To tell or not to tell – disclosure of autism in the workplace

References

• American Psychiatric Association, DSM-5 Task Force. 2013. Diagnostic and statistical manual of mental disorders: DSM-5™. 5th ed. Washington, DC: American Psychiatric Association.
   Google Scholar
• Cage, E. and Troxell-Whitman, Z. 2020. Understanding the relationships between autistic identity, disclosure, and camouflaging. Autism in Adulthood : Challenges and Management, 2, 334–338. https://doi.org/10.1089/aut.2020.0016
   PubMedGoogle Scholar
• Cook, J., Hull, L., Crane, L. and Mandy, W. 2021. Camouflaging in autism: A systematic review. Clinical Psychology Review, 89, 102080.
   PubMed Web of Science ®Google Scholar
• Creswell, J. W. 2013. Qualitative inquiry and research design. 3rd ed. Thousand Oaks, CA: Sage.
   Google Scholar
• Davidson, J. and Henderson, V. L. 2010. Coming out’ on the spectrum: Autism, identity and disclosure. Social & Cultural Geography, 1, 155–170.
   Google Scholar
• Eaton, K., Ohan, J. L., Stritzke, W. G. K., Courtauld, H. M. and Corrigan, P. W. 2017. Mothers’ decisions to disclose or conceal their child’s mental health disorder. Qualitative Health Research, 27, 1628–1639.
   PubMed Web of Science ®Google Scholar
• Elo, S. and Kyngäs, H. 2008. The qualitative content analysis process. Journal of Advanced Nursing, 62, 107–115.
   PubMed Web of Science ®Google Scholar
• Fombonne, E. 2020. Camouflage and autism. Journal of Child Psychology and Psychiatry, 61, 735–738.
   PubMed Web of Science ®Google Scholar
• Graetz, G. J. 2010. Autism grows up: Opportunities for adults with autism. Disability & Society, 25, 33–47.
   Web of Science ®Google Scholar
• Griffiths, A. J., Giannantonio, C. M., Hurley-Hanson, A. E. and Cardinal, D. 2016. Autism in the workplace: Assessing the transition needs of young adults with autism spectrum disorder. Journal of Business and Management, 22, 5–22.
   Google Scholar
• Health Statistic Database. 2021. https://statistika.spkc.gov.lv/pxweb/lv/Health/
   Google Scholar
• Hirota, T. and King, B. H. 2023. Autism spectrum disorder: A review. JAMA, 329, 157–168.
   PubMedGoogle Scholar
• Huang, Y., Hwang, Y. I., Arnold, S. R. C., Lawson, L. P., Amanda, L., Richdale, A. L. and Trollor, J. N. 2022. Autistic adults’ experiences of diagnosis disclosure. Journal of Autism and Developmental Disorders, 52, 5301–5307.
   PubMed Web of Science ®Google Scholar
• Johnson, T. D. and Joshi, A. 2016. Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. The Journal of Applied Psychology, 101, 430–449.
   PubMed Web of Science ®Google Scholar
• Kaupins, G., Chenoweth, T. and Klein, F. 2020. Should college instructors reveal their high functioning autism in the classroom? Journal of Education for Business, 95, 534–540.
   Web of Science ®Google Scholar
• Khalifa, G., Sharif, Z., Sultan, M. and Di Rezze, B. 2020. Workplace accommodations for adults with autism spectrum disorder: A scoping review. Disability and Rehabilitation, 42, 1316–1331.
   PubMed Web of Science ®Google Scholar
• Kinnear, S. H., Link, B. G., Ballan, M. S. and Fischbach, R. L. 2016. Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46, 942–953. https://doi.org/10.1007/s10803-015-2637-9
   PubMed Web of Science ®Google Scholar
• Kranke, D., Taylor, D., Jackson, S., Floersch, J. and Anderson-Fye, E. 2013. College student disclosure of non-apparent disabilities to receive classroom accommodations. Journal of Postsecondary Education and Disability, 26, 35–51. https://files.eric.ed.gov/fulltext/EJ1026808.pdf
   Google Scholar
• Lindsay, S., Cagliostro, E. and Carafa, G. 2018. A systematic review of workplace disclosure and accommodation requests among youth and young adults with disabilities. Disability and Rehabilitation, 25, 2971–2986.
   Google Scholar
• Lindsay, S., Osten, V., Rezai, M. and Bui, S. 2021. Disclosure and workplace accommodations for people with autism: A systematic review. Disability and Rehabilitation, 43, 597–610.
