Exploring the communication experiences of stroke nurses and patients with aphasia in an acute stroke unit

References

• Andersson, S., & Fridlund, B. (2002). The aphasic person’s views of the encounter with other people: A grounded theory analysis. Journal of Psychiatric and Mental Health Nursing, 9(3), 285–292.
   PubMedGoogle Scholar
• Balandin, S., Hensley, B., Sigafood, J., Green, V., Forbes, R., Taylor, C., … Parmenter, T. (2001). Communicating with nurses: The experiences of 10 individuals with an acquired severe communication impairment. Brain Impairment, 2(2), 109–118.
   Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.
   Google Scholar
• Burns, M., Baylor, C., Dudgeon, B. J., Starks, H., & Yorkston, K. (2015). Asking the stakeholders: Perspectives of individuals with aphasia, their family members, and physicians regarding communication in medical interactions. American Journal of Speech-Language Pathology / American Speech-Language-Hearing Association, 24(3), 341–357.
   PubMed Web of Science ®Google Scholar
• Clancy, L., Povey, R., & Rodham, K. (2020). Living in a foreign country": experiences of staff-patient communication in inpatient stroke settings for people with post-stroke aphasia and those supporting them. Disability and Rehabilitation, 42(3), 324–334.
   PubMed Web of Science ®Google Scholar
• Cruice, M., Blom Johansson, M., Isaken, J., & Horton, S. (2018). Reporting interventions in communication partner training: A critical review and narrative synthesis of the literature. Aphasiology, 32(10), 1135–1166.
   Web of Science ®Google Scholar
• Finke, E. H., Light, J., & Kitko, L. (2008). A systematic review of the effectiveness of nurse communication with patients with complex communication needs with a focus on the use of augmentative and alternative communication. Journal of Clinical Nursing, 3 (17), 2102–2115.
   Google Scholar
• Godecke, E., Armstrong, E., Hersh, D., Ciccone, N., & Bernhardt, J. (2013). Learned communicative non-use is a reality in very early aphasia recovery: An observational study. Paper presented at the biennial conference of the British Aphasiology Society, Manchester, UK.
   Google Scholar
• Gordon, C., Ellis-Hill, C., & Ashburn, A. (2009). The use of conversational analysis: Nurse–patient interaction in communication disability after stroke. Journal of Advanced Nursing, 65, 544–553.
   PubMed Web of Science ®Google Scholar
• Heard, R., O’Halloran, R., & McKinley, K. (2017). Communication partner training for health care professionals in an inpatient rehabilitation setting: A parallel randomized trial. International Journal of Speech-Language Pathology, 19(3), 277–286.
   PubMed Web of Science ®Google Scholar
• Hemsley, B., & Balandin, S. (2014). A metasynthesis of patient-provider communication in hospital for patients with severe communication disabilities: Information new translational research. Augmentative and Alternative Communication, 30, 329–343.
   PubMed Web of Science ®Google Scholar
• Hemsley, B., Balandin, S., & Worrall, L. (2011). The “Big 5” and beyond: Nurses, paid carers and adults with developmental disability discuss communication needs in hospital. Applied Nursing Research, 24, 51–58.
   PubMedGoogle Scholar
• Hemsley, B., Werninck, M., & Worrall, L. (2013). “That really shouldn’t have happened” people with aphasia and their spouses narrate adverse events in hospital. Aphasiology, 27, 706–722.
   Web of Science ®Google Scholar
• Hersh, D., Godecke, E., Armstrong, E., Ciccone, N., & Bernhardt, J. (2016). “Ward talk”: nurses’ interactions with people with and without aphasia in the very early period post stroke. Aphasiology, 30, 609–628.
   Web of Science ®Google Scholar
• Jensen, L. R., Lovholt, A. P., Sorensen, I. R., Bludnikow, A. M., Iversen, H. D., Hougaard, A., … Forchhammer, H. B. (2015). Implementation of supported conversation for communication between nursing staff and in-hospital patients with aphasia. Aphasiology, 29, 57–80.
   Web of Science ®Google Scholar
• The Joint Commission. (2010). Advancing effective communication, cultural competence, and patient and family centred care. Oakbrook TCE, IL: A roadmap for hospitals.
   Google Scholar
• Kagan, A. (1998). Supported conversation for adults with aphasia: Methods and resources for training conversation partners. Aphasiology, 12, 816–830.
   Web of Science ®Google Scholar
• Kagan, A., Black, S., Duchan, J., Simmons-Mackie, N., & Square, P. (2001). Training volunteers as conversation partners using “supported conversation for adults with aphasia” (SCA): A controlled trial. Journal of Speech Language and Hearing Research, 44(3), 624–638.
   PubMed Web of Science ®Google Scholar
• Kagan, K., Winckel, J., Black, S., Felson Duchan, J., Simmons-Mackie, N., … Square, P. (2004). A set of observational measures for rating support and participation in conversation between adults with aphasia and their conversation partners. Topics in Stroke Rehabilitation, 11, 67–83.
