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Articles

Social support and family quality of life in Chinese families of children with autism spectrum disorder: the mediating role of family cohesion and adaptability

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Pages 454-461 | Received 17 Apr 2020, Accepted 27 Jul 2020, Published online: 12 Aug 2020

References

  • Altiere, M. J. and Kluge, S. V. 2009. Family functioning and coping behaviors in parents of children with autism. Journal of Child and Family Studies, 18, 83–92.
  • Benson, P. R. 2012. Network characteristics, perceived social support, and psychological adjustment in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 42, 2597–2610.
  • Boyd, B. A. 2002. Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215.
  • Boyraz, G. and Sayger, T. V. 2011. Psychological well-being among fathers of children with and without disabilities: The role of family cohesion, adaptability, and paternal self-efficacy. American Journal of Men's Health, 5, 286–296.
  • Chiu, M. Y. L., Yang, X., Wong, F. H. T., Li, J. H. and Li, J. 2012. Caregiving of children with intellectual disabilities in China–an examination of affiliate stigma and the cultural thesis. Journal of Intellectual Disability Research, 12, 1117–1129.
  • Dai, W., Chen, L., Tan, H., Wang, J., Lai, Z., Kaminga, A. C., Li, Y. and Liu, A. 2016. Association between social support and recovery from post-traumatic stress disorder after flood: A 13–14 year follow-up study in Hunan, China. BMC Public Health, 16, 194–194.
  • Deng, Y., Yang, L. and Yin, Y. 2011. Family adaptability and cohesion among rural attempted suicides. Chinese Journal of Public Health, 27, 184–185.
  • Ekas, N. V., Ghilain, C., Pruitt, M., Celimli, S., Gutierrez, A. and Alessandri, M. 2016. The role of family cohesion in the psychological adjustment of non-Hispanic White and Hispanic mothers of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 21, 10–24.
  • Ekas, N. V., Lickenbrock, D. M. and Whitman, T. L. 2010. Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284.
  • Garrido, D., Carballo, G. and Garcia-Retamero, R. 2020. Siblings of children with autism spectrum disorders: Social support and family quality of life. Quality of Life Research, 29, 1193–1202.
  • Gau, S. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W. and Wu, Y. 2012. Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 6, 263–270.
  • Guan, W., Yan, T. and Deng, M. 2015. The characteristics of parenting stress of parents of children with disabilities and their effects on their quality of life: The mediating role of social support. Psychological Development and Education, 4, 411–419.
  • Han, K. S., Khim, S. Y., Lee, S. J., Park, E. S., Park, Y. J., Kim, J. H., Lee, K. M., Kang, H. C. and Yoon, J. W. 2006. Family functioning and quality of life of the family caregiver in cancer patients. Taehan Kanho Hakhoe Chi, 36, 983–991.
  • Higgins, D., Bailey, S. and Pearce, J. 2005. Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 9, 125–137.
  • Hsiao, Y. J., Higgins, K., Pierce, T., Whitby, P. J. S. and Tandy, R. D. 2017. Parental stress, family quality of life, and family-teacher partnerships: Families of children with autism spectrum disorder. Research in Developmental Disabilities, 70, 152–162.
  • Iacolino, C., Pellerone, M., Pace, U., Ramaci, T. and Castorina, V. 2016. Family functioning and disability: A study on Italian parents of disabled children. The European Proceedings of Social & Behavioural Sciences, 39–52.doi:https://doi.org/10.15405/epsbs.2016.05.5
  • Javadian, R. 2011. A comparative study of adaptability and cohesion in families with and without a disabled child. Procedia - Social and Behavioral Sciences, 30, 2625–2630.
  • Ji, B., Chen, S., Yi, R., Wang, Q. and Tang, S. 2013. Study on social support, coping style, and family functioning in parents of children with autism. Guangdong Medical Journal, 10, 1594–1596.
  • Ji, B., Zhao, I., Turner, C., Sun, M., Yi, R. and Tang, S. 2014. Predictors of health-related quality of life in Chinese caregivers of children with autism spectrum disorders: A cross-sectional study. Archives of Psychiatric Nursing, 28, 327–332.
