68
Views
0
CrossRef citations to date
0
Altmetric
RESEARCH ARTICLE

The challenges of recruiting never-smokers with chronic obstructive pulmonary disease from the large population-based Swedish CArdiopulmonary bioImage study (SCAPIS) cohort

ORCID Icon, , , , , , , , , , , , , , , & show all
Article: 2372903 | Received 15 Mar 2024, Accepted 22 Jun 2024, Published online: 15 Jul 2024

References

  • Agustí A, Celli BR, Criner GJ, et al. Global initiative for chronic obstructive lung disease 2023 report: GOLD executive summary. Eur Respir J. 2023;61(4):2300239. doi: 10.1183/13993003.00239-2023
  • Diaz-Guzman E, Mannino DM. Epidemiology and prevalence of chronic obstructive pulmonary disease. Clin Chest Med. 2014;35(1):7–11. doi: 10.1016/j.ccm.2013.10.002
  • Adeloye D, Song P, Zhu Y, et al. Global, regional, and national prevalence of, and risk factors for, chronic obstructive pulmonary disease (COPD) in 2019: a systematic review and modelling analysis. The Lancet Respir Med. 2022;10(5):447–458. doi: 10.1016/S2213-2600(21)00511-7
  • Yang IA, Jenkins CR, Salvi SS. Chronic obstructive pulmonary disease in never-smokers: risk factors, pathogenesis, and implications for prevention and treatment. The Lancet Respir Med. 2022;10(5):497–511. doi: 10.1016/S2213-2600(21)00506-3
  • Bergström G, Berglund G, Blomberg A, et al. The Swedish CArdioPulmonary BioImage study: objectives and design. J Intern Med. 2015;278(6):645–659. doi: 10.1111/joim.12384
  • Quanjer PH, Tammeling GJ, Cotes JE, et al. Lung volumes and forced ventilatory flows. Report working party standardization of lung function tests, European community for steel and coal. Official statement of the European respiratory society. Eur Respir J. 1993;6(Suppl 16):5–40. doi: 10.1183/09041950.005s1693
  • Bonander C, Nilsson A, Björk J, et al. The value of combining individual and small area sociodemographic data for assessing and handling selective participation in cohort studies: evidence from the Swedish cardiopulmonary bioimage study. PLOS ONE. 2022;17(3):e0265088. doi: 10.1371/journal.pone.0265088
  • Stanojevic S, Quanjer P, Miller MR, et al. The global lung function initiative: dispelling some myths of lung function test interpretation. Breathe. 2013;9(6):462–474. doi: 10.1183/20734735.012113
  • ERS. The Global Lung Function Initiative GLI, calculators for Spirometry, TLCO and Lung volume. ERS European Respiratory Society; 2021 [ 2021 Version 2.0] https://gli-calculator.Ersnet.org/index.html
  • Forster HP, Emanuel E, Grady C. The 2000 revision of the declaration of Helsinki: a step forward or more confusion? Lancet (London, England). The Lancet. 2001;358(9291):1449–1453. doi: 10.1016/S0140-6736(01)06534-5
  • Jones PW, Quirk FH, Baveystock CM. The St george’s respiratory Questionnaire. Respir Med. 1991;85:25–31; discussion 3-7.doi: 10.1016/S0954-6111(06)80166-6
  • Jones PW, Harding G, Berry P, et al. Development and first validation of the COPD assessment test. Eur Respir J. 2009;34(3):648–654. doi: 10.1183/09031936.00102509
  • Bestall JC, Paul EA, Garrod R, et al. Usefulness of the medical research council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax. 1999;54(7):581–586. doi: 10.1136/thx.54.7.581
  • Lamprecht B, McBurnie MA, Vollmer WM, et al. COPD in never smokers: results from the population-based burden of obstructive lung disease study. Chest. 2011;139(4):752–763. doi: 10.1378/chest.10-1253
