A model of internalized stigma in parents of individuals with disabilities

References

• Ali, A., Hassiotis, A., Strydom, A. and King, M. 2012. Self stigma in people with intellectual disabilities and courtesy stigma in family carers: A systematic review. Research in Developmental Disabilities, 33, 2122–2140.
   PubMed Web of Science ®Google Scholar
• Altschuler, M., Sideridis, G., Kala, S., Warshawsky, M., Gilbert, R., Carroll, D., Burger-Caplan, R. and Faja, S. 2018. Measuring individual differences in cognitive, affective, and spontaneous theory of mind among school-aged children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 3945–3957.
   PubMed Web of Science ®Google Scholar
• Anthony, B. J., Robertson, H. A., Verbalis, A., Myrick, Y., Troxel, M., Seese, S. and Anthony, L. G. 2020. Increasing autism acceptance: The impact of the Sesame Street “See Amazing in All Children” initiative. Autism, 24, 95–108.
   PubMed Web of Science ®Google Scholar
• Aukst Margetić, B., Jakovljević, M. and Margetić, B. 2012. Socio–cognitive–behavioral structural equation model of internalized stigma in people with severe and persistent mental illness should include personality dimensions. Psychiatry Research, 196, 162–163.
   PubMed Web of Science ®Google Scholar
• Bassirnia, A., Briggs, J., Kopeykina, I., Mednick, A., Yaseen, Z. and Galynker, I. 2015. Relationship between personality traits and perceived internalized stigma in bipolar patients and their treatment partners. Psychiatry Research, 230, 436–440.
   PubMed Web of Science ®Google Scholar
• Borecki, L., Gozdzik-Zelazny, A. and Pokorski, M. 2010. Personality and perception of stigma in psychiatric patients with depressive disorders. European Journal of Medical Research, 15, 10–16.
   PubMed Web of Science ®Google Scholar
• Bradley, R. 2016. ‘Why single me out?’ Peer mentoring, autism and inclusion in mainstream secondary schools. British Journal of Special Education, 43, 272–288.
   Web of Science ®Google Scholar
• Broady, T. R., Stoyles, G. J. and Morse, C. 2017. Understanding carers’ lived experience of stigma: The voice of families with a child on the autism spectrum. Health & Social Care in the Community, 25, 224–233.
   PubMed Web of Science ®Google Scholar
• Buljevac, M. and Leutar, Z. 2017. „Nekad su mi znali reći da nisam bolja od svog sina “- stigma obitelji temeljem intelektualnih teškoća člana obitelji. Hrvatska Revija za Rehabilitacijska Istraživanja, 53, 17–31.
   Google Scholar
• Carter, E. W., Gustafson, J. R., Sreckovic, M. A., Dykstra Steinbrenner, J. R., Pierce, N. P., Bord, A., Stabel, A., Rogers, S., Czerw, A. and Mullins, T. 2017. Efficacy of peer support interventions in general education classrooms for high school students with autism spectrum disorder. Remedial and Special Education, 38, 207–221.
   Web of Science ®Google Scholar
• Chan, K. K. S. and Lam, C. B. 2018. Self-stigma among parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 48, 44–52.
   Web of Science ®Google Scholar
• Charbonnier, E., Caparos, S. and Trémolière, B. 2019. The role of mothers’ affiliate stigma and child’s symptoms on the distress of mothers with ADHD children. Journal of Mental Health, 28, 282–288.
   PubMed Web of Science ®Google Scholar
• Čolić, M., Dababnah, S., Garbarino, N. and Betz, G. 2019. Parental experiences raising children with autism spectrum disorder in Eastern Europe: A scoping review. International Journal of Developmental Disabilities.
   PubMedGoogle Scholar
• Čolić, M. and Milačić-Vidojević, I. 2019. Self-blame in parents of children with autism spectrum disorder and children with physical disabilities: The role of a child's problem behavior and personality traits. Specijalna Edukacija i Rehabilitacija, 18, 391-417.
   Google Scholar
• Čolić, M. and Milačić Vidojević, I. 2020. Do Serbian parents of children with autism spectrum disorder experience a greater degree of stigma than parents of children with physical disabilities. In: International Society for Autism Research, Virtual Meeting, May 2020. https://www.autism-insar.org/page/insarvirtual
   Google Scholar
• Čolić, M. and Milačić-Vidojević, I. 2021. Perceived stigma among Serbian parents of children with autism spectrum disorder and children with physical disabilities: Validation of a new instrument. Journal of Autism and Developmental Disorders, 51, 501–513.
   PubMed Web of Science ®Google Scholar
• Corrigan, P. W. and Watson, A. C. 2002. The paradox of self-stigma and mental illness. Clinical Psychology: Science and Practice, 9, 35–53.
