Assent in applied behaviour analysis and positive behaviour support: ethical considerations and practical recommendations

References

• Arstein-Kerslake, A., Watson, J., Browning, M., Martinis, J. and Blanck, P. 2017. Future direction in supported decision making. Disability Studies Quarterly, 37.
   Google Scholar
• Baer, D. M., Wolf, M. M. and Risley, T. R. 1968. Some current dimensions of applied behavior analysis. Journal of Applied Behavior Analysis, 1, 91–97.
   PubMed Web of Science ®Google Scholar
• Behavior Analyst Certification Board. 2014. Professional and ethical compliance code for behavior analysts. Littleton, CO: Behavior Analyst Certification Board.
   Google Scholar
• Behavior Analyst Certification Board. 2017. BACB/BCaBA coursework requirements. <https://www.bacb.com/wp-content/uploads/2020/05/170113-BCBA-BCaBA-coursework-requirements-5th-ed.pdf>
   Google Scholar
• Behavior Analyst Certification Board. 2020. Ethics code for behavior analysts. <https://bacb.com/wp-content/ethics-code-for-behavior-analysts/>.
   Google Scholar
• Bigby, C., Whiteside, M. and Douglas, J. 2015. Supporting people with cognitive disabilities in decision making – processes and dilemmas. Melbourne: Living with Disability Research Centre, La Trobe University. <http://apo.org.au/files/Resource/final_full_report_for_support_for_decision_making_dilemmas_and_challenges_6_june_2015_0.pdf>.
   Google Scholar
• Breaux, C. 2020a. Assent in practice: Ensuring dignity for all learners [online course]. CentralReach. <https://institute.centralreach.com/courses/assent-in-practice>.
   Google Scholar
• Breaux, C. 2020b. Assent, supervision, and the code [online course]. CentralReach. <https://institute.centralreach.com/courses/supervising-with-assent-using-the-code-to-ensure-your-supervisees-are-using-assent-based-practices-with-learners>.
   Google Scholar
• Carr, E. G., Dunlap, G., Horner, R. H., Koegel, R. L., Turnbull, A. P., Sailor, W., Anderson, J. L., Albin, R. W., Koegel, L. K. and Fox, L. 2002. Positive behavior support: Evolution of an applied science. Journal of Positive Behavior Interventions, 4, 4–16.
   Web of Science ®Google Scholar
• Carr, E. G., Horner, R. H., Turnbull, A. P., Marquis, J. G., McLaughlin, D. M., McAtee, M. L., Smith, C. E., Ryan, K. A., Ruef, M. B. and Doolabh, A. 1999. Positive behavior support for people with developmental disabilities: A research synthesis. Edited by D. Braddock. Washington, D.C.: American Association on Mental Retardation.
   Google Scholar
• Dillenburger, K. and Keenan, M. 2009. None of the As in ABA stand for autism: Dispelling the myths. Journal of Intellectual & Developmental Disability, 34, 193–195.
   PubMed Web of Science ®Google Scholar
• Dockett, S., Einarsdóttir, J. and Perry, B. 2012. Young children’s decisions about research participation: Opting out. International Journal of Early Years Education, 20, 244–256.
   Google Scholar
• Dockett, S., Perry, B. and Kearney, E. 2013. Promoting children’s informed assent in research participation. International Journal of Qualitative Studies in Education, 26, 802–828.
   Google Scholar
• Fabrizio, M. A. 2005. Voting with their feet: The role of assent in behavior analytic intervention for children. Paper presented at the Going Beyond Expectations: Unique Solutions in Autism Education Conference. October. <https://docplayer.net/22287468-Creating-for-children-the-aba-program-companion.html>.
   Google Scholar
• Ford, K., Sankey, J. and Crisp, J. 2007. Development of children’s assent documents using a child-centered approach. Journal of Child Health Care, 11, 19–28.
   PubMedGoogle Scholar
• French, P., Chan, J. and Carracher, R. 2010. Realizing human rights in clinical practice and service delivery to persons with cognitive impairment who engage in behaviours of concern. Psychiatry, Psychology, and Law, 17, 245–272.
   Web of Science ®Google Scholar
• Friedman, C. 2021. Disparities in social determinants of health amongst people with disabilities. International Journal of Disability, Development and Education, 1–17. doi:10.1080/1034912X.2021.2004299
   Web of Science ®Google Scholar
• Hanley, G. P., Jin, C. S., Vanselow, N. R. and Hanratty, L. A. 2014. Producing meaningful improvements in problem behavior of children with autism via synthesized analyses and treatments. Journal of Applied Behavior Analysis, 47, 16–36.
   PubMed Web of Science ®Google Scholar
• Hanley, G. 2010. Toward effective and preferred programming: A case for the objective measurement of social validity with recipients of behavior-change programs. Behavior Analysis in Practice, 3, 13–21.