   PubMed Web of Science ®Google Scholar
• Love, A. M. A., Edwards, C., Cai, R. Y. and Gibbs, V. 2023. Using experience sampling methodology to capture disclosure opportunities for autistic adults. Autism in Adulthood. https://doi.org/10.1089/aut.2022.0090
   Google Scholar
• Maenner, M. J., Shaw, K. A., Bakian, A. V., Bilder, D. A., Durkin, M. S., Esler, A., Furnier, S. M., Hallas, L., Hall-Lande, J., Hudson, A., Hughes, M. M., Patrick, M., Pierce, K., Poynter, J. N., Salinas, A., Shenouda, J., Vehorn, A., Warren, Z., Constantino, J. N., DiRienzo, M., Fitzgerald, R. T., Grzybowski, A., Spivey, M. H., Pettygrove, S., Zahorodny, W., Ali, A., Andrews, J. G., Baroud, T., Gutierrez, J., Hewitt, A., Lee, L. C., Lopez, M., Mancilla, K. C., McArthur, D., Schwenk, Y. D., Washington, A., Williams, S. and Cogswell, M. 2021. Prevalence and characteristics of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, D.C. : 2002), 70, 1–16.
   Web of Science ®Google Scholar
• Mason, D.,McConachie, H.,Garland, D.,Petrou, A.,Rodgers, J. andParr, J. R. 2018. Predictors of quality of life for autistic adults. Autism Research : official Journal of the International Society for Autism Research, 11, 1138–1147.
   PubMed Web of Science ®Google Scholar
• Newman, L., Wagner, M., Knokey, A.-M., Marder, C., Nagle, K., Shaver, D., Wei, X., With, Cameto, R., Contreras, E., Ferguson, K., Greene, S. and Schwarting, M. 2011. The Post-High School Outcomes of Young Adults with Disabilities Up to 8 Years after High School. A Report from the National Longitudinal Transition Study-2 (NLTS2) (NCSER 2011-3005). Menlo Park, CA: SRI International.
   Google Scholar
• Patton, M. Q. 2002. Qualitative research and evaluation methods. 3rd ed. Thousand Oaks, CA: Sage.
   Google Scholar
• Romualdez, A. M., Heasman, B., Walker, Z., Davies, J. and Remington, A. 2021b. “People might understand me better”: Diagnostic disclosure experiences of autistic individuals in the workplace. Autism in Adulthood, 3, 157–167. https://doi.org/10.1089/aut.2020.0063
   Google Scholar
• Romualdez, A. M., Walker, Z. and Remington, A. 2021a. Autistic adults’ experiences of diagnostic disclosure in the workplace: Decision-making and factors associated with outcomes. Autism & Developmental Language Impairments, 6, 23969415211022955.
   Google Scholar
• Roux, A. M., Shattuck, P. T., Cooper, B. P., Anderson, K. A., Wagner, M. and Narendorf, S. C. 2013. Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 52, 931–939.
   PubMed Web of Science ®Google Scholar
• Santuzzi, A. M., Waltz, P. R., Finkelstein, L. M. and Rupp, D. E. 2014. Invisible disabilities: Unique challenges for employees and organizations. Industrial and Organizational Psychology, 7, 204–219.
   Web of Science ®Google Scholar
• Schwartz, A. E., Corey, J., Duff, J., Herer, A. and Rogers, S. E. 2022. Anticipating the outcomes: How young adults with developmental disabilities and co-occurring mental health conditions make decisions about disclosure of their mental health conditions at work. Disability and Rehabilitation, 45, 602–612.
   PubMed Web of Science ®Google Scholar
• Scott, M., Milbourn, B., Falkmer, M., Black, M., Bölte, S., Halladay, A., Larner, M., Toylor, J. L. and Girdler, S. 2019. Factors impacting employment for people with autism spectrum disorder: A scoping review. Autism, 23, 869–901.
   PubMed Web of Science ®Google Scholar
• Selznick, H. 2014. Reflections and explorations of passing. Disability Studies Quarterly, 34. http://dsq-sds.org/article/view/4363/3657
   Google Scholar
• Thompson-Ebanks, V. and Jarman, M. 2018. Undergraduate students with nonapparent disabilities identify factors that contribute to disclosure decisions. International Journal of Disability, Development and Education, 65, 286–303.
   Web of Science ®Google Scholar
• Thompson-Hodgetts, S., Labonte, C., Mazumder, R. and Phelan, S. 2020. Helpful or harmful? A scoping review of perceptions and outcomes of autism diagnostic disclosure to others. Research in Autism Spectrum Disorders, 77, 101598.
   Web of Science ®Google Scholar
• Vincent, J. and Fabri, M. 2022. The ecosystem of competitive employment for university graduates with autism. International Journal of Disability, Development and Education, 69, 1823–1839.
   Web of Science ®Google Scholar
• White, R., Barreto, M., Harrington, J., Kapp, S. K., Hayes, J. and Russell, G. 2020. Is disclosing an autism spectrum disorder in school associated with reduced stigmatization? Autism : The International Journal of Research and Practice, 24, 744–754.
   PubMed Web of Science ®Google Scholar
• Whiteley, P., Carr, K. and Shattock, P. 2021. Research, clinical, and sociological aspects of autism. Frontiers in Psychiatry, 12, 481546.
   PubMed Web of Science ®Google Scholar
• World Health Organisation. 1992. International Statistical Classification of Diseases and Related Health Problems. 10th Revision (ICD-10). Geneva: World Health Organisation.
   Google Scholar