   Web of Science ®Google Scholar
• Daniels, A. M., Como, A., Hergüner, S., Kostadinova, K., Stosic, J. and Shih, A. 2017. Autism in Southeast Europe: A survey of caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 47, 2314–2325.
   PubMed Web of Science ®Google Scholar
• Dieleman, L. M., Soenens, B., Vansteenkiste, M., Prinzie, P., Laporte, N. and De Pauw, S. S. 2019. Daily sources of autonomy-supportive and controlling parenting in mothers of children with ASD: The role of child behavior and mothers’ psychological needs. Journal of Autism and Developmental Disorders, 49, 509–526.
   PubMed Web of Science ®Google Scholar
• Drapalski, A. L., Lucksted, A., Perrin, P. B., Aakre, J. M., Brown, C. H., DeForge, B. R. and Boyd, J. E. 2013. A model of internalized stigma and its effects on people with mental illness. Psychiatric Services, 64, 264–269.
   PubMed Web of Science ®Google Scholar
• Drasgow, F., Levine, M. V., Tsien, S., Williams, B. and Mead, A. D. 1995. Fitting polytomous item response theory models to multiple-choice tests. Applied Psychological Measurement, 19, 143–165.
   Web of Science ®Google Scholar
• Durrant, M. 2000. Raising children who have spina bifida or cerebral palsy, a comparison of mothers’ accounts of stigma. (Publication No. 0612504433) [Doctoral dissertation, University of Toronto]. National Library of Canada = Bibliothèque nationale du Canada.
   Google Scholar
• Eaton, K., Stritzke, W. G. K., Corrigan, P. W. and Ohan, J. L. 2020. Pathways to self-stigma in parents of children with a mental health disorder. Journal of Child and Family Studies, 29, 1732–1744.
   Web of Science ®Google Scholar
• Francis, A. 2012. Stigma in an era of medicalisation and anxious parenting: How proximity and culpability shape middle-class parents’ experiences of disgrace: Stigma in an era of medicalisation and anxious parenting. Sociology of Health & Illness, 34, 927–942.
   PubMed Web of Science ®Google Scholar
• Gaskin, J. and Lim, J. 2018. Indirect effects, AMOS plugin. Gaskination’s StatWiki. http://statwiki.kolobkreations.com/index.php?title=Main_Page
   Google Scholar
• Ghasemi, A. and Zahediasl, S. 2012. Normality tests for statistical analysis: A guide for non-statisticians. International Journal of Endocrinology and Metabolism, 10, 486–489.
   PubMedGoogle Scholar
• Gillespie-Lynch, K., Brooks, P. J., Someki, F., Obeid, R., Shane-Simpson, C., Kapp, S. K., Daou, N. and Smith, D. S. 2015. Changing college students’ conceptions of autism: An online training to increase knowledge and decrease stigma. Journal of Autism and Developmental Disorders, 45, 2553–2566.
   PubMed Web of Science ®Google Scholar
• Goffman, E. 1963. Stigma: Notes on the management of spoiled identity. New York: Simon and Schuster.
   Google Scholar
• Gray, D. E. 2002. Everybody just freezes. Everybody is just embarrassed’: Felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness, 24, 734–749.
   Web of Science ®Google Scholar
• Green, S. E. 2003. “What do you mean ‘what’s wrong with her?’”: Stigma and the lives of families of children with disabilities. Social Science & Medicine, 57, 1361–1374.
   PubMed Web of Science ®Google Scholar
• Harandi, A. A. and Fischbach, R. L. 2016. How do parents respond to stigma and hurtful words said to or about their child on the autism spectrum. Austin Journal of Autism and Related Disabilities, 2, 1030–1036.
   Google Scholar
• Hartley, S. L., Schaidle, E. M. and Burnson, C. F. 2013. Parental attributions for the behavior problems of children and adolescents with autism spectrum disorders. Journal of Developmental and Behavioral Pediatrics, 34, 651–660.
   PubMed Web of Science ®Google Scholar
• Hu, L. and Bentler, P. M. 1999. Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6, 1–55.
   Web of Science ®Google Scholar
• Jankowska, A. M., Włodarczyk, A., Campbell, C. and Shaw, S. 2015. Parental attitudes and personality traits, self-efficacy, stress, and coping strategies among mothers of children with cerebral palsy. Health Psychology Report, 3, 246–259.
   Web of Science ®Google Scholar
• John, O. P. and Srivastava, S. 1999. Big-Five trait taxonomy: History, measurement, and theoretical perspectives. In: L. A. Pervin and O. P. John, eds., Handbook of personality: Theory and research. New York, NY: Guilford Press, Vol. 2, pp.102–138.
