443
Views
2
CrossRef citations to date
0
Altmetric
Original Research Paper

Listening to mothers: experiences of mental health support and insights into adapting therapy for people with severe or profound intellectual disabilities

&
Pages 135-142 | Received 28 Nov 2018, Accepted 15 Apr 2019, Published online: 22 Jun 2019

References

  • Bates, P., Priest, H. M. and Gibbs, M. 2004. The education and training needs of learning disability staff in relation to mental health issues. Nurse Education in Practice, 4, 30–38.
  • Braun, V. and Clarke, V. 2013. Successful Qualitative Research: a practical guide for beginners. London: Sage Publications.
  • Carr, A., Linehan, C., O’Reilly, G., Walsh P. N. and McEvoy, J. 2016. The handbook of intellectual disability and clinical psychology practice. 2nd ed. London: Routledge.
  • Chinn, D. and Abraham, E. 2016. Using ‘candidacy’ as a framework for understanding access to mainstream psychological treatment for people with intellectual disabilities and common mental health problems within the English Improving Access to Psychological Therapies Service. Journal of Intellectual Disability Research, 60, 571–582.
  • Cooper, S. A., Smiley, E., Morrison, J., Williamson, A. and Allan, L. 2007. Mental ill-health in adults with intellectual disabilities: Prevalence and associated factors. British Journal of Psychiatry, 190, 27–35.
  • Dempsey, I. and Keen, D. 2008. A review of processes and outcomes in family-centered services for children with a disability. Topics in Early Childhood Special Education, 28, 42–52.
  • Flynn, S., Vereenooghe, L., Hastings, R. P., Adams, D., Cooper, S. A., Gore, N., Hatton, C., Hood, K., Jahoda, A., Langdon, P. E., McNamara, R., Oliver, C., Roy, A., Totsika, V. and Waite, J. 2017. Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review. Clinical Psychology Review, 57, 32–44.
  • Hutchinson, N. and Bodicoat, A. 2015. The effectiveness of intensive interaction, a systematic literature review. Journal of Applied Research in Intellectual Disabilities, 28, 437–454.
  • Jahoda, A., Hastings, R., Hatton, C., Cooper, S. A., Dagnan, D., Zhang, R., McConnachie, A., McMeekin, N., Appleton, K., Jones, R., Scott, K., Fulton, L., Knight, R., Knowles, D., Williams, C., Briggs, A., MacMahon, K., Lynn, H., Smith, I., Thomas, G. and Melville, C. 2017. Comparison of behavioural activation with guided self-help for treatment of depression in adults with intellectual disabilities: A randomised controlled trial. The Lancet Psychiatry, 4, 909–19.
  • Jones, E., Perry, J., Lowe, K., Toogood, S., Dunstan, F., Allen, D. and Pagler, J. 1999. Opportunity and the promotion of activity among adults with severe intellectual disability living in community residences: the impact of training staff in active support. Journal of Intellectual Disability Research, 43, 164–178.
  • Lew, M., Matta, C., Tripp-Tebo, C. and Watts, D. 2006. Dialectical behaviour therapy (DBT) for individuals with intellectual disabilities: a programme description. Mental Health Aspects of Developmental Disabilities, 9, 1–12.
  • Mansell, J. 2010. Raising our sights: services for adults with profound intellectual and multiple disabilities. [pdf]. Available at: <https://www.mencap.org.uk/sites/default/files/2016-06/Raising_our_Sights_report.pdf> [Accessed 11 November 2018].
  • National Institute for Health and Care Excellence. 2016. Mental health problems in people with learning disabilities: prevention, assessment and management. [pdf]. Available at: <https://www.nice.org.uk/guidance/ng54/resources/mental-health-problems-in-people-with-learning-disabilities-prevention-assessment-and-management-pdf-1837513295557> [Accessed 11 November 2018].
  • Perry, J. and Felce, D. 2003. Quality of life outcomes for people with intellectual disabilities living in staffed community housing services: a stratified random sample of statutory, voluntary and private agency provision. Journal of Applied Research in Intellectual Disabilities, 16, 11–28.
  • Pert, C., Jahoda, A., Stenfert Kroese, B., Trower, P., Dagnan, D. and Selkirk, M. 2013. Cognitive behavioural therapy from the perspective of clients with mild intellectual disabilities: a qualitative investigation of process issues. Journal of Intellectual Disability Research, 57, 359–369.
  • Phillip, M., Lambe, L. and Hogg, J. 2005. The well-being project: identifying and meeting the needs of young people with profound and multiple learning disabilities and their carers. In: The Foundation for People with Learning Disabilities (2005). Making us count [online]. London: The Mental Health Foundation. Available at: <https://www.mentalhealth.org.uk/learning-disabilities/publications/making-us-count-report> [Accessed 11 November 2018].
  • Singleton, N., Bumpstead, R., O’Brien, M., Lee, A. and Meltzer, H. 2001. Psychiatric Morbidity Among Adults Living in Private Households, 2000. [pdf] The Stationery Office. Available at: <https://sp.ukdataservice.ac.uk/doc/4653/mrdoc/pdf/4653userguide2.pdf> [Accessed 04 March 2019].
  • Smith, J. A., Flowers, P. and Larkin, M. 2009. Interpretative phenomenological analysis: theory, method and research. London: Sage Publications.
  • The British Psychological Society. 2016. Psychological therapies and people who have intellectual disabilities. [pdf]. London: The British Psychological Society. Available at: <https://www1.bps.org.uk/system/files/Public%20files/Policy/psychological_therapies_and_people_who_have_id_pdf_for_review.pdf> [Accessed 11 November 2018].
  • The Foundation for People with Learning Disabilities. 2005. Making us count: identifying and improving mental health support for young people with learning disabilities [online]. London: The Mental Health Foundation. Available at: <https://www.mentalhealth.org.uk/learning-disabilities/publications/making-us-count-report> [Accessed 11 November 2018].
  • The Foundation for People with Learning Disabilities. 2014. Feeling down: improving the mental health of people with learning disabilities. [pdf]. London: The Mental Health Foundation. Available at: <https://www.mentalhealth.org.uk/sites/default/files/feeling-down-report-2014.pdf> [Accessed 11 November 2018].
  • The Scottish Government. 2015. The Matrix: a guide to delivering evidence based psychological therapies in Scotland. [pdf]. Edinburgh: NHS Education for Scotland. Available at: <http://www.nes.scot.nhs.uk/media/3326029/matrix_-_learningdisabilitytables.pdf> [Accessed 11 November 2018].

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.