   PubMedGoogle Scholar
• Hanley, G. 2012. Functional assessment of problem behavior: Dispelling myths, overcoming implementation obstacles, and developing new lore. Behavior Analysis in Practice, 5, 54–72.
   PubMedGoogle Scholar
• Hayes, S. C., Rincover, A. and Solnick, J. V. 1980. The technical drift of applied behavior analysis. Journal of Applied Behavior Analysis, 13, 275–285.
   PubMed Web of Science ®Google Scholar
• Heath, S., Charles, V., Crow, G. and Wiles, R. 2007. Informed consent, gatekeepers and go-betweens: Negotiating consent in child- and youth-oriented institutions. British Educational Research Journal, 33, 403–417.
   Web of Science ®Google Scholar
• Huser, C., Dockett, S. and Perry, B. 2022. Young children’s assent and dissent in research: Agency, privacy and relationships within ethical research spaces. European Early Childhood Education Research Journal, 30, 48–62.
   Web of Science ®Google Scholar
• Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E. and Hutman, T. 2013. Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49, 59–71.
   PubMed Web of Science ®Google Scholar
• Keenan, M. and Dillenburger, K. 2018. How ‘fake news’ affects autism policy. Societies, 8, 29–49.
   Web of Science ®Google Scholar
• Lawson, A. and Beckett, A. E. 2021. The social and human rights models of disability: Towards a complementarity thesis. The International Journal of Human Rights, 25, 348–379.
   Web of Science ®Google Scholar
• Morris, C., Detrick, J. J. and Peterson, S. M. 2021. Participant assent in behavior analytic research: Considerations for participants with autism and developmental disabilities. Journal of Applied Behavior Analysis, 54, 1300–1316.
   PubMed Web of Science ®Google Scholar
• Onoh, R. C., Umeora, O. U. J., Ezeonu, P. O., Agwu, U. M., Lawani, L. O. and Ezeonu, C. T. 2014. Perception of assent in biomedical research among medical specialists and trainees in Abakaliki, Nigeria. Adolescent Health, Medicine and Therapeutics, 5, 183–189.
   PubMedGoogle Scholar
• Rajaraman, A., Austin, J. L., Gover, H. C., Cammilleri, A. P., Donnelly, D. R. and Hanley, G. P. 2021. Toward trauma-informed applications of behavior analysis. Journal of Applied Behavior Analysis, 55, 40–61. doi:10.1002/jaba.881
   PubMed Web of Science ®Google Scholar
• Shogren, K. A., Wehmeyer, M. L., Lassmann, H. and Forber-Prayy, A. J. 2017. Supported decision making: A synthesis of the literature across intellectual disability, mental health, and aging. Education and Training in Autism and Developmental Disabilities, 52, 144–157.
   Web of Science ®Google Scholar
• Singer, G. H. S. and Wang, M. 2009. The intellectual roots of positive behavior support and their implications for its development. In: W. Sailor, G. Dunlap, G. Sugai, and R. Horner, eds. Handbook of positive behavior support: Issues in clinical child psychology. Boston, MA: Springer.
   Google Scholar
• Skinner, B. F. 1963. Operant behavior. American Psychologist, 18, 503–515.
   Web of Science ®Google Scholar
• Smith, K. and Breaux, C. 2020. Client assent and engagement during ABA telehealth [Webinar]. CentralReach. August 12. <https://institute.centralreach.com/courses/client-assent-and-engagement-during-aba-telehealth>.
   Google Scholar
• Tiemann, P. W. and Markle, S. M. 1990. Analyzing instructional content: A guide to instructional content. 4th ed. Champaign, IL: Stipes Publishing Company.
   Google Scholar
• Tincani, M. 2007. Moving forward: Positive behavior support and applied behavior analysis. The Behavior Analyst Today, 8, 492–499.
   Google Scholar
• Trader, B., Stonemeier, J., Berg, T., Knowles, C., Massar, M., Monzalve, M., Pinkelman, S., Nese, R., Ruppert, T. and Horner, R. 2017. Promoting inclusion through evidence-based alternatives to restraint and seclusion. Research and Practice for Persons with Severe Disabilities, 42, 75–88.
   Web of Science ®Google Scholar
• United Nations, 2006. Convention on the rights of persons with disabilities. Treaty Series, 2515, 3.
   Google Scholar
• United States Department of Health and Human Services, 2021. Code of Federal Regulations. Protection of Human Subjects, 45 C.F.R. Sect. 46. <https://www.hhs.gov/ohrp/regulations-and-policy/regulations/45-cfr-46/common-rule-subpart-d/index.html>.
   Google Scholar
• Vitiello, B. 2003. Ethical considerations in psychopharmacological research involving children and adolescents. Psychopharmacology, 171, 86–91.
   PubMed Web of Science ®Google Scholar