   PubMedGoogle Scholar
• Knight, K., Worrall, L., & Rose, T. (2006). The provision of health information to stroke patients within an acute hospital setting: What actually happens and how do patients feel about it? Topics in Stroke Rehabilitation, 13, 78–97.
   PubMed Web of Science ®Google Scholar
• Krueger, R., & Casey, M. (2000). Focus groups: A Practical guide for Applied research, 3rd ed. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• McGilton, K. S., Sorin-Peters, R., Rochon, E., Boscart, V., Fox, M., Chu, C. H., … Sidani, S. (2018). The effects of an interprofessional patient-centered communication intervention for patients with communication disorders. Applied Nursing Research: ANR, 39, 189–194.
   PubMed Web of Science ®Google Scholar
• McGilton, K., Sorin-Peters, R., Sidani, S., Rochon, E., Boscart, V., & Fox, M. (2011). Focus on communication: Increasing the opportunity for successful staff-patient interactions. International Journal of Older People Nursing, 6(1), 13–24.
   PubMedGoogle Scholar
• National Stroke Foundation. (2017). Clinical guidelines for stroke management 2017. Melbourne: National Stroke Foundation.
   Google Scholar
• Nordehn, G., Meredith, A., & Bye, L. (2006). A preliminary investigation of barriers to achieving patient-centered communication with patients who have stroke-related communication disorders. Topics in Stroke Rehabilitation, 13(1), 68–77.
   PubMed Web of Science ®Google Scholar
• Nyström, M. (2009). Professional aphasia care trusting the patient’s competence while facing existential issues. Journal of Clinical Nursing, 18(17), 2503–2510.
   PubMed Web of Science ®Google Scholar
• O’Halloran, R., Grohn, B., & Worrall, L. (2012). Environmental factors that influence communication for patients with a communication disability in acute hospital stroke units: A qualitative metasynthesis. Archives of Physical Medicine and Rehabilitation, 93(Supp. 1), S77–S85.
   PubMed Web of Science ®Google Scholar
• O’Halloran, R., Worrall, L., & Hickson, L. (2011). Environmental factors that influence communication between people with communication disability and their healthcare providers in hospital: A review of the literature within the International Classification of Functioning, Disability and Health (ICF) framework. International Journal of Language and Communication Disorders, 46, 30–47.
   PubMed Web of Science ®Google Scholar
• Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology, 21, 98–123.
   Web of Science ®Google Scholar
• Pedersen, P. M., Vinter, K., & Olsen, T. S. (2004). Aphasia after stroke: Type, severity and prognosis. The Copenhagen aphasia study. Cerebrovascular Diseases, 17(1), 35–43.
   PubMed Web of Science ®Google Scholar
• Pound, C., & Jensen, L. R. (2018). Humanising communication between nursing staff and patients with aphasia: Potential contributions of the humanisation values framework. Aphasiology, 32(10), 1209–1233.
   Web of Science ®Google Scholar
• Power, E., Thomas, E., Worrall, L., Rose, M., Toger, L., Nickels, L., … Clarke, K. (2015). Development and validation of Australian aphasia rehabilitation best practice statements using the RAND/UCLA appropriateness method. BMJ Open, 5, 1–15.
   Web of Science ®Google Scholar
• Richards, L., & Morse, J. (2013). Readme first for a user’s guide to qualitative methods (3rd ed.). Los Angeles, CA: Sage.
   Google Scholar
• Rose, T., Worrall, L., & McKenna, K. (2003). The effectiveness of aphasia friendly principles for printed health education materials for people with aphasia following stroke. Aphasiology, 17(10), 947–963.
   Web of Science ®Google Scholar
• Ruiz, J., Mintzer, M., & Leipzig, R. (2006). The impact of e-learning in medical education. Academic Medicine, 81, 207–212.
   PubMed Web of Science ®Google Scholar
• Simmons-Mackie, N., Kagan, A., O’Neil, C., Huijbregts, M., McEwen, S., & Willems, J. (2007). Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change. Aphasiology, 21, 39–66.
   Web of Science ®Google Scholar
• Simmons-Mackie, N., Raymer, A., Armstrong, E., Holland, A., & Cherney, L. (2010). Communication partner training in aphasia: A systematic review. Archives of Physical Medicine and Rehabilitation, 90, 1814–1836.
   Google Scholar
• Simmons-Mackie, N., Raymer, A., & Cherney, L. R. (2016). Communication partner training in aphasia: An updated systematic review. Archives of Physical Medicine and Rehabilitation, 97, 2202–2221.
   PubMed Web of Science ®Google Scholar
• Thompson, J., & McKeever, M. (2014). The impact of stroke aphasia on health and well-being and appropriate nursing interventions: An exploration using the theory of human scale development. Journal of Clinical Nursing, 23(3-4), 410–420.
   PubMed Web of Science ®Google Scholar