   Google Scholar
• Kline, R. B. 2015. Principles and practice of structural equation modeling. New York: Guilford Publications.
   Google Scholar
• Lahey, B. B. 2009. Public health significance of neuroticism. American Psychologist, 64, 241–256.
   PubMed Web of Science ®Google Scholar
• Li, X., Lam, C. B., Chung, K. K. H. and Leung, C. 2019. Linking parents’ self-stigma to the adjustment of children with disabilities. American Journal of Orthopsychiatry, 89, 212–221.
   PubMed Web of Science ®Google Scholar
• Lodder, A., Papadopoulos, C. and Randhawa, G. 2020. SOLACE: A psychosocial stigma protection intervention to improve the mental health of parents of autistic children—A feasibility randomised controlled trial. Journal of Autism and Developmental Disorders, 50, 4477–4415.
   PubMed Web of Science ®Google Scholar
• Lovell, B. and Wetherell, M. A. 2019. Affiliate stigma, perceived social support and perceived stress in caregivers of children with autism spectrum disorder: A multiple mediation study. Archives of Psychiatric Nursing, 33, 31–35.
   PubMed Web of Science ®Google Scholar
• Mak, W. W. S. and Cheung, R. Y. M. 2008. Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21, 532–545.
   Web of Science ®Google Scholar
• Mak, W. W. S. and Kwok, Y. T. Y. 2010. Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science & Medicine, 70, 2045–2051.
   PubMed Web of Science ®Google Scholar
• Margolis, S. A., Nakhutina, L., Schaffer, S. G., Grant, A. C. and Gonzalez, J. S. 2018. Perceived epilepsy stigma mediates relationships between personality and social well-being in a diverse epilepsy population. Epilepsy & Behavior, 78, 7–13.
   PubMed Web of Science ®Google Scholar
• Mazumder, R. and Thompson-Hodgetts, S. 2019. Stigmatization of children and adolescents with autism spectrum disorders and their families: A scoping study. Review Journal of Autism and Developmental Disorders, 6, 96–107.
   Web of Science ®Google Scholar
• McIntyre, N. S., Solari, E. J., Gonzales, J. E., Solomon, M., Lerro, L. E., Novotny, S., Oswald, T. M. and Mundy, P. C. 2017. The scope and nature of reading comprehension impairments in school-aged children with higher-functioning autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 2838–2860.
   PubMed Web of Science ®Google Scholar
• Muñoz, M., Sanz, M., Pérez-Santos, E. and de los Ángeles Quiroga, M. 2011. Proposal of a socio–cognitive–behavioral structural equation model of internalized stigma in people with severe and persistent mental illness. Psychiatry Research, 186, 402–408.
   PubMed Web of Science ®Google Scholar
• Naletilić, M., Tomić, V., Ostojić, L., Damjanović, V. M. and Grabovac, M. 2017. Personality traits and quality of life of mothers who have children with cerebral palsy. Psychiatria Danubina, 29, 793–803.
   PubMed Web of Science ®Google Scholar
• Quinn, D. M., Williams, M. K. and Weisz, B. M. 2015. From discrimination to internalized mental illness stigma: The mediating roles of anticipated discrimination and anticipated stigma. Psychiatric Rehabilitation Journal, 38, 103–108.
   PubMed Web of Science ®Google Scholar
• Sideridis, G., Simos, P., Papanicolaou, A. and Fletcher, J. 2014. Using structural equation modeling to assess functional connectivity in the brain: Power and sample size considerations. Educational and Psychological Measurement, 74, 733–758.
   PubMed Web of Science ®Google Scholar
• Smythe, T., Adelson, J. D. and Polack, S. 2020. Systematic review of interventions for reducing stigma experienced by children with disabilities and their families in low‐and middle‐income countries: State of the evidence. Tropical Medicine & International Health, 25, 508–524.
   PubMed Web of Science ®Google Scholar
• Snow, M. and Donnelly, J. 2016. Factors mediating dysphoric moods and help seeking behaviour among Australian parents of children with autism. Journal of Autism and Developmental Disorders, 46, 1941–1952.
   PubMed Web of Science ®Google Scholar
• Watson, D., Clark, L. A. and Harkness, A. R. 1994. Structures of personality and their relevance to psychopathology. Journal of Abnormal Psychology, 103, 18–31.
   PubMed Web of Science ®Google Scholar
• Zhou, T., Wang, Y. and Yi, C. 2018. Affiliate stigma and depression in caregivers of children with autism spectrum disorders in China: Effects of self-esteem, shame and family functioning. Psychiatry Research, 264, 260–265.
   PubMed Web of Science ®Google Scholar