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Articles

Quality of life in parents of children with Autism spectrum disorder: Emphasizing challenges in the Indian context

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Pages 371-378 | Received 03 Aug 2022, Accepted 24 Jan 2023, Published online: 06 Feb 2023

References

  • Alamri, D. A. F., Mahzari, Q. A., Shaqran, T. and Albalawi, J. A. 2020. Impact of autism on parents/caregivers quality of life in Tabuk. International Journal of Medical Research & Health Sciences, 9, 1–13.
  • Alenazi, D. S., Hammad, S. M. and Mohamed, A. E. 2020. Effect of autism on parental quality of life in Arar city, Saudi Arabia. Journal of Family & Community Medicine, 27, 15–22.
  • Ali, U., Bharuchi, V., Ali, N. G. and Jafri, S. K. 2021. Assessing the quality of life of parents of children with disabilities using WHOQoL BREF during COVID-19 pandemic. Frontiers in Rehabilitation Sciences, 2, 1–9.
  • Alhazmi, A., Petersen, R. and Donald, K. A. 2018. Quality of life among parents of South African children with an autism spectrum disorder. Acta Neuropsychiatrica, 30, 226–231.
  • Calonge-Torres, M. V. J. B., Reyes, A. L., Avendaño, E. L., Conducto, C. C. and Bautista, M. L. 2017. G499 (P) Quality of life of parents of children with autism spectrum disorder aged 3 to 18 years living in an urban area. British Academy of Childhood Disability and British Association for Community Child Health.
  • Catalano, D., Holloway, L. and Mpofu, E. 2018. Mental health interventions for parent carers of children with autistic spectrum disorder: Practice guidelines from a critical interpretive synthesis (CIS) systematic review. International Journal of Environmental Research and Public Health, 15, 341.
  • Dardas, L. A. and Ahmad, M. M. 2014. Validation of the World Health Organization’s quality of life questionnaire with parents of children with autistic disorder. Journal of Autism and Developmental Disorders, 44, 2257–2263.
  • Derguy, C., Roux, S., Portex, M. and M'bailara, K. 2018. An ecological exploration of individual, family, and environmental contributions to parental quality of life in autism. Psychiatry Research, 268, 87–93.
  • Dey, M., Castro, R. P., Haug, S. and Schaub, M. P. 2019. Quality of life of parents of mentally-ill children: A systematic review and meta-analysis. Epidemiology and Psychiatric Sciences, 28, 563–577.
  • Eapen, V., Črnčec, R., Walter, A. and Tay, K. P. 2014. Conceptualisation and development of a quality of life measure for parents of children with autism spectrum disorder. Autism Research and Treatment, 2014, 160783.
  • Grace, R. N., Catherine, T. G., Mala, K. K., Kanniammal, C. and Arullapan, J. 2017. Systematic review on quality of life among caregivers of children with autism spectrum disorder. International Journal of Nursing Education, 9, 83–91.
  • Hsiao, Y. J. 2018. Autism spectrum disorders: Family demographics, parental stress, and family quality of life. Journal of Policy and Practice in Intellectual Disabilities, 15, 70–79.
  • Ikeda, E., Hinckson, E. and Krägeloh, C. 2014. Assessment of quality of life in children and youth with autism spectrum disorder: A critical review. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23, 1069–1085.
  • Jain, A., Ahmed, N., Mahour, P., Agarwal, V., Chandra, K. and Shrivatav, N. K. 2019. Burden of care perceived by the principal caregivers of autistic children and adolescents visiting health facilities in Lucknow City. Indian Journal of Public Health, 63, 282–287.
  • Karst, J. S. and Van Hecke, A. V. 2012. Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical child and Family Psychology Review, 15, 247–277.
  • Khan, M. F. and Humtsoe, M. K. 2016. Quality of life of mothers having children with autistic spectrum disorders and learning disabilities. Journal of Physical Education Research, 3, 38–46.
  • Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C. and Becker-Cottrill, B. 2011. Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41, 1214–1227.