  • King, G., Baxter, D., Rosenbaum, P., Zwaigenbaum, L. and Bates, A. 2009. Belief systems of families of children with autism spectrum disorders or Down syndrome. Focus on Autism and Other Developmental Disabilities, 24, 50–64.
  • Kuhlthau, K., Payakachat, N., Delahaye, J., Hurson, J., Pyne, J. M., Kovacs, E. and Tilford, J. M. 2014. Quality of life for parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 8, 1339–1350.
  • Lee, L. C., Harrington, R. A., Louie, B. B. and Newschaffer, C. J. 2008. Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38, 1147–1160.
  • Li, L. 2016a. Research on family quality of life of families with the autistic children in Shanghai. Masters’ dissertation. East China Normal University.
  • Li, X. 2016b. Study on the relation of social support, psychological stress, and life satisfaction for the main caregivers of autistic children. Master’s dissertation. Southwest University.
  • Lin, L. Y., Orsmond, G. I., Coster, W. J. and Cohn, E. S. 2011. Families of adolescents and adults with autism spectrum disorders in Taiwan: The role of social support and coping in family adaptation and maternal well-being. Research in Autism Spectrum Disorders, 5, 144–156.
  • Liu, P. 2013. Study in the relationship between the social support, coping style, mental stress and life satisfaction of the disabled children’s parents. Master’s dissertation. South-Central University for Nationalities.
  • Lu, M., Yang, G., Skora, E., Wang, G., Cai, Y., Sun, Q. and Li, W. 2015. Self-esteem, social support, and life satisfaction in Chinese parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 17, 70–77.
  • Luo, L. 2014. The study of the life quality of families with autistic children in Chengdu. Master’s dissertation. Sichuan Normal University.
  • Ma, S. 2014. Quality of life of autistic children’s parents and study on its relevant influence factors. Master’s dissertation. Shandong University.
  • Marsack, C. N. and Samuel, P. S. 2017. Mediating effects of social support on quality of life for parents of adults with autism. Journal of Autism and Developmental Disorders, 47, 2378–2389.
  • McStay, R. L., Trembath, D. and Dissanayake, C. 2014. Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44, 3101–3118.
  • Meral, B. F., Cavkaytar, A., Turnbull, A. P. and Wang, M. 2013. Family quality of life of Turkish families who have children with intellectual disabilities and autism. Research and Practice for Persons with Severe Disabilities, 38, 233–246.
  • National Bureau of Statistics of China. 2017. UNICEF China, UNFPA China. Population status of children in China in 2015: Facts and figures. [online] Available at: <https://www.unicef.cn/en/reports/population-status-children-china-2015> [Accessed 10 February 2020].
  • Ni, C. and Su, M. 2012. “Ideal model” and construction of autism family supporting web: Empirical analysis of Shenzhen 120 autism families. Social Work, 9, 44–48.
  • Olson, D. H., Sprenkle, D. H. and Russell, C. S. 1979. Circumplex model of marital and family systems: I. Cohesion and adaptability dimensions, family types, and clinical applications. Family Process, 18, 3–28.
  • Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H., Wang, M. and Nelson, L. L. 2003. Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47, 367–384.
  • Phillips, M. R., West, C. L., Shen, Q. and Zheng, Y. 1998. Comparison of schizophrenic patients’ families and normal families in China, using Chinese versions of FACES-II and the family environment scales. Family Process, 37, 95–106.
  • Pisula, E. and Kossakowska, Z. 2010. Sense of coherence and coping with stress among mothers and fathers of children with autism. Journal of Autism and Developmental Disorders, 40, 1485–1494.
  • Plumb, J. C. 2011. The impact of social support and family resilience on parental stress in families with a child diagnosed with an autism spectrum disorder. PhD. University of Pennsylvania.
