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Articles

Parent-reported social-communication changes in children diagnosed with autism spectrum disorder during the COVID-19 pandemic in the UK

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Pages 211-225 | Received 20 Jan 2021, Accepted 26 May 2021, Published online: 28 Jun 2021

References

  • Abir, M., Moore, M., Chamberlin, M., Koenig, K. L., Hirshon, J. M., Singh, C., Schneider, S. and Cantrill, S. 2016. Using timely survey-based information networks to collect data on best practices for public health emergency preparedness and response: Illustrative case from the American College of Emergency Physicians’ Ebola Surveys. Disaster Medicine and Public Health Preparedness, 10, 681–690.
  • Amaral, D. G. and de Vries, P. J. 2020. COVID-19 and autism research: perspectives from around the globe. Autism Research, 13, 844–869.
  • Aminnejad, R. and Alikhani, R. 2020. Physical distancing or social distancing: That is the question. Canadian Journal of Anaesthesia, 1–2..
  • Anderson-Hanley, C., Tureck, K. and Schneiderman, R. L. 2011. Autism and exergaming: Effects on repetitive behaviors and cognition. Psychology Research and Behavior Management, 4, 129–137..
  • Barker, M. and Russell, J. 2020. Feeding the food insecure in Britain: Learning from the 2020 COVID-19 crisis. Food Security, 12, 865–870.
  • Barr, D. (n.d.). We are not all in the same boat. We are all in the same storm.—Latest news from Damian Barr. Damian Barr. Available at: https://www.damianbarr.com/latest/tag/We+are+not+all+in+the+same+ boat.+We+are+all+in+the+same+storm [Accessed Retrieved 2 March 2021].
  • Bell, C. C. 1994. DSM-IV: Diagnostic and Statistical Manual of Mental Disorders. JAMA, 272, 828–829.
  • Bellomo, T. R., Prasad, S., Munzer, T. and Laventhal, N. 2020. The impact of the COVID-19 pandemic on children with autism spectrum disorders. Journal of Pediatric Rehabilitation Medicine, 13, 349–354.
  • Best, J. R. 2010. Effects of physical activity on children's executive function: Contributions of experimental research on aerobic exercise. Developmental Review, 30, 331–351.
  • Burchell, B., Wang, S., Kamerāde, D., Bessa, I. and Rubery, J. 2020. Cut hours, not people: No work, furlough, short hours and mental health during COVID-19 pandemic in the UK [Monograph]. University of Cambridge Judge Business School. https://www.cbr.cam.ac.uk/research/research-projects/the-employment-dosage-how-much-work-is-needed-for-health-and-wellbeing/#item-1
  • Chin, H. Y. and Bernard-Opitz, V. 2000. Teaching conversational skills to children with autism: Effect on the development of a theory of mind. Journal of Autism and Developmental Disorders, 30, 569–583.
  • Colizzi, M., Sironi, E., Antonini, F., Ciceri, M. L., Bovo, C. and Zoccante, L. 2020. Psychosocial and behavioral impact of COVID-19 in autism spectrum disorder: An online parent survey. Brain Sciences, 10, 341.
  • Colombi, C., Liebal, K., Tomasello, M., Young, G., Warneken, F. and Rogers, S. J. 2009. Examining correlates of cooperation in autism: Imitation, joint attention, and understanding intentions. Autism, 13, 143–163.
  • Crane, L., Adu, F., Arocas, F., Carli, R., Eccles, S., Harris, S., Jardine, J., Phillips, C., Piper, S., Santi, L., Sartin, M., Shepherd, C., Sternstein, K., Taylor, G. and Wright, A. 2021. Vulnerable and forgotten: The impact of the COVID-19 pandemic on autism special schools in England. Frontiers in Education, 6, 175.
  • Dettori, J. R. 2011. Loss to follow-up. Evidence-Based Spine-Care Journal, 2, 7–10.
  • Dorn, E., Hancock, B., Sarakatsannis, J. and Viruleg, E. 2020. COVID-19 and student learning in the United States: The hurt could last a lifetime. McKinsey & Company, Public Sector Practice, 9, 2–4.
  • Drabble, L., Trocki, K. F., Salcedo, B., Walker, P. C. and Korcha, R. A. 2016. Conducting qualitative interviews by telephone: Lessons learned from a study of alcohol use among sexual minority and heterosexual women. Qualitative Social Work, 15, 118–133.
  • Drogomyretska, K., Fox, R. and Colbert, D. 2020. Brief report: Stress and perceived social support in parents of children with ASD. Journal of Autism and Developmental Disorders, 50, 4176–4182.