  • Kuhlthau, K., Payakachat, N., Delahaye, J., Hurson, J., Pyne, J. M., Kovacs, E. and Tilford, J. M. 2014. Quality of life for parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 8, 1339–1350.
  • Kurian, M. 2018. Autism myths and facts. Indian Journal of Community Psychology, 14, 186. +. https://link.gale.com/apps/doc/A567426501/AONE?u=anon∼8d43e542&sid=googleScholar&xid=fa2b5e1e
  • Lara, E. B. and de los Pinos, C. C. 2017. Families with a disabled member: Impact and family education. Procedia - Social and Behavioral Sciences, 237, 418–425.
  • Malhotra, S., Khan, W. and Bhatia, M. S. 2012. Quality of life of parents having children with developmental disabilities. Delhi psychiatry Journal, 15, 171–176.
  • Musetti, A., Manari, T., Dioni, B., Raffin, C., Bravo, G., Mariani, R., Esposito, G., Dimitriou, D., Plazzi, G., Franceschini, C. and Corsano, P. 2021. Parental quality of life and involvement in intervention for children or adolescents with autism spectrum disorders: A systematic review. Journal of Personalized Medicine, 11, 894.
  • Özgür, B. G., Aksu, H. and Eser, E. 2018. Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder. Indian Journal of Psychiatry, 60, 278–285.
  • Perumal, V., Veeraraghavan, V. and Lekhra, O. P. 2014. Quality of life in families of children with autism spectrum disorder in India. Journal of Pharmacy Research, 8, 791–797.
  • Raina, S. K., Chander, V., Bhardwaj, A. K., Kumar, D., Sharma, S., Kashyap, V., Singh, M. and Bhardwaj, A. 2017. Prevalence of autism spectrum disorder among rural, urban, and tribal children (1–10 years of age). Journal of Neurosciences in Rural Practice, 08, 368–374.
  • Renford, N. G. R., Arulappan, J., Thomas, K. D. E., Karuppiah, K. M., Chinnathambi, K. and Thangaswamy, G. C. 2020. Quality of life of caregivers of children with autism spectrum disorder in Tamil Nadu, South India. International Journal of Nutrition, Pharmacology, Neurological Diseases, 10, 57.
  • Ripamonti, L. 2016. Disability, diversity, and autism: Philosophical perspectives on health. The New Bioethics: A Multidisciplinary Journal of Biotechnology and the Body, 22, 56–70.
  • Rudra, A., Banerjee, S., Singhal, N., Barua, M., Mukerji, S. and Chakrabarti, B. 2014. Translation and usability of autism screening and diagnostic tools for autism spectrum conditions in India. Autism research : official Journal of the International Society for Autism Research, 7, 598–607.
  • Sandhya, K., Akshata, S., Meghana, K. N., Sushmitha, N. and Meghana, K. 2021. Myths and misconceptions about communication disorders: A survey in north Karnataka region. Archives of Community Medicine and Public Health, 7, 212–216.
  • Schlebusch, L., Dada, S. and Samuels, A. E. 2017. Family quality of life of South African families raising children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 1966–1977.
  • Shu, B. C. 2009. Quality of life of family caregivers of children with autism: The mother’s perspective. Autism: The International Journal of Research and Practice, 13, 81–91.
  • Tekinarslan, I. C. 2013. A comparison study of depression and quality of life in Turkish mothers of children with Down syndrome, cerebral palsy, and autism spectrum disorder. Psychological reports, 112, 266–287.
  • Tung, L. C., Huang, C. Y., Tseng, M. H., Yen, H. C., Tsai, Y. P., Lin, Y. C. and Chen, K. L. 2014. Correlates of health-related quality of life and the perception of its importance in caregivers of children with autism. Research in Autism Spectrum Disorders, 8, 1235–1242.
  • Vasilopoulou, E. and Nisbet, J. 2016. The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49.
  • Venkatesan, S. 2006. The NIMH socio-economic status scale: Improvised version. Mysore: All India Institute of Speech and Hearing.
  • World Health Organization. Division of Mental Health. 1996. WHOQOL-BREF: introduction, administration, scoring and generic version of the assessment: field trial version, December 1996. World Health Organization. https://apps.who.int/iris/handle/10665/63529

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