  • Podsakoff, P. M., MacKenzie, S. B., Lee, J. Y. and Podsakoff, N. P. 2003. Common method biases in behavioral research: A critical review of the literature and recommended remedies. The Journal of Applied Psychology, 88, 879–903.
  • Pozo, P., Sarriá, E. and Brioso, A. 2014. Family quality of life and psychological well‐being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research, 58, 442–458.
  • Rao, P. A. and Beidel, D. C. 2009. The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33, 437–451.
  • Rodrigue, J. R., Morgan, S. B. and Geffken, G. 1990. Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19, 371–379.
  • Rodríguez-Sánchez, E., Pérez-Peñaranda, A., Losada-Baltar, A., Pérez-Arechaederra, D., Gómez-Marcos, M. Á., Patino-Alonso, M. C. and García-Ortiz, L. 2011. Relationships between quality of life and family function in caregiver. BMC Family Practice, 12, 19.
  • Sawyer, M. G., Bittman, M., La Greca, A. M., Crettenden, A., Harchak, T. F. and Martin, J. 2010. Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders, 40, 620–628.
  • Schlebusch, L., Dada, S. and Samuels, A. 2017. Family quality of life of South African families raising children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 1966–1977.
  • Sikora, D. M., Moran, E., Orlich, F., Hall, T. A., Kovacs, E., Delahaye, J., Clemons, T. and Kuhlthau, K. 2013. The relationship between family functioning and behavior problems in children with autism spectrum disorders. Research in Autism Spectrum Disorders, 7, 307–315.
  • Singh, P., Ghosh, S. and Nandi, S. 2017. Subjective burden and depression in mothers of children with autism spectrum disorder in India: Moderating effect of social support. Journal of Autism and Developmental Disorders, 47, 3097–3111.
  • Sun, X., Allison, C., Wei, L., Matthews, F. E., Auyeung, B., Wu, Y. Y., Griffiths, S., Zhang, J., Baron-Cohen, S. and Brayne, C. 2019. Autism prevalence in China is comparable to Western prevalence. Molecular Autism, 10, 7.
  • Tramonti, F., Bonfiglio, L., Di Bernardo, C., Ulivi, C., Virgillito, A., Rossi, B. and Carboncini, M. C. 2015. Family functioning in severe brain injuries: Correlations with caregivers’ burden, perceived social support and quality of life. Psychology, Health & Medicine, 20, 933–939.
  • Vasilopoulou, E. and Nisbet, J. 2016. The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49.
  • Wang, Y., Xiao, L., Chen, R., Chen, C., Xun, G., Lu, X., Shen, Y., Wu, R., Xia, K., Zhao, J. and Ou, J. 2018. Social impairment of children with autism spectrum disorder affects parental quality of life in different ways. Psychiatry Research, 266, 168–174.
  • World Health Organization. 2018. International Classification of Diseases (11th Revision). [online] Available at: <https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/437815624> [Accessed 4 December 2019].
  • Xiao, J., Huang, B., Shen, H., Liu, X., Zhang, J., Zhong, Y., Wu, C., Hua, T. and Gao, Y. 2017. Association between social support and health-related quality of life among Chinese seafarers: A cross-sectional study. PLoS One, 12, e0187275.
  • Xiao, S. 1994. Theoretical basis and research application of Social Support Rating Scale. Journal of Clinical Psychiatry, 2, 98–100.
  • Xue, J., Ooh, J. and Magiati, I. 2014. Family functioning in Asian families raising children with autism spectrum disorders: The role of capabilities and positive meanings. Journal of Intellectual Disability Research, 58, 406–420.
  • Zeng, S., Hu, X., Zhao, H. and Stone-MacDonald, A. K. 2020. Examining the relationships of parental stress, family support and family quality of life: A structural equation modeling approach. Research in Developmental Disabilities, 96, 103523.
  • Zhou, C., Wu, H., Zhu, D., Xie, J., Zhou, Z. and Li, Y. 2015. Study on the correlation between family intimacy and adaptability of children with cerebral palsy and social support. Maternal and Child Health Care of China, 14, 2184–2187.
  • Zhou, T., Wang, Y. and Yi, C. 2018. Affiliate stigma and depression in caregivers of children with Autism Spectrum Disorders in China: Effects of self-esteem, shame and family functioning. Psychiatry Research, 264, 260–265.

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