  • Duch, H., Marti, M., Wu, W., Snow, R. and Garcia, V. 2019. CARING: The impact of a parent-child, play-based intervention to promote Latino Head Start children's social-emotional development. The Journal of Primary Prevention, 40, 171–188.
  • Evans, J. R. and Mathur, A. 2005. The value of online surveys. Internet Research, 15, 195–219.
  • Ferreira, J. P., Andrade Toscano, C. V., Rodrigues, A. M., Furtado, G. E., Barros, M. G., Wanderley, R. S. and Carvalho, H. M. 2018. Effects of a Physical Exercise Program (PEP-Aut) on autistic children's stereotyped behavior, metabolic and physical activity profiles, physical fitness, and health-related quality of life: A study protocol. Frontiers in Public Health, 6, 47.
  • Giannakopoulos, G., Dimitrakaki, C., Papadopoulou, K., Tzavara, C., Kolaitis, G., Ravens-Sieberer, U. and Tountas, Y. 2013. Reliability and validity of the Strengths and Difficulties Questionnaire in Greek adolescents and their parents. Health, 05, 1774–1783.
  • Goodman, R. 1997. The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 38, 581–586.
  • Green, H., McGinnity, A., Meltzer, H., Ford, T. and Goodman, R. 2005. Mental health of children and young people in Great Britain, 2004. H. Green (Ed.). Basingstoke: Palgrave Macmillan. p. 2005.
  • Hassan, E. 2005. Recall bias can be a threat to retrospective and prospective research designs. The Internet Journal of Epidemiology, 3. https://ispub.com/IJE/3/2/13060
  • Holt-Lunstad, J., Smith, T. B. and Layton, J. B. 2010. Social relationships and mortality risk: A meta-analytic review. PLoS Medicine, 7, e1000316.
  • IBM SPSS Statistics. 2017. (Version 25.0 Armonk for Macintosh) [Computer software]. NY: IBM Corp.
  • Jahr, E., Eldevik, S. and Eikeseth, S. 2000. Teaching children with autism to initiate and sustain cooperative play11Parts of this manuscript are based on the first and second author’s thesis for the cand. Psychol. Degree, submitted to the Department of Psychology, University of Oslo. Research in Developmental Disabilities, 21, 151–169.
  • Jones, R. A., Downing, K., Rinehart, N. J., Barnett, L. M., May, T., McGillivray, J. A., Papadopoulos, N. V., Skouteris, H., Timperio, A. and Hinkley, T. 2017. Physical activity, sedentary behavior and their correlates in children with autism spectrum disorder: A systematic review. PLoS One, 12, e0172482.
  • Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C. and Pellicano, E. 2016. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20, 442–462.
  • Lancker, W. V. and Parolin, Z. 2020. COVID-19, school closures, and child poverty: A social crisis in the making. The Lancet Public Health, 5, e243–e244..
  • Lang, R., Koegel, L. K., Ashbaugh, K., Regester, A., Ence, W. and Smith, W. 2010. Physical exercise and individuals with autism spectrum disorders: A systematic review. Research in Autism Spectrum Disorders, 4, 565–576.
  • Lee, J. and Vargo, K. K. 2017. Physical activity into socialization: A movement-based social skills program for children with autism spectrum disorder. Journal of Physical Education, Recreation & Dance, 88, 7–13.
  • Lev-Ari, S. 2018. The influence of social network size on speech perception. Quarterly Journal of Experimental Psychology, 71, 2249–2260.
  • Lev-Ari, S. and Sebanz, N. 2020. Interacting with multiple partners improves communication skills. Cognitive Science, 44, e12836.
  • Loveland, K. A. 2005. Social-emotional impairment and self-regulation in autism spectrum disorders. In Emotional development: Recent research advances. New York: Oxford University Press, pp.365–382.
  • Lyall, K., Croen, L., Daniels, J., Fallin, M. D., Ladd-Acosta, C., Lee, B. K., Park, B. Y., Snyder, N. W., Schendel, D., Volk, H., Windham, G. C. and Newschaffer, C. 2017. The Changing epidemiology of autism spectrum disorders. Annual Review of Public Health, 38, 81–102.
  • Merrell, K. W. 1994. Preschool and kindergarten behavior scales: Test manual. Brandon: Clinical Psychology Publishing Inc.
  • Morris, P., Hope, E., Foulsham, T. and Mills, J. P. 2020. Dancing out for a voice; a narrative review of the literature exploring autism. Physical Activity and Dance, SportRxiv. Pre-print.