  • Lindberg A, Linder R, Backman H, et al. From COPD epidemiology to studies of pathophysiological disease mechanisms: challenges with regard to study design and recruitment process: respiratory and cardiovascular effects in COPD (KOLIN). Eur Clin Respir J. 2017;4(1):1415095. doi: 10.1080/20018525.2017.1415095
  • Çolak Y, Afzal S, Nordestgaard BG, et al. Majority of never-smokers with airflow limitation do not have asthma: the Copenhagen General Population Study. Thorax. 2016;71(7):614–623. doi: 10.1136/thoraxjnl-2015-208178
  • Terzikhan N, Verhamme KMC, Hofman A, et al. Prevalence and incidence of COPD in smokers and non-smokers: the Rotterdam Study. Eur J Epidemiol. 2016;31(8):785–792. doi: 10.1007/s10654-016-0132-z
  • Sammut R, Griscti O, Norman IJ. Strategies to improve response rates to web surveys: a literature review. Int J Nurs Stud. 2021;123:104058. doi: 10.1016/j.ijnurstu.2021.104058
  • Holtom B, Baruch Y, Aguinis H, et al. Survey response rates: trends and a validity assessment framework. Hum Relat. 2022;75(8):1560–1584. doi: 10.1177/00187267211070769
  • Adams M, Caffrey L, McKevitt C. Barriers and opportunities for enhancing patient recruitment and retention in clinical research: findings from an interview study in an NHS academic health science centre. Health Res Policy Sys. 2015;13(1):8. doi: 10.1186/1478-4505-13-8
  • Sajdak R, Trembath L, Thomas KS. The importance of standard operating procedures in clinical trials. J Nucl Med Technol. 2013;41(3):231–233. doi: 10.2967/jnmt.113.121467
  • Bhatt SP, Y-I K, Wells JM, et al. FEV 1 /FEV 6 to diagnose airflow obstruction. comparisons with computed tomography and morbidity Indices. Ann Am Thorac Soc. 2014;11(3):335–341. doi: 10.1513/AnnalsATS.201308-251OC
  • Lönn BB, Hörnsten Å, Styrke J, et al. Transitioning to the clinical research nurse role - a qualitative descriptive study. J Adv Nurs. 2022;78(11):3817–3829. doi: 10.1111/jan.15397
  • Aaron SD, Tan WC, Bourbeau J, et al. Diagnostic instability and reversals of chronic obstructive pulmonary disease diagnosis in individuals with mild to moderate airflow obstruction. Am J Respir Crit Care Med. 2017;196(3):306–314. doi: 10.1164/rccm.201612-2531OC
  • Pellegrino R, Viegi G, Brusasco V, et al. Interpretative strategies for lung function tests. Eur Respir J. 2005;26(5):948–968. doi: 10.1183/09031936.05.00035205
  • Seccareccia F, Zuccaro P, Pacifici R, et al. Serum cotinine as a marker of environmental tobacco smoke exposure in epidemiological studies: the experience of the MATISS project. Eur J Epidemiol. 2003;18(6):487–492. doi: 10.1023/A:1024672522802
  • Sandberg A, Sköld CM, Grunewald J, et al. Assessing recent smoking status by measuring exhaled carbon monoxide levels. PLOS ONE. 2011;6(12):e28864. doi: 10.1371/journal.pone.0028864
  • Williams J, Rakovac I, Loyola E, et al. A comparison of self-reported to cotinine-detected smoking status among adults in Georgia. Eur J Public Health. 2020;30(5):1007–1012. doi: 10.1093/eurpub/ckaa093
  • Patrick DL, Cheadle A, Thompson DC, et al. The validity of self-reported smoking: a review and meta-analysis. Am J Public Health. 1994;84(7):1086–1093. doi: 10.2105/AJPH.84.7.1086
  • Rolstad S, Adler J, Rydén A. Response burden and questionnaire length: is shorter better? A review and meta-analysis. Value Health. 2011;14(8):1101–1108. doi: 10.1016/j.jval.2011.06.003
  • Iglesias C, Torgerson D. Does length of questionnaire matter? A randomised trial of response rates to a mailed questionnaire. J Health Serv Res & Policy. 2000;5(4):219–221. doi: 10.1177/135581960000500406