et al. Prevalence and predictive value of dyspnea ratings in hospitalized patients: pilot studies. PLoS ONE. 2016;11(4):1–11. e0152601 doi101371/.
  • Stevens JP, Sheridan AR, Bernstein HB, et al. A multidimensional profile of dyspnea in hospitalized patients. Chest. 2019;156(3):507–517.
  • Das BB, Young M, Niu J. Relation between New York Heart Association functional class and objective measures of cardiopulmonary exercise in adults with congenital heart disease. Am J Cardiol [Internet]. 2019;123(11):1868–1873. Available from.
  • Transplantation L 2017 ACC/AHA/HFSA focused update of the 2013 ACCF/AHA guideline for the management of heart failure.
  • Jones PW, Harding G, Berry P, et al. Development and first validation of the COPD assessment test. Eur Respir J. 2009;34(3):648–654.
  • Dorman SB, Anthony Edwards A. Which measurements scale should we use to measure breathlessness in palliative care? A systematic review. Palliat Med. 2007;21(3):177–191.
  • Gift AG. Validation of a vertical visual analogue scale as a measure of clinical dyspnea. Rehabilitation Nursing. 1987;14(6):323–325.
  • Wade J, Mendonca S, Booth S, et al. Are within-person Numerical Rating Scale (NRS) ratings of breathlessness ‘on average’ valid in advanced disease for patients and for patients’ informal carers? 2017;1–6.
  • Pt ABM, Gulart AA, Santos K, et al. Modified medical research council dyspnea scale in GOLD classification better reflects physical activities of daily living. 2018;77–85.
  • Lowell N, Etkind SN, Bajwah S, et al. To what extent do the NRS and CRQ capture change. J Pain Symptom Manage. 2019 september;58(3):369–381.
  • Groenvold M, Carol M, Spungers MAG, et al. Validation of the EORTC QLQC30 Quality of Life Questionnaire through combined qualitative and quantitative assessment of patient-observer agreement. Journal of Clinical Epidemiol. 1997;50(4):441–450.
  • Aa M, Groenvold M, Aaronson N, et al. Item response theory was used to shorten EORTC QLQ-C30 scales for use in palliative care. Journal og Clinical Epidemiol. 2006;59:36–44.
  • Ling W, Karuthan L, Awang C, et al. Test–retest reliability of HeartQoL and its comparability to the MACNEW heart disease health-related quality of life questionnaire. 2016;351–357.
  • Charalambous A Preliminary validation and reliability of the short form chronic respiratory disease questionnaire in a lung cancer population. 2017;1–8.
  • Banzett RB, Donnell CRO, Guilfoyle TE, et al. Multidimensional dyspnea profile: an instrument for clinical and laboratory.1681–1691.
  • Sandau C, Bove DG, Marså K, et al. Is the high intensity symptoms experienced by patients admitted with chronic obstructive pulmonary disease documented by health professionals? - a prospective survey with comparison of patient reported outcomes and medical records. European Clinical Respiratory Journal [Internet]. 2018;05(1). Available from . DOI:https://doi.org/10.1080/20018525.2018.1506236.
  • Bech CS, Bove DG, Stassen IT, et al. Is there evidence that non-invasive ventilation has an effect on anxiety and dyspnea and thus on health related quality of life in patients with COPD? Journal of Nursing and Health Sciences. 2017;3(2):21–34.
  • Meek PM, Banzett R, Parshall MB, et al. Reliability and validity of the multidimensional dyspnea profile. Available from Chest. 2012;1416:1546–1553.
  • Ekström M, Sundh J. Swedish translation and linguistic validation of the multidimensional dyspnoea profile. Eur Clin Respir J. 2016;3(1):4–7.
  • Morélot-panzini C, Gilet H, Aguilaniu B, et al. Real-life assessment of the multidimensional nature of dyspnoea in COPD outpatients. 2016;79–1668. Available from: doi: https://doi.org/10.1183/13993003.01998-2015
  • A Stump 1, M Schröder 1, U Domanski 1 2, K-J Franke 3 4 G Nilius 1 3. German translation and linguistic validation of the multidimensional dyspnea profile (MDP). Pneumologie. 2019 Aug;73 (8):470-473 DOI:https://doi.org/10.1055/a0861-1516.
  • Haugdahl HS, Knutli M, Sorger H, et al. Norsk oversettelse av nytt, pasientrapportert erdimensjonalt spørreskjema ved dyspné. Sykepleien Forskning 2020 1581376: DOI:https://doi.org/10.1186/cc10588
  • Linguistic Validation Guidance of a Clinical Outcome Assessment (COA). Published by Mapi Research Trust 2018, Mapi Language Group; 2018. [email protected]
  • Beaton DE, Bombardier C, Guillemin F, et al. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25(24):3186–3191.
  • Beaton DE. Understanding the relevance of measured change through studies of responsiveness. Spine. 2000;25(24):3192–3199.
  • Review C, Communication S, Principles G World Medical Association declaration of Helsinki ethical principles for medical research involving human subjects. 2019;
  • Ekström M, Bornefalk H, Sköld M, et al. Validation of the Swedish Multidimensional Dyspnea Profile (MDP) in outpatients with cardiorespiratory disease. BMJ Open Respiratory Research 2019 (6);1–9.
  • Williams MT, John D, Frith P Comparison of the Dyspnoea-12 and multidimensional dyspnoea profile in people with COPD. 2017;( 1010309). Available from: DOI:https://doi.org/10.1183/13993003.00773-2016
  • Morélot-panzini C, Gilet H, Aguilaniu B, et al. Real-life assessment of the multidimensional nature of dyspnoea in COPD outpatients. Eurpean Respiratory Journal [Internet]. 2016(47);1668–1679. Available from. ;47(6):.
  • Campbell ML. Dyspnea prevalence, trajectories, and measurement in critical care and at life’ s end. Current Opinion. 2012;6(2):168–171.
  • Williams MT, Johnston KN. Multidimensional measurement of breathlessness: recent advances. Curr Opin Support Palliat Care. 2019;13(3):184–192.