  • Narzisi, A. 2020. Handle the autism spectrum condition during coronavirus (COVID-19) stay at home period: Ten tips for helping parents and caregivers of young children. Brain Sciences, 10, 207.
  • NHS. 2019, May 2. What is autism? Nhs.Uk. https://www.nhs.uk/conditions/autism/what-is-autism/
  • Noar, S. 2018. What do survey data really mean? Considering issues of casualty and temporality in survey | Grant Programs | National Institute of Dental and Craniofacial Research. https://www.nidcr.nih.gov/grants-funding/grant-programs/behavioral-social-sciences-research-program/what-do-survey-data-really-mean-considering-issues-of-casualty-and-temporality-in-survey
  • ONS. 2020. Coronavirus and the social impacts on Great Britain—Office for National Statistics. https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/healthandwellbeing/datasets/coronavirusandthesocialimpactsongreatbritaindata
  • Pianta, R. C., Nimetz, S. L. and Bennett, E. 1997. Mother-child relationships, teacher-child relationships, and school outcomes in preschool and kindergarten. Early Childhood Research Quarterly, 12, 263–280.
  • Qualtrics. 2005 (September 2020). [Computer software]. Qualtrics. https://www.qualtrics.com
  • Renzo, M. D., Castelbianco, F. B. D., Vanadia, E., Petrillo, M., D’Errico, S., Racinaro, L. and Rea, M. 2020. Parent-reported behavioural changes in children with autism spectrum disorder during the COVID-19 lockdown in Italy. Continuity in Education, 1, 117–125.
  • Reuschke, D. and Felstead, A. 2020. The effect of the great lockdown on homeworking in the United Kingdom. Wales Institute of Social & Economic Research, Data & Methods, 1, 12.
  • Rost, G. C. and McMurray, B. 2009. Speaker variability augments phonological processing in early word learning. Developmental Science, 12, 339–349.
  • Rundle, A. G., Park, Y., Herbstman, J. B., Kinsey, E. W. and Wang, Y. C. 2020. COVID-19-related school closings and risk of weight gain among children. Obesity, 28, 1008–1009.
  • Russell, W. and Stenning, A. 2020. Beyond active travel: Children, play and community on streets during and after the coronavirus lockdown. Cities & Health, 1–4.
  • Salazar, F., Baird, G., Chandler, S., Tseng, E., O'sullivan, T., Howlin, P., Pickles, A. and Simonoff, E. 2015. Co-occurring psychiatric disorders in preschool and elementary school-aged children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 2283–2294.
  • Sam, K.-L., Chow, B.-C. and Tong, K.-K. 2015. Effectiveness of exercise-based interventions for children with autism: A systematic review and meta-analysis. International Journal of Learning and Teaching, 1, 98–103.
  • Seltzer, M. M. and Krauss, M. W. 2001. Quality of life of adults with mental retardation/developmental disabilities who live with family. Mental Retardation and Developmental Disabilities Research Reviews, 7, 105–114..
  • Shokri, A., Khosravi, A. A. and Hooman, H. A. 2013. Basic psychometric properties of the preschool and kindergarten behavior scales in a sample of İranian children. Procedia - Social and Behavioral Sciences, 84, 479–485.
  • Spitzberg, B. H. 1995. CSRS The Conversational Skills Rating Scale. San Diego State University: NCA Diagnostic Series, San Antonio 61.
  • Stone, L. L., Janssens, J. M. A. M., Vermulst, A. A., Van Der Maten, M., Engels, R. C. M. E. and Otten, R. 2015. The Strengths and Difficulties Questionnaire: Psychometric properties of the parent and teacher version in children aged 4-7. BMC Psychology, 3, 4.
  • Vandenbroucke, J. P., von Elm, E., Altman, D. G., Gøtzsche, P. C., Mulrow, C. D., Pocock, S. J., Poole, C., Schlesselman, J. J. and Egger, M. 2007. Strengthening the Reporting of Observational Studies in Epidemiology (STROBE): Explanation and elaboration. PLoS Medicine, 4, e297.
  • Werling, D. M. and Geschwind, D. H. 2013. Sex differences in autism spectrum disorders. Current Opinion in Neurology, 26, 146–153..
  • Yarımkaya, E. and Esentürk, O. K. 2020. Promoting physical activity for children with autism spectrum disorders during coronavirus outbreak: Benefits, strategies, and examples. International Journal of Developmental Disabilities, 0, 1–6..
  • Zivan, M. and Horowitz-Kraus, T. 2020. Parent-child joint reading is related to an increased fixation time on print during storytelling among preschool children. Brain and Cognition, 143, 105596